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Resources and support for families dealing with cancer and serious illness

Started by Angela Wright · · 👁 85 views · 3K replies

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bluewalker30 bluewalker30 Member
26 messages
joined Aug 2007
#961 ·
Melissa Kim45 said:Just reaching out to help already makes a difference.👍

How did you manage her skin during radiation? My mom only had five (or maybe six, I’m losing my mind) sessions, and the front of her body is so irritated she can barely tell what's going on, plus there's this dark patch on her back that looks like a bad sunburn.
She starts those heavy radiation sessions again this Monday. I have absolutely no clue what to apply to her skin. Calendula creams and aloe haven't really done much.
She's thin and frail, looking like a dried-out twig.
Honestly, I don't know how she endures all of this—chemo, then radiation, then starting over—especially at her age.

God, if that were me, I wouldn't even bother with treatment. 🙄
I'd be totally screwed.👎

I went through 25 radiation treatments, and everything was fine... except for the very last one where the skin got slightly red. Before I started, I began taking Vitamins A, E, and B (Natural W.), and I showered using a jojoba oil gel—but only letting the lather run over the area without actually scrubbing it. After the treatments, I used an aloe gel (ALOE VERA ESI-ITALY)... my skin ended up feeling as soft as a baby's. By the way, besides the aloe, this gel also has tea tree and Vitamin E in it... check it out www.esitalia.com
🙂
bluewalker30 bluewalker30 Member
26 messages
joined Aug 2007
#962 ·
Linda Campbell said:There have been some posts and inquiries here about DR. STACK - CYTOMEDICA. If anyone has any info regarding his treatment success rates, please DM me ASAP. Word is he’s getting some pretty enviable results treating malignant cancers.

I don't want to sound like a know-it-all or push anything on anyone, but has anyone tried papaya tea? About 200ml three times a day.
I used papaya as a concentrate (about half a liter), and my marker levels dropped by half.
Also, spirulina algae is incredibly effective... I'm just talking about what worked for me personally, based on what my lab results actually showed after I started.
bluewalker30 bluewalker30 Member
26 messages
joined Aug 2007
#963 ·
"Nowadays, both those who are dying and those left behind end up alone. The elderly and the terminally ill are often just sent off to an 'institution to write off' (like N. Marof).
And there’s zero professional support—as I've said before. Neither for the people leaving us nor for those staying behind. That kind of help is absolutely essential, and in a way, this thread and our exchange of thoughts and experiences is what large families used to be for people.
"
UNFORTUNATELY, THAT'S THE REALITY... though not everywhere... here’s a bright spot...

Back in St. Louis, a Hospice for palliative care opened its doors on November 11, 2003.

Then, on October 20, 2005, a day hospice was launched thanks to funding and donations from the nonprofit organization "Sisters of Charity".

The day hospice looks after patients during the daytime, helping them make the most of their time. Depending on what they want, patients can spend one or more days there each week. They're cared for by a professional team including doctors, nurses, physical therapists, and social workers. They even provide a meal, warm drinks, and free transportation.

So, who is the hospice actually for?

-The day hospice is specifically designed for oncology patients.

We don't want you to feel alone, forgotten, or discarded.
With a comfortable environment and professional staff, they provide a sense of security, a family atmosphere, and genuine warmth.

Services include:
-Medical checkups
-Nursing support
-Physical Therapy
-Occupational therapy
-Emotional support
-Hairdressing services
-One meal
-Refreshments
Information
The day hospice operates every weekday from 9 AM to 3 PM.
Address
JZU address
UNIVERSITY MEDICAL CENTER ST. LOUIS
phone: 035/25 25 15 ext. 222
dnevnihospis@yahoo.com

A doctor from Chicago who attended the Congress actually broke down in tears, saying her biggest dream is to establish something similar right here in America. All the guests visiting from the surrounding regions were incredibly impressed by everything they saw and heard.
Angela Wright Angela Wright RegularOP
731 messages
joined Feb 2007
#964 ·
Chris Peterson53 said:Look, I wouldn't call it unprofessional; I’d call it being human. Unless you can actually prove they’re doing it on purpose—like, intentionally undermining a colleague’s authority just to boost their own ego for some personal gain—then you shouldn't be throwing accusations around. Sure, it’s bad for the patient. It shakes their confidence and makes them feel unsafe, regardless of how the treatment actually turns out. But if you haven't personally sat in on a single medical board meeting, you have absolutely no clue what goes on behind those closed doors. Honestly, it’s better that way—and especially better for the patients.

