Support resources for families dealing with cancer and other serious illnesses

hollowsailor33 said:Thanks for the advice! I read about a cancer killer a few years back, but it didn't really grab me since it's systemic rather than targeted. Mesothelioma is 100% fatal, so at this point, only God can help!

I'm sorry to hear that, and honestly, I don't have any profound wisdom to offer right now. Personally, I’d still give the formula a shot. The fact that it's systemic isn't necessarily a dealbreaker. It encourages the body to fight all tumor types on its own, which seems reasonable enough to me. I've done a lot of digging on www.inocell.com and found plenty of scientific papers suggesting it could work. Look, it's not a magic bullet for every single type of cancer, but I think it's worth exploring while you've still got your wits about you...

Angela Wright said:If you actually bothered to read the conclusion of that scientific study, you would have seen that the tests were conducted on animals. They haven't proven toxicity, nor can they determine an exact dosage for humans based on those results—they just extrapolated from animal data. We are talking about a dietary supplement here, a potent antioxidant designed to boost immunity and prime the body to fight cancer and endure the rigors of chemo and radiation. Calling this some kind of "universal cancer cure" is beyond pretentious. There hasn't even been a proper clinical trial on humans following standard protocols, which often take a decade to complete.
We also have studies conducted at the Ruđer Institute regarding, for example, Heder's Native Propolis. It’s another antioxidant. Research on rats showed it can repair damaged DNA, halt carcinoma progression and metastasis, and kill tumor cells without touching healthy ones. In cases of brain tumors like gliomas, it helps the body trigger its own internal response (immunotherapy). My mother took high doses of Propolis while battling a glioma. She passed away, obviously, but she suffered far less and lived much longer than others facing the same diagnosis. It helped her tolerate chemo incredibly well.

As for Megamin, here is your list of "scientific studies" that supposedly "speak in their favor."😉

Like I said, try everything, but my experience tells me this isn't THE answer, no matter how much we want it to be.😢

I happen to be a doctor, so I have to address that comment about testing only on animals. Once, during a medical school exam, a professor asked me about fruit flies. I told him they were irrelevant and that we should focus on studying humans. He shot back: "Once you graduate, go ahead and research humans—see if they don't lock you up and label you a savage." If you actually read the literature (there are about 50 studies), this preparation has been clinically tested on human cancer patients right here in Split!!! That’s the reality. I am not claiming IP6 is a perfect product or a universal "cure," but based on my own limited experience and what I saw with a sick relative, I suggest patients give it a shot.
Megamin is just ground-up rock, and everyone knows it.

Frank Taylor4 said:Look, I’m a doctor, so I have to touch upon the whole animal testing debate. Back in med school, a professor once grilled me about fruit flies. I basically told him they were irrelevant and that we should just focus on studying and treating actual humans. He hit me back with: "Once you graduate, go ahead and start experimenting on people—see how fast they throw you in jail and label you a barbarian." If you actually bother to read the literature—and there are about fifty studies out there—this formula has undergone clinical testing on cancer patients right here in our own backyard in Split!!! That’s the reality. I’m not claiming IP6 is some holy grail or a universal "cure" for cancer, but based on my own experience (admittedly limited) and the results I've seen with a sick relative, I suggest those suffering give it a shot.
Megamin is nothing more than ground-up stone, and everyone knows it.

Since you’re claiming to be a physician, why don't you step up, go public, and put your name behind these statements? Anything else is just noise; it's easy enough to manipulate a layperson.

darkmaker70 said:My mother started her chemotherapy yesterday, and thank God she hasn't had any major issues today or yesterday; the only thing bothering her is her digestion, though that’s likely due to the massive intestinal surgery she underwent, and I can only hope it’s temporary, just requiring some time for everything to heal...

Standard blood work looks great, and we received the tumor marker results today; as far as I can decipher them, everything seems fine, so we are just holding onto hope for the best!!!

