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Muscle atrophy on the right side of my body

Started by Thomas Thompson12 · · 👁 3 views · 1 reply

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Participants Thomas Thompson12Noah Ward93
Thomas Thompson12 Thomas Thompson12 NewcomerOP
9 messages
joined Jan 2018
#1 ·
Hi there,
My issues started about three years ago after I tried some herbal parasite cleanse involving certain plant oils and bitter salts. By the next day, I had this swelling under my arm and pain radiating up into my neck—my lymph nodes were acting up, too. I went through a whole battery of tests, and everything came back fine. During an ultrasound, the doctor noticed a tiny enlargement in the nodes on the painful side, but he didn't officially note it since it wasn't considered "reactive"... or so he explained. At the time, I was under massive stress and spiraled into thinking I might have lymphoma. A few weeks later, my whole body started twitching, and the muscle in my right palm just below the thumb seemed to shrink slightly. That’s when the real panic set in—I started Googling ALS. That same week, I felt fasciculations in my tongue; when I looked in the mirror, I could see sporadic twitching and some indentations that weren't there before. I became hyper-aware of my body, and within a few weeks, I noticed my right foot was changing shape and looking more bony. I eventually went in for an EMG of my arms and legs with Dr. Marija Šoštarko. She didn't find any pathological changes. My reflexes are normal—maybe a bit lively at the knees, but symmetrical. Nerve conduction is great, and the myographic findings only suggested a mild, compensated L5 lesion. Fast forward three years, and I'm still dealing with the same things. A couple of weeks ago, I saw Dr. Šoštarko again, and she did notice some asymmetry between my left and right calves. She measured it (0.50 cm), and I showed her my right palm and my tongue—which feels weaker on the right side now—but none of it is flagged as a clinical problem. Reflexes remain the same, and the EMG results are similar to three years ago, showing bilateral L5:S1 lesions, but nerve conduction is still excellent.
The atrophy is still quite mild, and the doctor says I'm strong because I can breeze through all the physical tests she gives me.
She tells me there’s nothing to worry about. Over the last three years, I've had blood work done and everything is steady—calcium, magnesium, potassium, sodium, B12, folic acid, thyroid hormones... the only thing that dipped slightly below range was my serum copper. I just went back to get everything re-tested; everything looks okay so far, though I'm still waiting on the copper levels.
I’m really looking for some advice on what to do next... this is honestly ruining my life, and I just can't find peace.
I asked Dr. Šoštarko if there was any chance this could be something like progressive muscular atrophy—since it's also a motor neuron disease—and she said no... but I still can't shake the anxiety. She’s wonderful, truly dedicated, and above all, a kind person; I can tell she genuinely feels for me, even if she can't provide a definitive answer.
I'm 29 years old
Noah Ward93 Noah Ward93 Newcomer
1 message
joined Sep 2017
#2 ·
Jessica Baker69 said:Best regards,
My issues started about three years ago after I tried some sort of herbal parasite cleanse. It involved certain plant oils and bitter salts. The very next day, I developed this weird swelling under my armpit and pain that radiated up into my neck. My lymph nodes in my neck were hurting too. I went through all sorts of tests, and everything came back perfectly fine. During an ultrasound, the doctor noticed a tiny enlargement of a node on the side that was hurting, but they didn't even put it in the report because they said it wasn't considered a reactive node. At the time, I was under immense stress and lived in constant fear that I had lymphoma. After a few weeks, I started experiencing muscle twitching all over my body, and the muscle in my right palm, just below the thumb, seemed slightly smaller. That’s when the real panic set in—I was convinced I had Googled my way into an ALS diagnosis. In that same week, I felt twitching in my tongue; I looked in the mirror and could actually see sporadic twitches and a few indentations that hadn't been there before. I began obsessively monitoring my body and, within a couple of weeks, noticed my right foot was changing shape and looking more bony. So, I went in for an EMG of my arms and legs with Dr. Marija Šoštarko. She didn't find any pathological changes. Reflexes are normal—maybe a little brisk at the knees, but symmetrical. Nerve conduction is excellent, and the myographic findings only pointed to a mild, compensated L5 lesion. Now, three years later, I am still dealing with the exact same things. A few weeks ago, I had another follow-up with Dr. Šoštarko, who noticed asymmetry between my left and right calves and measured it at 0.50 cm. I showed her my right palm and my tongue as well (which now feels weaker on the right side), but none of it was deemed clinically significant. Reflexes remain the same, the EMG results are similar to what they were three years ago, indicating a bilateral L5 : S1 lesion, and nerve conduction is still excellent.
The atrophy remains mild; the doctor says I am strong and could complete every physical test she gave me.
The doctor tells me there is no reason to worry. I’ve had blood work done over the last three years and everything is normal (calcium, magnesium, potassium, sodium, B12, folic acid), as well as my thyroid levels. The only thing that was slightly below the reference range was my serum copper. I just went to have everything re-tested—everything is still fine, though I haven't received the copper results yet.
Please, if anyone has advice, what should I do? This is destroying my life; I can't find any peace.
I asked Dr. Šoštarko if there was any possibility of something like progressive muscular atrophy—which is also a motor neuron disease. She said no... but I still can't relax. She is a wonderful doctor, dedicated, and above all, a decent human being; I can see how much she empathizes with what I'm going through, but she simply cannot give me the answers I need.
I am 29 years old.


I get muscle twitching in my calves and sometimes it twitches all over my body.

Tingling and burning sensations in my legs.

I have nerve damage at L5, if that's even relevant.

Also, an MRI showed a herniated disc at L5.

To add to that, I notice the muscles in my calves have weakened.

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