I have a pretty clear vision of how this ought to work, and honestly, it should be treated like actual teamwork. Medicine needs to function as a cohesive unit rather than a fragmented mess. Take my mother, for example—she’s been battling glioblastoma for two years now, and she hasn't had a single neurologist managing her case from start to finish because none of these doctors actually communicate. Instead, they spend their time tripping each other up, undermining one another's reputations, and sabotaging any semblance of professionalism. I'm not just talking out of turn here; this was a raw, heartfelt vent from our oncologist that really laid everything bare. I still maintain that the doctor had an outburst that, while perhaps "human" in the sense that it revealed a deeply unflattering character trait, was completely unacceptable. You can have all the expertise and clinical experience in the world, but if you behave that way toward your colleagues—even if they are the absolute worst in terms of both bedside manner and technical skill—you've failed. There is such a thing as professional conduct when dealing with coworkers and patients, and frankly, it should be a core pillar of medical training.
I was part of that machine for a long time, and I’m calling it exactly what it is.
Look, it’s pretty simple: anyone working in healthcare—regardless of their specific role—who deals with the critically ill or those facing death is going to build up a psychological fortress. It happens almost subconsciously from day one on the job. You start interacting with that level of suffering, and before you even realize it, you've constructed this massive defensive wall just to stay sane.
Can you even begin to wrap your head around the weight they’re all dragging behind them? It's like they're wading through an endless ocean of misery—dealing with death, constant suffering, and people looking to them for miracles that they simply cannot perform.

Why bother pursuing a medical degree if you haven't already come to terms with the reality that you aren't some kind of miracle worker? You have to accept that medicine provides tools, not magic wands. It’s an incredibly brutal path, I get that—believe me, I do—but that exact lack of realism is why we see such a massive divide between doctors who are truly exceptional and those whose practice is just plain mediocre.
To survive emotionally and professionally, healthcare workers start distancing themselves from their patients, focusing strictly on the pathology rather than the person. It’s a survival mechanism, plain and simple. When you combine that psychological wall with the absolute mess that is the current state of the American healthcare system, you get the grim reality of what we're facing today. Sure, there are still good people out there, but a significant number have completely lost their humanity. They’ve either become totally desensitized just to cope, they picked the wrong profession entirely, or—let's be honest—they view this calling as nothing more than a stepping stone for their own careers.
That’s exactly why those who go all in—not just professionally, but emotionally—are the ones who truly feel the impact. It's the people who actually connect with their patients who end up bearing the weight of it all. personal They need to take personal responsibility for every single patient who walks through their doors asking for help. They shouldn't be dumping that burden onto the rest of the collective.

That’s exactly the point. Medicine shouldn't be a solo act; it needs to be a team sport. You simply cannot carry the entire weight of responsibility on your own shoulders. There are times when that burden becomes so crushing that a doctor hits a wall—they mentally freeze up, and suddenly they can't even apply the very knowledge they possess to help their patient. It’s like trying to hold up a falling building by yourself; eventually, you just buckle. Practicing medicine is incredibly grueling work. I have nothing but profound respect for the people who walk into this profession with their eyes wide open to all its complexities and pressures, rise to become top-tier experts, and still manage to keep their integrity intact.

This entire thread is essentially a mirror reflecting how human relationships have shifted over the last few decades.
In the past, people passed away surrounded by family, often with several generations living under one roof. Their presence provided solace to the dying, while their mutual support gave strength to those left behind. People died in their own beds, in their own homes, because if they were in a hospital, the family would almost always bring them back home to die among their own kin, under their own roof.
There was always someone there—even just a neighbor. No one was abandoned, day or night.
There was a sense of density and interconnectedness within families and the surrounding community—neighbors, acquaintances—everyone was solidary and ready to step up in such a moment. Because being present is often more vital than any medical tool meant to dull the pain. Children were part of that fabric, too.
With the rise of alienation and the fracturing of the family unit into isolated individuals, all of that has vanished. We’ve seen the dehumanization of death and the dying process, starting as early as childhood. We’ve developed these official and unofficial theories and practices suggesting children shouldn't be burdened with facing illness or death. Of course, you wouldn't put young children in those situations, neither then nor now, but today this logic is applied even to those who are given the right to everything else *except* the chance to understand and develop a proper relationship with mortality (and all its realities, including suffering).
Today, both the dying and their loved ones are left alone. The elderly and the terminal are sent off to "institutions to write off" (like N. Marof).
And as I've said before, there is no professional support available—neither for those departing nor for those staying behind. That kind of help is desperately needed, and in a way, this thread and this exchange of thoughts and experiences is what those large families used to be.

