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Waiting on a diagnosis

Started by Sophia Harris45 · · 👁 5 views · 31 replies

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Participants Sophia Harris45amberhawk17stormyheron4Harold Ramirez49Michael Doyle62Angela WrightBenjamin Grant6David Scott7rapidbadger26Noah Barrett10
Benjamin Grant6 Benjamin Grant6 Member
36 messages
joined Aug 2008
#21 ·
Sophia Harris45 said:This recipe is actually quite decent...😉
Please let me know once Mom’s results come in... I am keeping my fingers crossed that we receive some good news...

There is certainly no foolproof formula for navigating these things, but one really shouldn't allow themselves to be swallowed by such negativity... It is simply the nature of life, I suppose, and one must find a way to keep moving forward...

I suppose I should check in... I took a ride out to Central Park and ended up freezing my heart out, and while I didn't quite make it in time for the Relay For Life, I feel a certain sense of peace... whatever will be, will be...
David Scott7 David Scott7 Newcomer
7 messages
joined Jan 2013
#22 ·
Try to stay positive and find some inner peace. It’s also pretty crucial that you talk openly with your family about how everyone is actually feeling regarding this whole situation. Being honest about those emotions can really help pull a family closer together when things get tough. As for finding peace? For me, it comes down to prayer and my faith. I've got two surgeries coming up myself. When I first heard the news, I honestly thought I was going to pass out from the shock and fear. But I managed to shift my perspective, look at the bright side, and suddenly, it didn't feel like such a catastrophe anymore. Hang in there!
Benjamin Grant6 Benjamin Grant6 Member
36 messages
joined Aug 2008
#23 ·
Angela Rogers55 said:Try to arm yourself with a positive outlook and some semblance of inner peace. It is actually quite vital that you sit down as a family and speak openly about how each individual is feeling regarding this issue... It might just serve to strengthen those familial bonds even further. As for finding inner strength and tranquility—for me, it comes through prayer and my faith. I have two surgeries looming on my horizon, and when I first heard the news, I nearly fainted from the sheer shock and terror of it all. However, I eventually managed to view the entire situation through a more optimistic lens, and suddenly, it didn't seem quite so catastrophic... Wishing you the best.

It is truly heartening to encounter people like you, so brimming with faith and positivity... I sincerely hope you maintain that courage and refuse to let fear take hold.

Before my mother fell ill, my family barely functioned as a unit. Everyone simply went about their own separate business... but the moment her illness struck, it marked a definitive turning point for us. We stood by her side, united for her sake and for ours... today, we look out for one another and communicate openly, providing each other with much-needed strength, faith, and support.
David Scott7 David Scott7 Newcomer
7 messages
joined Jan 2013
#24 ·
Nancy Hernandez43 said:It’s so good to see people like you out there, full of faith and staying positive. I really hope you stay brave and don't let fear get the better of you.

Before my mom got sick, my family barely even functioned as a unit. Everyone was just doing their own thing, living separate lives. Then everything changed the moment she fell ill. It was a turning point. We finally stepped up together—for her, and for each other. Now? We actually look out for one another. We talk openly. We lean on each other for strength and support. It’s different now.

I truly believe that you all are her greatest source of strength, especially during those dark moments when your own energy fails and you have to rely on someone else. I really hope everything turns out okay with your mom. Best wishes.👍
rapidbadger26 rapidbadger26 Newcomer
4 messages
joined Nov 2008
#25 ·
First timer here. Hello. I recently ended up in the ER due to some heart issues, and now I’m stuck with a diagnosis that makes absolutely no sense. I have to run more tests, but my appointment with a cardiologist is still six months out. I’ve always been prone to panic, and my medical history already shows several anxiety episodes. Now, the days just drag on while I sit here listening to my heartbeat, waiting for it to stop... My mother has lived with similar issues for forty years, and the doctor at the ER told me there's nothing "malignant" about it. Everyone tries to comfort me, saying it isn't serious, offering advice like "don't be afraid" or "look in the mirror and tell yourself your heart is fine." Honestly, talking helps—even just voicing the fear. And when there's no one else to talk to, medication helps too; constant internal tension and nerves are proven triggers for all sorts of ailments. One more thing: my lifestyle isn't exactly peak health. I smoke, and I'm not happy about it. Not trying to make excuses, but even us "addicts" want to live long lives; we just know the risks and struggle with our own weaknesses when it comes to quitting. Stay healthy, everyone...
Benjamin Grant6 Benjamin Grant6 Member
36 messages
joined Aug 2008
#26 ·
Angela Rogers55 said:I truly believe that you have been her pillar of strength, especially during those grueling moments when one's own resilience begins to fail and there is simply no choice but to lean on someone else. I sincerely hope everything turns out well with her mother... Best regards.👍

Precisely so. During those darkest hours when she was on the verge of giving up, the collective strength we all provided offered her just enough motivation to keep pushing forward... whether things will ultimately turn out fine or not is something none of us can predict. She understands that cancer is something one learns to live alongside, and since the diagnosis, our lives have essentially become about navigating one day at a time...

