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Living with Meniere's disease

Started by silverbison26 · · 👁 3 views · 4 replies

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Participants silverbison26wiredpuma5Jessica Brown7William Sanders5
silverbison26 silverbison26 NewcomerOP
2 messages
joined Nov 2007
#1 ·
I’ve run into a bit of a situation... 😢

I am starting to suspect I might be dealing with Meniere's disease. It’s these intense bouts of vertigo—just spinning out of control—and this massive nausea, though I haven't actually thrown up yet. I even ended up in the ER, and they just handed me some Meridian tablets... honestly, those are the only things that made me think there might be a connection to this syndrome, but I can't say for sure. 😕 Apparently, the whole mess is tied to the ear... (I actually had two ear surgeries nearly 20 years ago...).

Does anyone here know anything about this? Is there any way to actually cure it?
wiredpuma5 wiredpuma5 Member
37 messages
joined Nov 2020
#2 ·
silverbison26 said:I’m dealing with something tricky. 😢

I suspect it might be Meniere's disease. The vertigo attacks are intense, and the nausea is brutal, though I haven't actually thrown up yet. I even ended up in the ER, where they prescribed me some Meridian. It’s the only thing that feels linked to this whole situation, but I can't be certain. 😕 Apparently, everything stems from the ear (I had two ear surgeries nearly 20 years ago).

Does anyone here have experience with this? Is there actually a cure?

From what I understand, there isn't a permanent cure; you just manage the symptoms with medication...
Xanax + Valium (basically motion sickness relief)

Here is a link (it's in English), but it gives a pretty solid, concise breakdown of the situation...
If you need anything translated or if a specific part isn't clear, just ask...
http://www.fpnotebook.com/ENT228.htm

And an American medical resource for you: http://www.mayoclinic.org
silverbison26 silverbison26 NewcomerOP
2 messages
joined Nov 2007
#3 ·
Thank you so much!

You have been such a huge help to me...
Jessica Brown7 Jessica Brown7 Newcomer
3 messages
joined Dec 2009
#4 ·
Doctors here think I might have Meniere's, but they aren't totally sure because my symptoms are kind of all over the place. So, I wanted to reach out and see if anyone else has dealt with this. For about a year now, I've been getting these strange dizzy spells. It starts with this sudden weakness on one side, then the sweating kicks in and I get hit with this wave of fear. If I try to stand up or even just sit down, I end up stumbling forward and the pressure is so intense I can't pull myself back up for a few seconds. It always pulls me toward the left. During those moments, there isn't even a specific spinning sensation. But then there's this other thing—this constant dizziness pulling me to the left that lasts for days. Lately, it’s been sticking around for two weeks at a time, usually following a couple of these acute attacks. I don't have any nausea and my hearing hasn't dropped off; honestly, during the attacks, my hearing actually feels sharper than usual. They also mentioned BPPV as a possibility. Has anyone else gone through this? My doctors are basically just guessing at this point and haven't given me a straight diagnosis. Thanks.
William Sanders5 William Sanders5 Newcomer
3 messages
joined Jul 2011
#5 ·
Fellow members,
I’m looking for some advice here—my mother is dealing with severe ear issues, hearing loss, and intense vertigo. She was just diagnosed with atypical Meniere's disease... specifically, "Hydrops labirinthi lat. sin. & Hypoacusis perceptiva sensorica lat. sin. & Paresis Vestibularis lateral dex. gravis." She's currently on Betaserc and a course of corticosteroids. Has anyone else dealt with this? I'm also searching for a specialist who actually knows what they're doing—ideally someone based in Cleveland. Thanks for any help you can provide.

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