Dealing with nausea, dizziness, muscle weakness, twitching, numbness, and weight loss...

Symptoms: I get this mild nausea every now and then, usually within two hours after eating (though it's better since I went gluten-free and dairy-free). I also deal with occasional dizziness, intense muscle weakness that gets way worse if I do anything physical, visible muscle twitching under my skin in certain spots, tingling in my hands and feet, and I've been losing weight fast. Here’s what I’ve done so far: MRI of my abdomen and head, an MRI of my cervical spine to check the nerves (one of those specialized scans), a general neurological exam, full blood work—minus adrenal and male hormones—tumor markers for the pancreas were negative, stool tests for parasites were negative, a gastroscopy, and testing for H. pylori (which came back borderline positive, so I treated that in the meantime). Also had an echocardiogram, a celiac test, and a urine culture. Honestly, I’m at a total loss. For the most part, everything looks fine except for high cholesterol (around 240 mg/dL), that borderline H. pylori, potassium being right at the bottom edge of normal, and slightly low hematocrit. What should be my next move? Should I look into food allergies, see an ENT, a pulmonologist, or maybe test for Giardia? What could this actually be pointing toward? Could it just be anxiety, or is the muscle weakness too specific for that? Maybe EBV? I’m out of ideas. I’m seeing private doctors because I simply can't function like this anymore waiting for an appointment through my insurance provider a year from now. It’s somewhat manageable, but this muscle weakness and the weight loss are really starting to freak me out. Thanks so much for any help.

boldfalcon542 said:Symptoms: I get this mild nausea every now and then, usually within two hours after eating (though it's better since I went gluten-free and dairy-free). I also deal with occasional dizziness, intense muscle weakness that gets way worse if I do anything physical, visible muscle twitching under my skin in certain spots, tingling in my hands and feet, and I've been losing weight fast. Here’s what I’ve done so far: MRI of my abdomen and head, an MRI of my cervical spine to check the nerves (one of those specialized scans), a general neurological exam, full blood work—minus adrenal and male hormones—tumor markers for the pancreas were negative, stool tests for parasites were negative, a gastroscopy, and testing for H. pylori (which came back borderline positive, so I treated that in the meantime). Also had an echocardiogram, a celiac test, and a urine culture. Honestly, I’m at a total loss. For the most part, everything looks fine except for high cholesterol (around 240 mg/dL), that borderline H. pylori, potassium being right at the bottom edge of normal, and slightly low hematocrit. What should be my next move? Should I look into food allergies, see an ENT, a pulmonologist, or maybe test for Giardia? What could this actually be pointing toward? Could it just be anxiety, or is the muscle weakness too specific for that? Maybe EBV? I’m out of ideas. I’m seeing private doctors because I simply can't function like this anymore waiting for an appointment through my insurance provider a year from now. It’s somewhat manageable, but this muscle weakness and the weight loss are really starting to freak me out. Thanks so much for any help.

You've clearly gone through the ringer with testing, which is good.
I don't have any info on your medical history, age, or anything like that. Does anyone in your family deal with similar stuff? Did these symptoms hit you all at once like a freight train, or has it been a slow crawl over weeks, months, or years? Is there ever a window where you feel totally fine? How long has this whole situation been going on? Also, what do you do for a living—is it physically demanding, are you around chemicals, or is it a desk job?
Was the EMNG performed during those moments when the muscle weakness is at its absolute worst? Do you ever feel heart palpitations, like it's racing or skipping beats? If the EKG was clear, did you perhaps do a 24-hour Holter monitor? And does feeling cold play into any of this?
Have you done any glucose tolerance testing with insulin? Was the potassium level checked specifically when the muscle weakness was most intense? Any thought on a muscle biopsy? Is there a specific type of food that makes things significantly worse? How long does a "flare" of muscle weakness usually last? If I'm reading you right, these issues aren't happening immediately after every single meal, right?