I completely agree with you. Through my own trauma, I’ve come to realize who I really am, and I see people coming here opening their souls, totally unprepared for death as a natural conclusion to life, even though most of us are well over 30. We are all mature enough to accept it. Death is inevitable, and while it is painful—mostly for selfish reasons—it is natural, and through the death of others, we must learn to accept our own mortality. Children are being raised wrong; I was raised wrong in that regard. I will try to raise my child with the spirit that everything is fleeting, to live each day as if it were the last, focusing primarily on today and only thinking, very briefly and vaguely, about tomorrow.
Regarding dying within the family, I am absolutely with you. Unfortunately, modern society is structured in a way that is anything but humane. Business is placed above everything else. A woman on this forum messaged me privately, crying because her mother is at death's door, but she can't be with her because of a monster of a boss who refuses to tolerate it (a man who acts immortal and cannot stomach the concept of death🤣 😠), and she can't risk losing her job because she has small children and needs the income. Personally, amidst my own tragedy, I feel blessed because I am unemployed, allowing me to provide my mother with the ability to be by her side until her very last heartbeat, in her own room under her favorite picture, by a window with her favorite view—clean, washed, cared for, fed, and without pain, with days filled with kisses. Isn't that a happy death? Because we are both at peace.

Thank you for reaching out and sharing your perspective.🙂
Elizabeth Collins60 Elizabeth Collins60 Member
32 messages
joined Jul 2007
#965 ·
Greetings, everyone. I am back in the thick of daily radiation treatments with my father. I noticed some questions popping up regarding skin care—specifically, what to apply to the skin. I have been using standard Bepanthen cream (the baby version) on my dad, including his scalp after he experienced some hair loss due to the radiation, and it has worked out quite well.
Regarding those elevated transaminase levels: a slight increase doesn't necessarily mean anything at all. It is only when values are four times the upper limit that an abdominal ultrasound becomes necessary, or perhaps a CT scan if it is part of managing a primary illness. I must disagree with someone who posted here suggesting that an MRI is superior to a CT. An MRI is better for the brain or bones, certainly, but not for parenchymal organs.
slyseal28 slyseal28 Member
11 messages
joined Mar 2007
#966 ·
Just wanted to drop in and say hello to everyone. My husband is heading in this Monday for his second round of chemo. So far, everything looks great—his blood counts are excellent. We’re just taking it one step at a time until we reach the finish line.

I see there have been some pretty interesting discussions happening here lately...

Sending my best wishes and big hugs to you all.😘
Angela Wright Angela Wright RegularOP
731 messages
joined Feb 2007
#967 ·
slyseal28 said:Just wanted to drop in and say hi to everyone. My husband starts his second round of chemo this Monday. So far, everything looks great—his blood counts are solid. We’re almost through the worst of it.

I see there have been some interesting threads flying around lately...

Sending lots of love and hugs to you all.😘

slyseal28, that's awesome news. Give my best to the giant👍. We haven't seen any sarcomas pop up on our end. I assume you've been in touch with them through their website. How are things looking over there? How many more rounds of chemo do they have planned?
Benjamin Grant6 Benjamin Grant6 Member
36 messages
joined Aug 2008
#968 ·
Hello everyone. I have only just stumbled upon this thread, and seeing how many posts there are... it has certainly lifted my spirits. 😘I have read as much as I possibly could, though it is understandable that I cannot find the time or the energy to catch up on everything, given that I am currently caught in a family crisis involving a malignant illness.

For the past five months, my family has been battling the agony surrounding my mother’s health. At first, there was nothing to suggest anything was wrong, and it took a full month before we received the final diagnosis: advanced ovarian cancer. It sent us all into a state of shock. It hit hardest because we already faced that same darkness eight years ago when my grandfather fell ill with lung cancer. Unfortunately, he lost that battle, and none of us have truly made peace with it even now. My grandmother has also fought cancer twice in these last eight years; her most recent bout was breast cancer. But she is a fighter, and there was never any doubt about her strength.

You can imagine the sheer shock when Mom's diagnosis came through in the middle of the night. No one seems to understand what I went through during those first two months—how psychologically shattered I was, even though it wasn't my own body on the line; she was the one fighting while I was the one panicking. Most of my professors at university were sympathetic, but there were others who made an already difficult situation even worse, and because of them, I am actually failing my year. But honestly... for most of those two months, I simply couldn't face society; I was socially withdrawn and constantly in tears.

