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Resources and support for families dealing with cancer and serious illness

Started by Angela Wright · · 👁 96 views · 3K replies

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Participants Angela WrightChristian Wilson16Morgan Williams4Jeremy Nelson3John Chase6steelbadger83hiddentiger80urbanjackal3silentviper30mistyranger4ruggednomad182placidfalconJerry Morales4frozenviper492velvetgull9Joshua Flores48Frank Ramirez23Roger Hall15Walter Cox5mellowlynx8boldjackal70northernfox9ALaura Gomez10 …
Benjamin Grant6 Benjamin Grant6 Member
36 messages
joined Aug 2008
#2341 ·
Alex White6 said:Hello everyone... this is certainly a thread I hoped I would never have to open, yet unfortunately, here I am.
I recently discovered that my aunt, whom I’ve lived with for six years now, is battling stomach cancer. It was only caught in stage four, far too late. After the initial shock, grief, and tears, I find myself transitioning into a phase of pure fury. A fury that drives me to do everything in my power to ease her suffering, a fury directed at this vile, insidious disease that I want to defeat alongside her, and finally, a fury toward one highly esteemed, renowned, and "overly qualified" gastroenterologist in Washington, D.C. He was utterly incapable of diagnosing a tumor that was already in its advanced stages, and he refused to perform a gastroscopy even after she pleaded that she hadn't felt right for months.

Because of his nonchalance and supposed "expertise" (she went to him for stomach issues, but during an ultrasound, he "spotted" uterine fibroids and polyps which, of course, turned out to be non-existent), the tumor eventually perforated her stomach, and she nearly died from sepsis.

Thank God for the physicians at the hospital in Cleveland who acted swiftly and saved her life. Her condition remains critical, but we are hoping for the best possible outcome...

To that "expert" gastroenterologist, we owe nothing more than a private lawsuit, though I fear that given his reputation, it might just be a futile struggle against windmills.

Stay strong, everyone... I am off to visit my dear aunt now and try to bring a little laughter to her side.

Unfortunately, doctors are merely human and capable of error. Yet, we find it so difficult to accept those mistakes, don't we? Especially when they involve errors of such gravity.

Eight years ago, my mother began experiencing sudden bleeding. Believing it was simply menopause—as she was exhibiting all the typical symptoms—she didn't seek medical attention immediately. Eventually, she saw a gynecologist in San Francisco and then another in Cleveland, neither of whom knew what was happening, though they suspected uterine cancer. Upon hearing that, she traveled to Vienna to see the gynecologist who had operated on her six years prior (it was for a benign cervical tumor, if I recall correctly). That doctor was visibly shaken by the diagnoses, because, as it turns out, she didn't have cancer at all, but rather a spontaneous miscarriage. 😲

That is why, ten months ago when things escalated, my father didn't hesitate to take her to Italy... although they make mistakes there as well. They once diagnosed an elderly woman, who had been treated for ovarian cancer, with lung metastases. They were already preparing her for a lobectomy... until they repeated the tests and realized the metastasis wasn't there. Fortunately, 🙏they repeat tests and remain vigilant.

During my mother's surgery, two oncologists, a pathologist, a surgeon, and an anesthesiologist were present. Mistakes were simply not an option.

Be there for your aunt; stay strong and ready for the fight! There is no point dwelling on the failures of that "gastroenterologist"—focus only on how you can support her. She needs your strength against the illness, not a battle against doctors... lawsuits won't help her... not one bit.

Hang in there! Kisses
slyseal28 slyseal28 Member
11 messages
joined Mar 2007
#2342 ·
I just wanted to let you all know that there will be a feature segment on our Association during the "America Live" broadcast starting at 4:00 PM today (I’m not quite sure where we fall in the lineup). You'll get to hear some commentary from Dr. Mirando Mrsić, a medical doctor who has been working closely with us. Be sure to tune in...
crimsonmason44 crimsonmason44 Member
24 messages
joined Sep 2007
#2343 ·
slyseal28 said:Just wanted to give you guys a heads-up—there’s going to be a segment on our Association today on the "America Live" show starting at 4:00 PM (not sure exactly when we come on). You'll even hear some commentary from Dr. Mirando Mrsić, the physician who's been working with us. Tune in...