The body requires an immense amount of time to recover from the shock of such a heavy surgery. While perhaps not the most comforting thought, my own mother still deals with digestive issues even after a full year, though it isn't particularly concerning—it's simply considered "normal" at this stage. Eventually, things should stabilize, because the most vital factors are that the blood tests are normal, the markers remain under control, and she continues to tolerate the chemotherapy well...

Hang in there... kisses

Hey Adam Cruz54,
Tarceva is basically next-gen chemo in pill form. Honestly, the side effects are minimal! My family had such a great experience with it that I can’t recommend it enough. My grandma, who’s quite elderly, was on the 150 mg dose for a few months and responded really well to the treatment. She’s actually down to Tarceva 100 mg now, which is a slightly lower dose for her, but we still have an entire original box left over plus a few extra pills (think of it as a gift for whoever can use them) that we’d be happy to pass along or sell at half price (I mean, let’s be real, the prices at our local pharmacy are absolutely highway robbery—around $190 a pop, and even out in the rural areas they can charge up to $7333 just because they know they can profit off someone else's struggle!!!). We just want to make sure we can keep up with her 100 mg supply. If you’re interested in getting the meds at half price, let me know, since we can't exactly go looking for a lower dose elsewhere. If you're interested, we can work out all the details. As for side effects, she dealt with a bit of a rash and some stomach issues, but the disease didn't progress at all. In fact, it’s like the tumor actually stabilized or even shrunk a tiny bit. She’s 80 years old now, still keeping up with her great-grandkids—she can't do too much, but THANK GOD she stayed persistent and refused to give up. If you also need any anti-nausea meds or anything else, consider that a gift from us.
Anyway, hang in there and don't give up!!!

In any case, if you need more advice, you should definitely check out the Patient advocacy group «For a new day»

Angela Wright said:Since you're a doctor, I challenge you to step up and go public with these claims. Anything else is just noise—it's easy to manipulate a layperson.

Everything I’ve stated holds up; any physician or pharmacologist will tell you the same. I’m a dentist, so I’ll stick to my own lane where my expertise actually lies. A relative of mine saw Slavoj Žižek—she’s an immunologist, which is her specialty—and I’ve shared her contact info a few times. I believe she can provide the best clarity to anyone seeking her expertise. I have no interest in looking like I'm peddling a product or running an ad here. In my view, the aforementioned doctor is the most reliable resource for those needing actual medical advice or intervention.
Regarding the IP6 clinical trials, you can find about 50 papers on laboratory and clinical testing for the IP6 formula at www.inocell.com under the "published science" section. Prof. Družijanić and his team conducted research in Split and achieved some very compelling results. It's a shame everything is published in English; it's highly technical, and a layman will likely find it difficult to parse.
I reviewed the Megamin references on the link you provided, and I understand why you're concerned.
I hope this addresses your request to some degree.
Regards to the group

Frank Taylor4 said:Everything I’ve laid out here is factual, and any doctor or pharmacologist will back me up on this. I’m a dentist, so I’ll stay within my lane since that’s my area of expertise. A relative of mine saw Dr. Slavoj Žižek—she’s an immunologist, which is her specialty—and I’ve shared her contact info a few times. I truly believe she can give anyone reaching out the clearest explanation possible. Look, I don't want it to seem like I'm some salesman trying to push a product here. In my experience, the specialist mentioned above is the best resource available for anyone needing actual medical advice or intervention.
Regarding the clinical trials for IP6, if you head over to www.inocell.com, you can find about 50 different papers under the "published science" section covering both lab work and clinical testing for IP6. Prof. Družijanić and his research team conducted studies in Split and pulled some incredibly compelling results. It’s a shame everything is published in English; it’s highly technical stuff, and for a layperson, it’s pretty dense going to read.
I took a look at those Megamin references from the link you sent, and I totally get why you're worried.
I hope this helps answer your questions, even just a little bit.
Best to the group,