Following the diagnosis, we moved Mom to Aviano. There was absolutely no hesitation in that decision—distance and the high cost of treatment meant nothing compared to her health. We didn't make a mistake, as the care available outside of America is far superior and higher quality. The fact that three oncologists, a pathologist, and a surgeon were present during her surgery, and that Mom had her own doctor, her own nurse, and complete comfort in her hospital room, speaks volumes in favor of her recovery. She is also receiving chemotherapy "up north," and the journey my father and Mom have taken over the last five months could best be described as the road from San Francisco to Aviano.

Because of the stage at which the cancer was detected, she has been prescribed six rounds of chemotherapy. Before the first round, she had somewhat resigned herself to her fate. She didn't want to eat, moved very little, and it was painfully obvious to everyone that she was giving up. However, once she overcame that initial fear and realized that the chemo was necessary—and that her body was actually tolerating it well—she stopped "surrendering." Now, she walks or swims every single day, eats normally, and tries to stick to natural foods as much as possible. Her only current setback is poor blood counts, which means she can't proceed with the fourth round just yet. She has lost her hair, but she refuses to let that show, which only makes her seem stronger.

Why am I sharing all of this? My parents aren't wealthy; they live paycheck to paycheck, as most people do, but they have sacrificed everything for the sake of her recovery. I envy their strength, and sometimes I wonder how they manage to traverse these same grueling paths day after day. It is glaringly obvious that we lack the kind of associations here that would help our "fighters" lift their spirits and strengthen their minds to support their bodies. I am here to offer you all my support, so that together we can be part of the "battle" for our loved ones!

Just keep moving forward bravely! And I will sign off by saying what has been mentioned many times before: there is a profound reason why we face these kinds of illnesses. In my case, the experience has finally caused my family to unite, allowing us all to grow stronger together through this ordeal.🙂

Hang in there!👍
Roger Hall15 Roger Hall15 Active Member
107 messages
joined Jul 2003
#969 ·
Thanks bluewalker30, Elizabeth Collins60, and Angela Wright for reminding me about that popcorn machine.
I had completely blanked on the fact that thing even existed.😵

It feels like things might be turning a tiny bit of a corner, though she’s heading back into radiation this Monday. I applied the cream this morning, and I plan to do it again tonight after her bath, but now I’m debating whether I should just leave her at the hospital so the nurses can handle the application, and then I can just take over when I get home in the evening.

As far as her scalp goes, you can just rub some face cream in there—just pull it slightly; it isn't dry anymore and doesn't flake. It was absolutely horrific when her hair was falling out, and we couldn't even shave her head until we went to pick up the wig. Once we cleared away those last bits of lifeless hair and applied the cream a few times—honestly, I'm telling you—it made a world of difference.
Now new hair is actually starting to grow in, though there's still nothing in the middle. 😲
I keep trying to coax her into letting me shave her head one more time, but I just can't seem to convince her.

Her sodium levels seem to be stabilizing, so the therapy is definitely doing its job, but regardless of any regression (?), it worries me a little that she complains about back pain, and her right arm is noticeably weaker than her left (since that's where the cancer is located). The doctor told us to "save" her right arm, as if she's somehow rationing it, which is ridiculous because she can barely do anything with it anyway, good grief. Since she's feeling so limp and weak, I gave her a squeeze ball to use. I'm really not sure if that's a good idea or not. But I can see her favoring the right side; she just can't manage half of what she can do with her left.

Hi everyone,👍 especially those who have joined us recently. It makes things a little easier knowing you aren't alone, though it still gives me a bit of a shock every time I realize just how many of us there are.
Aaron Johnson29 Aaron Johnson29 Member
11 messages
joined Aug 2007
#970 ·
Nancy Hernandez43 said:Why did I even bother writing all this? My parents aren't exactly rolling in it; they're scraping by every single month (it's a standard struggle), but they’ve sacrificed absolutely everything to focus on healing. I honestly envy their strength. Sometimes I wonder how they manage to walk those same grueling paths day after day. It’s obvious we lack any real organizations here that would help our "warriors" lift their spirits and strengthen themselves along with their bodies. I'm here to support you all so we can face the fight our loved ones are going through together!

