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Tuberculosis awareness

Started by James Wilson15 · · 👁 8 views · 72 replies

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Participants James Wilson15Scott Allen10granitebadger25feralorca2Harold Mendoza3cosmicseal39gentleskipper41rustyridge21Hannah Miller9rustypanther4Lawrence WellsDonna Price4Daniel Evans10vividsailor7Jason Garcia37George Cox3darkpilot19Nicholas Myersvividpilot14slywolf81Douglas Hernandez63rustyraven8casualstag5swiftcanyon64 …
darkpilot19 darkpilot19 Newcomer
2 messages
joined Dec 2011
#41 ·
Hi there!
Sorry for dropping this question here—I actually started a separate thread earlier, but I didn't realize this one already existed.
So, here’s my situation. Two people in my family have been diagnosed with TBC... For my part, I’m not feeling any symptoms at all (I'm away at college most of the time anyway), but my folks are breathing down my neck to head home immediately for testing. Apparently, under the Communicable Disease Act here in the States, it's a legal issue if you have TBC and don't report it—they're worried I might accidentally infect someone on campus. But honestly? I feel perfectly fine. It doesn't bother me one bit... and besides, how could anyone even sue me when I don't even know if I'm sick? What kind of law is that anyway?? I'm just so frustrated because I can't figure out how to head home without missing mandatory lectures—I can't afford any more absences or lost credits, and getting medical excuses isn't really an option right now.... I'm wondering if those sputum tests are actually reliable for proving whether I have TBC or not. I did provide samples in sterile containers two days in a row. Also, does a law like that truly exist in the US? And is there any way to see a pulmonologist locally in a city like Chicago to get immediate answers, and if so, what would that cost? (I don't have health insurance, not through school or anything else). PLEASE, IF ANYONE KNOWS THE ANSWERS TO ANY OF THIS, PLEASE GUIDE ME!!! This whole thing is just overwhelming, and I've got enough on my plate right now. Please help me.
vividsailor7 vividsailor7 Active Member
217 messages
joined Sep 2011
#42 ·
darkpilot19 said:Hi there!
Sorry for dropping this question here—I actually started a separate thread earlier, but I didn't realize this one already existed.
So, here’s my situation. Two people in my family have been diagnosed with TBC... For my part, I’m not feeling any symptoms at all (I'm away at college most of the time anyway), but my folks are breathing down my neck to head home immediately for testing. Apparently, under the Communicable Disease Act here in the States, it's a legal issue if you have TBC and don't report it—they're worried I might accidentally infect someone on campus. But honestly? I feel perfectly fine. It doesn't bother me one bit... and besides, how could anyone even sue me when I don't even know if I'm sick? What kind of law is that anyway?? I'm just so frustrated because I can't figure out how to head home without missing mandatory lectures—I can't afford any more absences or lost credits, and getting medical excuses isn't really an option right now.... I'm wondering if those sputum tests are actually reliable for proving whether I have TBC or not. I did provide samples in sterile containers two days in a row. Also, does a law like that truly exist in the US? And is there any way to see a pulmonologist locally in a city like Chicago to get immediate answers, and if so, what would that cost? (I don't have health insurance, not through school or anything else). PLEASE, IF ANYONE KNOWS THE ANSWERS TO ANY OF THIS, PLEASE GUIDE ME!!! This whole thing is just overwhelming, and I've got enough on my plate right now. Please help me.

If the sputum comes back negative, then you don't have TBC.
Nicholas Myers Nicholas Myers Active Member
163 messages
joined Jan 2012
#43 ·
To whom it may concern,

If someone in your household has tested positive for TB, epidemiological protocols are triggered under the Communicable Disease Act. The process begins by assessing your level of exposure to the individual with confirmed pulmonary TB. Following that, the required follow-up includes a medical evaluation consisting of a PPD2 test (an intradermal tuberculin injection in the forearm, read after 72 hours), a chest X-ray, standard lab work, and three consecutive days of morning sputum samples.

An epidemiologist from the County Department of Public Health overseeing the case will coordinate your testing. They will provide the necessary referral, and there is no out-of-pocket cost or co-pay involved.

