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Thyroid cancer

Started by lonemarlin40 · · 👁 4 views · 30 replies

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Participants lonemarlin40mellowbadger8Casey Palmer5Aaron Smith10Alexander Hallwanderingmarlin16Angela WrightHannah Gray77Walter Thomas18Paul Baker4Daniel Ortiz15redbison8mistytiger11John Murphy8Terry Miller5analogstagdriftingpanther69Angela Roberts72
lonemarlin40 lonemarlin40 MemberOP
41 messages
joined Nov 2006
#1 ·
So, I found out yesterday that a girl I went to college with has thyroid cancer that’s already metastasized.
Even though we haven't talked in forever and I haven't seen her in years, it still hit me really hard. I actually knew her, I knew her husband too, and there was a whole chapter of my life where we were part of the same circle...
She’s only 30.

Does anyone know what the actual chances of recovery are or how the treatment process even works?
What kind of prognosis are we looking at here? Anyone have any insight?
mellowbadger8 mellowbadger8 Member
15 messages
joined May 2006
#2 ·
Well, it really all boils down to how many metastases there are and where they’ve decided to show up. I know people who dealt with thyroid cancer, went through the surgery, and now they're stuck on hormone replacement for the rest of their lives. You can go through radiation and things might turn out okay, but once it starts metastasizing, you just never truly know what you're looking at. It could be the lungs, the brain, who knows? Honestly, I feel terrible about it.😢
Casey Palmer5 Casey Palmer5 Regular
470 messages
joined Jan 2016
#3 ·
Well, I guess it really depends on the specific type of cancer we're talking about. Metastases are just nasty...

I actually had a friend from my high school class who was diagnosed with a malignant thyroid tumor when she was only 18. It had already spread to some lymph nodes in her neck. They ended up removing her thyroid along with all the nodes on that side of her neck. She actually pulled through without needing chemo and she’s doing great now, but she'll be on hormone replacement for the rest of her life.
Aaron Smith10 Aaron Smith10 Newcomer
3 messages
joined Jun 2003
#4 ·
Can anyone tell me what thyroid cancer actually looks like?
What kind of stuff does a person go through... how do you know when it's time to go get checked out?
thanks
Alexander Hall Alexander Hall Member
38 messages
joined Oct 2005
#5 ·
A thyroid nodule usually just shows up as a swelling in the front of your neck.
It’s rarely painful, and it's seldom large enough to actually mess with your breathing or swallowing.
If you suspect you have a nodule, go see a doctor.
They should refer you to a specialist for some testing.

Most thyroid nodules—whether they're cysts, adenomas, or whatever else—are pretty common
and mostly harmless. Except for cancer, obviously.
The standard fix involves removing part of the gland or the whole thing.
Once that happens, you'll be on Synthroid 125 mcg for life
since the gland might not be able to produce the hormone on its own anymore.
Generally speaking, the prognosis for thyroid cancer is good.
With the right follow-up care, most patients make a full recovery.
wanderingmarlin16 wanderingmarlin16 Newcomer
2 messages
joined Aug 2013
#6 ·
Hey everyone, I know this thread has been around for a while, but Google eventually steered me your way. About four years ago, my mom was diagnosed with papillary thyroid cancer—the kind that had already started spreading toward her shoulder and head. The surgery went well, and after she finished her radioactive iodine treatments, the cancer seemed to be in remission. However, about three weeks ago, she noticed some new lumps on her neck. After running the standard tests and scans, her doctor mentioned something about "differential carcinoma." He didn't really sit down to explain what that actually implies or what specific type of cancer we're looking at now, so I'm hoping someone here might have some insight into what that term means.
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#7 ·
wanderingmarlin16 said:Hey everyone, I know this thread has been around for a while, but Google eventually steered me your way. About four years ago, my mom was diagnosed with papillary thyroid cancer—the kind that had already started spreading toward her shoulder and head. The surgery went well, and after she finished her radioactive iodine treatments, the cancer seemed to be in remission. However, about three weeks ago, she noticed some new lumps on her neck. After running the standard tests and scans, her doctor mentioned something about "differential carcinoma." He didn't really sit down to explain what that actually implies or what specific type of cancer we're looking at now, so I'm hoping someone here might have some insight into what that term means.

It doesn't matter how old the thread is; the issue is you're in the wrong place.
The Thyroid has nothing to do with lung issues.😉
Here’s a quick pointer before the mods move this:
http://www.ncbi.nlm.nih.gov/m/pubmed/21167375/
http://en.m.wikipedia.org/wiki/Thyroid_cancer
Basically, we're looking at a thyroid cancer involving mixed cell types.
Hannah Gray77 Hannah Gray77 Newcomer
7 messages
joined Jan 2023
#8 ·
Hey everyone!!

Just wanted to drop my story here in case it helps anyone else navigating this mess. Maybe it’ll make things feel a little less heavy.

