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Resources and support for families dealing with cancer and serious illness

Started by Angela Wright · · 👁 256 views · 3K replies

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Participants Angela WrightChristian Wilson16Morgan Williams4Jeremy Nelson3John Chase6steelbadger83hiddentiger80urbanjackal3silentviper30mistyranger4ruggednomad182placidfalconJerry Morales4frozenviper492velvetgull9Joshua Flores48Frank Ramirez23Roger Hall15Walter Cox5mellowlynx8boldjackal70northernfox9ALaura Gomez10 …
Carol Sanchez2 Carol Sanchez2 Active Member
85 messages
joined Apr 2007
#1501 ·
Angela Wright said:If I’m remembering correctly, a PET/CT scan is that specific type of imaging used to pinpoint malignant cells—basically, even if an MRI doesn't pick up a visible tumor, it doesn't mean there aren't rogue cells lurking around waiting to divide and cause trouble later on. That kind of scan can catch those tiny malignant changes super early, which really opens the door for much more effective treatment options.

Honestly, a dermatologist can usually tell exactly what's going on just by looking at the shape of a mole or a skin growth! There are all these standard clinical guidelines based on things like color, how it grows, and how quickly it changes shape over time.
Don't you worry too much, though; if she told you everything looks fine, then it's okay!👍


Thank you so much for saying that, and please don't think I'm being a total alarmist, but ever since my mom got sick and I started dealing with all this medical stuff, I feel like I've turned into a complete old lady! I used to be the type of person who didn't give a second thought to minor aches or pains, but now? Now, every little thing makes me jump straight to the absolute worst-case scenario. I honestly had no idea how much there was to learn about cancer until I was suddenly thrown right into the middle of it all...

It’s so wonderful that you were able to get away for the weekend to clear your head! I truly hope you managed to get some real rest and recharge. 😉
Christian Wilson16 Christian Wilson16 Newcomer
6 messages
joined Jan 2007
#1502 ·
Hey everyone, hang in there!
Things have been incredibly heavy on my end lately. My grandfather is facing an upcoming surgery with a pretty uncertain prognosis. He has a tumor that’s starting to obstruct both of his bronchi, and if we don't intervene soon, he won't be able to breathe. We had a scare yesterday when they managed to stabilize some bleeding—it was quite a mess—and even then, the old man was still cracking jokes, claiming he was just being a bit of a drama queen 🙂
Then there's my mother, who is dealing with her own mountain of issues. It’s been a brutal week for her: she’s navigating a mild heart attack, angina, and some concerning cysts in her thyroid and breasts. To make matters worse, she lost her brother just last month, so she’s struggling through a deep depression on top of all the physical ailments.
Just wonderful, isn't it? 😉
Somehow, miraculously, I’ve managed to keep my head clear. My partner is an amazing cook, so I'm at least eating well, though I've been struggling a bit with insomnia. Usually, a warm bath, some lavender, a cup of tea, and tossing and turning for a few hours finally does the trick. 🤣
Benjamin Grant6 Benjamin Grant6 Member
36 messages
joined Aug 2008
#1503 ·
Greetings to everyone... My mother’s lab results arrived this morning. Her white blood cell count, red blood cell count, and hemoglobin levels are all sitting below the minimum threshold. Could someone explain what HCT and PLT represent? Apparently, those are also trending below the required levels.

The rest of the panel seems to fall within a satisfactory median range. However, there is one specific entry abbreviated as Democratic Party... I am somewhat perplexed by it. It indicates her value is 62 U/L, which is noted as low, given that the standard range for women over 50 is typically 64-153.

