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Thyroid issues

Started by Casey Palmer5 · · 👁 6 views · 57 replies

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Participants Casey Palmer5Brandon Nelson3fadedfalcon11rapidranger79Scott Allen10Kevin White5crimsonfox11Megan ReedSophia Martinez65rustymoose54Jose Miller3bluebadger24Justin Gonzalez87ironsurfer8mellowbison8Emily Myers78
bluebadger24 bluebadger24 Member
13 messages
joined Jan 2006
#21 ·
I tried some detox tea once—not sure if it’s the same one you’re talking about... I don't think so, because the stuff I used was specifically meant to flush out metastases and other "pests" from the system. That was about a year and a half ago. The metastasis is still right where it started. The doctors at the Mayo Clinic are monitoring it closely, and if it shifts even an inch, they're going to go in and take it out. ¤
Sophia Martinez65 Sophia Martinez65 Member
45 messages
joined Jan 2006
#22 ·
bluebadger24 said:Hey Sophia Martinez65, you got any thoughts on this?
And just so we're clear, people die from papillary carcinoma too—not necessarily because of the cancer itself...
thanks


What's the question?
Scott Allen10 Scott Allen10 Regular
315 messages
joined Jun 2005
#23 ·
bluebadger24 said:I don't think so, since this was actually meant to clear out metastases (and all those other little pests) from your system... ¤

Good grief... please don't take this the wrong way, but whoever sold you that tea with such a sketchy formula seriously deserves to be thrown in jail.
Sophia Martinez65 Sophia Martinez65 Member
45 messages
joined Jan 2006
#24 ·
Scott Allen10, I feel the exact same way 😱! Honestly, whoever gave him that tea—or whatever it was—should be facing negligence charges for attempted murder!
bluebadger24 bluebadger24 Member
13 messages
joined Jan 2006
#25 ·
Wait, what exactly was the question? You wrote that people die from papillary carcinoma and stuff... what was the point you were trying to make there? If you could spare just one sentence to clarify...
And as for the tea, I picked up a different kind at the pharmacy after seeing a recommendation in Health News. Apparently, some professor from some university—who happens to be a colleague of my pharmacist—was raving about it or whatever... blah blah blah. Well, the first one they mentioned wasn't even available, and besides, the inventor apparently didn't want to "certify" it, so it got pulled from the market. ¤
Sophia Martinez65 Sophia Martinez65 Member
45 messages
joined Jan 2006
#26 ·
bluebadger24 said:What even is the question here? You said people die from papillary carcinoma... what exactly did you mean by that? If you could spare just one sentence...
Well, I got switched at the pharmacy when I was looking for a different brand—one they were raving about in Health News, recommended by some professor from some university, who happens to be my pharmacist's mentor or whatever, blah blah blah... The first one wasn't available, and apparently, the inventor wouldn't "certify" it, so they pulled it from the market. ¤

I was being clear: people die *with* papillary carcinoma, not *from* it. Basically, it shows up in a tiny percentage of autopsies where people lived with it for years while it metastasized without ever causing issues—meaning they died of something else, and they just happened to have papillary thyroid cancer sitting there too. Get it? Is that how you say it? My Italian isn't exactly great.🙂

'A brand—don't know which
from some professor—don't know from which university etc., blah blah blah, and then they pulled it...' 👍
Is that your special little brand that cures metastases?
And what other metastases do you have? You don't just "watch" metastases; you treat them aggressively—you clearly misunderstood how this works. Now I'll probably get blamed again for spreading panic.
bluebadger24 bluebadger24 Member
13 messages
joined Jan 2006
#27 ·
Either I completely misunderstood what was said, or I misread something, or maybe you just got some facts wrong... let's break this down: I had papillary thyroid carcinoma. It spread to the cervical lymph nodes (cytopathology confirmed—they're targets) and, deviating slightly from their usual "standard procedure," it even touched the muscle tissue near the lymph nodes. They sliced me open from ear to ear and went digging. One node stayed put. A new cytology was done just for that specific one, and the confirmation came back again: target. But right now, it’s dormant, so they don't want to cut it out; they’re just monitoring it. If it moves, I'm heading back into surgery. Kusic (you might know him?) says he actually tracks cases where a remnant stays put for 10 to 15 years without anyone touching it. (P.S. I was on iodine afterward, just so we're clear)... can you believe that?
Sophia Martinez65 Sophia Martinez65 Member
45 messages
joined Jan 2006
#28 ·
Sophia Martinez65 said: says:
...they had it for years, it metastasized, it never caused any issues, so, they died from something else, and Naden even has papillary kidney cancer.

Come on, please reread that.
If you’re talking about Prof. Kusic, the oncologist—I know who he is, I think he's even an academician.
fadedfalcon11 fadedfalcon11 Member
14 messages
joined Sep 2003
#29 ·
Sophia Martinez65, regardless of your teaching aspirations, it’s at the very least irresponsible to scare people like this—claiming there's suspicion of thyroid cancer just because radioactive iodine therapy is being suggested. It’s pretty low, honestly.
As someone in a nearly identical situation to crimsonfox11, only for much longer, and knowing for a fact that I don't have cancer, I wasn't spooked. But I can tell you "firsthand" how irresponsible and ugly it is to spout such nonsense here.

crimsonfox11, don't be afraid. Like the others here have said, hypothyroidism is much easier to handle than hyperthyroidism. You’d be surprised how many women around you have had their thyroids removed and it doesn't bother them one bit. Just look at Janica Kostelić or Blanka Vlašić; they were elite athletes.

