Double Vision

I’m looking for some advice here—and apologies upfront if this topic has been covered before...

Basically, my mom has been struggling with a persistent issue for about a month or two now. She’s seeing double—but only when she closes one eye; otherwise, her vision seems normal.
She’s gone through the ringer with tests—everything from visual field exams to seeing neurologists, ophthalmologists, and getting head CT scans...
By total coincidence, they found a tumor on the CT scan. However, the doctors insisted it has absolutely nothing to do with her vision. They aren't planning to touch it; they just told her to come back in a year for a follow-up CT to see if anything has changed.
She’s had blood work done and went through a whole battery of tests I can't even list, but nobody seems able to give us a straight answer or pinpoint the cause.

She’s pretty desperate at this point. It’s hard for her to function normally because of the double vision, though she isn't experiencing any other symptoms—aside from headaches, which she's dealt with her whole life, usually triggered by stress.

If anyone knows a specialist who could actually diagnose what's causing this, or if you have any idea what might trigger this kind of thing, please help..

Thanks in advance.

Amanda Parker13 said:Please help, and sorry if this topic has already been covered somewhere else...

Basically, my mom has been struggling with a constant issue for about a month or two now. She’s seeing double, and the only way she sees normally is by squinting one eye shut.
She’s gone through all sorts of tests—everything from visual field exams to seeing neurologists, ophthalmologists, and getting head CT scans...
By total coincidence, they found some kind of tumor on the CT scan, but they also told her that the tumor has absolutely nothing to do with her vision. They aren't going to touch it; they just want her to come back in a year for another CT to see if anything changes.
She’s had blood work done and went to god knows how many other appointments, but nobody can tell her what’s happening or find the actual cause of all this..

She’s feeling desperate and doesn't know what else to do because she can't function properly.. aside from the double vision, there aren't any other symptoms... she’s always dealt with headaches, but those were always just a result of stress.

Please, if you know of any specialist who could figure out what's causing these issues, or if you have any idea what might cause this, please help..

Thanks in advance

Go to the neurologist at Mayo Clinic, then take all the paperwork and imaging to Dr. Paladin or anyone on his neurosurgery team; everyone there is top-tier. It’s possible your mom has some kind of edema—basically swelling caused by the tumor growth—that’s putting pressure on the optic nerve. That's just my amateur guess, though. You need an expert radiologist to interpret the results. Getting an MR would be the best move.

She had an MRI of her head—they just told her there's some kind of tumor that supposedly has nothing to do with her vision issues 🙄
Honestly, these doctors are a joke; the fact that not a single one of them could actually provide a diagnosis is just hard to swallow

Amanda Parker13 said:She went in for an MRI of her head, and all they told her was that there's some kind of tumor present—one that apparently has absolutely nothing to do with her vision issues. 🙄
I honestly can't wrap my head around these doctors. It’s absolutely mind-boggling that after seeing all those specialists, not a single one of them could actually come up with a diagnosis. It's just unbelievable.

Did she get an MRI or a CT scan? There’s a massive difference between the two—it’s like trying to study a specimen through a high-powered microscope versus just squinting through a magnifying glass.
Go see Dr. Demarin over at Mercy Hospital. She’s an outstanding neurologist. Honestly, it feels like something is seriously wrong here, and we need to figure out exactly what it is as soon as possible. You’re going to have to be relentless and really lean on the medical staff to get results; if you don't push them, they won't lift a finger. Unfortunately, that's just how the system works.
I don’t know which clinic you went to for your checkup, but you have to be relentless. You need to keep pushing and hunting for answers in every corner possible until someone finally gives you a straight answer. Don't just take "we don't know" for an answer.
Then you've got those private clinics like Medicol or Sunce. Look, yeah, it’s going to cost you a pretty penny, but at least they actually give a damn about solving your problem.

