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Support resources for families dealing with cancer and other serious illnesses

Started by Angela Wright · · 👁 17 views · 1.2K replies

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Participants Angela Wrightmelloworca6Kimberly Cox58vividsailor7crimsongull20wearytrucker22Jamie Chaseneoncrane83slysurfer14Roger TaylorNancy Leevelvetmoose9Amy Torres4Chris Howard92Frank Johnson4Linda Ortiz49nimblepanther14feraldrifter6amberridge21Kevin Bishop10Charles Williams13coppermason13restlessowl3Dana Thomas6 …
nimblepanther14 nimblepanther14 Newcomer
5 messages
joined Mar 2010
#181 ·
The scan shows what looks like a lighter band at the base of the lungs.
The doctor mentioned she didn't hear anything unusual through the stethoscope.
I’m holding out hope that it’s just an imaging glitch—an error in how the scan was read.

Yeah, maybe I’m just spiraling for no reason, but you’ve got a point... I’ve been dealing with quite a bit lately.
On top of everything else, my mother has to go in for kidney surgery soon...
Thanks for the support... it isn't always easy to be "strong" or "brave." Everything feels a bit heavier lately—that constant effort to grit my teeth and tell myself things will work out, that it'll all be fine. It's exhausting. Honestly, I’d love nothing more than to just... break. If you know what I mean... But I can't. I just can't afford to.
velvetmoose9 velvetmoose9 Active Member
163 messages
joined Apr 2020
#182 ·
nimblepanther14 said:I’ve had to lay two people to rest just this past month.. 😢
And now it’s my turn to step up.. look, a tumor and thyroid surgery shouldn't be some massive ordeal, right?
But.. while getting everything lined up for the procedure, I went in for a chest X-ray..
And it turns out I have, and I quote, "a small amount of fresh pleural effusion."
I'm heading in for blood work first thing tomorrow, then seeing a pulmonologist next week..

Honestly, I don't even know where my head is at.. I'm just pissed because I really don't need this extra baggage right now.. and it might end up pushing my surgery back..
And the worst part.. maybe I'm just being a pessimist or I'm totally misinformed.. but I can't shake this nagging feeling that the fluid in my lungs is coming from the thyroid tumor.. you know what I mean..
I don't recall having any kind of infection or any chest injury that would explain this..
What should I do, maybe grab some kind of immune booster just in case..?

If it is what I think it is, I don't know what I'll do... I just don't know.. I'm scared, I'm angry, and I'm just completely lost..
And why.. why does it have to be this way.. isn't what I'm dealing with already enough... why does everything have to get so complicated?
Sorry if this is a bit much.. it's just been hard finding someone to talk to about this, so I'm venting a little here.. (mods, feel free to scrub or edit this if it's out of line) ...

No reason to delete or edit this. It's perfectly fine
I can't give you a definitive read on an X-ray report, since I don't have the full clinical picture or access to your medical files.
That finding doesn't necessarily have anything to do with your primary diagnosis.
It's definitely a good sign that you're seeing a pulmonologist so quickly to get their take.
Besides, the report specifically mentions it's just "a small amount..." so even if there is something pathological going on, it was caught before it could really progress.
To be honest, descriptions like that pop up all the time. Very often, they just vanish by the time the next scan comes around a week later.
X-ray machines aren't perfect, and half the time the equipment is ancient anyway...
So, just hang in there and stay brave 😉
By the way, go hit a gym, find a heavy bag, or go for a run on some trails—it really helps clear your head 😁
nimblepanther14 nimblepanther14 Newcomer
5 messages
joined Mar 2010
#183 ·
velvetmoose9 said: There is absolutely no reason to delete or edit this post. It is perfectly appropriate
I can’t interpret an X-ray with any real certainty—not without seeing the full clinical picture or having access to the actual medical records.
The change described doesn't necessarily have to stem from the primary illness, either.
It is certainly a good thing that a pulmonologist will be weighing in very soon.
Furthermore, since the finding was noted as being "just a little bit..." there is some comfort in knowing that even if it turns out to be pathological, it was caught before things progressed significantly.
In my experience, similar descriptions are relatively common—and quite often, they simply vanish on the follow-up scan a week later.
X-ray machines aren't infallible, and let's face it, most of them are aging equipment...
So, just stay brave. 😉
By the way, go hit the gym—a heavy bag, a running track—it helps. 😁

The X-ray machine actually broke down an hour before my turn, so I spent an hour just waiting for it to get back online...
I don't want to give you false hope...