Thanks.
The reality is, in my experience, doctors tend to go completely cold when you even mention things like immunostimulants or antioxidants. They often shut down immediately, even when it's obvious the patient isn't looking for a magic cancer cure, but rather something to help them endure the grueling treatment process.
I’m sitting here waiting for a legitimate expert—an MD or maybe an oncologist—to finally step up and say, "Yes, this works, I recommend it, and it will help you," and actually stand behind that statement. As a founding member of the Patient advocacy group, I am constantly in contact with a huge number of patients, and every single person I've spoken to regarding this "issue" has run into that exact same wall of resistance from their doctors.
If these studies are truly as solid as they claim, then I'll just say one thing: It was about time something like this was developed.👍, but I really want to see doctors validate this through their own clinical practice.

I just want to jump in on what Angela Wright was saying—honestly, every single doctor I've talked to has just completely brushed off my questions about using IP6 & inositol... they won't even give me the time of day regarding their experiences with it.
I've tried calling Prof. Družijanić on her cell a few times now, but she hasn't picked up once. I guess I'll try again later... maybe luck will change.
Frank Taylor, do you happen to know which specific types of illnesses Prof. Družijanić actually deals with most often?

On another note, my mom is starting chemotherapy soon following the Mayo Clinic protocol. It’s 5-fluorouracil and leucovorin, five days a week (they told us it takes about half an hour per session), then three weeks off, repeating that for six months... If anyone here has gone through this and can tell me how the treatment holds up or what kind of results to expect (the diagnosis is Dukes C, moderately differentiated), please, reach out!

dammit, I know you went through this exact same protocol. How are things looking for you now??? Hang in there!

I don't get why everyone's coming for Frank Taylor4—the guy genuinely wants to help and he’s actually got a heart. He's saying the right things and trying to make a difference, and honestly, when you've got cancer in the family, isn't a little kindness exactly what we all need?

Look, I wasn't trying to go after Frank Taylor4, and I didn't take it that way from Angela Wright either... honestly, I'm just trying to get some kind of sign from her doctors about using an extra supplement, but I can't for the life of me figure out why they're totally blowing us off—is it just pure incompetence (which, if you ask me, is totally unacceptable) or do they just not approve of it? All the nutritionist would admit is that she hasn't heard a single thing about IP6

hollowsailor33 said:I don't get why everyone is coming for Frank Taylor4. The guy genuinely wants to help and he's actually kindhearted. He speaks with good intentions, and when you have cancer in the family, you need some warmth and empathy, right?

Give me a break😲. I’ll offer my apologies to Frank Taylor4 if that’s how he felt. Look, I’m just reporting what I’ve personally experienced and what I see happening to others. I made it crystal clear from the jump that you should try everything available, but you have to be careful. This world can be incredibly predatory; people exploit suffering for profit all the time, and it's easy to play someone who isn't a medical professional. That is the sole reason I demanded that someone put their actual name, surname, and credentials on the line to guarantee effectiveness. Nothing else.

Angela Wright said:Read this and witness the absolute disgrace of a Secretary of Health:

Who is going to take responsibility for this wonderful woman? Who has the guts to look her family in the eye knowing they might have to fight for their vote again at the polls?☕
DISGUSTING!🙂

Here is the rest of the story:
It makes me want to weep. I feel completely powerless in this miserable country that I was born into. Imagine how Alenka and those actually living through this nightmare must feel.

Honestly, I have to ask myself if there’s even any point in trying anymore in this valley of tears. Maybe the best thing to do is just let these scumbags rot in their own filth, let everything fall apart and spiral into chaos... my poor American people! 🙂

Angela Wright said:Here’s the rest of the story:
I’m actually tearing up here. I feel completely disenfranchised in this miserable country I was born into. I can’t even begin to imagine what Alenka and those in her position are feeling right now.

