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Living with Hashimoto's: Tips and experiences?

Started by Scott Harris10 · · 👁 4 views · 14 replies

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Participants Scott Harris10Patrick Young2Rebecca Newman80melloworca6ironsurfer8James Mitchell11Grace Lewis6Samuel Morgan40
Scott Harris10 Scott Harris10 NewcomerOP
3 messages
joined Jul 2010
#1 ·
It honestly makes me feel a bit lightheaded reading everyone’s posts about their symptoms. My tests confirm I have this condition, though I'm still waiting on my thyroid ultrasound results.
If anyone else here is dealing with the exact same thing,
AM I REALLY GOING TO BE THIS BRAIN FOGGY AND SLUGGISH FOR THE REST OF MY LIFE? Even if I stay on my medication???
I can barely string a sentence together lately. I usually just stay quiet when I'm out with friends because if I try to speak, I start stuttering and struggling to get my words out.
The forgetfulness is hitting hard, too. My boyfriend will be telling me about something we did together, and it's like I wasn't even there.
And don't even get me started on the fear of not being able to have kids, or if they end up being sick too. It's just overwhelming.
Does it ever get better?? Is it naive to hope for a full recovery??
Who is even to blame for all this??
Scott Harris10 Scott Harris10 NewcomerOP
3 messages
joined Jul 2010
#2 ·
It honestly makes me feel a bit lightheaded reading everyone’s posts about their symptoms. My tests confirm the diagnosis, though I’m still waiting on my thyroid ultrasound results.
If anyone else here is dealing with this,
AM I REALLY GOING TO BE THIS FOGGY, SLOW, AND BRAIN-DEAD FOR THE REST OF MY LIFE? Even with medication???
I can barely string a sentence together. I usually just stay quiet when I'm out with friends because if I try to talk, I start stuttering and struggle to get my words out.
And the memory loss is real. My boyfriend will be telling stories about things we did together, and it’s like I wasn't even there.
Not to mention the fear that I won't be able to have kids, or if I do, they might be sick too. It's just devastating.
Does it actually get better?? Is it foolish to hope for a cure??
Who is to blame??
Sophia Smith56 is online now Report offensive post Edit/Delete Message
Patrick Young2 Patrick Young2 Member
31 messages
joined Jan 2019
#3 ·
Where on earth are you getting all that from? You're acting like you won't be able to have kids, or that they'll all end up sick...

You're a little late to the party, though; there's already a dedicated thread on "Thyroid Issues..." where you can get all your questions about Hashimoto's answered.
Rebecca Newman80 Rebecca Newman80 Newcomer
1 message
joined Feb 2011
#4 ·
Perhaps we shouldn't go blaming the thyroid for all of this 🤣

I personally know several women living with Hashimoto's, and frankly, none of them suffer from a lack of intelligence, forgetfulness, or any of those other supposed symptoms 🤷

Unless, of course, you weren't exactly winning any Nobel Prizes before this happened—in which case, I highly doubt the thyroid is the culprit here!

Are you genuinely struggling to remember where you were with your boyfriend?
Or perhaps finding it difficult to string two coherent sentences together... because of your thyroid? I find that hard to swallow, quite frankly

But look at that, Betty Foster97 has already weighed in with her response... and it seems you both share the exact same issue
Scott Harris10 Scott Harris10 NewcomerOP
3 messages
joined Jul 2010
#5 ·
I realized about a year ago that something had changed. I'm just not the same person—I talk way less than I used to... could it be some kind of curse?!
this is what people are saying:

-"my mom has Hashimoto's thyroiditis. It's honestly awful; she can barely get through a book because she can't focus..

-"a dear friend of mine also has Hashimoto's... she practically had to live in the library to finish her degree because studying made her feel so nauseous"

-"talking to people in person is impossible for me now. Just looking at someone or hearing background noise kills my concentration, making it so hard to say anything meaningful... people tell me the same joke a dozen times, and I usually have to watch movies several times just to follow along, like it's my first time seeing them every single time..."

-"everything I learned in school or college just fades away so fast... when I had to testify during my parents' divorce proceedings, I couldn't remember a single thing, almost like I wasn't even part of that family... I try to comfort myself, but the truth is I'll be looking for a street downtown and there's no way I'll remember the name of a local coffee shop"

Rebecca Newman80 said:maybe you shouldn't blame your thyroid for this🤣

I know a few girls with Hashimoto's and none of them are stupid, forgetful, or whatever else you listed🤷

unless you were a literal genius before this, I highly doubt it's the thyroid's fault!

like, forgetting where you were with your boyfriend?
or being unable to string two sentences together... because of your thyroid? I don't think so!

but hey, Betty Foster97 already replied to you.. and it sounds like you're dealing with the exact same thing
melloworca6 melloworca6 Regular
551 messages
joined May 2010
#6 ·
There’s already a thread on this: Thyroid Issues - Part II: How It Messes With Us All