Under the law, this screening is mandatory.
darkpilot19 darkpilot19 Newcomer
2 messages
joined Dec 2011
#44 ·
Thanks for all the replies 🙂
I managed to set up a time to film some footage over the next few days 🙂sending my best to everyone...
vividpilot14 vividpilot14 Newcomer
9 messages
joined Aug 2021
#45 ·
darkpilot19 said:Hi there!
Sorry for dropping this question here—I actually started a separate thread earlier, but I didn't realize this one already existed.
So, here’s my situation. Two people in my family have been diagnosed with TBC... For my part, I’m not feeling any symptoms at all (I'm away at college most of the time anyway), but my folks are breathing down my neck to head home immediately for testing. Apparently, under the Communicable Disease Act here in the States, it's a legal issue if you have TBC and don't report it—they're worried I might accidentally infect someone on campus. But honestly? I feel perfectly fine. It doesn't bother me one bit... and besides, how could anyone even sue me when I don't even know if I'm sick? What kind of law is that anyway?? I'm just so frustrated because I can't figure out how to head home without missing mandatory lectures—I can't afford any more absences or lost credits, and getting medical excuses isn't really an option right now.... I'm wondering if those sputum tests are actually reliable for proving whether I have TBC or not. I did provide samples in sterile containers two days in a row. Also, does a law like that truly exist in the US? And is there any way to see a pulmonologist locally in a city like Chicago to get immediate answers, and if so, what would that cost? (I don't have health insurance, not through school or anything else). PLEASE, IF ANYONE KNOWS THE ANSWERS TO ANY OF THIS, PLEASE GUIDE ME!!! This whole thing is just overwhelming, and I've got enough on my plate right now. Please help me.

I found myself in the exact same position not too long ago... I had to go through the whole process! 🙂 and let me tell you, it took up a massive amount of my time (and cost me quite a few academic penalties) 🙂
slywolf81 slywolf81 Newcomer
1 message
joined Dec 2011
#46 ·
Back in August, I got diagnosed with pulmonary tuberculosis,
I spent 10 weeks stuck in the hospital taking about 20 pills a day 😢so now I'm
doing home care. I could deal with the side effects somehow, but this constant weakness and
total exhaustion is killing me. I want to hear from anyone who’s been through this—how long does it actually take?
Basically, how long until you finally get back to the level of fitness you had
before getting sick? Right now, any kind of real physical effort leaves me winded like an old steam engine,
even though I used to be in killer shape.
Douglas Hernandez63 Douglas Hernandez63 Member
10 messages
joined Mar 2013
#47 ·
So, here’s the deal. I went in to get vaccinated against tuberculosis, but I ended up having a really intense reaction to the shot. It turns out there was something going on related to TB, so they put me on antibiotics for about six months—I can't quite remember the names, just that they were red and yellow capsules. After those six months were up, my doctor told me everything looked good and all my tests came back negative. Now, I’m kind of stuck wondering about something. I’ve talked to people who dealt with similar issues, and some were saying that it wasn't actually tuberculosis in the lungs, but just that the bacteria was present somewhere in the body. Then again, others have told me straight up that I did have it in my lungs and that I seriously need to quit smoking. To be honest, I smoke maybe two or three cigarettes a day just for the hell of it; I wouldn't call myself a heavy smoker or anything, but I have been dealing with some lung discomfort for quite a while now. I guess I'm just wondering... is that pain actually because of the TB, or is it just from the smoking and having poor lung capacity? I haven't done any actual exercise in years and I pretty much just spend my time hanging out at home. Thanks
vividpilot14 vividpilot14 Newcomer
9 messages
joined Aug 2021
#48 ·
I have a question... my brother just got his sputum test results back, but there was a catch. It took three whole weeks for the culture on liquid media to actually show bacterial growth. His initial sputum test came back negative. Given that delay, I'm wondering: is someone whose tests take weeks to turn positive actually less infectious than, say, someone who presents with all the classic symptoms—coughing, weight loss, and an immediate positive sputum result? And how long does one typically need to stay on medication before they officially hit that "negative" status where they aren't a risk to anyone around them?
If anyone here is particularly well-versed in TBC matters and could offer some insight, I’d truly appreciate it.🙂
rustyraven8 rustyraven8 Newcomer
7 messages
joined Apr 2011
#49 ·
I’m completely lost here.🤣 It seems like anyone diagnosed with TB is automatically forced into hospital confinement. But we know people can carry this disease for ages without even realizing it because they don't show any distinct symptoms. So how is it that they live perfectly normal lives during that entire incubation period, yet the moment they get a diagnosis, it's an immediate trip to the hospital?🤷
Nicholas Myers Nicholas Myers Active Member
163 messages
joined Jan 2012
#50 ·
vividpilot14 said:I have a question... my brother just got his sputum test results back, but there was a catch. It took three whole weeks for the culture on liquid media to actually show bacterial growth. His initial sputum test came back negative. Given that delay, I'm wondering: is someone whose tests take weeks to turn positive actually less infectious than, say, someone who presents with all the classic symptoms—coughing, weight loss, and an immediate positive sputum result? And how long does one typically need to stay on medication before they officially hit that "negative" status where they aren't a risk to anyone around them?
If anyone here is particularly well-versed in TBC matters and could offer some insight, I’d truly appreciate it.🙂

Hello,

Regarding your first question, your intuition is correct. Generally, patients are most infectious when their sputum tests positive under a microscope (the risk to others in the same household can be as high as 50-60% according to CDC data), whereas the risk is significantly lower—around 20%—when only the sputum culture comes back positive.