Angela Wright said:Did she have an MRI or a CT scan? There’s a massive difference—it’s like looking through a microscope versus a magnifying glass.
Go see Dr. Demarin at the Sister of Mercy hospital. She's a top-tier neurologist. Honestly, if things aren't right, you need answers immediately. You'll likely have to push the doctors—they won't take much initiative on their own unless you make them. That’s just how the system works, for whatever reason.
I don't know where the initial exam took place, but you have to keep digging and seeking answers from different sources until you get one.
There are also private clinics like Medicol or Sunce. Yeah, it's expensive, but at least they actually take the issue seriously.

Everything was done at Holy Spirit... it was an MRI. I misspoke earlier when I said CT—I'm not exactly an expert here, so I tend to lump them together.
She dealt with extremely high blood pressure for a while; she got some medication and it stabilized. Blood pressure isn't an issue now, but her vision is still bothering her. After the MRI, the neurosurgeon claimed the tumor wasn't related to her vision, called it benign, and told her to come back in a year to check for changes.

That's just awful.
She's going to Medicol this Monday and Tuesday using a referral—apparently, they accept them. She's seeing a neurologist there with all her results to see what they say, but frankly, I doubt it'll change much. :/

Amanda Parker13 said:She did all her scans at the Holy Spirit hospital... I messed up earlier when I said CT, my bad—I don't really know the difference, so it all sounds the same to me.
She had some really high blood pressure for a while, but she got on medication and things stabilized. Her blood pressure is fine now, but her vision is still acting up. After the MR, the neurosurgeon told her the tumor isn't related to her sight and that it's benign, so she just needs to go back in a year to see if anything has changed.

Man, what a mess...
She’s heading to Medicol this Monday and Tuesday using an insurance referral since they apparently take those. She’s going back to the neurologist with all her results to see what they say, but honestly, I have a feeling none of this is actually going to lead anywhere. :/

Don't get caught up in the negativity. Once you commit to finding the root cause and fixing it, you don't stop until it's done—even if it means traveling to the other side of the country.
It'll work itself out. Just stay patient and wait for the Medicol results. It’ll be okay.

I would honestly, warmly recommend scheduling an appointment with a neurologist and just... keep asking questions until you get some real answers. I really mean it. In my experience, double vision doesn't just happen out of thin air for no reason. I remember when my own mom was experiencing that exact same thing with double vision, and after all the testing, it turned out to be a brain tumor.

I’m convinced an MRI would have flagged a brain tumor if one actually existed—but instead, they just found some benign growth. Their plan? Leave it alone and run another scan in a year to check for changes. They also insisted there’s zero connection to her vision issues.
She saw a neurologist first, who then sent her to an ophthalmologist. The eye specialists claimed this was strictly a neurological issue. So, after the MRI, she went to a neurosurgeon, and he gave her the exact same verdict I just mentioned.

Basically... she’s had her visual field tested, her vision checked by an oculist, and even went in for a dilated exam. She passed every single test. Now that nobody can pin down a diagnosis, she’s heading back to Medicol to try seeing a neurologist again.

It's a total mess.🙄

Hang in there, everyone! Please, let me know how everything turns out!!

A negative attitude isn't going to help us find any answers. We have top-tier specialists on this, and things will get sorted out. Sometimes nothing goes according to plan, but staying patient and keeping a positive outlook really helps. Personally, I deal with double vision, and it makes functioning normally incredibly difficult. I have to tilt my head slightly to the right just to see straight, or sometimes I have to close one eye to make things clear. In my case, the cause was a tumor. Nothing about my situation was easy or smooth, but I never let that discourage me. Seriously, keep seeking out more second opinions. You'll figure this out.