Honestly, I find myself wondering if there is any point in trying anything anymore in this valley of tears. Maybe the best course of action is to just let the bureaucrats ferment in their own filth and let everything collapse into ruin... my poor fellow Americans! 🙂

We have to take action! We cannot surrender. If the necessary Legal amendment doesn't pass through Parliament, we will take to the streets. There is no other way. This isn't just a fight for those suffering from soft tissue sarcomas anymore; it’s a fight for everyone battling rare diseases. Let’s all stand together and support them!

slyseal28 said:We have to take action! We can't just give up! If the legal amendment doesn't pass through Parliament, we’re taking to the streets. There's no other way. This isn't just about fighting for those suffering from soft tissue sarcomas anymore. This is a fight for everyone living with rare diseases. Let's all stand together—please, support us!

Of course we're going to act; fighting is basically in our DNA at this point. But what really gets under my skin and keeps me up at night is that we're constantly battling an invisible enemy or trying to win a fight with one hand tied behind our backs. You think you've finally made some headway, only for the whole thing to be slapped right back in your face. My real dilemma is: what's the point of tackling individual issues when the entire system and the government are rotten to the core? Without massive structural changes in the system and society as a whole, I honestly don't see how anything will get better in the long run. How are we supposed to fight for access to a single medication when the very system itself is denying us the basic right to live? It's absolutely twisted—honestly, it feels worse than the cancer itself🙂. It makes me want to pack it all in and move to Mars.

Angela Wright said:Of course we will take action; it is simply part of our nature to be in a state of constant struggle. What weighs most heavily on me, and what truly causes me concern, is this feeling that we are perpetually fighting an invisible enemy or attempting to fight with one hand tied behind our backs... And then, just when it feels as though we have finally achieved something, everything is suddenly thrown back in our faces. My dilemma remains: what is the ultimate utility in fighting individual battles when the entire system and the nation itself are rotten to the core? Without significant structural shifts within the system and society at large, I fail to see how anything can truly improve in the long term. How can one reasonably fight for the right to access a single medication when the very system is denying us the basic right to exist? It is utterly pathological, perhaps even more insidious than cancer itself🙂. Sometimes, I feel a sudden urge to just pack up and move to Mars
.

Unfortunately... I couldn't even bring myself to finish the article... we must do something to change the system... I am speechless, truly speechless

🙂

Angela Wright said:Here's the rest of the story:
I'm actually tearing up here. I feel completely screwed over in this miserable country—my own home. And man, I can't even imagine what Alenka and everyone else in her shoes is going through right now.

Seriously, I have to wonder if there's even any point in trying anything anymore in this valley of tears. Maybe the best move is just to let all those assholes sit in their own filth and let everything just fall apart... poor Americans! 🙂

🙂

Angela Wright said:Thanks.
In my experience, whenever you even mention immunostimulants or antioxidants to doctors, they either shut down completely or immediately start acting like they've found a miracle cure—even when it’s obvious the patient isn't looking at it as a "cure" for cancer, but rather just something to help them endure the treatment itself.
I’m sitting here waiting until I’m blue in the face for a legitimate expert, a doctor, or preferably an oncologist, to step up and say: "Yes, this is good, I recommend it, and it will help you," and actually stand behind that statement. As a member and one of the founders of the Patient advocacy group, I am constantly in contact with a vast number of patients, and everyone I've spoken to regarding this specific "issue" has encountered the exact same reaction from their physicians.
If these studies are truly as groundbreaking as they claim, I’ll only say one thing: It was about time something like this was even invented.👍, but I would love to see doctors validate this through their own clinical practice.

I met that Dr. Slavoj Žižek today. She reached out to us through the association and sent over some text regarding Inocell, and we ended up crossing paths with her today while we were heading back from Rib. To be perfectly honest, I wasn't impressed.

The first thing that rubbed me the wrong way was her claim that this drug is excellent for all types of malignancies. A universal cure???

Secondly, she mentioned that back in the 90s, she had cystosarcoma and refused both surgery and standard therapy, choosing instead to heal herself through a strict diet (no meat, no fish, just fruits and vegetables). I did a little digging into that specific tumor type and found there are both benign and malignant variants.

