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Living with CLL: Tips and Support

Started by Keith Thomas21 · · 👁 3 views · 3 replies

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Participants Keith Thomas21Elizabeth Castillo8Angela Wrightfrozencobra25
Keith Thomas21 Keith Thomas21 MemberOP
47 messages
joined Nov 2007
#1 ·
If anyone here has navigated similar waters, I would be deeply grateful for your insight. My partner, with whom I have been in a long-term relationship, is facing a difficult road; his father was recently diagnosed with chronic lymphocytic leukemia. It was an entirely accidental discovery—he went in for routine blood work regarding an unrelated issue, and they ended up keeping him at the hospital. He feels perfectly fine, actually; he’s functioning as his usual self without any noticeable impairment. His doctor explained that it’s the very early stages of the disease, as he isn't showing any typical symptoms yet, such as an enlarged spleen, fever, bruising, bleeding, or general fatigue. They did administer two transfusions, and now we are simply waiting on the pathology results. What weighs most heavily on my mind, especially since I am about to officially join this family, is what the trajectory of this illness looks like. How long might this period of feeling "normal" last before the disease takes hold? Will there be a gradual decline similar to what one sees with other cancers? I find myself wondering how I should conduct myself, how to offer support, and how to prepare for what comes next.
Please reach out if you have any experiences to share; I truly appreciate your help.
Elizabeth Castillo8 Elizabeth Castillo8 Newcomer
1 message
joined Dec 2007
#2 ·
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Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#3 ·
Kimberly Flores56 said:I’m looking for some insight from anyone who has walked this path before. My partner's father was just diagnosed with chronic lymphocytic leukemia. It was a total accident—he went in for routine blood work for an entirely different issue, and they ended up keeping him in the hospital. The weird part is that he feels completely fine; he’s functioning at one hundred percent. His doctor mentioned it's the very early stages, since he isn't showing any typical symptoms yet—no swollen spleen, no bruising, no fever, no fatigue, nothing. He’s had two transfusions so far and is currently waiting on the pathology report. Since I’m about to officially become part of this family, I’m feeling pretty overwhelmed about what comes next. How does this disease actually progress? How long will that "feeling normal" phase last before things start to decline? I want to know how to brace myself, how to handle my own reactions, and most importantly, how I can actually be there for them.
Please reach out if you have any experience with this. Thank you so much.

http://www.mayoclinic.org/?section...enu2=&bid=41-0
http://www.cancer.org/treatment-options
http://www.leukemia.org/patient-resources
frozencobra25 frozencobra25 Newcomer
4 messages
joined Nov 2007
#4 ·
Angela Wright said:http://www.mayoclinic.org/?section...enu2=&bid=41-0
http://www.cancer.org/treatment-options
http://www.leukemia.org/resources/patient-info.pdf

Please, if you can, shoot me an email at doomy79 @ yahoo.com

I have a few quick questions, if you're up for answering them...

thanks

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