I appreciate any insights you might offer...

best regards,
Benjamin Grant6 Benjamin Grant6 Member
36 messages
joined Aug 2008
#1504 ·
It is I once again... thanks to Ivanicipeka and her response to a question from a user outside our little circle regarding what ASP actually entails, I have finally found some clarity. I am not entirely certain what the reduced value implies, though I suspect it can be easily made up for, given how negligible the gap seems to be...
Lisa Harris59 Lisa Harris59 Newcomer
2 messages
joined Nov 2007
#1505 ·
NASA I can't even begin to process this without feeling a massive headache coming on—it’s just one of those things where you look at the situation and realize how deeply broken the whole system actually is. Honestly, I've seen enough of these cycles to know exactly where this is headed, and it’s never toward anything resembling progress. It’s always the same pattern, isn't it? You see the same players moving the same pieces around, pretending like they aren't just repeating the same mistakes from ten years ago, while everyone else is left trying to make sense of the mess. It reminds me of this one time back when I was working a grueling stretch in Chicago—just endless bureaucracy and people talking in circles while nothing actually got done. That's the feeling I get here. We're being sold this polished version of reality, but if you peel back the layers, it's just more of the same old dysfunction we've been dealing with for decades. It's exhausting, frankly. You start to wonder if anyone is actually steering the ship or if we're all just drifting through this chaos because nobody wants to take responsibility for the wreckage. It's cynical, sure, but after seeing how these things play out, being optimistic feels less like a virtue and more like a lack of information.
I honestly don't get it. How did this even happen? Did the doctors just completely blow it?😕

The doctors completely misread the situation. After looking at all his labs and running every possible test under the sun, they were convinced his body could handle such an aggressive course of treatment. They figured since Dad wasn't losing weight—he was actually in pretty decent shape physically—that he’d be able to take the hit. And we believed them. We put our trust in those medical professionals, thinking they had everything under control. Turns out, we were wrong.

Even if I had some sort of crystal ball, I honestly don't think I could have predicted things playing out quite like this. But then again—that’s life, isn't it? Just one thing after another. I guess we just have to take it as it comes.
I honestly don't even know what to say to you guys. I’m still sitting here trying to process everything—it’s been a total shock to the system, and frankly, I haven't quite come down from it yet.
Christian Wood63 Christian Wood63 Newcomer
6 messages
joined May 2008
#1506 ·
Nancy Hernandez43 said:Hi everyone... my mother's lab results came in this morning. Her white blood cell count, red blood cell count, and hemoglobin are all below the minimum threshold. What exactly are HCT and PLT? Those are also showing up below the minimum range.

Everything else in the analysis seems to be within a satisfactory middle range. Except for one thing labeled with the abbreviation ALP-s. What is that? It says her value was determined to be 62 U/L, which is considered low since the expected range for women over 50 is 64-153?

Thanks for any answers you can provide..

Best,

HCT stands for hematocrit—it's the ratio of red blood cells in the blood.
PLT refers to platelets.
ALP-s would be serum alkaline phosphatase.
Benjamin Grant6 Benjamin Grant6 Member
36 messages
joined Aug 2008
#1507 ·
Christian Wood63 said:HCT is hematocrit... the percentage of red blood cells in the blood
PLT refers to platelets
Republican Party alkaline phosphatase? serum levels

I appreciate the response. As for the Republican Party enzyme, I managed to look that up in the meantime...
Christian Wilson16 Christian Wilson16 Newcomer
6 messages
joined Jan 2007
#1508 ·
Super PDF document I stumbled upon, which includes detailed descriptions of lab tests along with their standard reference ranges.
It was incredibly helpful for me back when I was struggling to make sense of what each specific test actually meant and what a typical result should look like.

:*
Benjamin Grant6 Benjamin Grant6 Member
36 messages
joined Aug 2008
#1509 ·
Carol Ramirez said:I found this incredibly helpful PDF document that outlines various lab tests alongside their standard reference ranges...
It was quite a relief for me when I found myself struggling to decipher what specific markers actually meant or what should be considered a normal result.

:*

Thank you so much! I just downloaded it... I think I'll print it out for my father so he can try to make sense of things himself. We sent the results over to a specialist for an opinion, but since we won't hear anything until Monday, I'm left digging through the internet trying to find some clarity on my own.

Take care,
briskbison27 briskbison27 Member
21 messages
joined Mar 2007
#1510 ·
Nancy Hernandez43 said:Other than some nonsense involving the Republican Party?! What even is that? They’re claiming a value of 62 U/L is "low," despite the fact that for women over 50, the standard range is actually 64-153.