Back in month three, I noticed this swelling on my neck. Honestly? I figured it was just a swollen lymph node or something minor. But then my doctor gets spooked and sends me in for a thyroid biopsy. I had the procedure done, and they told me results would take two weeks—but wouldn't you know it, my specialist calls me back after only two days. I knew right then. Something wasn't right.
Left lobe cancer........
And just like that, everything flips upside down. Your head starts spinning with a million questions and absolutely zero answers.
My specialist tried to play it cool, telling me that if I *had* to have cancer, this was probably the best possible spot to find it. Yeah, thanks for that, doc. Real comforting stuff.
I was fast-tracked for surgery, and by month four, the whole thyroid was gone.

But here’s the kicker: when I woke up from surgery, I couldn't talk. Not literally, but my voice was this incredibly raspy, grating, painful mess. It sounded like Kalember, but ten times worse, haha.
The surgeon told me, "Don't worry, it'll pass in two or three days; your vocal cords are just irritated from the procedure." So, I sat there counting the days, waiting for relief, but nothing happened. By day five, it was time to head home, and my voice still sounded like garbage. I could barely squeeze out two or three words at a time without it hurting. But hey, I figured I’d just accept my new life as a mime. What else can you do?
By month five, I started radioactive iodine treatment. I spent five days in hospital quarantine before being cleared to go home, though they warned me—very seriously—to stay far away from kids for the next ten days.
In month six, I headed back to work. Since my job involves a ton of phone calls and meetings, I was relying heavily on my voice, and it actually started improving a bit. Still sounded like Kalember, but maybe five times better, hahaha.
Then, suddenly, in month seven, things took a turn for the better. I don't even know when it happened, but within a day or two, my voice almost completely snapped back to normal. Now, it sounds pretty much 100% like it did before all this madness. There you go.

The reason I'm posting this is because back in month four, I scoured every single forum online, and nobody seemed to be talking about this specific part (or maybe I just missed it).

If you’re staring down the barrel of this same journey, just hang in there. Stay brave.
If you start worrying about your voice afterward, just look at my experience—it turns out okay.
It took me three months to get back to baseline. Reading through some American forums, I see this happens all the time, and sometimes it can drag on for a year or even two. Those vocal cords are incredibly delicate; even a tiny bit of contact during the cleaning near the neck can throw everything out of whack.

So, that's the long and short of it. These days, it's just check-ups every six months and taking my Synthroid 125 mcg every single morning. That's it.
Really hoping it stays this way.

S U R V I V O R 👍
Walter Thomas18 Walter Thomas18 Active Member
83 messages
joined Nov 2022
#9 ·
By the way, there is already a thread dedicated to Thyroid issues, so you might want to post this there instead. The admins will likely move it there anyway.

I've been exactly where you are. It was literally the same thing. You didn't mention it, but I had issues whenever I drank anything—water or otherwise. I had slightly fewer problems while eating. Those two symptoms cleared up after a week or two (I can't recall the exact timing), but my voice didn't return to normal until two or three months later.
The issue occurs during surgery, specifically when they insert that breathing tube. Sometimes they’re careful, but other times they aren't as attentive, and that's when you end up with damage.
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#10 ·
My doctor told me that if fate has already decided you're getting a certain type of cancer, this specific one is actually the best-case scenario; it rarely spreads and the survival statistics are incredibly high.
I'm crossing my fingers that everything stays exactly as it is right now. 👍
Walter Thomas18 Walter Thomas18 Active Member
83 messages
joined Nov 2022
#11 ·
Yeah, I’ve heard people say the same thing—that if they absolutely had to choose a type of cancer, they’d pick thyroid cancer over anything else.
Hannah Gray77 Hannah Gray77 Newcomer
7 messages
joined Jan 2023
#12 ·
Walter Thomas18 said:By the way, there is already a thread dedicated to Thyroid issues, so you might want to post this there instead. The admins will likely move it there anyway.

I've been exactly where you are. It was literally the same thing. You didn't mention it, but I had issues whenever I drank anything—water or otherwise. I had slightly fewer problems while eating. Those two symptoms cleared up after a week or two (I can't recall the exact timing), but my voice didn't return to normal until two or three months later.
The issue occurs during surgery, specifically when they insert that breathing tube. Sometimes they’re careful, but other times they aren't as attentive, and that's when you end up with damage.


Thanks for the heads-up. I see now that there is a Thyroid thread.

And yeah, you're right about the tube. I distinctly remember being woken up and having people calling my name, feeling like I was drifting in and out of consciousness while they were pulling the tube out. Then I’d fall back asleep, wake up again, and feel them pulling it again. It felt like every time I drifted off, they were shoving it back in and then pulling it out again. Honestly, I don't know—that's just how it felt. I told my doctor, but he just brushed it off and said that wasn't the cause.
But I'm telling you, there's almost certainly something to it.
Walter Thomas18 Walter Thomas18 Active Member
83 messages
joined Nov 2022
#13 ·
Hannah Gray77 said:Thanks for the heads-up. I see now that there is a Thyroid thread.