The second part isn't quite as straightforward to answer, but typically, individuals with active pulmonary tuberculosis stop being contagious a few weeks after starting treatment (medical literature usually suggests about 4 to 6 weeks), though there are always exceptions.

Best regards. 🙂

rustyraven8 said:I’m completely lost here.🤣 It seems like anyone diagnosed with TB is automatically forced into hospital confinement. But we know people can carry this disease for ages without even realizing it because they don't show any distinct symptoms. So how is it that they live perfectly normal lives during that entire incubation period, yet the moment they get a diagnosis, it's an immediate trip to the hospital?🤷

Hello,

Tuberculosis is anything but a harmless disease. Even if the symptoms are vague and a person can "walk around" for a long time without realizing they have TBC, that individual is still contagious to those around them (speaking specifically of pulmonary TBC). Furthermore, TBC treatment is highly complex; it involves a cocktail of multiple medications, some of which can have severe side effects, requiring regular monitoring of the patient. Additionally, strict supervision of medication adherence is vital, as skipping doses or irregular usage can lead to drug-resistant bacteria, which creates a massive problem. These are the primary reasons why initial treatment is often conducted in a hospital setting.

Best regards. 🙂
vividpilot14 vividpilot14 Newcomer
9 messages
joined Aug 2021
#51 ·
Nicholas Myers said:Hello,

Regarding your first question, your intuition is correct. Generally, patients are most infectious when their sputum tests positive under a microscope (the risk to others in the same household can be as high as 50-60% according to CDC data), whereas the risk is significantly lower—around 20%—when only the sputum culture comes back positive.

The second part isn't quite as straightforward to answer, but typically, individuals with active pulmonary tuberculosis stop being contagious a few weeks after starting treatment (medical literature usually suggests about 4 to 6 weeks), though there are always exceptions.

Best regards. 🙂

Hello,

Tuberculosis is anything but a harmless disease. Even if the symptoms are vague and a person can "walk around" for a long time without realizing they have TBC, that individual is still contagious to those around them (speaking specifically of pulmonary TBC). Furthermore, TBC treatment is highly complex; it involves a cocktail of multiple medications, some of which can have severe side effects, requiring regular monitoring of the patient. Additionally, strict supervision of medication adherence is vital, as skipping doses or irregular usage can lead to drug-resistant bacteria, which creates a massive problem. These are the primary reasons why initial treatment is often conducted in a hospital setting.

Best regards. 🙂

Thanks for the response.🙂

The doctor told my brother that it’s already been a full week since it started. Makes you wonder how much time actually passes when you're stuck in those waiting rooms, doesn't it? One minute you're checking your watch, and the next, the calendar has flipped. It feels like we're all just drifting through these timelines, waiting for someone in a white coat to tell us what's what. 🙂
What exactly am I looking at here? It feels like a massive inconsistency that I just can't wrap my head around. For one whole week, while he was in that room, everyone had to wear masks—himself included—whenever someone stepped inside. Both the staff and the visitors were strictly following those protocols. But then, the moment he gets transferred to the new hospital, suddenly the rules just... vanish? Now, nobody in the room is wearing a mask, and we, the visitors, aren't being asked to put one on either. Is that how this works? I find it hard to believe. You’d think they would at least offer us a mask when we walk through the door, wouldn't you? Surely they wouldn't be willing to take that kind of risk, would they? It doesn't add up.

Does "active tuberculosis" only apply to those who present with a positive cough sample and a positive culture, or does it also include those showing up with just a positive initial cough test?🙂
Thanks.🙂
Nicholas Myers Nicholas Myers Active Member
163 messages
joined Jan 2012
#52 ·
Dear vividpilot14,

When someone has negative microscopic results but a positive culture for TBC, they are primarily infectious to those in prolonged close contact.

Visiting such a patient in a hospital generally doesn't necessitate masks or extra precautions; the window of time during a standard visit is simply too brief for transmission to occur.

My previous point—that infectiousness can last several weeks once treatment begins—was a general observation regarding patients presenting with TBC symptoms like coughing or phlegm. I noted that answering questions about contagiousness isn't straightforward because that timeframe fluctuates significantly from one patient to the next depending on various clinical factors. Some stay infectious longer; others much less so. The physician managing your brother’s care is the only one qualified to assess his specific level of risk, so you should rely solely on their professional guidance. We don't have access to your brother's actual medical charts here, and speculating on this forum is clearly a futile exercise.