You shouldn't lose sleep over numbers that sit so close to the cutoff they might as well be a lab error. An ALP of 62 when the target range starts at 64 is, for all intents and purposes, perfectly normal.
Given how much progress she's made, the best thing you can all do for her now is help her overcome the anxiety regarding what happened in the past and what might happen in the future. That’s what will truly help her heal.
I'm pulling for you 👍!
shadowheron4 shadowheron4 Member
27 messages
joined Nov 2007
#1511 ·
Hey there to all the real heroes and fighters out there. I’m pretty new to this forum and just stumbled upon this thread. About three years ago, when I was 27, I had surgery for breast cancer that had spread to my lymph nodes. I won't go into the details of how that felt—I mean, you guys basically already know. The kicker was that I had a three-year-old at the time, and my husband—who works in the Merchant Marines—was halfway across the world for most of my treatment (he had to be so we could afford those insane chemo bills!).
I haven't had a chance to catch up on every single question and answer here yet, but I’d really love to hear some stories that might give me a boost. To be honest, I've met so many people—read about them here and elsewhere—who talk about the cancer coming back after 3 or 10 years, but I see so few who beat it years ago and have stayed healthy ever since. Right now, I'm going through a massive mental breakdown because of some family drama, plus some other health scares that have me terrified they might be linked back to the cancer. Every time I feel a twinge in my stomach, my breast, my leg, my arm, or my head—you name it—the fear just takes over and I start spiraling, thinking it's back. I actually handled the initial surgeries and treatments like a champ—stronger than anyone expected. But now? God forbid it comes back, I don't think I could handle it again. My husband is away for most of the year, I have a beautiful kid who gave us a run for our money being sick so often (thank God it was nothing serious, though it took us forever to figure out what was wrong), my parents live far away, and I don't have anyone else to lean on during the rough patches... I feel like I've dealt with enough stress in my young life to last three lifetimes. I don't regret anything, I'm just praying to God for the strength and guts to keep going, because right now, I'm running on empty. Lately, I've even been dealing with panic attacks that are making it impossible to function... Basically, I'm in deep.
That's why I'm looking for people who can tell me they faced a terrifying diagnosis a long time ago, kicked its ass, and are totally fine now... That would mean everything to me.
Sending love to all of you. I truly, sincerely hope you all beat your battles and become the ones who can look back in 10 or 20 years and say they won and are healthy!!! 😢
feralwolf24 feralwolf24 Member
26 messages
joined Aug 2009
#1512 ·
Hello Hello! Sending you a huge hug. I’m not going to give you that empty "everything will be fine" line because, honestly, that phrase makes my skin crawl. It feels too dismissive—like something you’d say when someone fails a mid-term or gets a reprimand from their boss at work. That's a minor setback; this is different. What I can tell you is that I know people who moved forward after cancer, some who brushed it off and kept going, and others where it truly broke them. My mom is one of those stories (uterine cancer). We’ve all been living our lives quite normally for a long time now, and truthfully, that diagnosis doesn't even cross my mind unless I stumble upon a post like yours. That fear is something we all carry deep down. I also know two people who dealt with stomach cancer—it's been over ten years for both of them, one woman who had part of her stomach removed and a man who didn't. People do recover! And honestly, I doubt they had any less stress than those facing a relapse. Just getting the diagnosis is enough to make the whole world stop spinning; the stress is overwhelming. The big question is: can you just move on and not look back at the illness? Is that actually possible? Is it even smarter to live that way? I don't think anyone has the answer. What I have learned is that every single day is just... a day. It could be the last one, or it could just be another one in the sequence. My whole purpose in life is to love, to adore, and to be loved in return. Over the last three years, I worked my tail off to build the life I always dreamed of—you know, the house, the garden, my tomatoes, my flowers, and a bunch of pets. I managed to make a good chunk of that happen. Now, I can spend my time doing things that bring me joy and make my husband happy, while praying to Bog that we might be blessed with a little rascal of our own someday :-) on two legs, if possible. I find so much peace in the air, the colors, and that inexplicable kind of love you only get from animals. I cherish simply waking up and falling asleep next to my favorite person. These are the riches I get to enjoy every single day. For the most part, my life is exactly what I spent years dreaming about. I am incredibly happy. But, I'll be honest—every time he winces in pain, looks tired, or has a weird bout of indigestion, I get terrified. Every single day. There isn't a moment where those grim statistics don't flash through my mind. It's a constant "what if?" I feel totally lost sometimes. All we have is the hope that it won't happen. There are no guarantees. The only certainty is today—that we are here, right now, and we can do whatever we want while we're still in this dimension. That’s the only thing that's real. You have to grab every detail of life, whether you're sick or healthy. Today is real. The present is everything! As for future plans, go ahead and make them. Planning gives us something to look forward to. Just hug your kids, show your husband affection whenever you can, hang out with friends, and do the things that make you smile every day. Don't let financial struggles steal your spirit; just adapt your dreams to what's possible, but don't give up on them. Keep pushing forward like you're invincible. Because what we know for sure is that today, we are alive. And being alive is everything.
Benjamin Grant6 Benjamin Grant6 Member
36 messages
joined Aug 2008
#1513 ·
briskbison27 said:There really isn't any cause for alarm regarding values that sit so close to the margin they might as well be considered mere laboratory fluctuations. An ALP of 62 when the standard range is 64 to 153 is quite frankly a normal result...
Since she has managed to push through this far so successfully, Mom now needs everyone's help to overcome the fear of what has passed and what is yet to come. That would be the best course of action for her...
Keeping my fingers crossed for you 👍!