boldfalcon542 said:Symptoms: I get this mild nausea every now and then, usually within two hours after eating (though it's better since I went gluten-free and dairy-free). I also deal with occasional dizziness, intense muscle weakness that gets way worse if I do anything physical, visible muscle twitching under my skin in certain spots, tingling in my hands and feet, and I've been losing weight fast. Here’s what I’ve done so far: MRI of my abdomen and head, an MRI of my cervical spine to check the nerves (one of those specialized scans), a general neurological exam, full blood work—minus adrenal and male hormones—tumor markers for the pancreas were negative, stool tests for parasites were negative, a gastroscopy, and testing for H. pylori (which came back borderline positive, so I treated that in the meantime). Also had an echocardiogram, a celiac test, and a urine culture. Honestly, I’m at a total loss. For the most part, everything looks fine except for high cholesterol (around 240 mg/dL), that borderline H. pylori, potassium being right at the bottom edge of normal, and slightly low hematocrit. What should be my next move? Should I look into food allergies, see an ENT, a pulmonologist, or maybe test for Giardia? What could this actually be pointing toward? Could it just be anxiety, or is the muscle weakness too specific for that? Maybe EBV? I’m out of ideas. I’m seeing private doctors because I simply can't function like this anymore waiting for an appointment through my insurance provider a year from now. It’s somewhat manageable, but this muscle weakness and the weight loss are really starting to freak me out. Thanks so much for any help.

When I first started reading through these test results, I wondered what kind of "person/doctor" would send you for all of this (I won't name names, out of respect for decent communication), and then I read at the end that you're seeing private doctors, which explains everything.
In cases like this, there are almost certainly only two scenarios (99% of the time). One is the one patients stubbornly deny: that nothing is actually wrong with you.
The second is that it's some serious illness (which is quite rare)—something everyone desperately wishes for, so that when the diagnosis comes, whether justified by clinical criteria or not, they can whine and cry even though they knew it all along, or even "fight" for the diagnosis.
As for your questions, velvetmoose9 already confirmed all of that, and you really ought to supplement that "low" potassium.

boldfalcon542 said:Symptoms: I get this mild nausea every now and then, usually within two hours after eating (though it's better since I went gluten-free and dairy-free). I also deal with occasional dizziness, intense muscle weakness that gets way worse if I do anything physical, visible muscle twitching under my skin in certain spots, tingling in my hands and feet, and I've been losing weight fast. Here’s what I’ve done so far: MRI of my abdomen and head, an MRI of my cervical spine to check the nerves (one of those specialized scans), a general neurological exam, full blood work—minus adrenal and male hormones—tumor markers for the pancreas were negative, stool tests for parasites were negative, a gastroscopy, and testing for H. pylori (which came back borderline positive, so I treated that in the meantime). Also had an echocardiogram, a celiac test, and a urine culture. Honestly, I’m at a total loss. For the most part, everything looks fine except for high cholesterol (around 240 mg/dL), that borderline H. pylori, potassium being right at the bottom edge of normal, and slightly low hematocrit. What should be my next move? Should I look into food allergies, see an ENT, a pulmonologist, or maybe test for Giardia? What could this actually be pointing toward? Could it just be anxiety, or is the muscle weakness too specific for that? Maybe EBV? I’m out of ideas. I’m seeing private doctors because I simply can't function like this anymore waiting for an appointment through my insurance provider a year from now. It’s somewhat manageable, but this muscle weakness and the weight loss are really starting to freak me out. Thanks so much for any help.

Anxiety can look like just about anything. Believe me, I know.
Maybe try taking an anti-anxiety med just to see how you feel? If things improve, then you'll probably have your answer.🤷

velvetmoose9 said:You've clearly gone through the ringer with testing, which is good.
I don't have any info on your medical history, age, or anything like that. Does anyone in your family deal with similar stuff? Did these symptoms hit you all at once like a freight train, or has it been a slow crawl over weeks, months, or years? Is there ever a window where you feel totally fine? How long has this whole situation been going on? Also, what do you do for a living—is it physically demanding, are you around chemicals, or is it a desk job?
Was the EMNG performed during those moments when the muscle weakness is at its absolute worst? Do you ever feel heart palpitations, like it's racing or skipping beats? If the EKG was clear, did you perhaps do a 24-hour Holter monitor? And does feeling cold play into any of this?
Have you done any glucose tolerance testing with insulin? Was the potassium level checked specifically when the muscle weakness was most intense? Any thought on a muscle biopsy? Is there a specific type of food that makes things significantly worse? How long does a "flare" of muscle weakness usually last? If I'm reading you right, these issues aren't happening immediately after every single meal, right?

Based on what I know—nope. I'm 37, and my toughest bout with being sick was just a nasty sore throat.
Yeah, so back in September, we dealt with a stomach bug. No fever or anything, just some lingering diarrhea—basically just really loose stools for a bit.