Just keep pushing forward! And I'll say it again—there's a reason why we deal with "these kinds" of illnesses. In my case, my family finally pulled together so we could all grow stronger through this experience!🙂

Hang in there!👍

I'm glad your family stepped up and found some silver lining in these horrific illnesses. But I don't buy the idea that there's always a reason behind it. What's the "reason" when a three-year-old goes through all that hell, only to have to do it all over again at seven? You have a beautiful kid and a happy family that was just starting to breathe easy because the checkups were finally coming to an end. Now, their whole world has collapsed again and they're back in the trenches. They gave up everything and moved to Chicago with his younger brother, and even then, they still can't afford treatment abroad. I hate this disease. I hate that it doesn't hit the people who actually deserve it—and there are plenty of them if you just watch the news. It isn't fair, it makes zero sense, and sometimes it's just too much to handle.
Angela Wright Angela Wright RegularOP
731 messages
joined Feb 2007
#971 ·
Aaron Johnson29 said:I’m glad to hear your family has pulled together and managed to find some silver lining amidst these horrific illnesses. But honestly? I don't buy the idea that there's always a grand reason behind this kind of suffering. What possible logic explains a three-year-old going through all this, only to have to relive the nightmare again at seven? You have this beautiful child and a family that was finally starting to find their footing, thinking the worst was behind them once the check-ups were done. Now, their entire world has imploded again, and they're back in the trenches. They gave up everything to move to Chicago with his younger brother, and even then, expensive treatments abroad are just out of reach. I hate this disease. I hate that those who actually deserve to suffer aren't the ones facing it—you only have to turn on the news to see plenty of people who do. It isn't fair, it makes no sense, and sometimes, it’s just too much to bear.

It is gut-wrenching when this happens to a small child. But if you look at it pragmatically, these heavy experiences seem to follow a pattern that isn't necessarily about the child's own experience, but rather about the parents and the people fighting to fix things and maintain control. When you eventually overcome it, you’ll emerge stronger than before, seasoned by experience and carrying a level of gratitude for the little things that you simply didn't notice before.
In reality, we shouldn't frame these situations in a way that makes us feel helpless or pathetic, because that just drains our own strength. We are all players in a game where our abilities are limited and the outcomes are unpredictable, but that is precisely why we are given this sacred ability to adapt to whatever life throws at us. In the end, we learn to handle our wins without getting carried away by ego, and we handle our losses by telling ourselves—and believing—that we did everything within our power. That’s where we find the peace and the purpose needed to keep playing the game.
At the end of the day, death is a certainty for all of us. Unfortunately, no matter how hard we struggle or how angry we get that God didn't give us a chance to do more—especially when it involves a tiny child who hasn't even truly begun to live—we simply have no choice but to accept reality and carry on. Honestly, we shouldn't even have to try that hard to act this way; it’s an instinct, it's human nature. The problem is the mental block, the way our hearts ache because our will demands a different outcome. Ultimately, once we hit that wall of exhaustion and surrender, we reach a state of peace with the situation, accepting the outcome regardless of what it may be.
Aaron Johnson29 Aaron Johnson29 Member
11 messages
joined Aug 2007
#972 ·
Angela Wright said:At the end of the day, death is coming for all of us. It’s a fact. But honestly, no matter how much we struggle or get pissed off that God didn't give us a second chance to fix things—especially when it involves a tiny kid who hasn't even really started living yet—we don't have a choice. We just have to deal with it. To be real, we don't even have to try that hard to act this way; it's just human instinct to react like this. The real problem is the mental block. Our hearts and minds suffer because our will demands something different. Eventually, when you're completely drained and exhausted, you just surrender. You accept the outcome, whatever it may be.