Alright... If there is something on the lungs—a tumor, for instance—what are the odds? Actually, no... I don't want an answer just because other people on this forum might see it... That isn't right.

I am usually a regular at the gym, but my doctor told me to hold off until we figure out what that fluid in my lungs is all about.
velvetmoose9 velvetmoose9 Active Member
163 messages
joined Apr 2020
#184 ·
nimblepanther14 said:The X-ray machine broke down just an hour before my turn, so I ended up sitting there for an hour waiting for it to get back online...
I don't want to give you any false hope here...

Alright... If it turns out to be something on the lungs, like a tumor, what are the odds? Honestly, I don't even want to go there... and I'm not asking because of the other people lurking on this forum... It's just not cool how some people act.

I usually hit the gym pretty regularly, but my doctor told me to stay away from the weights until we figure out what this fluid in my lungs is all about.

...look, I'm no Milan Kundera, but I've had a gut feeling about scenarios like this before...
Just to be clear, I haven't seen the clinical picture, the actual X-ray results, or the medical records, so take this with a grain of salt.
But honestly—all the time—we see situations that look almost identical to this.
You should definitely mention that bit about the X-ray machine failing to the pulmonologist.
nimblepanther14 nimblepanther14 Newcomer
5 messages
joined Mar 2010
#185 ·
velvetmoose9 said:...I’m no Milan Kundera, but I had a bit of a "gut feeling" about a scenario like this...
Now, I should probably clarify—I don't have access to the clinical history, X-ray results, or any actual medical records, so please take this with a grain of salt.
That said—quite frequently—we see situations that look almost identical to this.
I will definitely make sure to mention the issue with that X-ray machine to the pulmonologist.

To set the record straight, my aunt mentioned that the machine wasn't fully operational (maybe it needed to cool down, or some other technical glitch, who knows) ... but once they finished the frontal view:
http://img6.imageshack.us/img6/6162/prednji.jpg

When she went in for the lateral view, the machine actually jammed up—it was quite a mess—so they had to reset it just to get that second shot:
http://img843.imageshack.us/img843/753/bocno.jpg

I'll certainly bring this up with the pulmonologist, so if they need to run the tests again, they'll know why.
Angela Wright Angela Wright RegularOP
731 messages
joined Feb 2007
#186 ·
Grdana, I’m certain you’re going to pull through this just fine. It feels like we share the exact same temperament, and our perspectives on things are pretty much aligned too. Don't let it get to you—spiraling like this only serves to invite more negativity into your orbit. Everything is under control and being handled. Honestly, there is zero reason or logic in jumping to conclusions right now. Just stay strong; before you know it, this will be nothing more than just another life lesson in the rearview mirror.
nimblepanther14 nimblepanther14 Newcomer
5 messages
joined Mar 2010
#187 ·
Angela Wright said:Grdana, I truly believe you’re going to be fine. It feels like we share a very similar temperament—we tend to see things through the same lens, don't we? Don't let this get to you; spiraling like that only invites more negativity into your orbit. Everything is being handled, and it's all under control. There really isn't any point in jumping to conclusions right now. Just stay strong—pretty soon, this will just be another small chapter in the rearview mirror.

I try my best not to jump to conclusions—really, I do—but my mind naturally starts running through every possible scenario, dissecting them one by one.
I had some bloodwork done today... I should have the results tomorrow regarding my white blood cell count, lymphocytes, CRP levels, and the rest of those markers.
Angela Wright Angela Wright RegularOP
731 messages
joined Feb 2007
#188 ·
nimblepanther14 said:I’m trying not to jump to conclusions, but of course I’m weighing all the possibilities and mapping out different scenarios.
I had bloodwork done today... tomorrow I'll know where I stand with my white blood cell count, lymphocytes, CRP, and the rest of the markers.

Mapping out scenarios is actually worse than jumping to conclusions because you’re just burning through energy on things that could play out in a billion different ways—and the odds of you guessing correctly are basically zero. You’re just exhausting yourself, stressing out, and spiraling. Honestly, this sounds like someone who, by obsessing over "what ifs" during my situation, ended up on the verge of anorexia and a total mental breakdown within three months. In the end, absolutely nothing that happened over the next three years matched any of my carefully crafted scenarios.