Since she didn't show me her actual medical records, it's hard for me to take her word that it was the malignant version. But again, that’s just my impression. Call me "Doubting Thomas."

Furthermore, a small bottle costs roughly $122. I forgot to ask how many capsules are actually in one. Regarding the Pigeon, she immediately estimated he needs to take 8 capsules a day without even glancing at his medical history. Yet, she insisted that I bring his documentation to her. That part particularly bothered me.

Perhaps some of you will have better luck and might actually like her. I just wanted to share my take on the situation.

It feels to me like everyone is just looking for a way to profit off oncology patients, and frankly, that gets under my skin. It's just not right.

My apologies if my explanation offended anyone, but I believe this forum exists so we can weigh these dilemmas together. Perhaps I'm mistaken...

slyseal28 said:It feels as though everyone is just looking for ways to profit from oncology patients, and frankly, it gets under my skin quite terribly. It simply isn't fair.

I apologize if my explanation came across as hurtful to anyone, but I truly believe this forum exists so we can collectively navigate these dilemmas. Perhaps my perspective is flawed...

You are certainly not mistaken. Earlier today, I asked a few friends to sign a petition—and those shameless bastards refused, claiming it was a waste of time. It stung to get the impression that if one day, God forbid, I were to fall ill myself, they would be the very first ones to turn their backs on me...

How tragic...

Amy Hayes28 said:It’s truly unfortunate to see you here, neonhound32. It's just a bad situation all around.😢
Hang in there. It’s going to be okay.🙂
The first sip is always a disaster. I tend to stick to my own little mantra, though: it isn't over until I say it's over.🙂
Mom is going to be okay. She has to be.😉

🙂

I know, I know—don't worry, I haven't lost hope yet. We brought her the TV today, and she perked up immediately since she can finally watch Carolija again. 😁

The diagnosis is multiple myeloma. It’s already spread to her pelvis, spine, and ribs. 😢

The biopsy results should be back tomorrow. Once they have those, we'll finally have a more precise diagnosis.

Hang in there, everyone.

slyseal28 said:So, I finally met that Dr. Slavoj Žižek today. She reached out to us through the Patient advocacy group and sent over some write-up about this Inocell stuff, and then we actually bumped into her while we were heading back from the Rib. Honestly? I wasn't feeling it at all.

The first thing that rubbed me the wrong way was her claiming this drug is great for every single type of cancer. Like, a universal cure???

Then, she goes on about how back in the 90s, she had cystosarcoma and turned down surgery and standard treatment, choosing instead to heal herself just by eating right (no meat or fish, just fruits and veggies). I did a little digging on that specific tumor and found out there’s both a benign and a malignant version.

Since she didn't show me any actual medical records, it’s hard for me to buy that she was dealing with the malignant kind. But hey, that's just my take. Call me a Doubting Thomas if you want.

On top of that, one tiny little bottle costs about $122. I totally forgot to ask how many capsules are even in there. As for the Pigeon, she immediately told him he needs to take 8 capsules a day, even though she hasn't even looked at his medical history yet. Then she had the nerve to insist that I bring his documentation in. That part really annoyed me.

Maybe some of you will have better luck or actually like her. I just wanted to be real with you guys and share my experience.

It feels like everyone is just looking for a way to make a buck off oncology patients, and honestly, it gets under my skin. It’s just not right.

Sorry if I stepped on anyone's toes with this, but I figured this forum is exactly where we should talk through these kinds of dilemmas together. Maybe I'm totally off base...

YOU ARE TOTALLY RIGHT. And Frank Taylor4, forgive me if my gut is wrong, but I really feel like there's a certain Doctor hiding behind that pseudonym...
What really tipped me off was the registration date, which lines up perfectly with when she started pushing this "universal cure" nonsense.
And I don't get how Frank Taylor4 even knows about St. Dr. when his buddy's apprentice got the info from a friend in the USA... there are just so many holes in this story.