It’s been about nine months now, and I finally have some real updates to share with everyone here. I figured I’d lay it all out in case anyone else finds themselves stuck in this same kind of mess.
This kind of deformity isn't exactly common—you can tell just by looking at how much activity there's been on this thread lately.
After doing a ton of deep diving and talking it over from every possible angle, we finally pulled the trigger on surgery. Here’s the general gist of how it went down:
I’ve been digging into this for quite a while now, doing my own homework, but honestly? The whole thing finally clicked for me when my kid was the one who brought it up. They were the one who actually suggested we head in that direction, and that was really the turning point.
It looks like he finally realized that despite all his grinding and trying so hard, nothing actually changed through exercise. All that effort, and still zero results.
I had my procedure done at the Mayo Clinic this past summer, and honestly, I can’t say enough good things about the thoracic surgeon, Dr. Josip Pejić, and his entire surgical team. They were absolutely top-notch.
They really knocked it out of the park with this one. Honestly, having two full months before the new school year kicks off was exactly what we needed—just enough breathing room for my kid to fully recover and get back into the swing of things before heading back to class.
With all these temporary restrictions in place—for example, he hasn't done any actual physical education or sports at school for like a month and a half now—I’m still the one driving him back and forth to and from school every single day.
Honestly, if you want to avoid those suffocating crowds on public transit—partly because I don't want someone accidentally shoving me into an injury, and partly because, let's be real, just thinking about COVID still gives me a massive wave of anxiety—you really have to plan ahead. It’s about avoiding that packed-in-like-sardines feeling where one wrong move from a stranger could actually hurt you. Between the physical risk and the constant stress of being in close quarters with people, staying away from peak rush hour is the only way to keep my sanity intact.
If he catches some nasty virus and starts coughing his lungs out, man, that would be just devastating ☹️. But hey, at the last checkup, he finally got the green light from the doctors to get moving.
I’m planning on getting back into gym classes at school and maybe some swimming too—if I can actually find a lane that isn't completely packed. The goal is to be fully recovered within the next three months, and then...
Get back in shape like I was before the surgery.
The surgery itself went incredibly well. I actually spent some time watching surgical footage from top-tier clinics here in the States, and honestly? I can only say that our doctors are absolutely world-class.
They’re highly educated, they stay on top of the latest cutting-edge methods, and honestly, they’re constantly coming up with better ways to make surgeries less risky. But you know how it goes—you hardly ever see any actual coverage about that. It's like nobody bothers to write about the progress being made.
People just don't know—and honestly, it’s not like we knew either.
The first few days were brutal—honestly, pretty agonizing. They did warn us ahead of time that it was going to be rough, but man, they weren't kidding. Thankfully, once we got him on enough analgesics, we were able to manage the pain and get through it. He’s already been given all his follow-up instructions.
What kind of exercises should I be doing? And honestly, what’s the best way to actually get out of bed? During those first couple of months right after surgery, I learned the hard way that you absolutely cannot just jump up without thinking. It was so critical not to push it too fast.
The goal is to get that plate moved just enough to give everything space to heal properly. It’s been over a month since the surgery, and honestly, he still needs a hand just getting up from a lying position. Progress is slow.
Maybe we were being a bit overly cautious, but honestly, it was worth the extra effort just to make sure those tiles didn't shift. At least we know the job was done right.
It’s been five days since the surgery, and I finally made it out of the hospital. Regarding the pain management, I haven't been sticking to a strict schedule; I just take the analgesics whenever the pain starts creeping up on me. At the very beginning, I was needing them about three times a day, and that happened pretty fast.
It only happened twice. After about a month, he was only reaching for an Advil once a day, and even then, it wasn't every single day. Then, fast forward two and a half months...
He isn't taking anything anymore. Right after he got discharged from the hospital, we started hitting the pavement with light walks every single day. After five weeks of that, we finally went...
Hey, so I hit the water earlier. I could have gone for a swim, but let’s be real—it wasn't exactly "real" swimming. It was more like just splashing around and treading water. Honestly, I felt totally wiped out, like I didn't even have the strength to actually stroke or pull my arms through the water. Just zero momentum.
So, we weren't even pushing it that hard. He didn't even get back on the bike until two months had passed. Honestly, he could have started riding much sooner, but he just wouldn't—mostly because he was being overly cautious, terrified he might take a spill or something.
Move the tile.
So, looking back at all the follow-ups we've had—aside from getting those staples pulled out two weeks after the surgery—we’ve already been in for two appointments with the thoracic surgeon and two more with...
At the cardiologist right now. Looks like we’ve got follow-up appointments scheduled with them in about two months, plus an extra trip to see a pulmonologist if everything stays on this same track.
Alright, look, my take on this? I honestly think we're going to see these check-ups happen a whole lot less frequently from here on out.
I have to admit, we had to get pretty lucky just to find someone in the States who actually performs these kinds of procedures. We ended up going to the Hospital for Special Surgery because that's where they did it.
A few years back, they used to, but not anymore—even though they still coordinate with the Mayo Clinic. I actually read somewhere that they even have a specialized team over in Miami handling pediatric surgery.
But honestly, that’s all I know about it. Once we dug up that bit of info, I just kind of stopped digging. Didn't feel like chasing my tail any further. This is where I found it:
I’ve gotta give a massive shout-out to Dr. Josip Pejić. Honestly, everything went way smoother than I ever expected—knock on wood, right? It was such a relief. Of course, we aren't entirely out of the woods yet; there's another surgery on the horizon in about two years, but for now, I'm just feeling incredibly grateful that this part is behind us.
So, I’m looking into getting this plate removed. From everything I’ve been digging up, this procedure seems like a total breeze compared to that first surgery, and the recovery time should be way faster too.
Look, there’s also this whole procedure where they basically have to rip out the tile that’s become embedded in the tissue. I know, it sounds absolutely gruesome, but honestly? We trust them.
I've got full confidence in the crew over at the Mayo Clinic; they're going to knock it out of the park just like they always do.