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Dealing with HPV - any advice?

Started by lonehawk172 · · 👁 4 views · 13 replies

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Participants lonehawk172David Wilson4Gerald AdamsAngela Wrightdarksurfer39Lisa Doyledarkpuma5
lonehawk172 lonehawk172 MemberOP
10 messages
joined Apr 2010
#1 ·
Hey there!
I’ve already gone on another thread on Facebook explaining how much of an idiot I was being, but right now I really need some medical clarification.😢.
Basically, I just got my lab results back, and they say: "Weakly positive for high-risk HPV (16, 18, 31, 33, 35... 68)."
So, here's my question: does this mean I actually have every single one of those 15 high-risk types, or am I just testing positive for *one* from that group?
Also, I want to know if other people diagnosed with HPV get results listed like this, or am I some kind of statistical anomaly who somehow caught 15 different strains after just one sexual encounter? What does that even imply? One more thing—can men carry and pass on these lower-risk strains without ever showing symptoms like genital warts?
Thanks!🙏
lonehawk172 lonehawk172 MemberOP
10 messages
joined Apr 2010
#2 ·
Anyone got anything to add...?:
David Wilson4 David Wilson4 Newcomer
1 message
joined Apr 2007
#3 ·
Basically, this means you’ve picked up one (or maybe more, if you're unlucky) of those viruses. But honestly, the specific strain doesn't really change the game for you. What actually matters is knowing whether it’s categorized as high-risk—because that’s where things get serious. You can't actually cure it, so the whole goal is to get on treatment to manage it and then stay on top of regular checkups to make sure everything stays under control.
As for the guys or the low-risk strains, they don't necessarily have them sitting around. Those types of outbreaks usually happen when someone's immune system takes a hit and the virus decides to flare up.
Anyway, I hope that clears things up a bit.
Gerald Adams Gerald Adams Newcomer
4 messages
joined Dec 2013
#4 ·
Look, everything you need to know has already been said. My results were the same—I just knew I was positive for high-risk HPV, but didn't have the specific strain identified. Your results depend entirely on which test they run—either Digene or an HPV DNA PCR test. Based on what I saw on the Quest Diagnostics website, they clearly used Digene for both of us. I'm not claiming to be some genius here 😉. But check this out—it’s straight from their site. Do yourself a favor and actually read the latest updates on these medical pages. You'll pick up a lot more that way.

The Digene hc2 (Hybrid capture 2) HPV DNA test falls under hybridization DNA testing. It’s the go-to for most diagnostic labs because it’s been around forever—it doesn't require crazy specialized lab conditions or highly trained molecular geneticists, making it the easiest and cheapest option for a lab to run. It works by grouping the test into 13 high-risk HPV types and 5 low-risk types.
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#5 ·
Don't spiral. Just keep a steady hand on things and hang in there for a year or two until the medication finally hits the US market. 🙂
I just really hope your boyfriend is as responsible as you say he is and actually stays mindful of his next moves.
darksurfer39 darksurfer39 Member
13 messages
joined Feb 2007
#6 ·
I’ve mentioned this before, but honestly, using condoms from here on out is super important, and you should really look into boosting your immunity too. Something based on Aloe vera or maybe some Noni juice could be great—I know quite a few women who found that it really helped them clear their results... In your case, getting your Pap smears done more frequently is definitely the way to go. If things ever progress toward CIN, I’d suggest being prepared. I actually know a woman who dealt with high-risk HPV that actually changed her cervical cells all the way up to CIN III, which is that pre-cancerous stage... She ended up having a cone biopsy (that’s where they remove a small surface portion of the cervix), and she was able to successfully give birth to a beautiful baby girl right after. Even if things take a turn for the worst and you need monitoring, it’s still not a tragedy... Just listen to me, grab some Noni juice regardless of the cost, drink it for about three months, and see if it helps "numb" the HPV. Definitely run it by your doctor first, though... you can find it at any local pharmacy.😘
Lisa Doyle Lisa Doyle Member
25 messages
joined May 2008
#7 ·
The HPV virus is incredibly common... we’re talking about roughly 90% of women, so honestly, don't act surprised if you have it. It’s just the reality of things. The real danger comes from those high-risk strains because they have a much higher tendency to trigger cervical cancer. But here’s the thing: cervical cancer is COMPLETELY curable if you catch it early... so whether you've got a high-risk or low-risk strain, it all comes down to one thing: Pap smears, Pap smears, and more Pap smears. Now, there is also PCR testing. A PCR (polymerase chain reaction) test is arguably the gold standard since it relies on the exponential multiplication of tiny amounts of viral DNA, making the virus way easier to detect. I’m pretty sure it costs a fortune, though... which probably doesn't matter much given your situation, since you want the most accurate result possible—something a regular Pap smear doesn't always guarantee, but I'm just saying. From what I understand, women with HPV are advised to get Pap smears every six months (correct me if I'm wrong), so with checks that frequent, the margin for error gets slimmed down significantly.
Don't sweat it... as long as you stay on top of your regular checkups, you'll be fine...
As for medication, I really don't know how things work in that department...
darksurfer39 darksurfer39 Member
13 messages
joined Feb 2007
#8 ·
Edward Sanchez72 said:The HPV virus is incredibly common... it’s estimated that about 90% of women will deal with it at some point, so there's really no reason to be surprised if you have it. It's just the way things are, unfortunately. The real danger comes from high-risk strains because they have a much higher tendency to trigger cervical cancer. The good news is that cervical cancer is COMPLETELY curable if caught early... so whether you have a high-risk or low-risk strain, it all comes down to Pap tests, Pap tests, and more Pap tests... Oh, and there's also PCR testing now. A PCR (polymerase chain reaction) test is actually the gold standard since it relies on exponentially multiplying tiny amounts of the virus's DNA, which makes it much easier to diagnose. I have a feeling it's pretty pricey, though... and honestly, in your current situation, that might not even matter since you just want the most accurate result possible—something a standard Pap test doesn't always guarantee, but I'm just mentioning it. From what I understand, women with HPV are usually advised to get a Pap test every 6 months (please correct me if I'm wrong), so frequent checkups really help minimize the chance of anything slipping through the cracks.
Don't worry too much... as long as you stay on top of your regular screenings, you'll be okay...
As far as medication goes, I'm really not sure how things work there...