And yeah, you're right about the tube. I distinctly remember being woken up and having people calling my name, feeling like I was drifting in and out of consciousness while they were pulling the tube out. Then I’d fall back asleep, wake up again, and feel them pulling it again. It felt like every time I drifted off, they were shoving it back in and then pulling it out again. Honestly, I don't know—that's just how it felt. I told my doctor, but he just brushed it off and said that wasn't the cause.
But I'm telling you, there's almost certainly something to it.

That’s probably what caused it. When it happened to me, I did some digging online and everyone mentions that exact issue.
The main thing is that it should settle down eventually.
Paul Baker4 Paul Baker4 Newcomer
4 messages
joined Apr 2009
#14 ·
Hi everyone,

I just went through this myself—surgery, waiting on the radioactive iodine treatment, the whole bit. If anyone wants to swap stories or compare notes, feel free to reach out. Also, I’d like to ask the admin if it’s possible (since I saw some posts mentioning this could be done) to separate thyroid cancer discussions from general thyroid issues. It would make things much easier to navigate in what is—unfortunately—a massive sea of thyroid-related posts.

Best,
Paul Baker4 Paul Baker4 Newcomer
4 messages
joined Apr 2009
#15 ·
...I forgot to mention—if anyone else has dealt with this specific issue, please jump in with your experience (it’s been a while since this thread was active). Since I’m pretty new to this whole situation myself, I could really use some insight to chew on—it’s a rare problem to run into, but when it hits you, knowing it’s statistically unlikely doesn't make it any less frustrating.
Stay strong, everyone!
Daniel Ortiz15 Daniel Ortiz15 Member
10 messages
joined Mar 2012
#16 ·
My grandmother back in Boise passed away from thyroid cancer in 2002 when she was 77. She had been incredibly healthy her whole life—she didn't even catch the flu, let alone anything else. I remember back then, about ten years ago, my father told me she’d mentioned feeling this strange sensation in her throat, almost like there was a walnut stuck there, but she just wouldn't go see a doctor about it. By the time she finally did seek help, it was already too late. She ended up spending nine days in the hospital before passing, and while she was lucid for those last two days, she really went through a lot of pain.
redbison8 redbison8 Member
34 messages
joined Aug 2010
#17 ·
Guys, please help me—I’m in total shock. I just found out today that my wife has thyroid cancer, and her surgery is scheduled for three weeks from now. She actually kept this from me for a while because we’re on vacation and she didn't want to ruin it. But now that the truth is out, I’m spiraling. I have no idea what to do, what steps to take, or even how to process this. We have two little kids at home, so everything feels like it's hitting us all at once. To be honest, I don't know much about this disease or how medicine works in general. My wife doesn't want to worry anyone or make a scene, so I have to respect her wishes—which means I can't go digging for every single medical detail, and I'm not even sure how much she actually understands herself.

I am incredibly shaken up right now and feeling absolutely terrible. Can anyone tell me what the survival rates are for this? What kind of risks are we looking at, and what does the recovery look like after the surgery? Also, what should we be doing while we wait for the procedure? How urgent is this really—is it worth trying to push for an earlier date at the hospital?
Any advice at all would mean the world to me because I’m completely lost right now.
Walter Thomas18 Walter Thomas18 Active Member
83 messages
joined Nov 2022
#18 ·
Calm down. First off, go check out the Thyroid thread. There are plenty of us there who have already dealt with this. To put it bluntly, if we're talking about papillary carcinoma, it's the "best" kind of cancer you can get.
Three weeks isn't a long time—I waited four months, and a colleague of mine waited over six. The worst part is having to take medication for the rest of your life after surgery. It’s not the end of the world.
mistytiger11 mistytiger11 Newcomer
1 message
joined Jul 2016
#19 ·
I know a girl who was diagnosed with thyroid cancer when she was just 20 years old. They had to remove her thyroid, and now she’s on hormone replacement therapy, and thank God, she is alive and healthy! I'm not saying this isn't serious, but it is absolutely treatable, especially if you catch it early. Keep your chin up. Take some time to really learn about the disease and try not to panic—instead, focus on being there for your wife. She needs you to be the steady hand right now (I know, I know, that is incredibly hard to do, but it's necessary), not some terrified kid. I am sending all the luck in the world your way; I truly hope everything turns out as if this never even happened. Best of luck
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#20 ·
This type of cancer is honestly one of the best ones to deal with if it’s caught this early. It rarely spreads, and the treatment success rate is incredibly high. Usually, after the surgery, you just go through radioactive iodine therapy, and that’s pretty much the end of the road—just regular check-ups and taking daily medication to replace the hormones from your removed Thyroid.
Don't let yourself spiral. You can tell even your wife isn't overreacting, and she's actually going through it right now, whereas you aren't. Just recharge your batteries and tackle this head-on.

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