Warm wishes to you as well, and I wish you a smooth recovery from your surgery... May your faith remain steadfast and may your strength never waver.👍
Benjamin Grant6 Benjamin Grant6 Member
36 messages
joined Aug 2008
#27 ·
rapidbadger26 said:Well, this is my first time posting on this forum... Greetings to you all. I recently found myself in the emergency room at Mayo Clinic due to some cardiac issues, and now I am left with a diagnosis that feels entirely incomprehensible... I have been told to undergo various tests, yet my appointment with a cardiologist won't be for another six months. Being someone who naturally leans toward panic, I already have a medical history involving several anxiety attacks. Now, the days simply pass by while I can think of nothing else except listening to my heartbeat and waiting for it to eventually stop. My mother has lived with similar issues for forty years, and the doctor at the ER assured me that nothing is "malignant," so everyone keeps trying to comfort me by saying it isn't serious... People offer advice such as "don't be afraid" or "look in the mirror every day and tell yourself your heart is working perfectly," and things of that nature. In any case, talking helps—discussing the fear itself is useful. And when conversation isn't enough, medication certainly assists, as constant internal tension and nervousness are proven triggers for many ailments. One more thing: I don't lead particularly healthy lifestyle; I am a smoker, which is hardly a point of pride. I am not attempting to make excuses, but even we "addicts" yearn for our lives and our health, fully aware of the dangers and our own weakness in abandoning these habits. Stay well, everyone...

The most vital thing is to listen to yourself and find your own inner peace. It is quite easy for others to say, "do this" or "don't be afraid"... but it is much harder for them to truly listen when one is facing genuine terror.

Living a healthy life or subjecting oneself to strict dietary regimens offers no guarantee that one will remain healthy or avoid illness... sometimes, one simply has to surrender to life.

Listen to your heart and find your strength; stay brave for a long time to come...
Noah Barrett10 Noah Barrett10 Newcomer
1 message
joined Aug 2008
#28 ·
Everything feels like it’s starting to fall apart again today. I just found out there’s likely a tumor returning. I already went through this once—the surgery, the grueling recovery—and I’m still trying to get my footing from all of that when they drop this news on me. They said it's probably in the same spot, or maybe just slightly off to the side; honestly, who can even keep track of these things anymore? The word just keeps echoing in my head... tumor. I can't stop thinking about having to redo the entire process from scratch, and frankly, I have no idea how this is all going to end. Now, I’m stuck playing the waiting game while a medical board meets to discuss my case and decide on the next steps. This anticipation is absolutely killing me. I try to push the thoughts away, to stay calm and not let it consume me, but it’s impossible. It’s stronger than I am. To make matters worse, seeing everyone look at me with those pitying eyes just makes everything feel ten times heavier. I don't know how I'm going to manage. I'm terrified of breaking down right when I need every ounce of strength just to endure this alone. Maybe I should just let it all out, have a good cry, and scream until all this rage and despair is gone. I truly don't know what to do right now. 🙂 🙂
rapidbadger26 rapidbadger26 Newcomer
4 messages
joined Nov 2008
#29 ·
Olivia Ward20 said:My world started collapsing again today... after finding out there's likely a tumor back. I already went through one round—surgery, recovery—and I was still getting my strength back when they told me it’s probably back in the same spot, or close to it. One can't even process the shock... those words just echo in my head. Tumor. Thinking about having to redo everything from scratch, and wondering how this ends... Now I'm just waiting for the medical board to meet and decide on my next steps, and the waiting is killing me. I try not to dwell on it, to stay calm, but it's impossible. It's harder when everyone looks at you with such pity. I don't know how to move forward... I'm afraid of breaking down right when I need the most strength to endure this alone... maybe I should just have a good cry and scream it all out, all the anger and despair... honestly, I just don't know anymore... 🙂 🙂