Thank you truly for such sincere and resilient words. We are scheduled to receive a professional opinion from the doctor tomorrow morning. The only real fear is that in five days, Mom will find herself back in the hospital undergoing more tests. Still, I am certain we will navigate that too...

We have been by her side around the clock, providing support, assisting her... and that is exactly how it ought to be. Unfortunately, being with her has taught me just how deceptive appearances can be. Ten days ago, when I was last home, she seemed on the verge of breaking—stunned and utterly exhausted. Over the phone, her absence and fear were palpable; she could barely even speak. Today, she seems mentally stronger, making an effort to converse, though the issue is that she mentions her pain and potential complications less and less. While she worries about how much longer she must endure all of this, we naturally worry as well: what is she keeping from us? Our struggle continues... thank you.
shadowheron4 shadowheron4 Member
27 messages
joined Nov 2007
#1514 ·
Hey Nusazvrk! Thanks so much for the support—it really means a lot right now, and honestly, I really need it. My husband headed out to sea for work yesterday, and now I’m just sitting here waiting for my oncology checkup, waiting to go over all the test results... the anxiety is real. Lately, I haven't been feeling great, and when everything hits you at once...
It's true, you just have to take it one day at a time and be thankful to God for every single day we get. I am. I'm just praying He gives me enough days to get back on my feet and get this little one of mine—who depends entirely on me—all set. My biggest priority is making sure she has her mom there whenever she needs me, since I'm her whole world. Of course, Dad is there too, but unfortunately, he's rarely around. It's not his fault—his job keeps him away, and he works his tail off just so we can live decent lives. And look, it's not all gloom and doom. We still have these beautiful moments and days where we're all together and doing well; those moments are everything. You don't actually need much to be happy—not a luxury car, a mansion, or a ton of money. For us, just being together and staying healthy is plenty. You don't really realize that until you're facing the kind of stuff both you and I are dealing with. That's when you learn to truly value life. From the bottom of my heart, I wish you a long, wonderful life with your husband and your whole pack of little two-legged troublemakers—may your dream life become even fuller and happier!!!
Carol Sanchez2 Carol Sanchez2 Active Member
85 messages
joined Apr 2007
#1515 ·
👍
shadowheron4 said:Hey there to all you true heroes and fighters out there! I just recently joined this forum and stumbled upon this thread. About three years ago, when I was 27, I had surgery for breast cancer that had spread to my lymph nodes in my armpit. I won't go into all the details of how that felt because, honestly, most of you probably know exactly what it’s like. To make matters even more intense, I had a three-year-old at the time and a husband who works in the Navy, so he was stationed halfway across the world for most of my treatment period—he had to be, just so we could afford those massive chemotherapy bills!
I haven't quite managed to catch up on all your questions and answers here yet, but I would absolutely love to hear from anyone who can offer some real encouragement. You see, I’ve met so many people, read about them here and elsewhere, who talk about how the cancer came back after three, maybe five, or ten years, but I see so few stories from people who dealt with it five, seven, or ten years ago and stayed healthy—people who are truly in the clear now. Right now, I’m going through a huge mental crisis due to some family issues, plus some other health scares that have me terrified they might be linked to the cancer. Every single time I feel a twinge in my stomach, my breast, my leg, my arm, or my head—and the list goes on—the fear just takes over and I can't help but think it's back! I actually handled the initial surgeries and all the treatments really well; I felt stronger than anyone. But now? It feels like, God forbid it comes back, I just don't think I could handle it again. I have a husband who is away for much of the year, a wonderful child I struggled with because they were frequently sick—thank God nothing too serious, though we didn't realize it for a long time—parents who live far away, and really nobody else to lean on during these tough times... I feel like I've experienced enough stress in my relatively young life to last three lifetimes. I don't regret anything, I just pray to God for the strength and courage to keep going, because right now, I am running on empty. Lately, I've even been dealing with panic attacks that are making things incredibly difficult and affecting my daily life... Basically, I'm in way over my head.
That's why I need to hear from people who can tell me that they once faced a terrifying cancer, beat it, and are now totally healthy... That kind of encouragement would mean the absolute world to me...
Sending my best wishes to all of you, and from the bottom of my heart, I truly hope you all defeat your illnesses and become the ones who can look back in 10 or 20 years and say you are winners and healthy survivors!!! 😢