Awesome! Awesome! We'll all be watching,👍😍
A Anonymous Veteran
3.6K messages
joined May 2005
#2344 ·
Thanks, everyone. The funeral was yesterday, and now I guess I just have to figure out how to move forward...

@Alex White6/">@@Alex White6: I am so incredibly sorry, but I have to be honest with you—if it’s already at Stage 3 or 4, there isn't much hope left, no matter how hard you fight or how much willpower you have. It's a heartbreaking reality. My mom was at Stage 3, moved to Stage 4, and passed away just three months after her diagnosis. All you can do now is stay by her side and make her as comfortable as possible. To anyone else reading this, please, go to your regular checkups. They truly save lives. My mom skipped hers for two years, and it cost her everything...😢
Angela Wright Angela Wright RegularOP
731 messages
joined Feb 2007
#2345 ·
slyseal28 said:I just wanted to give you all a heads-up that there’s going to be a feature on our Association today on the "America Live" show starting at 4:00 PM (not sure exactly when we'll be on). You’ll even get to hear some commentary from Dr. Mirando Mrsić, the doctor who joined up with us. Make sure to tune in!

I'm just crossing my fingers that everything looks professional and we don't end up looking like total fools.🙈
Just so we're clear: if anyone said they were going to join after this and then backs out, I'm coming for them with a gun to their head!!!🙂 The camera and I have a mutual distaste for one another, so I had to swallow a massive amount of pride standing in front of it—all for your sake, my dear friends.😍
Alex White6 Alex White6 Member
22 messages
joined Jun 2006
#2346 ·
Anonymous said:Thanks to everyone. Yesterday was the funeral, and now I suppose I just have to keep moving forward...

@Student: I'm so sorry to have to tell you this, but once it reaches stage 3 or 4, there really isn't much hope left, no matter how hard you fight or how much willpower you have... It’s just our sad reality. My mom was at stage 3, moved to stage 4, and passed away only three months after her diagnosis. All you can do now is stay by her side and make her as comfortable as possible... For everyone else, please, go get your checkups regularly. It truly saves lives. My mom skipped hers for two years, and it cost her everything...😢


Thanks to everyone for the support...🙂

The One... don't get me wrong, but I just can't accept that this is the end. She doesn't look like it's the end. Honestly, she doesn't even look sick...
The good news is that the metastases haven't reached any vital organs or lymph nodes... That's why the upcoming surgery on the Rib makes sense to the doctors, even if it lasts twelve hours. Chemotherapy after the procedure will be part of the plan too...

She’s strong... she’s fighting hard and hasn't let this illness break her spirit. I know things look grim and the doctors haven't given us any other news, but I just can't stop hoping and trusting in God...
I'm afraid to stop hoping...
We were laughing together yesterday... I gave her a leg massage and we took a little walk around the hospital. I just can't bring myself to let her go...
I don't want to wallow or give in to sadness... I think that's just a waste of time. I'm going to fight through it...
Alex White6 Alex White6 Member
22 messages
joined Jun 2006
#2347 ·
Nancy Hernandez43 said:Unfortunately, doctors are only human, too, and they can make mistakes. But we find it so hard to accept those errors, don't we? Especially when the stakes are this high...

Hang in there. Kisses...

Thank you so much!

I know doctors are just people, but shouldn't they be more careful than the rest of us? People's lives depend on their precision... It's a heavy burden, for sure. But in my aunt's case, a gastroscopy isn't some rare procedure. Stomach cancer isn't exactly a one-in-a-million occurrence...
James Martinez3 James Martinez3 Newcomer
4 messages
joined Feb 2013
#2348 ·
Alex White6 said:thanks everyone for all the support🙂
she’s incredibly strong; she’s fighting this with everything she has, her spirit hasn't broken, and she refuses to just surrender to the illness. I know the situation is heavy, and none of the doctors have given us any reason to be optimistic, but I just can't stop hoping and putting my faith in God.
I'm actually terrified of the idea of losing hope.
Just yesterday, we were laughing together, I was giving her foot massages, and we were walking through the hospital halls. I simply cannot let go.
I refuse to spiral into despair or drown in sadness because, honestly, I feel like that's just a waste of precious time. I'm going to fight right alongside her.

