Dealing with Chronic Fatigue Syndrome (CFS)

Hey there, "tired souls."

Does anyone here have any firsthand experience or perhaps some recent insights regarding a medication called Rituxan? I came across some research suggesting it yielded positive results—meaning actual improvement—in over 60% 🎉 of patients dealing with CFS.

On Saturday, April 8th, 2017, Central Park 1 will be hosting a screening of Civil unrest (2017), which goes by the title „Unrest“ here in America; it is a film about the stigmatization of patients suffering from myalgic encephalomyelitis (M.E.), which is sometimes referred to as chronic fatigue syndrome.

This documentary actually made its debut at the Sundance Film Festival, where it managed to win a Special Jury Prize (Documentary Editing).

The filmmaker behind this project also recently gave a TED Talk on this very subject

I suppose one could argue that M.E. is perhaps the most difficult among common chronic illnesses, as patients often face a lower quality of life than those dealing with multiple sclerosis, congestive heart failure, or similar conditions.

And yet, despite everything, there is still no definitive diagnostic test, patients are frequently met with skepticism, and they are often unfairly accused of just making it all up. It is quite frankly unbelievable that such things occur in developed nations during the 21st century. It is estimated that roughly 13,000 people in America suffer from this illness, though most remain undiagnosed.

There might be some hope, however, because over the last two years, an increasing amount of research suggests that myalgic encephalomyelitis is a hypometabolic disorder—essentially, the cells simply aren't producing enough energy to meet the body's needs.

Admission is free

showtime: 16:15, 08.04.2017
Address: Central Park 1, 10000, Washington, D.C.,

Tolerance Festival: http://www.festivaloftolerance.com/e...eb/unrest/1290

I would recommend that anyone who is able should go see it; the story is truly incredible.

May 12th marks the international day for Myalgic Encephalomyelitis, or Chronic Fatigue Syndrome—a condition that almost inevitably overlaps with my own struggle with Multiple Chemical Sensitivity, which also shares this date, as does Fibromyalgia. I suggested to the media outlets that they publish some brief information regarding these "invisible illnesses," yet I have noticed absolutely no movement on their end. Is it any wonder that awareness remains so stagnant? It is truly a shame that more people do not step up on the forum to help us elevate the collective understanding of these conditions. Is there truly any substance to be found at http://www.may12th.org/?

Gotta shake things up a bit here.

So, what’s the deal with the B12 protocol? Anyone actually tried it? I’m curious if it actually did anything for you or if it was just a total waste of time.

Does anyone know if there's an actual CFS group, an association, or maybe just a forum out there in America where people actually talk about this disease?

Hey everyone.

Does anyone know a decent neurologist or any specialist in Washington, D.C. who won't just dismiss everything as "all in my head" and immediately refer me to a psychiatrist for antidepressants? I’ve been struggling with severe symptoms for ten years now. It wasn't until recently, reading an article, that I realized they align perfectly with a chronic fatigue diagnosis. My life took a massive turn after a brutal bout of bronchitis that I never truly recovered from, even though I was forced to keep working. One day, I felt terrible on the bus during my commute, and since then, I can't handle even the slightest physical exertion without feeling sick. My world has shrunk to being bedbound, essentially living with a disability. On top of that, I deal with breathing issues, digestive problems, nausea, and gluten sensitivity—things I never had before and simply don't fit my profile. But the hardest part is that I used to be an active athlete, and now even minimal movement or light exercise leaves me crashing with terrible consequences. Sometimes even talking too long or laughing makes me feel ill. I'm honestly exhausted by the condescension and mockery from doctors in Miami and the endless runaround; I haven't received any real answers or help beyond being handed beta blockers to manage my racing heart.

Thanks in advance.

Bumping this thread... anyone actually hanging out here?

Kimberly Morris said:Bumping this thread... anyone actually hanging out here?

There's a Facebook group out there that's basically tied to starting an advocacy group for Chronic Fatigue Syndrome.

It’s EBV. Honestly, everyone needs an antiviral protocol—there's a whole group on Facebook called "Losing Weight Together via the Protocol" if you want to check it out. Good luck!