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Home › Lifestyle › Health › Women's Health › Avastin still isn't covered by Medicare

Avastin still isn't covered by Medicare

Started by Anonymous · · 👁 3 views · 16 replies

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Participants ALaura Hill26dustyotter2Sophia Fowler14Angela Wrightslyseal28Hannah Diaz95stormymaker24ruggedmarlin2
A Anonymous VeteranOP
3.6K messages
joined May 2005
#1 ·
Cancer patients here in America often feel like they're being left behind because they can't access treatments that are considered standard across much of Europe.

Back before 2004, expensive medications were funded directly through hospital budgets. This meant if you ended up at a "poorer" facility, you were essentially out of luck.

Since then, a specific fund was established within Medicare. A few months ago, Secretary Darko Milinović managed to cut through some of the red tape, so if a drug is on the approved list, you can get it in about ten days. 😕

However, other high-cost drugs are still supposed to be covered by those limited hospital budgets. In reality, even when specialists recommend them, hospital boards almost always reject the requests simply because the price tags are too high.

Beyond the traditional routes—surgery, radiation, and chemo—we've been seeing the introduction of so-called 'smart drugs' over the last decade.

Even though Avastin is well-tolerated and shows incredible results for women fighting breast cancer, it’s still not on the Medicare list, meaning patients have to foot the bill themselves.

Today, while I was at the Oncology Department, my doctor told me that this summer, we—the survivors—will be presented with a petition. We’re going to ask Secretary Darko Milinović to finally add Avastin to the Medicare coverage list for 2009.

I walked away feeling confused, bitter, and just plain heartbroken.
Seriously, what kind of place is this?😲

No matter what I did for the rest of the day, I couldn't shake that conversation with my doctor.
A petition for medicine!?
For actual health care?

I don't mean to cause a stir, but I'm certain there are plenty of us here who would gladly put our names down for something like this...
How many of us are there?😕

Excerpt from an interview:
We will never truly eliminate cancer.
It will always be a part of life because cancer is essentially our own cells spinning out of control.
The best we can do is recognize our limitations and leverage our strengths in the fight against tumors.
Fighting cancer is a marathon, not a sprint. Our success depends entirely on collaboration between scientists, clinicians, the public, and individual patients.

American scientist Ivan Đikić
A Anonymous VeteranOP
3.6K messages
joined May 2005
#2 ·
26 people have read this 😕 and yet nobody has posted 👍
Well, I guess I'll be the first one to jump in 👍 hopefully I'm not the only one here...😲
Laura Hill26 Laura Hill26 Newcomer
1 message
joined Jun 2009
#3 ·
It’s a similar story over in the United Kingdom; they run these massive campaigns because the government is essentially refusing to foot the bill for anything—even though the drug most frequently cited for treating breast cancer is Herceptin.
Unfortunately, everything boils down to money, and watching them throw such vast sums at absolute nonsense just leaves me feeling utterly disillusioned...
dustyotter2 dustyotter2 Newcomer
3 messages
joined Mar 2009
#4 ·
Here I am posting 👍

I am keeping my fingers crossed that they add this medication to the coverage list immediately, that you can all receive treatment without delay, and that you find full recovery so this entire ordeal can be behind you as soon as possible.

Laura Hill26—Herceptin wasn't even covered under Medicare here until just two years ago, but women fought for it through media pressure and advocacy, so Moth—perhaps you might consider trying a similar approach.
Sophia Fowler14 Sophia Fowler14 Newcomer
5 messages
joined Jan 2009
#5 ·
Honestly, things in America are always such a mess and upside down, so I can't say I'm surprised by this petition at all. Still, it’s pretty great that a few people with the same mindset decided to band together and actually start something positive!
You have my vote—just let me know when and where I need to sign up.🙂
👍👍 👍

PS.
Petitions like this one really help bring people together, and once you see some actual results, it just makes everyone feel a lot more empowered.
A Anonymous VeteranOP
3.6K messages
joined May 2005
#6 ·
dustyotter2 said:So, I'm posting this 👍

I'm crossing my fingers that they get the medication added to the coverage list—hopefully soon—so you can all get treated and put this whole nightmare behind you.

