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Heart Failure

Started by wiredmaker10 · · 👁 7 views · 23 replies

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Participants wiredmaker10Nicole Jamesbrightgull95Brandon Newman95Thomas Jackson9
Thomas Jackson9 Thomas Jackson9 Member
41 messages
joined Apr 2009
#21 ·
wiredmaker10 said:So, my heart MRI results finally landed on my desk, but honestly, being a total layperson, I'm staring at a mountain of data and numbers that look pretty much like my previous ones without offering any clear-cut diagnosis or "bottom line" conclusion.
The main findings go something like this:

Dilatation of the right atrium, dilatation of the left atrium (diameter 50mm, area 27cm2), LV dilatation (width up to 60mm during diastole), normal wall thickness, and the myocardium shows normal signal intensity.
There are no signs of intra-cardiac tumors or pericardial effusion.
In Cine mode, myocardial contractility is normal, with mild mitral regurgitation. No signs of a shunt.
Myocardial perfusion testing at rest appears normal.
On delayed sequences following the IV administration of contrast agent, the myocardium displays normal signal intensity.

LV volumetry and function: EF: 46.1%...

I really appreciate all the info and explanations provided here; thanks to you all, I managed to untangle a few of the confusing bits and contradictions.

"No signs of a shunt"—that basically means there’s no communication between the two atria or the two ventricles, meaning no ASD or VSD, or essentially no holes in the heart, which is fantastic news! Did they happen to mention anything regarding pulmonary pressures anywhere in the report?
wiredmaker10 wiredmaker10 NewcomerOP
9 messages
joined Sep 2020
#22 ·
Unfortunately, I still haven't received any updates regarding my heart volume or pulmonary pressures... It’s a bit unsettling, honestly, being categorized as high-risk given everything going on with this COVID situation
wiredmaker10 wiredmaker10 NewcomerOP
9 messages
joined Sep 2020
#23 ·
So, things have actually turned out much better on my end than I initially expected... basically, it looks like the diagnosis was just a total wash. They had to push back my ablation because of some issues with my coronary arteries, which actually gave me enough time to get enrolled in a clinical trial and undergo an experimental ablation procedure instead. For now, they've successfully converted the atrial fibrillation back into a normal rhythm. Through cardiac mapping, they found there’s no fibrosis present, which is huge. My heart is still quite enlarged and somewhat weak, but I truly believe it could recover... maybe even get me back to a completely normal life. And since this is part of an American clinical study, they’ll be keeping a very close eye on me for the next 12 months, which is a nice little bonus...
I just really hope my situation can offer a bit of hope and optimism to anyone else out there facing something similar...
Nicole James Nicole James Regular
313 messages
joined Dec 2010
#24 ·
wiredmaker10 said:In my case, things have actually turned out much better than expected—it looks like the diagnosis was essentially just water retention issues. They had to push back my ablation because of some coronary concerns, which actually gave me enough time to get enrolled in a clinical trial here in the States for an experimental ablation procedure. So far, they’ve successfully converted my atrial fibrillation back into a normal rhythm. Through cardiac mapping, they confirmed there isn't any fibrosis present. My heart is still quite enlarged and somewhat weak, but I truly believe it has the potential to recover and eventually get me back to a completely normal life. Since this is part of an American clinical study, they’ll be monitoring me closely for the next 12 months—which, honestly, is a massive benefit in itself.
I really hope my experience can offer a bit of hope and optimism to anyone else facing a similar struggle.

I am genuinely glad to hear things worked out for you. 👍

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