Dealing with Paget's disease

Honestly, I’m just sitting here spiraling with doubt. I’ve got an appointment with an orthopedic surgeon next week, but the more I spend my time doom-scrolling through medical forums, the more convinced I am that... yeah, unfortunately, it’s exactly what I think it is.

I mean, it makes zero sense. My primary care doctor barely even gave me a proper look—just rushed through it, tossed out this diagnosis that doesn't sound harmless at all, and then had the nerve to tell me there was "no point" seeing a specialist or doing anything about it. Like, excuse me? So, naturally, I went ahead and booked a private consultation on my own. And get this—it gets even weirder—the person answering the phones at the clinic didn't even know who to send me to! They kept suggesting a dermatologist, so I had to be like, "Uh, I think I actually need an orthopedist."

Is it seriously true that you shouldn't take any action when symptoms first show up??

So, if anyone’s actually interested, this is what the disease looks like as it progresses it goes down like this. Just got my diagnosis confirmed today. They're suggesting I start on Kennel injections and physical therapy, then maybe look into surgery later on if things get bad enough.

Apparently, it’s pretty rare in women. I can't help but wonder how fast this thing is going to move, though. And honestly, does anyone know if doing the Kennel shots and PT actually makes any sense?