Maya—even here in the States, Herceptin wasn't covered until about two years ago. A group of women fought for it through the media, so Moth—it might be worth looking into making some noise that way too.

Honestly, thank God it’s been almost five years since I dealt with all of this, and I really hope it's stayed in the past.
I fall into that category of women diagnosed with triple-negative breast cancer. Thankfully, I don't need the specific drug anymore, but there are so many women in America right now who desperately need it and just can't afford the astronomical cost.

I truly hope we can make a difference if we work together...
👍
A Anonymous VeteranOP
3.6K messages
joined May 2005
#7 ·
Sophia Fowler14 said:In America, everything seems to be upside down and backwards, so this petition doesn't really surprise me! Regardless, it's great to see a few like-minded people teaming up to start something positive!
Count me in—where and when can I sign???🙂
👍👍👍

PS.
Petitions like this one bring people together, and once they actually see some results, it makes the whole community much stronger!!

I'm right there with you... unfortunately, it makes you wonder about things here in our beautiful country.😢

I'm not quite sure when things will get moving. I'm down south, and as the saying goes:
"The further south you go, the sadder it gets"... which feels pretty accurate for my city right now.
Trust me, I am more than willing to join everyone else across America in supporting this.👍

As soon as I hear any updates regarding this petition, I'll definitely post them here.👍

Sending warm wishes from the sunny South to everyone who took a moment to look at this post! 🙂
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#8 ·
If you want to help us fight for access to life-saving medications, reach out to the "For a New Day" Association.
Over the past year, we’ve successfully fought to get expensive drugs like Sutent and Tarcev added to the Medicare coverage list, and we aren't stopping there. Late last year, we wrapped up a massive petition demanding that the government take full responsibility for covering all treatments for cancer and other debilitating diseases.
The issue with Avastin is systemic: doctors are being discouraged from prescribing it because they keep hitting the limits of hospital budgets allocated for Avastin. It’s a rigged game where hospital administrators put immense pressure on physicians, essentially threatening their jobs if they blow the budget by providing necessary care.

We have to stand up and make some noise together, because silence and passivity are just invitations for things to stay broken. Our small group of five running this Association is incredibly loud, but we need a movement behind us. If we had a real crowd backing our play, we’d likely have secured much more than just these two drugs. 👍
slyseal28 slyseal28 Member
11 messages
joined Mar 2007
#9 ·
Anonymous said:Cancer patients in America are often treated like second-class citizens because they can't access the same medications that are considered standard in Europe.

Up until 2004, expensive drugs were paid for out of individual hospital budgets. This meant patients at "poorer" hospitals were essentially left behind.

After that, a special fund was established within Medicare. A few months ago, the Secretary, Darko Milinović, managed to cut through some of the long-winded administrative red tape, so now you can get certain drugs in about ten days—provided they actually make it onto the approved list. 😕

However, other high-cost medications are still supposed to be funded by those limited hospital budgets. In practice, despite what specialists recommend, this almost never happens because hospital boards routinely reject requests due to the sheer cost of the drugs.

Beyond the traditional options—surgery, radiation, and chemo—we've been seeing the introduction of so-called 'smart drugs' for about ten years now.

Even though it’s well-tolerated and shows incredible results in treating women with breast cancer, the drug 'Avastin' still isn't on the Medicare list, leaving patients to foot the bill themselves.

Today, while I was at my doctor's office in the Oncology Department, I was told that this summer, they’ll be presenting a petition to Secretary Darko Milinović. We'll be demanding that Avastin finally be added to the Medicare list for 2009.

Confused, bitter, and honestly just sad, I found myself wondering:
What kind of place is this?😲

No matter what else I did today, I couldn't shake that conversation with my doctor.
A petition for medicine!?
For actual health care!?