Did this all hit you like a ton of bricks out of nowhere, or has it been a slow burn that's been getting worse over the last few weeks, months, or even years?

It’s a slow rollout over three months—mostly focused on the GI side of things—but honestly, the neuromuscular stuff is proving to be a bit more of a grind than that.

Is there ever a time when the symptoms just... stop? Like, a window where you actually feel normal?

Yeah, it usually hits hardest in the morning, but things definitely tend to take a turn for the worse in the afternoon.

How long does this whole thing even last?

It’s been hitting me since around October or November—maybe even a bit stronger lately. It’s one of those sneaky, lingering things that just won't quit, ever since I dealt with that sinus infection about three months ago.

What kind of grind are you all into? Are we talking heavy lifting and manual labor, dealing with chemicals in a lab, or just the classic soul-crushing desk job?

Office life can be a real grind sometimes, especially when things start getting stressful.

Is EMNG usually performed right when muscle weakness is at its peak?

Unfortunately, no. It was put together back when those kinds of issues weren't even on anyone's radar yet.

Ever get that weird sensation where your heart feels like it's racing out of nowhere, or you get those sudden little skips, like it missed a beat?

Yeah, things definitely start moving pretty quickly after I eat—usually somewhere between 30 minutes to two hours in. But honestly, it’s a massive improvement compared to how bad it used to be before I cut out gluten and dairy.

The EKG came back clear—maybe it's worth looking into a 24-hour Holter monitor too?

Nah.

Does the cold play any role in what we're seeing here?

Yeah, things are getting worse.

Have you done any glucose tolerance tests with insulin?

Nah, just standard blood sugar from my regular checkups and that A1C test where they look at the three-month average.

Was your potassium checked right when the muscle weakness was hitting hardest?

No.

Muscle biopsy?

Nope.

Is there any specific food that makes everything feel way worse?

Gluten, basically just carbs. But I tested negative for Celiac 🤷 and my blood sugar seems fine.

How long does this "muscle weakness flare" actually last?

It's pretty much always there, though it really kicks in during physical activity. Even small stuff, like carrying a bag of groceries.

If I'm reading you right, these symptoms don't necessarily happen right after every meal?

No. The muscle weakness isn't tied to eating, and neither is the twitching. But the type of food I eat definitely impacts how much I crash afterward.

Nancy Morris5 said:Anxiety can look like just about anything. Believe me, I know.
Maybe try taking an anti-anxiety med just to see how you feel? If things improve, then you'll probably have your answer.🤷

Look, I get that we’ve already looked into this, but those muscles are still driving me crazy. It just feels off—it's honestly suspicious how poorly they react to even the slightest bit of strain, or even just a long walk. It’s like my body has zero shock absorption left.
So, I’m checking things again and still seeing zero ketones in my urine... does that even matter? Or am I just overthinking this part?
As soon as I cut out gluten and dairy, my hunger levels just went through the roof. It’s constant. I find myself snacking on little bits of food all day long, but nothing seems to actually stick—I'm never feeling full. It’s wild because before I made these changes, it felt like it took me forever just to drop a few ounces. Now, the hunger is real.🙄

Oh, I totally missed one detail! My IgE levels were actually a bit high—around 165, if I recall correctly—but they wouldn't even bother with allergy testing until I cleared out the H. pylori first. That was just three days after I cut out gluten and dairy. Just to test the waters this morning, I had some oatmeal made with oat milk (since oats are technically gluten-free on their own, though they’re almost always cross-contaminated), and man, it hit me hard. It wasn't just a stomach thing; it felt like total physical exhaustion and dizziness, almost like being drunk or completely wiped out.

I’m really hoping it’s nothing serious, but honestly, I’m a little spooked. This stuff is seriously messing with my ability to live a normal life, and the last thing I want to do is overlook something important.

Are you showing signs of hypochondria? Do yourself a favor and actually read up on it. Self-diagnosing isn't exactly rocket science, and honestly, it’s a pretty common byproduct of untreated anxiety.

Man, that is a ton of testing! :O Honestly, if you ask me, the whole thing smells a bit like hypochondria... I mean, if there were actually something wrong, wouldn't at least one of all those tests have flagged something by now? I think analogbison13 is totally onto something here—anxiety can really play tricks on your head and make you feel like anything is possible.

