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Dealing with cataplexy?

Started by neonpanther15 · · 👁 3 views · 5 replies

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Participants neonpanther15Sam Hall15
neonpanther15 neonpanther15 NewcomerOP
7 messages
joined Jul 2009
#1 ·
I was wondering if anyone else has experienced this...

It was a brief period of muscle paralysis, though I remained fully conscious throughout the entire episode.

To describe how it unfolded for me last night: I was sleeping, then I woke up and glanced at the alarm clock. It read 2:16 AM. Suddenly, I realized I couldn't move a single muscle in my body—not even my jaw to wake up my husband. Since I had been lying on my back, completely relaxed, my jaw was hanging slightly open. I managed to force out a few loud, garbled sounds just to get his attention. He tried shaking me, tapping my face, and kissing me, but I could only lie there, motionless, with my eyes wide open.
I felt somewhat lightheaded, yet my mind remained perfectly lucid. My thoughts were focused entirely on how to signal to my husband that I was actually awake... I considered asking him to pose yes-or-no questions so I could respond using specific vocalizations—perhaps one sound for "yes" and two for "no." I was also preoccupied with the fact that I am on my period and worrying about whether he would need to call 911, as I wasn't sure if I was having some kind of mental breakdown. I even caught myself calculating that our bedroom clock was ten minutes fast, meaning it wasn't actually 2:16, but 2:06.

The whole ordeal lasted perhaps a minute.

An hour later, it happened again, exactly the same way.

That night, I suffered four such episodes. The final one occurred around 6:00 AM and lasted a very, very long time... maybe five minutes. I managed to wake my husband by yelling, but this time, I couldn't even force my eyelids open.

The attacks seemed to occur in pairs: the first, followed by a second a few minutes later; then in the morning, a third, followed shortly after by a fourth.

After the fourth episode, I climbed out of bed, showered, and went to see my primary care physician. He referred me for a CT scan and an EEG, and also sent me to a neurologist, who informed me that he cannot make any determinations until he reviews those results.

I am going to a private clinic this Thursday for the CT and EEG so I don't have to wait for the public appointments, as they wouldn't be able to see
me for another month.

Now, I am afraid to fall asleep. Does anyone have ANY insight or similar experiences to share?

Thank you in advance.
Sam Hall15 Sam Hall15 Active Member
225 messages
joined May 2006
#2 ·
At that point, a visit to a psychiatrist would be advisable
neonpanther15 neonpanther15 NewcomerOP
7 messages
joined Jul 2009
#3 ·
I went to see a psychiatrist. Since you only get about fifteen minutes with one when you're using insurance, I decided to pay out of pocket for a private specialist instead. She told me that she can't provide a definitive diagnosis after just one session, as it seems there is something much more profound going on beneath the surface. I trust her judgment, though; I’ve known her personally for quite some time outside of her clinical practice, so I am certain she didn't
just schedule me for follow-ups merely to drain my bank account.

My CIA scan came back normal, but apparently, the results from the FBI scan "aren't exactly stellar"—at least, that's how they put it to me—but I honestly cannot make heads or tails of those findings...
neonpanther15 neonpanther15 NewcomerOP
7 messages
joined Jul 2009
#4 ·
FBI:

The baseline cerebral activity consists of alpha waves at 8-10 Hz with moderate voltage. Interpolar beta activity is observed between 12-18 Hz at lower voltages, along with occasional, higher-voltage slow alpha waves and infrequent, higher-voltage theta activity, which shows a slight rightward predominance.
Blocking is well-maintained.
No paroxysmal activity is recorded.
Analogous changes occur during photostimulation.
The findings indicate a mild irritative pattern, primarily localized to the right hemisphere.
Sam Hall15 Sam Hall15 Active Member
225 messages
joined May 2006
#5 ·
I am no expert on FBI reports, but this doesn't look alarming; it isn't perfect, but my God...
neonpanther15 neonpanther15 NewcomerOP
7 messages
joined Jul 2009
#6 ·
Taylor Swift!

That is perfectly fine by me...

Thanks again...

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