Edward Sanchez72 is absolutely right... even though every woman should ideally be getting a Pap test every six months, that isn't really the standard practice here in the US. Let me tell you why more frequent checks are so important... I have a friend, she's 30 and hasn't had kids... she went for her annual Pap test every single year, but in her case, once a year just wasn't enough. When she finally went in for a routine checkup, the results were devastating—cervical cancer. If she had gone twice a year, she would have had a much better shot at catching it early. It feels like she was hit with a "worst-case scenario" overnight; she had to go through intense chemotherapy and radiation, and now she's dealing with the side effects of radiation and unbearable bone pain 🙂 whereas at the very beginning, she could have avoided all of that entirely. So, can someone enlighten me... I know HPV causes most cervical cancers, but is it possible for a malignant tumor to develop in that area even in people who are HPV negative? 🙄 I didn't mean to scare anyone with this post, I just think it's better to take extra precautions because of stories like this. Regarding treatment... it mostly seems to boil down to strengthening your immune system.
darkpuma5 darkpuma5 Member
22 messages
joined Dec 2006
#9 ·
Just a quick question here—I see there are some folks in this group who actually know their stuff.

What are the odds (and does anyone here know someone this happened to) that an HPV typing comes back negative, but the virus is actually still hanging around? Is there a chance a doctor could mess up the swab, or is it possible the test just misses it entirely at certain points?
darksurfer39 darksurfer39 Member
13 messages
joined Feb 2007
#10 ·
darkpuma5 said:Just a quick question for those who might be in the loop here.

Is there any chance—and has anyone actually dealt with this?—that an HPV typing test comes back negative even if the virus is still present? I'm wondering if a doctor could make a mistake during the swab, or if there's just a window where it simply isn't detectable...

Basically, if you really boost your immune system, a typing test can show as negative even if you still have HPV. The thing is, once you catch it, it stays with you for life since there isn't a cure yet. A negative result just means your body is doing a great job fighting it off and keeping the virus in a "dormant" state. If your immune system takes a hit later on, the virus could resurface, and then the typing test would pick it up again. So, yeah, when the virus is in that latent stage, it's impossible to prove it's there through either a Pap smear or HPV typing...
darkpuma5 darkpuma5 Member
22 messages
joined Dec 2006
#11 ·
darksurfer39 said:The only thing is, if you really boost your immune system, your typing tests might come back negative even if you actually have HPV. That’s because you can't ever truly get rid of it—once it's in your system, it stays there for life. There isn't a cure yet. But if your results are negative, it just means your body is doing a great job fighting it off and keeping the virus "dormant." If your immune system takes a hit later on, the HPV could resurface, and then the typing test would pick it right up again. Basically, you can't prove the virus is there when it's in that latent stage, whether it's through a Pap smear or an HPV typing test!

Thanks! 🙂

I'm asking because my doctor was honestly baffled by my recent test results. She was almost 100% certain I had HPV, but then the lab work came back totally clear. Of course, I was over the moon about it, but I still have this tiny little nagging doubt in the back of my mind. So, I'm just looking for answers. 🙂
lonehawk172 lonehawk172 MemberOP
10 messages
joined Apr 2010
#12 ·
Sorry I haven't weighed in sooner, but I don't have a computer at my place, so I'm checking in via the local library.
Anyway, thanks to everyone for the input.🙂
darksurfer39 darksurfer39 Member
13 messages
joined Feb 2007
#13 ·
darkpuma5 said:Thanks... 🙂

I’m asking because my doctor was honestly a bit baffled by my recent test results. She was almost 99% certain that I had HPV, but when the actual lab report came back, everything looked perfectly fine. Of course, I’m absolutely thrilled about the news, but a tiny little seed of doubt is still lingering in the back of my mind... so I figured I'd check in here. 🙂

I’m heading in for my screening soon... A few years back, when I had that CIN I diagnosis, they noted an "HPV connection," but that doesn't necessarily mean I currently have it. Back then, I was dealing with some pretty intense inflammation which led to the CIN I... but that was just a one-time thing. My Pap smears have been totally fine ever since, yet I still can't shake this nervous feeling... I just want to be absolutely certain that everything is clear... 😬 It’s getting pretty pricey... $133 I went to one of those local clinics recently, and man, I thought they were charging an absolute fortune... 😲
darksurfer39 darksurfer39 Member
13 messages
joined Feb 2007
#14 ·
darksurfer39 said:I’m heading in for testing soon... because a few years back, my results showed some HPV links alongside a CIN I diagnosis. That doesn't necessarily mean I actually have the virus, since I had a really bad inflammation that caused the CIN I... but it happened once, and my Pap smears have been totally fine ever since. Still, I can't stop worrying about it... I just need that peace of mind to know it's gone 😬 It costs $133 at a private clinic, which feels pretty pricey to me 😲

Well, I finally got my answers! My test results came back and I'm HPV negative—yay! I figured if it were still there, it would have shown up, especially since my immune system has been pretty weak over the last couple of months. I'm so relieved 🎉 Also, just a heads-up for anyone currently dealing with it: you can definitely test negative after finishing treatment! 👍

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