Diagnosis: Osteomyelofibrosis?

I'm posting this to get some help:
A friend's father (57) was diagnosed with osteomyelofibrosis. He’s been getting treatment through regular visits to Mayo Clinic and taking various meds—he's on alpha-interferon now after moving up from something "lighter"—but honestly, he isn't seeing much improvement. We're looking for a second opinion.
Does anyone have advice on what our next move should be?

1) Is there a top-tier private clinic here in the States (any specific ones?) that specializes in this? Basically, who is the best hematologist in the US? Money isn't really an issue at this point.

2) Or maybe a specialist clinic over in Germany?

I'd really appreciate any leads or recommendations you guys can throw my way.
Also, if anyone here has dealt with this disease personally, I'd love to hear your story. I've done the whole internet deep dive, but nothing beats hearing from actual people going through it or their families.

Thanks again.

Nathan Newman3 said:This thread was started on behalf of someone else:
A father (57) has been diagnosed with osteomyelofibrosis. He’s currently being treated through periodic visits to Mayo Clinic and some medications (he’s on alpha-interferon now, though he was on something "lighter" before), but there hasn't been any real improvement. They are looking for a second opinion.
Does anyone have suggestions on what steps to take next?

1) A private clinic in the US (any specific ones?)—I assume this falls under hematology specialization. Who is the top hematologist in the States? Money isn't an issue.

2) A clinic in Austria.

I’d be grateful to anyone who can recommend a facility or a specialist.
If anyone here knows someone who has dealt with this disease, I’d love for you to share your experiences. I've done some reading online, but it’s a different story when you hear from actual people and those close to them.
Thanks again.

Who is he seeing at Mayo Clinic!?
OMF is quite... well, check this link for context.
http://theoncologist.alphamedpress.o.../11/8/929#SEC5

It's a review article from September 2006 and still holds up. The last author is our guy mentioned above (Dr. Verstovsek), who works over at MD Anderson Cancer Center researching new anti-tumor drugs.

As far as hematologists go, you don't necessarily need to go private!!!!

Look, I get that she doesn't strictly *need* to go private, but she’s got the funds and is dead set on getting a second opinion from one of our top-tier hematologists. In her mind, "world-class" is basically just code for "expensive private practice." My take on the situation is a bit different, but...

Not even a big deal🙄

The medical clinic "Dr. House" at 123 Main St, New York, NY 10001
http://www.clinic-bates.com

Sure, you could always head over to Bates, but if you ask me, the crew over at Rib is way ahead of the curve when it comes to those kinds of comparisons!
I mean, look at someone like Dr. Nemet
or the folks at Mayo Clinic... specifically Dr. Ajdukovic