I know this sounds totally bizarre—I’ve done so much searching and everything—but I don't know what to do. When I pick up a standard 40-liter trash bag filled with just paper and packaging, not even heavy stuff like lead, my muscle aches for hours afterward. I feel completely drained, like I just lifted a literal ton. It’s at the point where I can't even pick up my kid in my arms. 😢 So, it’s not like I’m feeling generally exhausted all the time; it’s this specific sensation where the muscle just lacks any power, and once you use it, it feels like it needs hours of recovery time. Or—get this—I’m eating plenty all day long. My main meals are huge, and for snacks, I’m hitting them with calorie-dense stuff like dried fruit, nuts, bananas, and so on, yet I’m still losing weight. Back in the day, I’d eat three big meals a day and absolutely kill myself with cardio, and I'd barely drop an ounce a month. This isn't just me being a hypochondriac, dammit. 🤷 It’s not like I’m feeling depressed or anxious or anything like that, and I never have been. Of course, after dealing with all of this, I might end up developing those issues too. 🙄 😁 Anyway, thanks for the input. I'll let everyone know once I get a diagnosis ☕🙈

Reacting to this whole "gluten-infected" toothpaste nonsense sounds like a total hypochondriac meltdown. Honestly, it’s exhausting just listening to it. I actually suffer from this stuff, so I know exactly what I’m talking about. Good luck with that!

If I’m reading you right, you generally feel okay when you first wake up, but things start sliding downhill as the day goes on—muscle weakness kicks in whenever you try to move, leaving you totally wiped out even from minimal effort (especially since you used to be pretty active), and you’re dropping weight despite eating just fine...
When the neurologist was checking you out, how did you hold up during these specific tests:
- staring at an "X" for as long as possible
- blinking your eyes rapidly over and over
- reading a passage from a book or counting up to 100
- walking up and down a flight of stairs a few times
Did you notice any weird shifts during those movements, and did they give you any injections? If so, did you notice any change after getting them?
Were your CPK and LDH levels looking normal on your blood work? Which tumor markers did they actually run? Also, if I understood correctly, there's no sign of anemia? Are your CRP and sedimentation levels within the normal range? And what about the peripheral blood smear? Has anyone looked closely at your chest via imaging—like checking the lungs for anything suspicious, or maybe even mentioned the thymus gland?

velvetmoose9 said:If I’m reading you right, you generally feel okay when you first wake up, but things start sliding downhill as the day goes on—muscle weakness kicks in whenever you try to move, leaving you totally wiped out even from minimal effort (especially since you used to be pretty active), and you’re dropping weight despite eating just fine...
When the neurologist was checking you out, how did you hold up during these specific tests:
- staring at an "X" for as long as possible
- blinking your eyes rapidly over and over
- reading a passage from a book or counting up to 100
- walking up and down a flight of stairs a few times
Did you notice any weird shifts during those movements, and did they give you any injections? If so, did you notice any change after getting them?
Were your CPK and LDH levels looking normal on your blood work? Which tumor markers did they actually run? Also, if I understood correctly, there's no sign of anemia? Are your CRP and sedimentation levels within the normal range? And what about the peripheral blood smear? Has anyone looked closely at your chest via imaging—like checking the lungs for anything suspicious, or maybe even mentioned the thymus gland?

That’s exactly it. The dizziness and that weird "head" sensation mostly follow a daily rhythm. I have some good days, sure, but the muscle weakness is a constant—it doesn't really come in waves.

So, this whole thing with the nausea, heaviness, and dizziness—that feeling like I’m drunk—has been hanging around since roughly March. Then, about 9 or 10 months after dealing with a stomach bug/diarrhea, the rapid weight loss and muscle weakness joined the party. Since last summer, there’s been this burning or tingling sensation during and after exercise, and since autumn, it’s turned into a total loss of strength. In the beginning, I even had visible muscle twitching (I saw a neurologist when I was having those dizzy spells and tingles back in late summer, before these worse symptoms kicked in), but if I’m just resting, I’m relatively fine. As soon as I do anything physical, I just crash and it takes forever to recover; it feels like I went way too hard at the gym and completely drained myself, like my muscles just aren't getting fueled. It’s tough to put into words, but it’s like if you were lifting weights and could actually feel the tension and power returning to the muscle, except for me, it happens without the tingling or with very little of it.

