Neuroendocrine Tumors: Carcinoid Syndrome

So, I just got my pathology results back regarding those polyps, and honestly, I’m feeling pretty lost. The measurements were 0.3x0.2x0.2 cm, plus another tiny slice at 0.2x0.1x0.1 cm. Apparently, there are elements of tumor tissue sitting right in the mucosa and parts of the submucosa. The location was about 10 cm from the rectum entrance, and the diagnosis came back as a Grade 1 neuroendocrine tumor—a typical carcinoid, I guess. Can anyone please tell me how serious this actually is? My doctor seemed either super nervous or just weirdly vague; he wouldn't give me a straight answer, just mumbled something about needing to monitor it. I have no idea what that even means. Does anyone know more about this? It says here that mitoses are rare (only 1-10 per HPF), and I tried to go back in to ask him for more details, but he had already rushed out of the exam room. It also mentions that the tumor tissue elements were found in both analyzed samples.
On top of all that, they also diagnosed me with chronic appendicitis, and the surgeon mentioned they’d be taking a quick look at the rest of my abdominal cavity during the procedure. If anyone has any info or has been through something similar, I’d really appreciate it. Thanks.

Nicole Adams52 said:I just got my pathology results back regarding some polyps. One was about 0.3x0.2x0.2 cm, and there was another section measuring 0.2x0.1x0.1 cm. They found tumor tissue elements within the mucosa and parts of the submucosa. The tumor was located 10 cm from the rectum entrance. The diagnosis is a neuroendocrine tumor, grade 1 (typical carcinoid). Can anyone please tell me how serious this is? My doctor seemed either incredibly nervous or just strangely vague—he didn't explain anything, just said it needs to be monitored. I'm totally lost; please, tell me more about this. It also says mitoses are rare (1-10 per HPF). I tried to go back in to ask him for more details, but he had already left the exam room. It also mentions tumor tissue elements were present in both analyzed samples.
Also, I've been diagnosed with chronic appendicitis, and my doctor emphasized that they'll need to inspect the interior of the abdomen during surgery. Please, I need information. Thank you.

Look, I really don't like responding this way. I mean, sure, I could throw a word or two about carcinoids at you right now, but I rarely give advice on this forum without seeing the full pathology report. Period. I simply want as complete a picture as possible before I say anything.
So, for heaven's sake, post every single finding you have!!!

vividsailor7 said:I really hate responding this way, and I guess I could throw out a few words regarding carcinoid, but I rarely ever give advice on this forum without seeing the full set of medical reports; I just really feel like I need to have as complete a picture as possible before I say anything.
So please, just post every single finding you have!!!

I get that, but what kind of results are we talking about? Like, the tumor pathology? Or even the older ones from before?

Nicole Adams52 said:I get that, but what kind of results are we talking about here? Pathological tumor biopsies? Or just the regular stuff from before?

Everything related to the digestive system, plus blood work and all those symptoms.