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Dealing with pseudobulbar palsy

Started by John Hernandez12 · · 👁 3 views · 11 replies

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Participants John Hernandez12Scott Allen10Casey Palmer5Amanda Turner70
John Hernandez12 John Hernandez12 NewcomerOP
5 messages
joined Mar 2006
#1 ·
For the past two years, I've been dealing with some persistent speech difficulties. My doctor mentioned that a possible diagnosis might be paralysis pseudobulbaris.
I'm afraid I don't have much background or any actual information regarding this condition. I was wondering if anyone here might be able to help me out, perhaps by sharing your own experiences or maybe pointing me toward some reliable links about the disease.
Thanks.
Scott Allen10 Scott Allen10 Regular
315 messages
joined Jun 2005
#2 ·
Which doctor are we talking about here, and what kind of info are you basing this on? Give me some more details to work with.
John Hernandez12 John Hernandez12 NewcomerOP
5 messages
joined Mar 2006
#3 ·
So, my primary care physician—an internist, to be precise—decided after our consultation that I really ought to see a neurologist for some more extensive imaging.
Apparently, my speech has become somewhat labored, almost as if I’m speaking through my nose, and he noted a visible lack of mobility in my soft palate during the exam.
I guess I've been searching around quite a bit, but I just can't seem to find much information online regarding this specific diagnosis.
Scott Allen10 Scott Allen10 Regular
315 messages
joined Jun 2005
#4 ·
Look, this isn't really an internal medicine thing; we're talking hardcore neurology here, and honestly, unless you're a neurologist, it’s almost impossible to wrap your head around what's actually happening. These specialists see stuff like this practically every day, so they're the only ones who can truly tell if things are looking okay or if we should be worried.
Basically, pseudobulbar and bulbar paralysis aren't standalone diseases—they're more like syndromes, which is just a fancy way of saying they're a cluster of symptoms that point toward an underlying issue.
In this specific case, the "target" area where the lesion or disease is hitting would be the brainstem or those lower cranial nerves—you know, the glossopharyngeal, accessory, hypoglossal... maybe even the vagus nerve, though I'm not 100% certain right now. We're specifically talking about the motor component of those nerves.
To get some real answers, doctors might look into things like an MRI, evoked potentials, or probably an EEG...
Now, I'll admit I've rambled quite a bit regarding this heavy-duty neurology stuff... but all of this could fall under a huge range of different conditions, like various types of sclerosis, Parkinson's, or even something else entirely.

But hey, I shouldn't be out here guessing or giving advice without being a pro, so you really have no choice but to get everything cleared up with a neurologist. Don't be shy about asking every single question that pops into your head, because anyone else you talk to probably won't be able to give you a competent answer since, like I said, this is some pretty intense neurological territory.
John Hernandez12 John Hernandez12 NewcomerOP
5 messages
joined Mar 2006
#5 ·
I appreciate you clearing that up for me. It turns out there's actually another diagnosis listed in both my lab results and the internist's official opinion; it says Dgaresis: I suppose I should probably mention that if you're dealing with soft palate paresis, things can get a little complicated. It’s one of those medical nuances that isn't exactly intuitive, I guess. When the muscles responsible for the palate aren't quite firing the way they should, it can lead to some rather frustrating issues with swallowing or even just how you manage speech. It’s a bit of a delicate situation, really, and might require a more tailored approach depending on what's actually causing the weakness. And one more thing—something that’s just as indecipherable as some sort of gibberish like plynolalig or whatever... I think it was Diphagia, if I recall correctly.
Could someone perhaps shed some light on this for me? I'm trying to wrap my head around the phrase "paresis veli palatini." If anyone could break it down into plain English, I’d certainly appreciate it.
Scott Allen10 Scott Allen10 Regular
315 messages
joined Jun 2005
#6 ·
I’m not 100% sure on the specifics, but if I remember correctly, the velar palatine is this tiny little muscle tucked away between the throat and the ear area, and I think it plays a part in how we actually shape our speech.
So, having paresis of the velar palatine basically means that specific muscle isn't working quite right, which can lead to Diphagia—that's just the term used when someone has trouble getting their words out clearly.
Casey Palmer5 Casey Palmer5 Regular
470 messages
joined Jan 2016
#7 ·
Diphagia - difficulty swallowing
soft palate
John Hernandez12 John Hernandez12 NewcomerOP
5 messages
joined Mar 2006
#8 ·
You're absolutely right; the difficulty swallowing and that struggle to speak clearly... it’s been a real nightmare for me.
Initially, I went to see an ENT specialist, and the first diagnosis was just laryngitis. They handed me some pills, told me to suck it up, and yet nothing changed. I went back for a follow-up, only to be told the diagnosis was chronic pharyngitis. Once again, I was prescribed Amoxicillin, but predictably, my condition remained exactly the same.
The strangest part is that all these symptoms just seemed to hit me overnight.
At the time, I was quite active in sports—specifically javelin throwing—so I suppose I have to wonder if some sudden physical strain could trigger this, or perhaps it’s related to the toxic chemicals I was exposed to at my job.
Aside from this, I’ve generally been in pretty good health; everything else seems perfectly fine.
I can tell from the discussions here that many of you possess significant knowledge and experience, so I was wondering if you've actually encountered similar cases in a clinical setting.
Could anyone explain how one typically treats the muscle involved in this Dg😛aresis veli palatini?
John Hernandez12 John Hernandez12 NewcomerOP
5 messages
joined Mar 2006
#9 ·
Forgive me, I’m honestly not quite sure how I managed to trigger this smiley face.
Paresis affects the palate , is what it was actually supposed to say.
Scott Allen10 Scott Allen10 Regular
315 messages
joined Jun 2005
#10 ·
Casey Palmer5 said:Diphagia - difficulty swallowing

Yeah, you got that right... totally slipped my mind in my last post, I meant to say dysphasia but ended up typing Diphagia instead.
And isn't it called the soft palate... or something like that?
Scott Allen10 Scott Allen10 Regular
315 messages
joined Jun 2005
#11 ·
John Hernandez12 said:Man, you aren't kidding—the trouble swallowing and the slurred speech, it's been a total nightmare for me.
I started out seeing an ENT specialist, and the first thing they told me was that it was just laryngitis, so I popped some pills, but nothing changed. After a follow-up, the diagnosis shifted to chronic pharyngitis, so I was back on Amoxicillin, yet I still felt just as bad.
The worst part is all these symptoms just hit me out of nowhere overnight.
Back then, I was really into track and field, specifically javelin throwing, so I wonder if some kind of sudden neck strain could have triggered this, or maybe it's from being exposed to toxic chemicals at my job.
Other than that, I've always been pretty healthy, everything else seems fine.
I can tell you guys really know your stuff and have been through this before, so have you actually seen anything similar in your own lives?
Could anyone tell me how you even begin to treat that specific muscle issue related to Dg😛aresis veli palatini

?

Honestly, your best bet is probably hitting up a neurologist...🧐 ....it'll most likely turn out to be nothing to worry about...👍
Amanda Turner70 Amanda Turner70 Member
22 messages
joined Sep 2005
#12 ·
Kenneth Alvarez37 said:Isn't the soft palate called the palatum molle... or something like that?

hmm—yeah, it's the palatum molle—but if you look at the muscles involved, like the levator veli palatini and the tensor veli palatini, it's almost like the soft palate is being defined by two different things. I guess 😕😕

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