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Dealing with a wave of symptoms: dizziness, tingling, speech issues, and headaches...

Started by Donna Fowler2 · · 👁 8 views · 74 replies

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Participants Donna Fowler2melloworca6Casey Phillips18granitefalcon26Angela Wrightrestlesscobra9Kyle Lee7wiredpuma5Jeremy KernMaria Bailey52vividsailor7Kenneth Chase3Anthony Morris2David Mitchell4Drew Edwards36electrichound78
Donna Fowler2 Donna Fowler2 MemberOP
29 messages
joined Jul 2012
#41 ·
I’ve got everything ordered, but most of it won't arrive until late November—just my luck! -.- The one exception is the EEG, though; I should be getting that done very soon.
Kyle Lee7 Kyle Lee7 Active Member
149 messages
joined Nov 2007
#42 ·
Donna Fowler2 said:And I just read online that most people dealing with thyroid issues also have multiple sclerosis, so I can rule that out—it could be a tumor instead.

Wherever you read that, it isn't accurate.
There isn't actually a causal link between multiple sclerosis and thyroid disease.
Think about it this way: there are countless people managing thyroid conditions, yet relatively few people living with MS—and even among those diagnosed with MS, the vast majority don't have thyroid issues. You can easily verify this on any major medical resource or health information site dedicated to the diagnosis. They go into great detail describing the symptoms and the specific body systems affected by MS, and you won't find the thyroid mentioned anywhere.

MS is identified and confirmed through very specific symptoms and targeted diagnostic tests, none of which involve the thyroid.
Furthermore, the symptoms you mentioned don't quite fit the classic profile of an MS relapse. In cases of an actual MS flare-up, symptoms don't typically pop up and then disappear suddenly; they tend to persist continuously.
Donna Fowler2 Donna Fowler2 MemberOP
29 messages
joined Jul 2012
#43 ·
So, look, my symptoms are kind of hit or miss—they come and go. But my left foot, specifically the toes, has been feeling totally numb for over a week now.
Does this necessarily mean something serious is going on?
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#44 ·
Donna Fowler2 said:So, basically, my symptoms come and go. Except for my left foot—specifically the toes—which have been numb for over a week now.
Does this necessarily mean it’s something serious?

I don't know what your definition of "serious" even is.
We've already laid out our thoughts across three whole pages and look at that—all ten of us have essentially said the exact same thing! Having outbursts like this in an 18-year-old is so profoundly abnormal that you should be ready to jump through a window just to get them to a hospital immediately. If this were happening to my kid, God forbid, I would absolutely lose my mind from pure terror.
Casey Phillips18 Casey Phillips18 Member
13 messages
joined Sep 2008
#45 ·
Donna Fowler2 said:well, I'm scheduled for all of that, though most isn't until late November—except for the EEG, which should be happening fairly soon.


I suppose they've already run your blood work, then. How are your glucose levels looking?
Donna Fowler2 Donna Fowler2 MemberOP
29 messages
joined Jul 2012
#46 ·
Honestly, I don't think my situation is even that big of a deal

They really do check everything, though. When the paramedics arrived to pick me up, they immediately checked my blood sugar levels. It was running a little low, and they were quick to ask if I’d been following some specific diet or anything. I told them no—I've just been eating normally—but since the reading was low, now I'm left wondering what the actual number was
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#47 ·
Donna Fowler2 said:Well, mine isn't actually that big of a deal, I don't care that much

My kid is only eighteen months old; they can't exactly look after themselves. You, on the other hand, are practically an adult. If you’re this reckless with your own health, mark my words: you won't be any better at taking care of your own kids than your parents were.

Look, those symptoms you're describing could very well point to something neurological. If we're talking about a malignant tumor, every single day you waste without medical intervention directly guts your chances of survival. Brain cancer cells multiply exponentially. Think about it: something that's 2cm this week could be 4cm by next week. That’s a massive difference because a 2cm tumor might be manageable with a Gamma Knife, but once it hits 4cm, it's too large for that procedure, which drastically tanks your prognosis. Every single cancerous cell is irreversible damage. Even if it turns out to just be epilepsy, every seizure leaves permanent, irreparable scarring on the brain. So go ahead, keep wasting time and see where it lands you.
You clearly haven't done your homework, which is why you're so quick to take our advice—which, frankly, is bordering on panic. Honestly, you have plenty of reasons to be worried.
Donna Fowler2 Donna Fowler2 MemberOP
29 messages
joined Jul 2012
#48 ·
Look, I get where you're coming from, but I don't think you guys really get me either. I got into it with my parents again yesterday, and you won't believe what my dad said to me. He was just like, "I can't wait for this EEG to be over, because if it turns out you're perfectly fine, then I am seriously done with you—you're just being dramatic."
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#49 ·
Donna Fowler2 said:Look, I get where you guys are coming from, but you aren't getting me either. I got into another blowout fight with my parents yesterday, and you know what my old man said? He basically told me he can't wait for this EEG to be over, because if everything comes back normal, he's completely done with me—he thinks I'm just being a massive drama queen.