I believe in fate, or whatever you want to call it. And I believe everything will work out. It's just that sometimes it hits you out of nowhere, and I have no clue how I'm supposed to prepare my son for life. I wish I could just take on a portion of the pain and grief my nephew and my sister are going through. I help them as much as I can and stay right by their side, but sometimes I just feel totally helpless. Honestly, I'm more afraid of sickness than death, purely because of this lingering sense of helplessness. It kills me that so many people go through this while there are still so many people out there being reckless, heartless, and greedy. I'm glad I'm not one of them. I truly hope everyone dealing with illness and their families find a way through this. I pray that everything falls into place. That we actually get a shot at being truly happy. I pray that kids get the chance to experience what I've already lived through. Angela Wright, thanks for giving me the space to vent and for the comfort.
bluewalker30 bluewalker30 Member
26 messages
joined Aug 2007
#973 ·
It’s hard to find the right words or offer much comfort when you realize just how heavy this burden actually is. My dad passed away from leukemia, my sister lost her battle with lung cancer, and nearly six years ago, I was facing breast cancer myself. I went through the whole gauntlet—chemo, radiation, surgery—but thank God, I’m doing well now. These days, I work with people going through similar struggles, trying to offer whatever little bit of help or hope I can. I’m not a doctor or a medical professional; everything I share comes strictly from my own lived experience.
When I was undergoing chemotherapy, the nausea was brutal and my white blood cell count absolutely tanked. I managed to get those numbers back within five days by eating raisins and yeast and sipping on chamomile tea. It honestly felt incredible how quickly things stabilized.
For anyone dealing with hair loss, I found that applying a homemade topical solution to the scalp really helps kickstart regrowth.
Take about a liter of high-quality moonshine, add one small bag of ground cloves (the kind you use for baking), and let it sit in a warm spot for 14 days. After that, strain it, and just dab it onto your scalp whenever you remember. It’s a great way to encourage hair growth, whether you're dealing with the side effects of illness or just looking for a beauty boost...
Benjamin Grant6 Benjamin Grant6 Member
36 messages
joined Aug 2008
#974 ·
Angela Wright said:In truth, one should avoid framing things in a way that leaves us feeling utterly helpless and pathetic, as that only serves to further weaken our own resolve. We are all merely players in life, operating with limited abilities and facing unpredictable outcomes, yet we are granted this sacred opportunity to adapt to whatever comes our way. Ultimately, we learn to handle our victories without excessive fanfare or hollow celebration, just as we learn to face our losses... because we can tell ourselves—and truly believe—that we did everything within our power, which provides a certain sense of peace and purpose to continue the game of life.

I find myself in agreement here.😘 Initially, I struggled to accept the reality of the situation and the fact that Mom was 373 miles so far away from me. Every single day, we would talk on the phone, engaging in those "final conversations"... incredibly grueling discussions 😕 that one really ought to avoid from the very beginning.

One day, Mom called me and declared she was ready for whatever was coming, tired of the empty platitudes. She actually got out of bed and took my advice to push through—not for her own sake, but for those of us standing by her side.

No matter how difficult it becomes, whether dealing with a small child or an adult, one must demonstrate courage and learn to navigate the illness as they go... because confronting these situations is precisely what makes us stronger.
Benjamin Grant6 Benjamin Grant6 Member
36 messages
joined Aug 2008
#975 ·
bluewalker30 said:It is difficult to find the right words to offer comfort when we all know just how heavy this burden truly is. My father passed away from leukemia, my sister from lung cancer, and I myself faced breast cancer nearly six years ago. I went through chemotherapy, radiation, and surgery, and by the grace of God, I am doing well now. I work with patients today, trying to provide even a small measure of support and hope for recovery. I am not a medical professional; everything I offer comes strictly from my own lived experience.
While I was undergoing chemotherapy, I suffered from terrible nausea and my white blood cell count plummeted. I managed to bring those numbers back to normal by eating raisins, yeast, and drinking chamomile tea. It was quite remarkable to see them stabilize within just five days.
For anyone dealing with hair loss, applying a homemade topical solution to the scalp can be quite beneficial, as it encourages faster regrowth.
Take one liter of homemade brandy and add a small bag of ground cloves—the kind used for baking—and let it sit in a warm place for fourteen days. Afterward, strain it, and simply dab it onto the scalp whenever you remember. This tends to be effective for hair growth, regardless of whether the cause is illness or merely aesthetic...


I cannot help but say I am so sorry though I realize those are three hollow words that do nothing to alter the reality of what you are facing and enduring.

I am grateful to have read your advice regarding white blood cells. My mother’s blood counts have taken a sudden, sharp turn for the worse. During her first two rounds of chemotherapy, she didn't seem to feel any side effects at all. Up until now, there had been no vomiting and no weakness. However, prior to the third round, her blood work showed neutrophil granulocytes at 1.46 (whereas a healthy person should ideally be between 2.06 and 6.49), which meant she couldn't proceed with the treatment. Yet, she did move forward because upon arriving at the clinic near Aviano—within a twenty-four-hour window—her neutrophil levels rose to an "optimal" 1.5, which I suppose is the bare minimum the doctors require. There is usually a twenty-one-day gap between cycles, and during those twenty-one days, she seemed to be improving steadily; her color returned, and she actually gained some weight after losing 15-20 pounds following her surgery. We truly believed her blood counts wouldn't drop again. But five days ago, her neutrophils were down to a mere 0.64. Twenty-four hours later, they were at 0.72. With only two days left before her next scheduled chemo, the doctors decided to draw blood once a day. In hindsight, it felt excessive—testing four times in two days—especially since her count hit 1.33 at one point, only to drop to 1.09 on the actual day of chemotherapy.