When the neurologist checked you out, how did it go when you:
- looked "up" for as long as possible
- blinked your eyes rapidly
- read a passage from a book or counted to 100
- walked up and down a flight of stairs a few times

They didn't actually perform a full exam on me, but I tried doing what you described and nothing happened. Okay, I didn't count all the way to 100, but I did the rest. 😁

Were there any changes then? Did you get any injections, and did they make any difference?

I got an injection yesterday for my mental state—I don't remember the exact name right now because I had a panic attack at the doctor's office, and the shot didn't help at all, neither immediately nor afterward. I didn't even feel relaxed. Honestly, a protein shake helped me more during those sudden bouts of weakness.
The biggest change happened when I intuitively decided to cut out gluten and dairy, since I'd noticed they were already a bit tough on my system. That stomach heaviness vanished immediately, and I actually managed to gain a pound and stop the rapid weight loss.

Were your CPK and LDH levels normal in your blood work?

They didn't test for those.🤷

Which tumor markers did they run?

Ugh, I think they ran some tests for my thyroid, but I'm not 100% sure if anything else was included. I'd have to dig through my lab results to be certain.

If I'm reading this right, there's no anemia?

No, unless you count a low hematocrit—I mean, if a normal level is 415, mine was 399. But that’s not really a huge drop, is it? Everything else seemed fine.
From the blood work I had done, the only thing off was an IGRT of 165, and I think my cholesterol was up at 6.5.
The rest was okay. I didn't go overboard running every single test under the sun just for the sake of it; I just stuck to what the specialists actually ordered.

Are the CRP and sedimentation levels normal?

Yeah.

What about a peripheral blood smear?

Didn't do that one.

Was the chest scanned (looking at lungs for any malignancy, or maybe checking the thymus)?

No, nobody suggested that since I don't really have any breathing issues or shortness of breath, other than having chronic sinus issues and being a former smoker (though I wasn't a heavy smoker).

Thanks again, everyone!🙂

If it matters, I had a lot of allergies when I was a kid—feathers, milk, strawberries... mostly skin reactions. And after penicillin, which I'm still allergic to today; I think that was the only time I ever swelled up like crazy.

So, looking at this, it seems like they haven't even run basic lab work yet—I mean, if we don't know the CPK or LDH levels, we're basically flying blind. I’m a little lost on what else was actually done; it doesn't look like even a standard chest X-ray was ordered, which feels pretty basic for a routine checkup, right? Are the thyroid levels looking okay? And from what I can gather, the adrenal hormones weren't checked either, since there wasn't any mention of things like Conn syndrome or hyperaldosteronism.
Basically, you need to get a serious diagnostic workup going ASAP, and you should hit up your primary care doctor right away. Have them figure out if they can handle the investigation themselves or if they need to refer you to a hospital for more intensive testing. Starting with some solid internal medicine would be smart, but honestly, it might be wise to pull in an infectious disease specialist too—those guys are absolute wizards—and definitely a neurologist as well.
One thing you definitely need to make sure you mention during your exams is that the muscle weakness hasn't been changing much over time, along with any history of autoimmune stuff, like being allergic to penicillin and things like that.
That bit about feeling better after switching to a gluten-free diet is actually a really interesting detail...
Also, you mentioned there was an infection right before all these symptoms started hitting.

Hello, if you haven't already, get some hormone panels done; specifically TSH, fT3, fT4, along with LH, FSH, Prolactin, and definitely Testosterone. Have you noticed any specific symptoms regarding this, such as a drop in libido or issues with erections?

**boldfalcon542**, are you **boldfalcon542**’s husband or something? You’re posting in the masculine here, yet you use the feminine on other threads.

velvetmoose9 said:So, looking at this, it seems like they haven't even run basic lab work yet—I mean, if we don't know the CPK or LDH levels, we're basically flying blind. I’m a little lost on what else was actually done; it doesn't look like even a standard chest X-ray was ordered, which feels pretty basic for a routine checkup, right? Are the thyroid levels looking okay? And from what I can gather, the adrenal hormones weren't checked either, since there wasn't any mention of things like Conn syndrome or hyperaldosteronism.
Basically, you need to get a serious diagnostic workup going ASAP, and you should hit up your primary care doctor right away. Have them figure out if they can handle the investigation themselves or if they need to refer you to a hospital for more intensive testing. Starting with some solid internal medicine would be smart, but honestly, it might be wise to pull in an infectious disease specialist too—those guys are absolute wizards—and definitely a neurologist as well.
One thing you definitely need to make sure you mention during your exams is that the muscle weakness hasn't been changing much over time, along with any history of autoimmune stuff, like being allergic to penicillin and things like that.
That bit about feeling better after switching to a gluten-free diet is actually a really interesting detail...
Also, you mentioned there was an infection right before all these symptoms started hitting.