Accept that you might be wrong and just move forward. It's all going to work out.
nimblepanther14 nimblepanther14 Newcomer
5 messages
joined Mar 2010
#189 ·
I’m well aware of that—but I can’t exactly just sit here and "hope" for the best without any basis in reality.
Alright, perhaps I’ve dialed back my expectations a bit too much 🙂
I'll be getting my blood work results back later today, so hopefully that will provide some actual clarity.
I honestly can't decide if it's worse to be left in the dark or to actually know that something is heading south.
Jamie Chase Jamie Chase Member
20 messages
joined Jan 2015
#190 ·
Jamie Chase said:My father’s cousin faced a similar crisis: markers at 11,000, metastases throughout the abdomen, and doctors claiming only God could save her. Yet, in Venice, they operated on her—removing part of the intestine, both ovaries, the uterus, and what I believe was a portion of the liver... she underwent chemo, and remarkably, she is still alive six years later.
Now we find ourselves in a dilemma. Since everything was handled in Phoenix, we are relying on a surgeon who is supposedly highly skilled. During the procedure, a surgeon who had spent years working in New York—even serving as a department head—was present; he specializes in intestinal issues. He advised against touching the intestines because removing them would require taking out about two feet of tissue, and since the colonoscopy showed the interior looks healthy, he felt it was better to leave them alone.
It seems to me that these surgeries depend entirely on which doctor you see. We are worried that if we went to New York, they might have removed more of the affected organs. Now, should we take her to New York? (Which isn't impossible.) Our fear is that we are wasting precious time. Given her current lack of strength, they won't administer chemo. She is taking all sorts of natural supplements to build her strength up, but after three weeks, she is still quite weak, though she is taking beta-glucan. It also concerns us that they haven't performed a CT scan since the operation.
She felt particularly unwell a few times when fluid accumulated in her lungs, requiring them to drain it three separate times. Now she is on diuretics, and after taking those, she seems somewhat stable. I should note that fluid in the lungs does not possess carcinogenic properties.
The fact that they didn't remove the uterus and the second ovary is also weighing on us. Thinking logically, if the amount of cancer is greater, isn't there a higher risk of faster or wider metastasis?
What is the move here... do we wait for her to regain strength, then take her to New York or Los Angeles for a PET-CT, or pursue some other path?

And now I read this:

In patients with abdominal tumors, we often encounter large masses of tumor tissue and significant ascites; thus, the rule holds that as much tumor mass as possible must be removed. This is known as "debulking" or cytoreductive surgery, which is followed by continued treatment via chemotherapy. While controlled, randomized studies do not exist in the literature that objectively prove the efficacy of such surgical interventions in advancing disease treatment, the literature is nonetheless filled with retrospective and prospective studies supporting the theory of maximal cytoreduction during the initial surgery.

Dietl, in his review article, outlines the hypotheses that provide the theoretical foundation for primary cytoreduction: 1) surgical debulking potentially removes cell clones that are resistant to chemotherapy, 2) removing large tumor masses allows for better blood flow to the remaining tumor, facilitating easier access for chemotherapeutic agents, 3) a smaller volume of disease requires a lower dose of chemotherapy, thereby increasing efficiency, and 4) removing large tumor masses improves the patient's nutritional and immune status. Retrospective studies have shown that patients in whom the tumor tissue was completely removed or significantly reduced have significantly longer survival rates compared to patients where a large residual mass remains.

Now my dilemma is even greater—logic dictates it would be better to remove the uterus and the other ovary... wouldn't it?

P.S. Her strength is returning, slowly, but it is returning...
nimblepanther14 nimblepanther14 Newcomer
5 messages
joined Mar 2010
#191 ·
So, my blood work came back almost perfect.
My white blood cell count is slightly off—it’s at 11.2, while the standard limit is 9.7—but my doctor mentioned it’s far too low to suggest any major infection that could be causing a pleural effusion (then again, I have a bit of a cold right now, so that might be the culprit).
My CRP levels are also within the normal range, sitting at 4.7 when the threshold is 5.
Even the Mokrac results look fine.
So, if we aren't looking at an infection or some kind of injury, what on earth is causing this fluid buildup in my lungs?
Is there any chance it was just an artifact from the imaging process?

I’m heading to see a pulmonologist next week...
Angela Wright Angela Wright RegularOP
731 messages
joined Feb 2007
#192 ·
It’s entirely possible you just stepped into a pothole while you were walking, or honestly, it could just be a glitch in the device itself.
nimblepanther14 nimblepanther14 Newcomer
5 messages
joined Mar 2010
#193 ·
Angela Wright said:It’s entirely possible you just hit a bump while walking—something you didn't even notice—or, alternatively, it could simply be a glitch with the device itself.