My question is, is there any way we can intervene to help raise those neutrophil granulocyte levels? I am far too inexperienced in these matters, but I intend to become more involved in her care, so I would appreciate any guidance you might offer... Thank you.
John Chase6 John Chase6 Newcomer
5 messages
joined Jun 2007
#976 ·
Hey everyone!!
I don't know about you guys, but I always kind of zone out when I'm reading through these posts... I mean, I get what everyone is saying, obviously—nothing really catches me off guard anymore at this point (between my dad’s leukemia passing and my own long-term battle with being sick...). But now I've actually run into a bit of a snag because after my last round of chemo, my CBC results just tanked again—my white blood cell and platelet counts are way below the normal range (if things don't look better by tomorrow, I might have to go in for a transfusion), which is just... ugh, gross. :-(( Honestly, getting the actual chemo isn't even the worst part for me; it's that crushing feeling of exhaustion that hits right after—the pain... the total weakness... I always try to talk myself into it, like, "come on, just three more to go," and I just keep pushing from one round to the next.
So, I'm sending you all some heartfelt positive vibes—wishing you the strength to stay brave, both for your loved ones and for yourselves, while we're all stuck navigating these heavy storms life keeps throwing our way..
Best, Grace Fowler 🙂
bluewalker30 bluewalker30 Member
26 messages
joined Aug 2007
#977 ·
I wanted to share a few stories with you all...

"So, you think I'm brave?" she asked.
"Yeah, I do."
"Maybe I am. But honestly, it's just because I had incredible teachers. Let me tell you about one of them. Years ago, while I was volunteering at a hospital in Stanford, I met a little girl named Liza who was battling a rare, devastating illness. It turned out her only shot at recovery was a transfusion using blood from her five-year-old brother. Somehow, he had managed to survive the same disease, leaving him with the specific antibodies needed to fight back against hers.
"The doctor sat the little boy down, explained the situation, and asked if he was willing to donate his blood to save his sister. I watched him take one deep breath, and without hesitation, he said, 'Yes, I'll do it if it saves Liza.'"
"While they were performing the transfusion, he lay in the bed right next to his sister, smiling. The rest of us were smiling too, watching the color finally return to the little girl's cheeks. Then, suddenly, his face went pale. The smile vanished. He looked up at the doctor and asked in this tiny, trembling voice, 'Am I going to start dying now?'"
Since he was just a kid, he’d completely misunderstood what the doctor meant; he thought they were taking all of his blood to give to her.
"That's how I learned what true courage looks like," she added. "Because I had the right people to teach me."

den Milman
bluewalker30 bluewalker30 Member
26 messages
joined Aug 2007
#978 ·
It’s honestly wild how tightly our minds and bodies are wired together—how our fears, anxieties, disappointments, or even pure joy can ripple through our tissues, organs, and entire biological systems. Unfortunately, people don't talk about this connection nearly as much as they should.

Back in 1987, a study by M. R. Jansen at Yale University confirmed that breast cancer spreads significantly faster in women dealing with intense feelings of hopelessness, frustration, fear, or other heavy negative emotions. We're seeing similar patterns today; current data from war-torn regions in America and parts of Canada show a statistically significant spike in breast cancer cases.

On the bright side, since everything usually has two sides, there’s a silver lining to how emotions affect the body. Just as negative thoughts and bitter memories can slowly tear down our spirit and physical health, the reverse is also true: positive thoughts and pleasant memories can actually have a healing effect on every single cell in our bodies. Sometimes, this leads to genuinely miraculous improvements in recovery, happiness, and overall health.

As William James, the father of American psychology, once put it: "Whatever you push into your subconscious will move heaven and earth to make it happen. So, you better be sending nothing but the right ideas and creative thoughts into that subconscious."

Very few good things just fall from the sky overnight without some level of grit, patience, and effort. But that shouldn't discourage you.

Real, long-term personal growth requires the slow, patient work of reshaping who you are—your habits, your mindset, and your outlook on life.
bluewalker30 bluewalker30 Member
26 messages
joined Aug 2007
#979 ·
How can we actually support people facing a serious illness—both emotionally and socially? And how do we show up for their families? It really comes down to expanding that old cliché: treat others exactly how you’d want to be treated. Honestly, just dropping by to see a patient and their family is a gesture that uplifts everyone involved.

