#1 ·
Hi there,
My issues started about three years ago after I tried some herbal parasite cleanse involving certain plant oils and bitter salts. By the next day, I had this swelling under my arm and pain radiating up into my neck—my lymph nodes were acting up, too. I went through a whole battery of tests, and everything came back fine. During an ultrasound, the doctor noticed a tiny enlargement in the nodes on the painful side, but he didn't officially note it since it wasn't considered "reactive"... or so he explained. At the time, I was under massive stress and spiraled into thinking I might have lymphoma. A few weeks later, my whole body started twitching, and the muscle in my right palm just below the thumb seemed to shrink slightly. That’s when the real panic set in—I started Googling ALS. That same week, I felt fasciculations in my tongue; when I looked in the mirror, I could see sporadic twitching and some indentations that weren't there before. I became hyper-aware of my body, and within a few weeks, I noticed my right foot was changing shape and looking more bony. I eventually went in for an EMG of my arms and legs with Dr. Marija Šoštarko. She didn't find any pathological changes. My reflexes are normal—maybe a bit lively at the knees, but symmetrical. Nerve conduction is great, and the myographic findings only suggested a mild, compensated L5 lesion. Fast forward three years, and I'm still dealing with the same things. A couple of weeks ago, I saw Dr. Šoštarko again, and she did notice some asymmetry between my left and right calves. She measured it (0.50 cm), and I showed her my right palm and my tongue—which feels weaker on the right side now—but none of it is flagged as a clinical problem. Reflexes remain the same, and the EMG results are similar to three years ago, showing bilateral L5:S1 lesions, but nerve conduction is still excellent.
The atrophy is still quite mild, and the doctor says I'm strong because I can breeze through all the physical tests she gives me.
She tells me there’s nothing to worry about. Over the last three years, I've had blood work done and everything is steady—calcium, magnesium, potassium, sodium, B12, folic acid, thyroid hormones... the only thing that dipped slightly below range was my serum copper. I just went back to get everything re-tested; everything looks okay so far, though I'm still waiting on the copper levels.
I’m really looking for some advice on what to do next... this is honestly ruining my life, and I just can't find peace.
I asked Dr. Šoštarko if there was any chance this could be something like progressive muscular atrophy—since it's also a motor neuron disease—and she said no... but I still can't shake the anxiety. She’s wonderful, truly dedicated, and above all, a kind person; I can tell she genuinely feels for me, even if she can't provide a definitive answer.
I'm 29 years old
My issues started about three years ago after I tried some herbal parasite cleanse involving certain plant oils and bitter salts. By the next day, I had this swelling under my arm and pain radiating up into my neck—my lymph nodes were acting up, too. I went through a whole battery of tests, and everything came back fine. During an ultrasound, the doctor noticed a tiny enlargement in the nodes on the painful side, but he didn't officially note it since it wasn't considered "reactive"... or so he explained. At the time, I was under massive stress and spiraled into thinking I might have lymphoma. A few weeks later, my whole body started twitching, and the muscle in my right palm just below the thumb seemed to shrink slightly. That’s when the real panic set in—I started Googling ALS. That same week, I felt fasciculations in my tongue; when I looked in the mirror, I could see sporadic twitching and some indentations that weren't there before. I became hyper-aware of my body, and within a few weeks, I noticed my right foot was changing shape and looking more bony. I eventually went in for an EMG of my arms and legs with Dr. Marija Šoštarko. She didn't find any pathological changes. My reflexes are normal—maybe a bit lively at the knees, but symmetrical. Nerve conduction is great, and the myographic findings only suggested a mild, compensated L5 lesion. Fast forward three years, and I'm still dealing with the same things. A couple of weeks ago, I saw Dr. Šoštarko again, and she did notice some asymmetry between my left and right calves. She measured it (0.50 cm), and I showed her my right palm and my tongue—which feels weaker on the right side now—but none of it is flagged as a clinical problem. Reflexes remain the same, and the EMG results are similar to three years ago, showing bilateral L5:S1 lesions, but nerve conduction is still excellent.
The atrophy is still quite mild, and the doctor says I'm strong because I can breeze through all the physical tests she gives me.
She tells me there’s nothing to worry about. Over the last three years, I've had blood work done and everything is steady—calcium, magnesium, potassium, sodium, B12, folic acid, thyroid hormones... the only thing that dipped slightly below range was my serum copper. I just went back to get everything re-tested; everything looks okay so far, though I'm still waiting on the copper levels.
I’m really looking for some advice on what to do next... this is honestly ruining my life, and I just can't find peace.
I asked Dr. Šoštarko if there was any chance this could be something like progressive muscular atrophy—since it's also a motor neuron disease—and she said no... but I still can't shake the anxiety. She’s wonderful, truly dedicated, and above all, a kind person; I can tell she genuinely feels for me, even if she can't provide a definitive answer.
I'm 29 years old