Hello,
I am facing a significant challenge. My son is 25 years old. He underwent two eye surgeries to correct strabismus—one at age 7 and another at age 13 at Rebro in New York City. When he was 15, he first started experiencing double vision, but he learned how to manage it and didn't suffer from headaches. He finished high school and enrolled in law school. Now, in his third year, the headaches have returned. To get straight to the point, he only has two exams left, but these headaches are constant, making it impossible for him to study. We have pursued every diagnostic avenue available. An MRI came back clear, his thyroid levels are normal, receptor tests are fine, and we even did testing for double vision (which is quite severe in the operated eye). The specialist who performed his surgery in New York City offers no real solution other than suggesting he "rest his eyes," which is simply not an option. He can't focus on studying for even a single hour, yet time is running out; he needs to graduate. We have even tried seeing various bioenergy healers. Occasionally, one provided slight relief—though I wonder if it was merely a placebo effect. Currently, we are seeing someone who hasn't helped at all, despite twelve different therapy sessions over the last year. I am asking for help. If anyone knows a specific doctor or has dealt with a similar issue, please let me know. His head feels like it’s being pierced by needles, and when the pain peaks, his eyes feel incredibly heavy and painful, forcing him to squint just to cope. Please, any advice would be appreciated. Thank you very much.

It’s a disaster... it seems like doctors don't have a clue when it comes to double vision issues.
My mom has been through countless clinics and specialists, yet no one can pin down the actual cause.
She's just forced to live with it—this thing appeared out of nowhere. The only fix so far is wearing glasses with some kind of
specialized lenses... what a joke. I really hope things turn out more successfully
with your son's situation.

Good luck.

Amanda Parker13 said:It’s a total disaster. It honestly looks like these doctors don't have the slightest clue how to handle issues involving dual imaging.
My mother has cycled through countless clinics and specialists, yet despite all that effort, nobody has been able to pinpoint the actual cause of this condition.
She’s forced to live with it—this issue that seemingly materialized out of thin air. At this point, the only real solution is to invest in some kind of specialized eyewear.
Specialized glass? Please, give me a break. At this point, I’m just hoping things actually take a turn for the better regarding your son's situation.
It needs to be resolved.

Good luck.

Now that I have all my test results in hand, we’re heading to see a neurologist at Medikol. This follows fifteen different sessions with a well-known bioenergy healer who, I must admit, provided me with some much-needed comfort. $1333 To make matters worse, he was incredibly rude and even resorted to threats after we demanded a refund. We only asked for our money back because they failed to provide any actual assistance, despite him guaranteeing a 99% success rate. Consider this a warning: stay far away from anyone making those kinds of promises. On another note, I've been considering trying acupuncture. Does anyone here have any firsthand experience with it?

It’s honestly pathetic how criminals—and I mean the absolute worst kind of predators—exploit human suffering just to line their own pockets. They prey on people who are desperate enough to grab at any straw, hoping for a miracle. Look, please, don't fall for everything you hear, especially when it comes to those loud-mouthed "miracle" alternative types, snake oil salesmen, energy healers, or homeopaths. Whatever they call themselves, they aren't curing anyone. If someone claims they were "helped," let's be real: it isn't a cure, it's just the placebo effect, self-suggestion, and pure delusion. Even something like acupuncture remains a controversial alternative therapy that lacks any real backing from mainstream American medicine. Investing in that would just be another massive waste of money.

fadedmarlin402 said:It’s honestly pathetic how criminals—and I mean the absolute worst kind—exploit human suffering and desperation just to line their own pockets. People, please, stop falling for every gimmick you hear, especially those loud-mouthed "miracle" alternative practitioners, herbalists, energy healers, or homeopaths. Whatever they call themselves, none of them can actually cure you. If anyone claims they "helped," it wasn't a medical breakthrough; it was just the placebo effect, self-suggestion, and pure delusion. Even acupuncture remains a controversial alternative therapy that lacks any real backing from mainstream medicine. Pursuing that would be nothing more than throwing money down the drain.

Thanks for sharing your thoughts. You're absolutely right: there is a massive difference between someone saying, "Give me what you can afford," and demanding an upfront payment of $1333. It's predatory. I sincerely hope the neurologists can finalize a proper treatment plan soon so this whole ordeal can finally reach a resolution, and then things will hopefully start looking up.