Hearing this makes me want to break down too. Here I am, panicking over every little thing and every skipped heartbeat. There aren't any wise words left, and I doubt you need them right now. Just know someone is thinking of you and feeling your pain. Cry, scream in private, let all that drama out because it has to go somewhere. I don't know if you're religious, but prayer helps me—not the ritualistic kind, just simple conversation. I find comfort knowing Jesus is a friend who understands, because He walked this path Himself. In the silence, I just lean my head on His shoulder and pour it all out. And I weep. So much. Hang in there, be brave. I'll be praying for you tonight.
Benjamin Grant6 Benjamin Grant6 Member
36 messages
joined Aug 2008
#30 ·
Honestly, I am at a loss as to which is more agonizing... waiting for test results only to receive a devastating diagnosis, or the excruciating suspense while waiting for that confirmation to arrive.

Back home, they were incredibly slow with the PET/CT results. My mother had finally begun to recover from the exhaustion caused by the scanning process... only to receive the findings and the diagnosis this morning. It was a fresh shock.

She might say that despite the heavy diagnosis and the negative prognosis we initially discussed, things look okay after a year because they found "only" one enlarged mass in her left leg. They suspect it is an enlarged lymph node—I use the word "suspect" because that is where my own anxieties have truly begun to take root.

What provides some solace is the fact that doctors here in America are far more diligent. She immediately called an oncologist at Atlanta who didn't just brush her off by saying, "Ma'am, you aren't scheduled until October 16th, what do you expect us to do now?" instead, he told her, "Ma'am, if there is any way possible, please come in for an exam immediately so we don't cause unnecessary panic or increase your anxiety before your scheduled appointment."👍 Perhaps this is actually for the best—getting the truth immediately following the initial shock...

No matter how much people think others have it worse or complain that we shouldn't be grieving, sometimes you simply need to hurry up and force that negative fear out of your system. Regardless of how it unfolds... one should never hesitate when facing the worst, because things can always get worse.👍 Wishing everyone immense courage...
Sophia Harris45 Sophia Harris45 NewcomerOP
7 messages
joined Sep 2008
#31 ·
I think what we really need most is a massive dose of courage and grit—just enough strength to figure out how to actually live with ourselves. What hurts the most isn't the outside noise; it's those looks from others that make me feel pathetic. They don't have a clue what's actually happening once I shut my bedroom door and close my eyes.
Sorry I haven't been around this thread much more lately. My computer is acting up; I practically had to bribe it just to get these words typed out.😠
Wishing you all plenty of strength and good health.
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#32 ·
Olivia Ward20 said:My whole world just started spinning out of control again today... after finding out I likely have a tumor back. I already went through one round—surgery, recovery, the whole thing—and it wasn't easy. I'm still recovering from all of that when they drop this on me today: it's probably a tumor again, likely in the same spot or somewhere right next to it (who can even keep track when you're in shock?). All I can hear echoing in my head is that word... tumor. I keep thinking about having to redo the entire process from scratch, and honestly, I don't even know how any of this ends. Now I'm just sitting here waiting for the medical board to meet and discuss my case to figure out the next steps, and the anticipation alone is killing me. I'm trying not to dwell on it, trying not to let it consume me, but I simply can't because it's stronger than my willpower. It’s even worse when I see everyone around me looking at me with nothing but pity; it just makes me feel worse. I don't know how I'll manage... I'm terrified of breaking down right when I need my strength most to endure this on my own. Maybe I should just have a good, honest cry and let it all out—all the anger, the despair... I really don't know anything else right now... 🙂 🙂

Just know that you aren't alone, and please, try not to fall into self-pity. I know how heavy this is, but I also know that every single one of us carries an immense reservoir of strength and power within ourselves that we aren't even aware of until it's tested.
How do you move forward? One step at a time, day by day, accepting things as they unfold in front of you. Surround yourself with positive people who don't view you as someone "marked" by a tumor, but rather as someone fighting a challenge who needs support in the form of treating you normally.
Think of this situation as a perfect filter to cut out all the negativity and toxic elements surrounding you and purge them from your life. Making those kinds of changes can actually have a massive impact on the healing process.
Wait for the medical board's decision and be an active participant in your own treatment. Be clear and decisive regarding your right to accept or refuse certain paths. You are the one who must take charge of your illness; never let it take charge of you.
Hang in there, stay brave, and fight with optimism!

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