Hi! Look, I'm not going to sit here and give you a hollow "everything will be fine," but I do know people who have completely beaten cancer. My grandmother had breast cancer and recovered successfully without ever having a recurrence. My mother is currently fighting breast cancer herself and she's holding up well. I also know a gentleman who dealt with stomach cancer and metastases and made a full recovery. And I know people whose cancer did return, but they fought it and cleared it again too... So, yeah, it's all over the map. Every cancer journey is unique, and you shouldn't compare your path to anyone else's. Please, try to enjoy life; don't deprive yourself of the little things. You have a child who needs you, so please, find ways to embrace life. You have to try to stay positive, though obviously, you're allowed to have bad days too—whenever things get heavy, just come back to the forum and vent!
shadowheron4 shadowheron4 Member
27 messages
joined Nov 2007
#1516 ·
Thanks for the support—and yeah, I get it, every case is its own thing and you can’t really compare one person to another. But honestly, having a little bit of data on our side helps more than you'd think. Best,
brightgardener8 brightgardener8 Active Member
157 messages
joined Jul 2007
#1517 ·
Carol Ramirez said:Hey everyone, hang in there!
Things are hitting a breaking point on my end. My grandpa is facing surgery with a pretty uncertain outcome. A tumor is starting to block both of his bronchi, and he’d be suffocating soon if we didn't step in. They managed to stop some bleeding yesterday—his mouth was literally filled with blood—but even then, he was still cracking jokes, acting like he hadn't just gone through 🙂
The second crisis is my mom. This past week has been a total gauntlet: a mild heart attack, angina, thyroid cysts, and breast cysts. To top it all off, her brother passed away a month ago, so she’s spiraling into depression on top of everything else.
Just great!! 😉
Miraculously, I can still think straight. My partner is an amazing cook, so I'm at least eating well. I'm struggling a bit with insomnia, but a hot bath, some lavender, tea, and tossing and turning for a few hours eventually knocks me out. 🤣

I am so sorry you're dealing with all this, Lecka.
The way you're stepping up for your grandpa is honestly incredible. We have a sick grandpa too—my mom's dad—but he's kind of fallen to the sidelines since my mom got sick. We simply CANNOT keep up with giving him the attention he needs... Mom used to be his primary caregiver back when she was healthy. He's been immobile for a few years now and is staying in an assisted living facility. He survived sarcoma and finished treatment three years ago, but things haven't improved since. I feel for him, but I find some comfort in knowing he lived a full life and at 85, he can pass away peacefully. Unlike my mom...