Honey, believe me, I hear you loud and clear.
Parents are who they are, period. You can't change them, and you already know exactly what kind of reaction you're going to get. Just please, whatever the results turn out to be, don't let yourself become your own worst enemy. Don't be harder on yourself than they are being on you.
Unfortunately, one thing is certain: we're all just hoping this is treatable so you can come out the other side of this with as little damage as possible.
melloworca6 melloworca6 Regular
551 messages
joined May 2010
#50 ·
Donna Fowler2 said:Look, I get where you guys are coming from, but you don't get me either. I got into another massive blowout with my parents yesterday, and you know what my dad said? He basically told me he can't wait until I go for my EEG, because if it comes back clean, then he's completely done with me—just thinks I'm being a total drama queen.

Honestly, I feel for you. Having parents like that is just hard to wrap my head around. 😢

Anyway, what I want to know is how many times have you actually had those episodes where you can't even speak properly? And when it hits, how long does it usually last?

Also, how long has this whole cluster of symptoms been going on now?
Donna Fowler2 Donna Fowler2 MemberOP
29 messages
joined Jul 2012
#51 ·
It all started right at the end of the school year, so we're talking late May or early June
I’ve actually dealt with this about four or five times now. Each episode lasts quite a while—anywhere from an hour to maybe two full hours if I'm lucky
And my finger? It’s been feeling completely numb for almost two weeks straight now
Donna Fowler2 Donna Fowler2 MemberOP
29 messages
joined Jul 2012
#52 ·
Hey everyone, I'm heading in for an EEG later this morning around 10:30, so I'll check back in with you all once I'm done. 🙂
melloworca6 melloworca6 Regular
551 messages
joined May 2010
#53 ·
So, what did they end up telling you? What was the final verdict on the results?
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#54 ·
melloworca6 said:So, what was the final word from them? What did the results actually show?

Man, I’m really not digging how she hasn't reached out yet.😢
Donna Fowler2 Donna Fowler2 MemberOP
29 messages
joined Jul 2012
#55 ·
My doctor is out on sick leave, so I won't get my test results until Monday. Just my luck...
melloworca6 melloworca6 Regular
551 messages
joined May 2010
#56 ·
Let us know what the results show. 🙂 Have you been dealing with these kinds of episodes again since then?
Donna Fowler2 Donna Fowler2 MemberOP
29 messages
joined Jul 2012
#57 ·
No, it’s just that sometimes I get these dizzy spells, but my left foot feels fine now
wiredpuma5 wiredpuma5 Member
37 messages
joined Nov 2020
#58 ·
Donna Fowler2 said:No, I just get dizzy sometimes, and my left foot feels fine now.

Well, at least you decided to show up.🙂
Kenneth Chase3 Kenneth Chase3 Newcomer
1 message
joined Jun 2022
#59 ·
Aren't these actually classic symptoms of a migraine with aura? It’s not always just visual disturbances; sometimes you get dizziness, numbness in your face or limbs, and even trouble speaking.
And she mentions that a full-blown migraine follows right after those sensations.
Yet, people immediately jump to conclusions about brain tumors...🙄

Regardless, she should see a doctor as soon as possible.
melloworca6 melloworca6 Regular
551 messages
joined May 2010
#60 ·
What, do we have a crystal ball or something? Do we just magically know what's going on with her?

Look, these symptoms could be anything—a stroke, a brain tumor, epilepsy, you name it. That’s exactly why you don't just brush stuff like this off. You go to the ER, and at the ER, they take this kind of thing seriously. But sure, let's just say we're overreacting. It would be much better if we had just told her "it's nothing" right before she suffered a massive stroke.👍

Yeah, sure, these symptoms might turn out to mean absolutely nothing, but they could just as easily signal something life-threatening. That's why you head straight to the ER or see a primary care doctor so they can actually assess how serious the situation is.

edit: Even with migraines, your head feels like it's exploding, and from what I can tell, she didn't mention that anywhere.
edit2: My bad, she did mention having migrainesfollowing the seizure.

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