My grandmother was diagnosed with late-stage stomach cancer, and the doctors basically left the decision up to us regarding whether or not to proceed with surgery, since they weren't even sure if she'd make it through the procedure itself. They told us straight up that without intervention, she had about three months left, and if she even woke up after surgery, there was no telling what would happen. That was the literal reality they presented to us.

My grandma is 87 years old now, and she’s living with about a third of her original stomach left. She still heads to the bank and to church on her own, she cooks her own little micro-meals—I always tease her that she eats like a tiny little bird—and at my mom's last birthday party, she was singing her heart out well into the night.

So, please, don't tell me there's no hope, because that just isn't true. And of course you're going to fight; is there really any other choice?

Stay strong and keep the faith!
Zachary Booth3 Zachary Booth3 Member
27 messages
joined Dec 2008
#2349 ·
slyseal28 and Angela Wright, I just caught you both on NBC—huge props to you!!!!!!!!!!!!! You were absolutely brilliant!!

My dad's condition hasn't changed, though if I'm being honest with myself, he's rambling more often than he used to. Our main issue right now is that they need to reduce this cystic mass within the tumor, but the doctors were blunt with us: because of his surgery seven years ago and the fact that he ended up in a three-week coma afterward, there's a real chance he won't survive the procedure.
So, how do you even make a call like that? In my eyes, choosing surgery or playing it safe feels like a coin toss where both sides are equally dangerous.
I'm wondering if anyone here has dealt with something similar. Has anyone ever tried reaching out to bioenergy healers or anything along those lines? Any experiences to share?
Hannah Thomas28 Hannah Thomas28 Member
17 messages
joined Nov 2007
#2350 ·
I just watched the report!
You guys are amazing!

Ivanna, and you're gorgeous too!
Laura Kelly91 Laura Kelly91 Member
23 messages
joined Dec 2007
#2351 ·
Such a beautiful story about people fighting cancer and their sheer will to pull through. It’s warm, sincere, and really hits home.🙂
gentlemoose62 gentlemoose62 Active Member
105 messages
joined Jul 2008
#2352 ·
slyseal28 said:I just wanted to let you guys know there's going to be a segment on our Association today on the "America Live" show starting at 4:00 PM (not sure what order we're in), about our Association. You'll even see some commentary from Dr. Mirando Mrsić, a doctor who has joined our Association. Make sure to tune in...

Just jumping in here to say I was watching you all and you were absolutely FANTASTIC!
You were exactly how I pictured you—so full of energy, totally sincere, and overflowing with that optimism that really shines through in your faces to everyone watching. Honestly, what can I even say... I actually ended up tearing up when Angela Wright gave such a sweet plea to everyone who could help join this massive movement.

THANK YOU GUYS, keep it up!
Angela Wright Angela Wright RegularOP
731 messages
joined Feb 2007
#2353 ·
Hannah Thomas28 said:I caught the segment on TV!
You guys are absolutely brilliant!

Ivanna, and you're gorgeous too!

Man😍
for the record, everyone, I am seriously not that moody and my ego isn't actually that massive🙈

Listen, thank you all so much—honestly, none of this would be happening without you🙏. We have a long road ahead of us, but we’ll clear the path together. Thanks for standing by us and helping us help you😉
John Chase6 John Chase6 Newcomer
5 messages
joined Jun 2007
#2354 ·
Hey there, my dear friends!!!!!!!!
I'm finally back homeeeeeeeeeeee—after a long, exhausting 17 days, I am finally back. I wanted to let you all know that I'm doing pretty well. The SURGERY was a success, and the pathology report looks encouraging. I'm just so incredibly happy...
I'll be checking in over the next few days with all the details...
Kisses, Dina :-)
Angela Wright Angela Wright RegularOP
731 messages
joined Feb 2007
#2355 ·
Grace Fowler said:Hey there, my wonderful friends!!!!!!!!
I'm finally homeeeeeeeeeeeeeeee! After 17 long days, I've finally made it back. I wanted to let you all know that I'm doing pretty well—the SURGERY was a success, and the pathology report is looking encouraging. I am so incredibly happy...
I'll be posting more details over the next few days...
Kisses, Dina :-)