Ivanicapeca, did you get any rest? How's your dad holding up without you around?
Christian Wilson16 Christian Wilson16 Newcomer
6 messages
joined Jan 2007
#1518 ·
Thanks, Ved :*
I honestly don't even know how to put this into words; I just can't bring myself to put anyone on the back burner, so I feel completely torn right now. My grandfather isn't even that old yet—he's only 70 😉 and he still has so many plans and this incredible drive to keep working on the house and looking after the family. I just can't bear to watch him struggle, especially since I'm at a loss for how to actually help him. He’s currently undergoing some intense sinus treatments which sound absolutely exhausting; they have to use two probes through his nose for about an hour at a time just to try and clear his airways.
On top of that, I am worried sick about my mom. She’s going through hormone testing right now because she has hypothyroidism, and it seems like her whole system has just slowed down because of it. She’s constantly exhausted, incredibly stressed, and just doesn't have much emotional bandwidth left. Everything from her heart rate to her digestion feels sluggish. Yet, she refuses to take a break from work; their company is going through a major audit right now, and she’s carrying so much of the responsibility. She has completely forgotten how to relax or even what downtime feels like. Any spare moment she gets, she spends obsessively finding chores to do around the house. She doesn't even engage with the things she used to love anymore; she’s lost interest in her favorite foods or drinks, and everything has become this mindless, routine existence. It’s impossible to spoil her or make her feel special because whenever I ask what kind of meal I could cook for her, she just gets confused—she truly can't think of anything she'd crave. She'll just eat whatever is put in front of her. 🤷
briskbison27 briskbison27 Member
21 messages
joined Mar 2007
#1519 ·
shadowheron4 said:Thanks for the support. It’s true that everyone's situation is unique and you can't really compare one person to another, but having a bit of data on our side definitely helps. Best regards!

I'll shoot you a DM.
bluewalker30 bluewalker30 Member
26 messages
joined Aug 2007
#1520 ·
shadowheron4 said:Warm wishes, Nusazvrk! Thank you so much for the support; it really means a lot right now, and I truly need it. My husband headed out to work on the ship yesterday, and now I’m just sitting here waiting for my oncologist appointment, waiting to go over all the test results, and bracing myself for whatever they might say. Lately, I haven't been feeling my best, and when everything hits you at once...
It’s true that you have to take things one day at a time and be grateful to Bog for every single day we're given. That’s exactly what I try to do. I just pray He gives me enough days to get back on my feet and get this little one of mine—who is entirely dependent on me—up and running again. My main priority is making sure she has her mom there whenever she needs me, because I am her whole world. Of course, Dad is there too, though unfortunately, he isn't around as often as we'd like. It's not his fault; his job keeps him away, and he works incredibly hard just so we can live a decent life. And look, it's not all gloom and doom. We still have beautiful moments and days where we're all together and doing well; those moments are precious. Real happiness doesn't require a luxury car, a massive mansion, or a mountain of cash; for us, just being together and staying healthy is plenty. You don't really grasp that until you face the kind of challenges we both have encountered. Then, you finally learn how to value life. From the bottom of my heart, I wish you a long, wonderful life with your husband and your whole pack of little two-legged troublemakers. May your current dream life become even more complete and happy!!!

Best regards!
I'm not going to sit here and feed you fairy tales about how everything will magically turn out fine. Instead, I'll tell you this: I went through treatment six years ago and I'm cancer-free. There's nothing left but a scar. I know women who had surgery 15, 20, or even 30 years ago with zero recurrence. I also know people who were sent home with almost no hope, yet ten years later, they're still doing great without any signs of the disease returning. Those are the people I look to. I know the wait for results is nerve-wracking, but you have to maintain faith in a positive outcome. Personally, I don't waste energy worrying about the "what ifs." I operate on Plan A and Plan B. Plan A is that if everything looks good, I keep living my life to the fullest without dwelling on the past. Plan B is that if the results aren't good, I have to be strong and fight. There is no other option. I know a woman who went through 36 rounds of chemo and fought metastases for ten years. Warriors like that give me the strength and the belief that I can do this too. Tell yourself, "I have a child; I have to be here, healthy, strong, and composed." There is no better motivation than that. Take care of yourself!🙂 🙂

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