Nah, I mean, it’s not like I’m actually showing any signs of those kinds of issues.

Is my thyroid panel looking okay?

Yeah.

If I’m following this correctly, the adrenal hormones aren't being regulated either? It seems like terms such as Conn's syndrome or hyperaldosteronism weren't even mentioned in the discussion.

Nah, they didn't actually run the hormone tests.

So, here's the deal... Get this to a specialist for a real evaluation, ASAP. You should probably get in touch with your primary care doctor ASAP. Have them figure out if you can handle this on your own or if they need to send you in for some more serious testing. I’d suggest starting with an internist, but honestly, it would be smart to ask for a referral to an infectious disease specialist—those guys really know their stuff—and definitely loop in a neurologist too. Better safe than sorry.

I was actually hoping for a full, standard workup, but my GP basically brushed me off. After she looked over my neurology report—which I had done back in July before I even started losing weight—she told me there was no reason to refer me to an endocrinologist or anything else. She just suggested I take some folic acid and leave it at that. So, I did what she said, but honestly? I felt like my body was falling apart. Since I couldn't rely on her for any real support, I ended up booking a private specialist on my own to get some actual answers. Looking back at everything being discussed here, it’s pretty clear that those doctors could have pointed me toward this exact path from the start. 🙄

Thanks for the input! I’m going to try to switch up my OBGYN as soon as possible. Hopefully, if I find someone who actually listens, I'll have better luck getting some proper guidance.

Jose Clark2 said:Hello, if you haven't already, get some hormone panels done; specifically TSH, fT3, fT4, along with LH, FSH, Prolactin, and definitely Testosterone. Have you noticed any specific symptoms regarding this, such as a drop in libido or issues with erections?

I need to double-check my records. I can't remember if I hit all of them, but they did test my thyroid hormones—I think there were three different markers on the lab slip, but I've gotta verify.

Don't forget Prolactin and definitely Testosterone.

Yeah, I skipped those.

Are you actually noticing symptoms from this? Like a drop in libido, losing interest, or issues with erections?

Look, being in this headspace right now... yeah, absolutely.

Jose Clark2 said:**boldfalcon542**, are you **boldfalcon542**’s husband or something? You’re posting in the masculine here, yet you use the feminine on other threads.

Yeah! If that’s an issue, my bad. I didn't bother logging into my main account because I figured since this was just an anonymous question, who cares about the identity behind it? But if it's a problem (I didn't see anything in the rules about it, at least not that I noticed), just let me know. I'll go ahead and "officially" register, and if necessary, I can verify my previous posts and my actual identity via phone, email, my own records, or even in person.

Anyway, things have actually shifted a bit. Yesterday, I felt absolutely terrible—super dizzy and weak. My wife practically forced me to drink some sugar water, and honestly, after that, I felt like a new person! (Well, except for those muscles that still twitch whenever I push myself). 😲
But here's the kicker: since they prepared that sugar for me and ran that test to check for spikes in my blood sugar—which came back negative—how am I supposed to react like someone dealing with hypoglycemia? I wasn't even trying to fix the weakness with sugar because I don't have diabetes; it's not that kind of thing. Sugar isn't going to be my permanent fix. 🤷

So, what’s the deal when you’re tracking your blood pressure throughout the day? Is it spiking high or bottoming out? Any weird skin color shifts? And when those attacks actually hit, what does the reading look like then? I was wondering if the MRI showed anything funky with the pituitary or adrenal glands—like, did they look morphologically normal? Also, when the doctors were going over the adrenal results, did anyone happen to drop terms like "adrenal insufficiency" or "hypopituitarism," or was it just vague? Honestly, ASAP you really need to get in front of some internists. If they team up with an immunologist and an endocrinologist to look at your clinical symptoms alongside all these test results, they can actually figure out a game plan. That bit about feeling better after drinking sugar water is definitely useful intel to bring to the appointment—by the way, how many minutes does it usually take for you to feel a difference after you've had the sugar water?