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Feeling off: Persistent insomnia, weight loss, and loss of appetite

Started by Nicole Chavez5 · · 👁 4 views · 7 replies

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Participants Nicole Chavez5Angela Wrightboldnomad45Lawrence Wellsamberfox4
Nicole Chavez5 Nicole Chavez5 NewcomerOP
7 messages
joined Apr 2009
#1 ·
It all started a few months ago, triggered by one particularly stressful incident.
I’ve been dealing with a non-functional pituitary tumor for years. I had my first surgery because it was messing with my cycle, but it eventually grew back. My doctors have been monitoring it for quite some time now. For most of these years, I felt fine, though the sheer anxiety leading up to my check-ups was always overwhelming. Usually, a medical board meets once a year to review my case, so you can imagine how much pressure that puts on me.

Basically, when my last MRI showed growth, I went into total shock. I think, deep down, I was hoping it would stay the same size, so seeing that change was mentally devastating. Shortly after, the physical symptoms hit—first, my cycle went haywire, which my doctor managed with Prover, and then I started waking up at 3:00 AM drenched in sweat, unable to drift back to sleep until dawn. My doctor ordered tests, and while my blood work and hormone levels were normal, my blood sugar and cholesterol were high. A month later, I did a glucose tolerance test, which came back fine.

Things settled down for about a month, but by the middle of the third month, terrible insomnia kicked in. I’m not just tossing and turning; I am literally getting zero minutes of sleep during the night. I used to fall asleep easily, but now, sometimes I go several nights in a row without any rest at all. After one such night, I lost two and a half pounds; in total, I’ve lost 7 pounds since this nightmare began. I can barely function anymore; the lack of sleep has left me completely drained. I’ve tried everything—every natural remedy under the sun—but nothing works. Even the Moon pill my doctor prescribed didn't help me sleep last night. I’m at a loss. I don't know what to do or what the cause could be. Is this a sign of a more serious illness?

I’ve been given new referrals for more blood work. I’m at my breaking point; the insomnia is killing me, and the dread of waiting for these results is just as bad.
Nicole Chavez5 Nicole Chavez5 NewcomerOP
7 messages
joined Apr 2009
#2 ·
It all started a few months back, triggered by one particularly stressful incident.
I’ve been dealing with a non-functional pituitary tumor for years now. I had my first surgery because it messed with my cycle, but it eventually grew back. My doctors have been monitoring it for quite some time. For most of those years, I felt fine, though the sheer anxiety surrounding my check-ups was always overwhelming. Usually, a medical board meets once a year to review my case, so you can imagine the mental toll that takes. It's been this way for years.

Anyway, after my last MRI showed growth, I went into complete shock. I think, deep down, I was hoping it would stay the same size, so seeing that change was psychologically devastating. Shortly after, the physical symptoms hit—first my cycle went haywire, which my gynecologist addressed with Prover, and then I started waking up drenched in sweat at 3:00 AM, unable to drift back to sleep until dawn. My doctor ordered tests; my blood work and hormone levels were normal, aside from elevated blood sugar and cholesterol. A month later, I took a glucose tolerance test, and that came back fine too.

Things settled down for about a month, but by the middle of the third month, debilitating insomnia set in. I’m not just tossing and turning; I am literally getting zero minutes of sleep during the night. I used to fall asleep easily, but now, sometimes I go several nights in a row without any rest at all. After one of those nights, I lost 2.5 pounds; since this whole mess began, I've lost 7 pounds total. I can barely function anymore; the lack of sleep has left me completely drained. I've tried everything—every natural remedy under the sun—but nothing works. Even the Moon pill my doctor prescribed didn't help me sleep last night. I’m at a loss. What could be causing this? Is it a serious illness, or something else?

I’ve been given new referrals for more blood work. I'm running on empty, exhausted by both the insomnia and the dread of waiting for my results... I can't even begin to list the worst-case scenarios spinning in my head.

Also, could the admin please delete this same thread from the women's health PDF?
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#3 ·
Are the kidney hormones looking alright too?
The thing is, if you try to get the adrenal glands firing while dealing with hyperthyroidism, let alone trying to juggle a pituitary issue on top of that, you’re basically asking for a total system meltdown.
Nicole Chavez5 Nicole Chavez5 NewcomerOP
7 messages
joined Apr 2009
#4 ·
Angela Wright said:Are the kidney hormones looking alright too?
The thing is, if you try to get the adrenal glands firing while dealing with hyperthyroidism, let alone trying to juggle a pituitary issue on top of that, you’re basically asking for a total system meltdown.


They fall within the normal range.
boldnomad45 boldnomad45 Active Member
148 messages
joined Dec 2020
#5 ·
I think you're handling this fine. You’re terrified, and the stress levels are through the roof, but honestly? Anyone else in your shoes would be dealing with the same insomnia, the sweating, all of it. It's a rational reaction.
The fear hit you hard, and it hasn't let go.
There isn't a magic fix—nobody has one. I actually just saw a psychiatrist recently for my own anxiety. I spoke with a brilliant woman there who has been through exactly what you're navigating right now. Regarding her tumor, she's doing okay, but she's struggling with PTSD. She lives in constant terror and anxiety. She's hesitant about inpatient rehab because she's so scared, so she keeps searching for answers through seminars, prayer, group therapy... anything. But she's considering residential care because the fear is becoming unmanageable. She can't just move on with life when she has kids and responsibilities to handle; the idle chatter from people just grates on her nerves. She wants to scream at everyone: "Do you realize how fragile life is? We could be gone today." It’s impossible to just go back to business as usual after staring death in the face.
Talk to a psychologist, lean on your inner circle, and prioritize self-care.
Lawrence Wells Lawrence Wells Regular
312 messages
joined Jun 2006
#6 ·
The only thing I can think of asking you guys right now—did anyone actually get their cortisol levels checked?
Nicole Chavez5 Nicole Chavez5 NewcomerOP
7 messages
joined Apr 2009
#7 ·
Lawrence Wells said:The only thing I can think of asking you guys right now—did anyone actually get their cortisol levels checked?

About a month before these issues started, I had my urine cortisol tested during a routine pituitary checkup, and everything looked fine—thyroid included.

I followed up with thyroid tests twice after that. Aside from one instance where my free T3 was slightly elevated, everything else was normal. My specialist told me those results were fine, suggesting the timing just caught the moment T3 was converting to T4 in my liver.

Three months later, I ran another panel for total hormones. Everything was within range, even if they were hovering near the lower limits. TSH was normal.
amberfox4 amberfox4 Active Member
75 messages
joined Sep 2008
#8 ·
A chronic lack of sleep takes a devastating toll on your entire physiological system, compounding both physical and psychological stress levels; and since you currently require a high degree of mental stability to navigate these challenges and resolve them with minimal added friction, I truly believe the most critical first step is to consult with a physician to find a way to facilitate restorative rest.

Navigating everything else becomes exponentially more difficult when you are perpetually sleep-deprived.
As for the rest of your points, I find myself somewhat out of my depth, so I shall refrain from commenting.

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