I managed my issue quite well with alternative treatments, if you're interested. Details via PM.
bluebadger24 bluebadger24 Member
13 messages
joined Jan 2006
#30 ·
Sophia Martinez65, I’m not talking about anything fatal here, just this:
"... because we don't just watch metastases; we treat them aggressively. You clearly misunderstood something..."
I think I understood perfectly fine—I read the reports, saw the ultrasound, and checked the cytology results myself..
And look, they aren't being aggressive with me, though I can say for certain I'd much rather not have this thing in my neck at all...
If anyone has a different take on this, I’m all ears..
Otherwise—yeah, we’re talking about Kusic, the academic who is "my" oncologist.. Should I actually tell him (I see him on Feb 13th) that he's getting the treatment wrong? ¤
Justin Gonzalez87 Justin Gonzalez87 Active Member
78 messages
joined May 2005
#31 ·
so😁
Child, 3 years and 4 months old
T3 and T4 levels are within normal range
TSH is elevated—around 6.12, I think—though I don't have the lab report handy
The doctor mentioned we'll run antibody tests in about 15 days, or potentially just repeat the initial panel
He's already leaning toward a diagnosis of Hashimoto's thyroiditis

Should I be panicking right now, or do I have some breathing room?
thanks 😍 🙂
Jose Miller3 Jose Miller3 Regular
446 messages
joined Mar 2024
#32 ·
Seriously, don't even start panicking.

Hashimoto's is a total jerk when you first get the diagnosis, but once you're past that initial shock, it’s actually one of the more manageable chronic things you can deal with...😁

I mean, you just take your pill every single day and honestly, life goes on without much of a hitch. I swear, I've seen cases where even a 3-year-old kid handles it fine...

Just try not to freak out. 😁
Justin Gonzalez87 Justin Gonzalez87 Active Member
78 messages
joined May 2005
#33 ·
Jose Miller3 said:Hashimoto's is a real nightmare until you actually get a diagnosis,

Could you please elaborate on that a bit? 😘
Jose Miller3 Jose Miller3 Regular
446 messages
joined Mar 2024
#34 ·
Justin Gonzalez87 said:Okay, please elaborate on this just a little bit...😘

Alright, let me break it down (using a woman in her 40s as an example)

The symptoms are honestly pretty "elusive." We're talking fatigue, constant sleepiness, crazy weight fluctuations, hair thinning, anxiety, and just this general sense of physical weakness. You know what a total mess those symptoms are—especially when they start hitting right at the same time menopause kicks in?

It took almost three months for my mom to finally get her bloodwork done for T3, T4, and TSH (plus the antibodies). Once that was finished, within two weeks, it was crystal clear it was Hashimoto's. But man, it’s not easy explaining to doctors that "nothing specifically hurts, but you feel like you got jumped by a truck," or that you "lost 10 pounds and then suddenly gained 15 without even changing what you eat." Plus, you already know you're going through menopause...🙄

After the diagnosis and getting through that initial "titration phase" with her meds (you know, that period where they figure out your exact hormone dosage), Mom didn't have a single issue with her thyroid for the next ten years...😁
Justin Gonzalez87 Justin Gonzalez87 Active Member
78 messages
joined May 2005
#35 ·
thanks😘
Jose Miller3 Jose Miller3 Regular
446 messages
joined Mar 2024
#36 ·
please 😘

it’s really not as bad as it seems—I know you're freaking out, but there's no need to be... (trust me, I wouldn't lie to you 😁)
ironsurfer8 ironsurfer8 Active Member
76 messages
joined Dec 2007
#37 ·
Here is an older thread regarding hypothyroidism—specifically for those dealing with the same

I have this exact diagnosis myself, and I can confirm it isn't as daunting as it sounds. Just as Jose Miller3 mentioned, everything becomes much more manageable once you actually get a diagnosis. I also know someone who has dealt with this since birth; once she finally found the right dosage—after some adjustments during her teenage years—she was doing just fine.
The only thing she noted was that she still struggles with a somewhat sluggish metabolism regardless of her medication, so she finds that regular exercise helps immensely (though, let’s be honest, we could all benefit from that a little more). 😁
Justin Gonzalez87 Justin Gonzalez87 Active Member
78 messages
joined May 2005
#38 ·
I’m feeling a bit conflicted because one doctor told me there was nothing to worry about—just a follow-up in six months, no treatment or panic necessary.
Another doctor—a pediatrician, actually—insisted I get a referral immediately, citing Hashimoto's and whatnot.
That’s why I’m a little 😕, though she isn't showing symptoms like Jose Miller3's mom—maybe just some fatigue and sleepiness, but I tend to attribute that to her underlying condition rather than her hormones.🙂
Jose Miller3 Jose Miller3 Regular
446 messages
joined Mar 2024
#39 ·
Have you guys actually seen an endocrinologist yet?

I'm pretty sure there’s some specialist out there who focuses specifically on kids—honestly, I wouldn't just take a pediatrician's word for it when we're talking about a diagnosis this serious...

Get a second opinion, honey...
Justin Gonzalez87 Justin Gonzalez87 Active Member
78 messages
joined May 2005
#40 ·
Of course I’m going to visit everyone 😁—my results are recent enough, and frankly, if anyone asks, they can deal with the fallout 😁

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