On the other hand, what are the actual odds that we’re looking at a tumor originating from the kidney?
(I feel a bit awkward bringing this up, but I really need to ask)
Angela Wright Angela Wright RegularOP
731 messages
joined Feb 2007
#194 ·
Look, my logic is pretty straightforward: if we’re talking about women in menopause, those ovaries and the uterus—if they’re still functioning or even just sitting there with potential—it might actually be better to just have them removed. I remember this one aunt of mine back in the States, she passed away a while ago, but she had everything taken out. She told me her doctor basically claimed that once you hit menopause, the uterus becomes nothing more than a sponge soaking up toxins. I can't tell if that was just his specific take on her situation or if it’s a broader medical philosophy, but honestly, looking at so many women, it often feels like that's exactly what's happening.
Angela Wright Angela Wright RegularOP
731 messages
joined Feb 2007
#195 ·
nimblepanther14 said:What are the odds that this is actually a tumor spreading from the kidney?
(I hate asking this, but I have to)

Slim to none. Someone already broke it down for you. You’d need a damn trophy for that kind of luck, and honestly, I doubt it. If I had to guess, those issues with your kidney before things turned benign were likely triggered by massive amounts of stress. That’s not even rare.
My old man went through the exact same thing back when my mother was sick.
nimblepanther14 nimblepanther14 Newcomer
5 messages
joined Mar 2010
#196 ·
Angela Wright said:It's incredibly small. Someone probably already pointed out why—you’d essentially need a trophy for being such a saint to be forgiven for something like this. Honestly, I suspect your kidney issues might actually stem from all that intense stress you've been under before the benign diagnosis. That kind of thing isn't even that uncommon.
My dad went through something similar back when my mom was sick.

Thank you... I certainly hope I haven't earned any "trophies" lately... Ugh, I just can't stand this uncertainty.
I truly don't understand how some people claim they don't want to know the results...
We'll just have to wait and see what the pulmonologist has to say...
And I am really hoping the anesthesiologist doesn't push back the surgery—I'm praying I can get this sorted out before I meet him.

The tumor was actually diagnosed before all that chaos started... though, sometimes when things get stressful, it feels as if the mass in my salivary gland is actually pulsing. Of course, I realize it probably isn't physically throbbing, but that is definitely the sensation I get.
crimsongull20 crimsongull20 Active Member
84 messages
joined May 2004
#197 ·
nimblepanther14 said:Thanks... Hope I'm not just being paranoid... I really hate this uncertainty...
Don't get why some people say they don't want to know the results...
We'll see what the pulmonologist says...
And hopefully the anesthesiologist won't push back the surgery because of it, so I can have this sorted before I meet him.

The tumor was diagnosed before all this started... but sometimes when I'm stressed, it feels like it's actually pulsing in my salivary gland... Obviously, it probably isn't actually pulsing, but that's how it feels.

If I were you, I’d look into some light psychotherapy. Might help.

As for the thyroid surgery: I personally know three women who had their entire gland removed, and they were all recovered in about a week, barely feeling any pain at all.

Just lie down, get some sleep, and relax. Whatever is going on in your lungs is almost certainly nothing, and if it turns out to be something—worry about that later. Don't do it now.
nimblepanther14 nimblepanther14 Newcomer
5 messages
joined Mar 2010
#198 ·
crimsongull20 said:If I were in your shoes, I’d probably look into some light psychotherapy—might actually do you some good.

Regarding the thyroid surgery: I personally know three women who had their entire gland removed, and they all bounced back within about a week—hardly any pain involved at all.

Just lie down, get some sleep, and try to relax. That fluid in your lungs is almost certainly nothing... and even if it turns out to be something, there's no sense worrying about it now—save the stress for later.

My version of "psychotherapy" will be a weekend getaway I'm planning outside the city...
The thyroid surgery itself doesn't really weigh on me... it's just this fluid in my lungs that's been getting under my skin. But you're right—I shouldn't let it consume me.
crimsongull20 crimsongull20 Active Member
84 messages
joined May 2004
#199 ·
nimblepanther14 said:Psychotherapy will be my weekend getaway outside the city...

Smart move. 👍
Angela Wright Angela Wright RegularOP
731 messages
joined Feb 2007
#200 ·
Grdana, try to view your situation through the lens of life itself and its core principles: nothing is certain, there are zero guarantees, and everything is constantly in flux. We’re the ones who decide how we handle that volatility. Even when it feels like an impossible task, it really just comes down to a choice. You have to find the guts to set things up in a way that actually works for you and keep constantly weighing those options in your mind. That's why some people choose to stay in the dark—they'd rather ignore it until they're forced to face it. It's all about those fluctuations... you know what I mean? 😉

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