I don't mean to confuse anyone; I'm sure there are plenty of people here who would gladly put their names down for something like this...
How many of us are there?😕

Excerpt from an interview:
We will never truly eradicate cancer.
Cancer will always be a factor because it stems from our own cells, which we eventually lose control over.
The only thing we can do is recognize our limits and leverage our strengths in the fight against tumors.
Fighting cancer is a marathon, and we can only find success through genuine cooperation between scientists, clinicians, the general public, and individuals alike.

American scientist Ivan Đikić

Avastin is actually on the list here for colon cancer, but it isn't categorized under the high-cost drug list, meaning it has to be covered by hospital budgets. Our Association is fighting tooth and nail for Avastin and other vital medications, and any help would be greatly appreciated!

Here are a few articles:

how to access expensive drugs

about avastin
Hannah Diaz95 Hannah Diaz95 Newcomer
2 messages
joined Nov 2008
#10 ·
for all these kinds of stunts👍👍👍👍👍
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#11 ·
Hannah Diaz95 said:regarding all these kinds of moves👍👍👍👍👍

Thanks for the👍, but honestly, we could really use some actual, hands-on advocacy. Right now, there are only five people out there actively fighting for access to Avastin... which is a drop in the bucket considering how many people are actually battling this, don't you think?😳
stormymaker24 stormymaker24 Active Member
98 messages
joined Sep 2008
#12 ·
👍👍👍

Angela Wright, I would be most grateful if you could provide some specific details regarding the kind of assistance your Association requires concerning Avastin. It is my sincere intention to offer my help.
I am posing this inquiry publicly in the event that other forum members might share this interest, though please feel free to send the specifics via private message if you prefer privacy. I shall be away from the internet for approximately the next fifteen days, but I will certainly reach out once I return.

Best regards!
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#13 ·
stormymaker24 said:👍👍👍

Angela Wright, I’d love to know more about what kind of help the Association needs regarding Avastin. I really want to pitch in.
I’m asking you here publicly just in case anyone else on the forum is interested, but feel free to shoot me a private message if you'd rather keep it quiet. I won't be online for the next two weeks or so, but I'll reach out as soon as I'm back.

Best!

Head over to www.foranewday.org and join the Association to get started. We have several initiatives lined up for this fall, and we’re going to need some active hands on deck. All members will receive email updates regarding our upcoming actions. You'll find our contact emails there if you need to reach us, and of course, the forum is always available too.
A Anonymous VeteranOP
3.6K messages
joined May 2005
#14 ·
Angela Wright said:Check out our website at www.foranewday.org and sign up for the Association to get things rolling. We’re planning several initiatives this fall and really need some active members on board. Once you join, we'll send all the updates about our upcoming projects directly to your inbox via email. You'll also find our contact info there if you want to reach out, but feel free to keep using this forum too.

Are you talking about signing up online?😕 Something isn't loading for me🤷...
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#15 ·
Anonymous said:Are you talking about the online portal?😕 Something isn't loading for me🤷...

Thanks for the heads-up. We were running some site upgrades, and clearly, things got a bit messy during the process. We'll have it sorted out sometime tomorrow, so check back then.😉
ruggedmarlin2 ruggedmarlin2 Member
13 messages
joined Jun 2012
#16 ·
I’m reopening this thread...

It seems to me that absolutely nothing has changed over the last five years—not a single thing. It makes me wonder if there is actually any way to influence this situation, or if we're just spinning our wheels? Does anyone here have any actual experience or insights that might be useful? Perhaps there is an Association out there worth reaching out to for support? Any help would be appreciated.
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#17 ·
ruggedmarlin2 said:Bumping this thread...

It looks like absolutely nothing has changed over the last five years, which makes me wonder if there's actually any way to shake things up. Does anyone have any experience or insight that might help? Or maybe a specific advocacy group or non-profit I could reach out to for support? Thanks.

Look, Avastin was approved ages ago and it's already covered by Medicare for cases like metastatic colorectal cancer. In fact, when you're dealing with wild-type cells, using Avastin alongside Erbitux is considered the gold standard first-line treatment. So, honestly, I don't see what the issue is here. 🤷

EDIT: Give me your answer on the other thread; I'm suggesting the mods just lock this one down.

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