Ultimately, there shouldn't be cause for alarm, especially since you were already processed and tested by the health authorities as close contacts.

Best regards. 🙂
Douglas Hernandez63 Douglas Hernandez63 Member
10 messages
joined Mar 2013
#53 ·
Douglas Hernandez63 said:So, here’s the deal. I went in to get vaccinated against tuberculosis, but I ended up having a really intense reaction to the shot. It turns out there was something going on related to TB, so they put me on antibiotics for about six months—I can't quite remember the names, just that they were red and yellow capsules. After those six months were up, my doctor told me everything looked good and all my tests came back negative. Now, I’m kind of stuck wondering about something. I’ve talked to people who dealt with similar issues, and some were saying that it wasn't actually tuberculosis in the lungs, but just that the bacteria was present somewhere in the body. Then again, others have told me straight up that I did have it in my lungs and that I seriously need to quit smoking. To be honest, I smoke maybe two or three cigarettes a day just for the hell of it; I wouldn't call myself a heavy smoker or anything, but I have been dealing with some lung discomfort for quite a while now. I guess I'm just wondering... is that pain actually because of the TB, or is it just from the smoking and having poor lung capacity? I haven't done any actual exercise in years and I pretty much just spend my time hanging out at home. Thanks

Can anyone help me out with this? 😁 😁
vividpilot14 vividpilot14 Newcomer
9 messages
joined Aug 2021
#54 ·
Douglas Hernandez63 said:Can anyone help me out with this? 😁 😁

Did you undergo the skin test—you know, the one where they inject it into your forearm—or did you just get the standard shot in the shoulder?
Douglas Hernandez63 Douglas Hernandez63 Member
10 messages
joined Mar 2013
#55 ·
vividpilot14 said:Did you undergo the skin test—you know, the one where they inject it into your forearm—or did you just get the standard shot in the shoulder?

Well, I did the test first. There wasn't really any reaction at all, but then after I got the actual vaccine, I ended up with this weird lump on the bottom part of my shoulder.
casualstag5 casualstag5 Newcomer
1 message
joined Feb 2012
#56 ·
I was wondering if there's any chance of a TBC diagnosis if someone had an incredibly strong reaction to the Democratic Party test, even though their chest X-ray came back totally clear? They've been sent off for further testing. Thanks for the help!
Nicholas Myers Nicholas Myers Active Member
163 messages
joined Jan 2012
#57 ·
Dear casualstag5,

That possibility DOES exist, which is why the patient was sent for further testing. In this instance, we need to perform immunological diagnostics. If those results come back positive while the chest X-ray remains clear, we are looking at latent tuberculosis. Essentially, the individual has been exposed to the bacteria, but hasn't developed active disease because their immune system is keeping it in check.

Those with a latent infection show no symptoms and may never progress to active illness. It’s estimated that roughly 10% of cases will eventually develop into the active form.

Best regards. 🙂
swiftcanyon64 swiftcanyon64 Member
11 messages
joined Nov 2011
#58 ·
I’ve got this nagging suspicion that I might have TBC🙄, but the real kicker is that I have absolutely no clue how to go about verifying it. From what I can gather, if the results actually come back positive, they’re just going to haul me straight off to a hospital! And honestly, with my current work situation, I can't afford to be sidelined like that for even a second.
So now I’m stuck in this total limbo. Most likely, I’ll just keep acting like everything is perfectly fine and carry on as usual, simply because I don't have any other viable option.
Is there any way to get tested without being forced into some mandatory hospital stay?
melloworca6 melloworca6 Regular
551 messages
joined May 2010
#59 ·
Solid choice. 👍

Look, tell me this: if that TBD diagnosis actually gets confirmed, why on earth are they shoving people into hospitals? Is it just for the hell of it? Or is it because the government loves throwing taxpayer money down the drain to treat someone who doesn't even need it? And honestly, what's it to you if someone doesn't care about their own health? Personally, I don't give a damn if people decide to neglect themselves—that's their right. But here's the kicker: when you do that, you aren't just risking your own skin; you're putting everyone else at risk too.
Steven Castillo78 Steven Castillo78 Newcomer
1 message
joined Oct 2012
#60 ·
Hey there.
I've been wondering about that thing they do when you enter 7th grade—you know, that test where they prick your arm with a needle, inject some liquid, and then you have to wait a couple of days before they check the results.
I've got two quick questions regarding this.
1. What’s the actual name of that test?
2. How does the process work if you actually need the vaccination versus if you don't?
Cheers, hope I made sense and clearly explained what I'm looking for.

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