Dealing with a cluster of symptoms: tinnitus, dizziness, fatigue, vision issues, neuropsychological,

Chris Perez4 said:Maybe try some Multivitamins

If it really is a B vitamin issue, I guess just a Multivitamin might not cut it. A ton of people on the CFS forums have symptoms pretty similar to yours, and they say they feel better once they start B vitamins—but usually, they're taking like 5 to 10 other high-dose vitamins alongside the Multivitamin.

@OP
Maybe poke around those CFS forums and see if you fit in there. You might find a fix for your stuff.

James Fox5 said:If the issue actually stems from a deficiency in B vitamins, then just taking a Multivitamin won't cut it. A lot of people on CFS forums report symptoms similar to yours and find relief once they start supplementing, but they aren't just sticking to a Multivitamin—they’re layering in five to ten other different vitamins at quite high dosages.

@OP

I'd suggest browsing some CFS forums to see if your experience aligns with what others are going through. You might find a solution to your issues there.

I agree. Regardless, it's worth trying the "B" route.

There isn't much to lose here, aside from a little time and money.

google "SCM trigger points"
I had almost all the exact same symptoms as them.
It sounds pretty exotic, but thank God I’m a massage therapist so I was able to recognize what was happening.

UOTE=UniversalSapien;63656697]Hey,

For about three months now, things have been sliding downhill for me. It started gradually—first the ringing in my ears, then this constant buzzing in my head. I started getting sleepier and sleepier, staying in bed longer and longer, until by the end of January, I actually got sick. I hit a fever of 102.7°F along with acute bronchitis. I finished a 10-day course of doxycycline antibiotics, but since then, the initial symptoms haven't left, and new ones just keep piling on.

-tinnitus, dizziness, throbbing in my head, constant exhaustion, visual flashes/double vision, passing out, heavy and disrupted sleep, swollen face and eyes, digestive issues and bladder/bowel problems, loss of physical coordination, ataxia, slight difficulty swallowing, speech issues, borderline cognitive dysfunction, feeling cold and tingling in my lower legs, a diminished sense of bodily awareness, light sensitivity, and unregulated body temperature (I’m either shivering or sweating through my clothes constantly, regardless of whether the weather changes).

Audiology test - normal
BERA test - normal
KKS - normal
EEG - normal
Thyroid (hormones and antibodies) - normal
EKG - normal
Brain MRI - (slightly prominent cisternae, 3cm sphenoid sinus cyst)
Neck and spine MRI - (hypoplasia of the left vertebral artery)
Neuropsychological testing - (borderline cognitive dysfunction)
ENT exam - (deviated septum, scheduled for surgery to remove the sphenoid sinus cyst in 20 days; the ENT says these symptoms aren't related to the cyst, which is what all three neurologists, the ENT, and one radiologist have confirmed)

I’ve seen three different neurologists and did 10 days of physical therapy (based on the assumption that my symptoms might be caused by the hypoplasia of the vertebral artery, though the neurologist said the only fix is PT with neck traction and decompression). Nothing worked.

After running every single test under the sun, a nurse finally listened to me and suggested I go get a serology screening at the microbiology lab to see if I have toxoplasmosis..

Will a serology test actually show if I specifically have toxoplasmosis or something similar? And will it reveal if it has reached my central nervous system? Because honestly, I feel like it has—I am physically and mentally non-functional right now.

And if it turns out I do have something like that, how do I get rid of it as fast as possible? I have my final exams coming up in June, and I need to get better ASAP. I’ve been hoping things would improve for three months now, but I haven't slept properly in two months. I just lie there for 7 or 8 hours staring at the ceiling, fully aware of everything happening around me. My eyes are swollen from exhaustion, I'm hypersensitive to noise—every sudden sound hits my consciousness like an electric shock to the brain.

I don't know what else to do. I've even had some dark thoughts because I can't even sleep normally. I spend the whole night awake. At first, I thought maybe it was viral meningitis or a mild version of encephalitis, but if that were the case, I would have recovered by now. Now, I'm genuinely lost. It feels like dying is the only way I'll ever get some rest. I haven't slept in three months. Lately, I've even started having minor hallucinations, psychotic episodes, and paranoia—symptoms that started three months ago and are just getting worse due to the illness (whatever it is) and the total lack of sleep.

I'm just counting down the days until my sinus surgery in 20 days. Being put under general anesthesia is the only shot I have at finally getting some actual rest. I don't know who to turn to anymore. I've tried various medications, taking 3 or 4 Normabels at once, but nothing helps. I can't sleep because of these symptoms, and I am truly at my breaking point. Please, if anyone has dealt with anything like this, let me know. I'm 23 years old, and suddenly my life is turned upside down by a disease that none of these doctors can identify. It has turned my life into pure agony. Death feels like the only way to finally get some sleep. I don't know if I can hold out for another month.

If MS has been ruled out, then we’re likely looking at myalgic encephalomyelitis—basically Chronic Fatigue Syndrome (CFS). I'm actually really curious how you're holding up lately; are the symptoms still hitting you just as hard, or has there been any change? I've been dealing with the exact same condition and a very similar set of symptoms for five years now. If anyone else here is struggling with the same stuff and can't get a straight answer on the cause, please just shoot me a DM.

The symptoms here match mine almost perfectly, except for the double vision. I’m also not feeling quite as wiped out as I used to be—the vertigo and tension headaches finally backed off after about three months of pure hell.
Been dealing with this since last year... plus these tingling sensations in my feet for 15 years. Basically half my life. Since I was 15, I've been through the wringer with EMGs, EEGs, and spinal X-rays. Everything pointed back to anxiety... ended up on Lexapro and Paxil.
Since December, I've run every test under the sun. Ultrasounds, MRIs, X-rays, multiple EMGs... checked my vitamins, minerals, even ran Lyme and West Nile tests, though I’m pretty sure a tick hasn't touched me in my entire life. XD But whatever, health anxiety was definitely in the mix.
Did psychotherapy and meds for six months, but didn't see much movement. Some symptoms just won't quit... so I eventually just accepted them and moved on.
A bunch of neurologists and psychiatrists told me it's all mental. All the tests come back clean, yet I felt like a walking corpse.
I mean, the electrical buzzing, the pulsing in my feet, the muscle twitching all over—it's not constant, but sometimes I'll get this zap in my head, or my temple starts throbbing, or tinnitus... sometimes the ringing and pulsing in my ears gets pretty loud. Just weird shit. My tongue even used to twitch, man.🤦
Everything screamed some nasty neurological disease, or maybe I just fell into a hole of chronic anxiety and hypochondria that's hard to climb out of.