Rachel Brown
Newcomer
4 messages
joined Jan 2009
I'll be 22 in three months. I was born with bilateral hip dysplasia, but the "experts" didn't catch it until I was a year and a half old. It was actually pure luck—a neighbor's pediatrician happened to run into me and my mom during a walk and noticed I wasn't walking right. That’s when they finally diagnosed the dislocation. Over the next 18 months, I had to undergo four different surgeries. But the damage was done. First off, I had limited external hip rotation, which meant I had to sit out of a lot of PE classes back in school. On top of that, I always walked a bit weirdly; people used to ask me why I limped. Then, just two years ago, I started feeling pain in my right knee. It only flared up when I bent it a certain way, stood awkwardly, or pivoted on my hips without moving my feet. This went on for about six months. Eventually, after pushing myself too hard while walking for a few days and dealing with massive swelling, I finally saw an orthopedic surgeon. He found that my left leg is 14mm shorter than my right, my knee joints are narrow, and there's mild arthritis. He gave me orthopedic inserts to lift my left side. For the next year, I just kept going back for routine checkups, but he’d just repeat the same thing every single time and prescribe expensive medications (he's in private practice). After an entire year of zero results or improvement, I decided to go to a doctor at a major hospital, and I've been seeing him for five months now. On my first day, he took me for an ultrasound and found a cyst on the inside of my knee, not the outside. He sent me to get a mass of other tests done that weren't even directly related to my knee. A month later at my follow-up, the cyst had receded, and I've been repeating all those tests every month since. Thanks to this surgeon—who is genuinely a great guy—I also started physical therapy, which significantly reduced the knee pain. He even sent me to an ENT specialist and then to an oral surgeon to fix some minor cavities before circling back to the knee results. My orthopedist referred me to all of them because he wants to look at the whole body for preventative reasons; he wants to find the root cause. That’s what I call a real doctor—someone who actually commits to you instead of just running through a routine. Oh, and he even offered to do plastic surgery on the scars left over from my hip surgeries twenty years ago. They stretched as I grew; they're pale now, but still ugly. In a month or two, he's also going to perform surgery on the muscles that limit my internal hip rotation—those tight spots in my inner groin that look more like tendons or veins because they pull so hard when I spread my legs. He wants to "snip" or stretch them surgically so I don't run into issues during childbirth or when spreading my legs. My main point in writing this is that you need to deal with anything immediately. Always demand a thorough exam if the doctor isn't willing to do it themselves.
Good luck to you! 🙂 🙂 👍