Susan Ruiz76 said:Hey Rose, something just isn't adding up here, and I honestly can't put my finger on it. I’ve been keeping a close eye on what your husband is going through, and that swelling in his head during those bronchoscopies back in Smalltown, USA really caught my attention. Usually, when you see that kind of swelling, it means something is putting pressure on the veins in the neck. Did they actually explain why that happened in his discharge papers? And do you actually go into the exam room with him during follow-ups? Look, patients forget so much stuff—either they forget to ask the right questions or they just blank out on what the doctor even said. That’s why having someone there is huge, even though I know everyone loves playing the "I can handle this myself" card. They act all tough and say, "Why do I need you?" But honestly? Most of the time, our loved ones play that game just so we don't have to deal with the bad news.
Look, the reason I'm asking you this is pretty simple. If the radiologist puts down on that report that a scintigraphy is absolutely mandatory, then why on earth didn't anyone just speak up? Like, seriously, why not just look the doctor in the eye and go, "Hey Doc, what's the deal with this? What's your take on this finding, and can you write us a referral for the scintigraphy?" It’s not rocket science.
Look, it’s not too late for you yet. If that radiologist's report says you need a scintigraphy, then just have your GP write up the referral. From there, you just call up the nearest hospital and check when they can squeeze you in for the scan. We handled everything like that back in Indianapolis. Just give it a shot! It won't cost you anything, and honestly, getting it done will take a massive weight off your shoulders—because let's be real, the results are gonna come back fine anyway.🙂 Hey, what's up! Greeting!
Every single time we roll into the hospital, I make sure to sit down with the doctor first. I lay it all out—every little change, every weird symptom my husband’s been dealing with lately. I explain everything, ask questions, try to be helpful... and honestly? It’s always the same old story. "Oh, don't worry about that, it's nothing." Just dismissive. I’m right there by his side through the entire exam, too. I've never once walked away with a straight answer to anything. It’s like they think I’m just some idiot who doesn't know what she's talking about.
So, we’re back at the follow-up appointment. He finally tells us there’s no cancer, and that the only thing my husband is actually battling is PTSD. Honestly? Unbelievable. I mean, who wouldn't want that kind of news for once?
So, I got the discharge papers yesterday, and let me tell you, they say something completely different from what we were told. It doesn’t say my husband is in the clear, it doesn't mention the cancer is gone, and there isn't even a single word about his PTSD... nothing. On the PET CT scan, they didn't even address the primary illness—which I specifically pointed out to the doctor, by the way—but he just brushed me off like, "There are no lesions, there's nothing there." Instead, all they wrote about was some clusters on the vocal cords. The doctor swore up and down it was nothing. He gave me his word, so I believed him. But now? Now the discharge summary is recommending an ENT follow-up. Like, seriously? If it's "nothing," why the referral? Honestly, I don't even know what to think anymore. His sedimentation levels are high, there are white blood cells in his urine, and he can't even pee properly. I'm heading to the local clinic today to try and get some actual help.
At the end of the day, you just gotta trust yourself and your own damn horsepower.