Look, it's true that thyroid stuff causes brain fog and memory lapses, but if you're straight-up forgetting entire life events? That's definitely not just the thyroid.
ironsurfer8 ironsurfer8 Active Member
76 messages
joined Dec 2007
#7 ·
melloworca6 said:I believe there’s already a thread covering this topic. The Thyroid – All the Ways It Torments Us, Part II Is there any other part of the human body that can be both completely silent and yet somehow loud enough to dominate your entire existence? We’ve already touched on the basics, but we really need to dive deeper into the sheer variety of ways a thyroid issue can derail your life. It isn't just about feeling "tired"; it's about a systemic disruption that feels less like a medical symptom and more like a personal betrayal by your own biology. One of the most frustrating aspects is the unpredictability. One day you might feel relatively functional, and the next, you're staring at a wall, wondering if you even have the capacity to hold a conversation. How does an organ that small exert such an overwhelming influence over your cognitive clarity? It’s almost poetic in its cruelty. Then there's the physical toll—the sudden shifts in weight, the temperature swings that make you feel like you're living in a constant battle between a desert heatwave and a blizzard, and the skin changes that no amount of high-end moisturizer can fix. You start questioning everything: Is this a side effect of the medication? Is it the condition itself? Or is it just the cumulative stress of trying to manage a chronic illness in a society that expects you to be "on" 24/7? It often feels like we are playing a perpetual game of catch-up with our own endocrine systems. We adjust one dosage, wait weeks for a blood test, and then pivot again. Does anyone else feel like they're stuck in a loop of endless adjustments? I'd love to hear from others who are navigating this. When did you realize the symptoms were moving beyond "just being stressed" and into something much more structural?

It’s true that thyroid issues can certainly mess with your focus and memory, but if you’re actually forgetting entire events that took place? That’s likely something else entirely.

This is what happens when you leave a thyroid condition untreated for too long.

I’ve been exactly where you are. Honestly, there were periods in my life where I felt like I had lost my ability to think straight—it was as if my brain just wasn't firing on all cylinders for a while. Have you ever had those moments where everything feels inexplicably foggy?

I used to struggle with basic arithmetic, which was quite a surprise given that I’ve always considered myself a talented mathematician.
And it’s going to take quite a while before things ever feel truly normal again.

And besides, I’ve found myself starting to lose my grip on the people and the events from that era entirely. Is it just me, or does time have a way of blurring those memories?
ironsurfer8 ironsurfer8 Active Member
76 messages
joined Dec 2007
#8 ·
Sophia Smith56 said:...
AM I REALLY GOING TO BE THIS slow, foggy, and sluggish for the rest of my life? ...

You won't be like this forever. You just have to stay consistent with your thyroid treatment and monitoring.
It took me nearly a full year before I felt like I finally had my life back under control.
Scott Harris10 Scott Harris10 NewcomerOP
3 messages
joined Jul 2010
#9 ·
So, there’s really no way to skip the meds or hormone therapy?
Have you looked into any alternative treatments?
Or is it just a permanent thing once it hits you?
ironsurfer8 said:It's not a lifelong sentence, you just have to stay on top of your thyroid treatment and checkups.
It took me nearly a year to feel like myself again.

"Imagination is like an umbrella—it only works if it's open." - Albert Einstein. And that goes for having a healthy thyroid, too.🤣😂
ironsurfer8 ironsurfer8 Active Member
76 messages
joined Dec 2007
#10 ·
Sophia Smith56 said:And I suppose there's just no avoiding hormone therapy altogether?
Have you looked into any alternative approaches?
Or is it a one-way street once you start?

"Imagination is like an umbrella—it only works if it's open." — Albert Einstein. And that goes for having a healthy thyroid, too.🤣😂

Thyroid hormones are essential for survival,

if your TSH levels have climbed because you aren't producing enough hormone, you have to take them.

If some alternative practitioner tells you otherwise, they’re misguiding you.

My homeopathic specialist made it very clear: don't stop the hormone replacement; they won't interfere with the other treatments she provides.

With Hashimoto's, the situation is nuanced. If your hormone levels are technically within range but your antibodies are spiking, then perhaps alternative methods could help soothe that overactive immune response.

Ultimately, hormone therapy isn't "treating" the cause; it's simply replacing what your body can no longer produce on its own. Without it, you'll just continue to feel sluggish and depleted.😁
Patrick Young2 Patrick Young2 Member
31 messages
joined Jan 2019
#11 ·
Rebecca Newman80 said:But Betty Foster97 already replied to you... and apparently, you both have the exact same issue.

We don't have the same issue; the only thing we share is the Hashimoto's.🙂
ironsurfer8 ironsurfer8 Active Member
76 messages
joined Dec 2007
#12 ·
Betty Foster97 said:we don't actually share the same issue; the only thing we have in common is Hashimoto's 🙂

Well, that’s interesting.

I don't have Hashimoto's, though I dealt with the exact same symptoms 😁

p.s.
I have what they call "other types" of hypothyroidism, haha 😁, essentially of an unknown cause...
The doctors say everything looks like Hashimoto's, yet my antibody levels aren't elevated.
James Mitchell11 James Mitchell11 Member
25 messages
joined Oct 2013
#13 ·
Still waiting on my lab results. I’m not even sure if my thyroid is the culprit yet, so I'm playing it safe and holding off on anything big. As for my memory? It feels like my head is stuck inside a bubble.
Grace Lewis6 Grace Lewis6 Member
29 messages
joined Nov 2015
#14 ·
Guys, there’s a massive thread over here

There are so many of us dealing with Hashimoto's 😬here

And honestly, you can definitely take the edge off that brain fog with some hormone therapy 🥳...
Samuel Morgan40 Samuel Morgan40 Active Member
178 messages
joined Mar 2010
#15 ·
Since you've gone and started a thread, I suppose this belongs under lock and key.

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