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CCSVI monitoring

Started by Ethan Reed2 · · 👁 4 views · 3 replies

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Participants Ethan Reed2Scott Allen10
Ethan Reed2 Ethan Reed2 NewcomerOP
5 messages
joined Oct 2010
#1 ·
Hi everyone,
I’m starting a new thread on a topic we all care about—one that usually sparks some pretty heated debates. Since more and more people have undergone the "liberation" procedure, I thought it would be helpful if those who actually went through it shared their firsthand experiences. To keep things organized, I’m asking anyone who hasn't had the procedure to please refrain from commenting or debating here; let's keep this space strictly for those who have actually completed the treatment. I’m also suggesting a specific template to follow so we can bypass subjective opinions and stick to the raw facts. This format is adapted from the This is MS forum, where people from all over the world share their stories. These accounts are incredibly interesting, whether you've already had the procedure, are
planning to do it, or are just one of the skeptics watching from the sidelines.
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MS HISTORY

Gender M/F
Age
Years since diagnosis and MS type (RRMS, SPMS, PPMS)
Previous therapies prior to the procedure
MS symptoms before the procedure
Number of relapses before the procedure
EDSS before the procedure

THE PROCEDURE

Location and date
Type of scan and diagnosis
Type of procedure performed
Post-procedure therapy
Symptoms after the procedure
Number of relapses after the procedure
EDSS after the procedure
Ethan Reed2 Ethan Reed2 NewcomerOP
5 messages
joined Oct 2010
#2 ·
MS Medical History

Gender: F
Age: 42
Diagnosis & Type: Diagnosed in 1998, PPMS
Ethan Reed2 Ethan Reed2 NewcomerOP
5 messages
joined Oct 2010
#3 ·
MS CASE HISTORY

Gender: F

Age: 42

Year of diagnosis and MS type (RRMS, SPMS, PPMS): 1998, PPMS

Pre-procedure therapies: interferon, IVIG, Cortisone, Procarin, vitamins, minerals, acupuncture, Lioresal, Sirdalud, Normabel, etc.

MS symptoms before procedure:
-fatigue,
-left hand clenched shut,
-left arm bent at the elbow,
-spasms, spasms, spasms...
-complete loss of strength in hands and legs,
-unable to walk,

Number of relapses before procedure

EDSS before procedure: 7.5

PROCEDURE

Location and date: Germany, April 22, 2010

Imaging and findings: Contrast CT showed 80% blockage in the left jugular and 40% in the right.

Procedure type: Balloon angioplasty, no stent used.

Post-procedure therapy: none

Symptoms after procedure:
-fatigue disappeared,
-can straighten my arm,
-easier to open my hand,
-regained strength in my hands,
-able to stand for about 15 minutes with support,
-spasms have almost completely vanished.

Number of relapses after procedure

EDSS after procedure: 7
Scott Allen10 Scott Allen10 Regular
315 messages
joined Jun 2005
#4 ·
Nah, no way... we already have a dedicated thread for MS, and there's been one going for a bit regarding CCSVI too... I really don't see the point in having two separate topics covering the exact same ground. Any future experiences or stories should just head over there, so I'm locking this one down right now.

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