Oh my God, what an absolutely beautiful day😍! Seriously, just yesterday I was talking to slyseal28 about how worried we were since we hadn't heard a peep from you. We were sending nothing but good vibes your way on the day of the surgery😉
Dina, I am beyond thrilled that you're back with us and feeling okay. Get some rest, then catch us up when you can🙂
gentlemoose62 gentlemoose62 Active Member
105 messages
joined Jul 2008
#2356 ·
Grace Fowler said:Hey there, my wonderful friends!!!!!!!!
I'm finally homeeeeeeeeeeee! After 17 long days, I've finally made it back. Just wanted to let you all know that everything went pretty well—the surgery was a success and the pathology report looks encouraging. I am just so happy...
I'll check back in soon with all the details...
Kisses, Grace :-)

Thank God, Grace! Once the surgery is over, ugh... the hardest part is definitely waiting on those pathology results.
If they're looking good, then that is AMAZING NEWS!
I'm just as happy for you as everyone else here who's been rooting for you.
Take care of yourself and have a smooth recovery!👍
crimsonsurfer20 crimsonsurfer20 Newcomer
1 message
joined Feb 2008
#2357 ·
Morgan Williams4 said:I agree that it’s harder on the healthy people than on the patient. Two years ago, I had testicular seminoma, and it was incredibly tough hearing from my sister how much Mom was crying at home because her son had cancer. Of course, she never let me see it.

Sometimes the people around you swarm the sick person, trying to show support, but they end up suffocating them. Worst of all, the patient sees the pity in their eyes, which does nothing for their motivation. In my opinion, you have to be much more careful about how you approach someone who is ill.


I completely agree that you have to watch how you approach a patient. It's the same situation for us; my better half just got out of the hospital after dealing with testicular seminoma. He hasn't finished his radiation therapy yet. Everyone around him is living in fear, worry, and despair. For him, the hardest part is seeing the desperation on our faces. But honestly, how are you supposed to control your own emotions and force a smile when you're feeling like this?
gentlemoose62 gentlemoose62 Active Member
105 messages
joined Jul 2008
#2358 ·
crimsonsurfer20 said:I totally agree that you have to be so careful with how you approach someone who's sick. It's the exact same situation here—my better half just got home from the hospital after being diagnosed with testicular seminoma. He hasn't even started radiation yet. Everyone around him is just drowning in fear, worry, and pure desperation. And honestly, it hits him hardest when he sees the despair on our faces. But how are you supposed to control your own emotions and stay smiling for him in moments like that!?

You just have to! You don't even need to be smiling every single second. Even though life feels like it's been flipped upside down right now, he needs to feel your encouragement and that grit you have to fight this alongside him. It’s a long road ahead, but it’s a JOINT fight to get through this. The good news is that seminoma has a really solid prognosis if the treatment is right. So, chin up and stay brave!...
Nathan Bailey Nathan Bailey Member
14 messages
joined Nov 2006
#2359 ·
You did such an incredible job representing the Association on NBC!!!! Huge congrats—you were truly persuasive, and I really hope you see a massive surge in business once those membership cards start rolling out!
Benjamin Grant6 Benjamin Grant6 Member
36 messages
joined Aug 2008
#2360 ·
Alex White6 said:thanks so much!

I am well aware that doctors are merely human beings, yet one would assume a physician ought to exercise a higher degree of precision than a layperson, wouldn't one? Human lives depend entirely upon their accuracy... I realize that is a heavy burden to carry, but in my aunt's case, a gastroscopy isn't some rare or exotic procedure. Stomach cancer isn't exactly a one-in-a-million anomaly...

I understand, and I certainly didn't intend for my previous words to come across as dismissive... Ultimately, the real question remains how much attention and resources our medical professionals actually provide us.

My intention was simply to empower you to fight alongside your aunt, rather than wasting energy fighting against "windmills," because the struggle is truly worth it... My own mother was diagnosed with Stage IIIc or IV cancer, and she is still here today... we continue to fight, refusing to surrender at any stage. Had we simply accepted those initial grim prognoses, given up, and failed to seek further explanations, more vigilance, or exhaustive care, she might not be with us 😢

Fight on. Stay strong. Don't give in.

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