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Myocarditis, polymyositis, pericarditis - help needed

Started by fadedmoose34 · · 👁 4 views · 8 replies

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Participants fadedmoose34Carol ParkerScott Allen10jaderider64fadedmarlin402
fadedmoose34 fadedmoose34 NewcomerOP
6 messages
joined Apr 2009
#1 ·
I’m 24 years old and I've just been diagnosed with viral myocarditis... along with all the other complications that come with it. I was wondering how many of you are actually on this forum? I'd love to hear about your experiences—how long did your treatment last? I spent three weeks stuck in the hospital and I was only discharged two weeks ago, so I'm still on Prednisone. Is there a real risk of this progressing into cardiomyopathy or something similar?
I would be incredibly grateful if anyone could share their own story. 🙏🙏🙏
fadedmoose34 fadedmoose34 NewcomerOP
6 messages
joined Apr 2009
#2 ·
Is there seriously nobody else here dealing with myocarditis?! Honestly, I was just sitting there laughing at the doctors back at the hospital when they had the nerve to tell me my case would end up being featured in medical journals...
Carol Parker Carol Parker Member
34 messages
joined Jan 2007
#3 ·
What kind of symptoms are we talking about here, and how on earth did the virus end up hitting your heart?
fadedmoose34 fadedmoose34 NewcomerOP
6 messages
joined Apr 2009
#4 ·
Carol Parker said:What kind of symptoms are we talking about here, and how on earth did the virus end up hitting your heart?

Well, it went like this...
It all kicked off with chest pain... I had this heavy, hacking cough and honestly felt like my lungs were just filled with tar (I am a smoker, after all). I felt terrible. Just completely wiped out. After about two or three days, I ran a low-grade fever of around 99°F. It wasn't massive, but I figured I was coming down with the flu, so I grabbed some Advil Cold & Sinus—better safe than sorry, right?
The very next day, I couldn't even get out of bed. Standing up? Forget it. Even getting to the bathroom was impossible. I ended up at the ER, where they hooked me up to an IV and sent me home. That happened twice—two days in a row. Their EKG showed absolutely nothing.
Then came the next day, and I was completely incapacitated. I couldn't breathe; I felt like I was suffocating. Overnight, my temperature plummeted to 95°F. Back to the hospital I went. They gave me another IV (I guess they think that’s a magic fix for everything) and then put me on oxygen. My heart rate was racing between 140 and 160 beats per minute... blood pressure was sitting at 90/60. They were suspecting a pulmonary embolism or maybe septic shock. An ultrasound revealed fluid around my heart... and some kind of thickening of a wall, about 3 cm. Over in surgery, they inserted those little catheters into my veins to manage my venous pressure... if I remember correctly, it was either negative or extremely high... hmm... I went through it all: ultrasounds, two different MRIs, EMG tests, you name it.
I was on Decadron, though I honestly can't recall the exact dosage... looking back, I have no idea what all those pills were. They finally discharged me after three weeks. It took until the second week before I could even walk to the bathroom on my own (I was stuck with that annoying catheter). During that first week, I couldn't even hold a spoon, let alone lift it.
My discharge papers listed these diagnoses:
myocarditis ac.susp.
polymyositis vs.virosa ac.
pericarditis ac.exudativa virosa
They took some blood samples and sent them off to a lab—think somewhere like Quest Diagnostics—and now I'm just waiting on the results. They were testing for adenovirus, influenza, Coxsackie, and Echo viruses...
So, that's my story for now.
Sorry if that was a massive wall of text... I'm really hoping there's someone else here who has dealt with something similar so we can compare notes.
Best,
Oh, and P.S.—right after they ruled out the pulmonary embolism, the first diagnosis they threw at me was cardiomyopathy. Absolutely terrifying...
fadedmoose34 fadedmoose34 NewcomerOP
6 messages
joined Apr 2009
#5 ·
Well, is anyone actually going to chime in this time?
Scott Allen10 Scott Allen10 Regular
315 messages
joined Jun 2005
#6 ·
fadedmoose34 said:I’m 24 years old and I've just been diagnosed with viral myocarditis... along with all the other complications that come with it. I was wondering how many of you are actually on this forum? I'd love to hear about your experiences—how long did your treatment last? I spent three weeks stuck in the hospital and I was only discharged two weeks ago, so I'm still on Prednisone. Is there a real risk of this progressing into cardiomyopathy or something similar?
I would be incredibly grateful if anyone could share their own story. 🙏🙏🙏

Look, there's definitely a possibility of it turning into cardiomyopathy, but honestly, don't go spiraling into those worst-case scenarios just yet—it'll only stress you out more.
There's actually a whole other thread on the forum covering this exact topic, so maybe try searching for it... or I can just drop a link for you later once I have a free minute...🙂
fadedmoose34 fadedmoose34 NewcomerOP
6 messages
joined Apr 2009
#7 ·
Thanks... I don't hang out on this forum all that much, so if you stumble upon anything interesting, please feel free to give me a shout. Take care!
jaderider64 jaderider64 Newcomer
1 message
joined Jul 2010
#8 ·
hey, does anyone here actually know anything about polymyositis??? just curious...
fadedmarlin402 fadedmarlin402 Active Member
154 messages
joined Apr 2010
#9 ·
jaderider64 said:hey, does anyone here actually know anything about polymyositis??? just curious...

"Polymyositis" is way too broad a term to get any real answers here.

Please take this discussion over here. Thread locked. 🙂

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