Don't pull an disappearing act on me. Just be the person who cares... be the friend you've always been.
Reach out. Even a simple hand on my shoulder tells me I'm not alone in this.
Give me a call and let me know when you're dropping off dinner. Pro tip: bring it in disposable containers so neither of us has to worry about washing dishes or returning Tupperware.
Watch over my kids. Offer to take them to your place or hang out with them here. I need some breathing room to focus on my spouse, and my kids need a break from the heavy atmosphere of my illness.
Cry with me when things get rough, and laugh with me when they don't. Don't be afraid to show some real emotion.
Take me for a drive or a quick outing just for the change of scenery, but please, read the room regarding how much energy I have left.
Call me to run through a grocery list and then just coordinate a delivery straight to the house.
Give me a heads-up before you swing by, but please don't feel like you have to stay away. Don't assume being sick means I need total silence. I need you; isolation is its own kind of struggle.
Help me keep the spirit alive during holidays or special occasions. Decorate my hospital room or my living room, or just bring over some flowers or a small gift.
Look after my family. I'm the one who is sick, but they are going through it too. Offer to sit with me so they can catch a break. Invite them out, grab a table for them at a restaurant. Encourage my spouse's friends to check in on them. I feel a lot better knowing my family is still finding moments of joy.
Get creative. If there’s someone I’ve been missing, ask me and help arrange a visit.
Bring over a magazine, a book, a cool poster for my wall, or even a box of cookies to share with visitors.
Talk about "the thing." Don't shy away from using the word cancer or naming the diagnosis. Just ask, "Do you want to talk about it?" first.
Keep me looped into the real world. Tell me what's happening in your life so I don't feel disconnected. Talk to me about the future—about tomorrow, next week, or even next year.
Don't feel pressured to keep the conversation going constantly. We can just sit in silence or watch a movie together.
If you bring a book or some knitting and just sit with me, I won't feel like I have to entertain you. It also gives me the freedom to drift off for a nap if I need it.
Can you give me or my kids a lift somewhere? I might need rides to doctor appointments, the pharmacy, or even just the store. You could also help my kids stay connected to their friends by dropping off little gifts or driving them to meet up.
Include me in the decision-making process. I'm already losing control over so many parts of my life; I don't want to lose my say in my family matters or my own care.
Bring some positivity my way. I seriously need it—plus, it's contagious.
If my family and I have to miss out on big events or celebrations, take plenty of photos so I can still feel like I was part of the moment.
Could you help with the housework? When you're dealing with a serious illness, the laundry, the dishes, and the general mess can pile up fast. Instead of saying "let me know if I can help," try being specific: "I'll be over Monday to handle the laundry," and then actually do it. A vague offer is hard to accept, but a specific plan is easy.
Water my plants!
Send a quick card just to say, "I'm thinking of you."
Help out with the holidays by offering to pick up wrapping paper, gifts, or tickets.
Bake some homemade treats that can be frozen and tossed into a meal prep kit for the family.
Offer to take care of the mindless chores—dropping stuff off at the dry cleaners, picking up groceries, etc. These are the things that otherwise just don't get done.
Just tell me what you'd like to do for me, and if it sounds good, let's make it happen.
Keep me in your prayers and share your faith with me.
Help me feel okay about how I look. If I’m actually pulling it off, tell me—I could really use that boost to my confidence right now. But if I’m looking rough, just spare me the honesty.
Let me and my family have our moment to grieve; let us prepare for the worst if we have to. Sometimes, a good, long cry does more for a person than any loud, forced pep talk ever could.
Just remember, no matter how I feel or what I see in the mirror, the core of who I am remains unchanged.
Carol Sanchez2 Carol Sanchez2 Active Member
85 messages
joined Apr 2007
#980 ·
Hey everyone! I’ve been totally off the grid for two weeks because I was away on vacation with my mom (who is currently fighting breast cancer).

She’s actually holding up pretty well! She’s heading in for her fourth round of chemo today. Her blood counts tend to be a bit low every single time—specifically her neutrophils and leukocytes, which are those essential cells the body needs to fight back. But, thankfully, her neutrophil and leukocyte levels seem to be creeping up day by day, so there's a chance she might even get her treatment on schedule despite a little delay.

Her doctor is being really strict about her not taking any supplements or herbal remedies to boost her immunity, though, because the doctor insists the body needs to handle the battle on its own.

I’ve spent some time catching up on all the posts from the last two weeks—hang in there, everybody!!!

Don't give up!! Kisses! 😘

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