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Living with HPV

Started by vividgardener91 · · 👁 4 views · 16 replies

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Participants vividgardener91Susan Lee5Andrew Clarkhiddenscout362Terry Nelson58Amy Long9Charles Thomas70Jerry Booth10James Cox6Paul Bailey83crimsonstag3Douglas Cook2
vividgardener91 vividgardener91 NewcomerOP
1 message
joined Aug 2007
#1 ·
So, I was sitting here thinking... what is life actually like when you're dealing with HPV??? Does anyone out there have firsthand experience who could maybe walk me through how to handle it all? Like, how do you really cope? Thanks so much in advance!
Susan Lee5 Susan Lee5 Newcomer
4 messages
joined Aug 2007
#2 ·
There’s already a thread dedicated to CIN I, II, III, and HPV where you can find plenty of detailed explanations and discussions on the topic. By the way, living with HPV is absolutely miserable—it's a real struggle. But honestly, it does pass. You go through hell for a while, but after about one or two years, you usually test negative. I just cleared it myself recently, so take that as a little bit of hope. Good luck!
Andrew Clark Andrew Clark Member
22 messages
joined Feb 2009
#3 ·
Like Susan Lee5 said, living with HPV isn't exactly a walk in the park... At first, I just felt miserable. Sad, disappointed, constantly wondering, "Why me??" But once the dust settled, I realized there are tons of us dealing with this exact same thing. I've had to accept that it's in my system for now, hoping that one day I'll be clear. You just have to find the strength to stay positive. It’s tough, but I try to tell myself that HPV is just a temporary "roommate" in my body... it won't be there forever.😉
hiddenscout362 hiddenscout362 Active Member
111 messages
joined Apr 2007
#4 ·
It hit me so hard that I was stuck in a total funk for days, just obsessing over whether it was going to be another long, rainy season of feeling miserable. I honestly thought I’d never bounce back from it. It’s finally starting to lift, but I can still feel the virus lingering in my system. Now, I’m just focusing on boosting my immune system and staying calm—not letting anything get under my skin. That’s really all there is to it.
Terry Nelson58 Terry Nelson58 Newcomer
1 message
joined Aug 2008
#5 ·
Greetings, everyone! I am curious about the typical symptoms of HPV. I have heard reports of small warts appearing on the penis, but in my case, the issue is slightly different; instead of being on the shaft, they are located in the pubic area... (I'm not quite sure of the medical term for that region, so please excuse my phrasing!). There are about 4 or 5 small bumps there. Is it possible that this could be HPV, or does it not necessarily have to be? I ask because many people I have spoken with mentioned their warts appeared specifically on the penis. Thank you all in advance!
Amy Long9 Amy Long9 Member
14 messages
joined Apr 2020
#6 ·
Seriously though, can someone just drop a photo so we can actually see what these nipples look like? (Not that I’m asking for yours specifically, though hey, whatever works)
Amy Long9 Amy Long9 Member
14 messages
joined Apr 2020
#7 ·
alright, here it is:
maybe try actually learning something for once.
Charles Thomas70 Charles Thomas70 Member
18 messages
joined Jul 2008
#8 ·
Terry Nelson58, you should definitely see a dermatologist. I guess those warts might be a bit awkward for you, though they aren't dangerous. But if you pass the virus to your girlfriend via the vagina, it could lead to CIN.

That’s an abnormal Pap smear result. It basically means there are early, pre-cancerous changes that will likely turn into cancer if nothing is done about it.

So, either way, get the warts removed—in cases of genital HPV, they're called condylomas.

Regarding HPV in men and women:
Amy Long9 Amy Long9 Member
14 messages
joined Apr 2020
#9 ·
Anyone know if there are any nasty side effects?
Is it actually worth anything?
Jerry Booth10 Jerry Booth10 Member
36 messages
joined May 2008
#10 ·
Amy Long9 said:Anyone know if there are any nasty side effects?
Is it actually worth anything?

Look, when you talk about vaccines, this specific one targets the four most common types of HPV. Honestly, that’s somewhat of a moot point because there are hundreds of strains out there, and dozens of those specifically target the anogenital region. You could get vaccinated and still end up catching a completely different strain that the shot doesn't cover. Essentially, the vaccine protects against two high-risk types and two low-risk ones. As for side effects, every single vaccine has them, just like every medication on the market has potential adverse reactions; it all comes down to the individual. There have also been reports regarding a few young men who passed away after receiving the HPV vaccine. It hasn't been scientifically proven that the vaccine was the cause, but the narrative was always that these individuals died on the same day or the day after their appointment. Now, whether it's a coincidence or not is anyone's guess—it seems too statistically improbable to ignore if they all died immediately following the shot. On the other hand, you see fatalities associated with almost every drug or vaccine in existence. It's an inherent reality because everyone reacts differently, and you won't truly know how your body will respond until you take the risk. And once you've taken it, there's no going back to find out if it was a mistake.
Jerry Booth10 Jerry Booth10 Member
36 messages
joined May 2008
#11 ·
Terry Nelson58 said:Greetings, everyone! I am curious about the typical symptoms of HPV. I have heard reports of small warts appearing on the penis, but in my case, the issue is slightly different; instead of being on the shaft, they are located in the pubic area... (I'm not quite sure of the medical term for that region, so please excuse my phrasing!). There are about 4 or 5 small bumps there. Is it possible that this could be HPV, or does it not necessarily have to be? I ask because many people I have spoken with mentioned their warts appeared specifically on the penis. Thank you all in advance!

Warts aren't restricted to just the shaft; they can manifest at the base, near the urethral opening, along the groin, or even around the anal area. You really need to see a dermatologist or a specialist in sexual health to get a definitive answer.
James Cox6 James Cox6 Active Member
150 messages
joined Mar 2009
#12 ·
Hey ladies... this headline actually caught me off guard. You can live perfectly normal lives with HPV—just so you know, statistically, one in three women deals with it at some point. For most, it just clears itself out within the first year of infection, though obviously not for everyone.

It’s totally manageable—you just keep up with your checkups and stay on top of it.
Amy Long9 Amy Long9 Member
14 messages
joined Apr 2020
#13 ·
James Cox6 said:Hey ladies... this headline actually caught me off guard. You can live perfectly normal lives with HPV—just so you know, statistically, one in three women deals with it at some point. For most, it just clears itself out within the first year of infection, though obviously not for everyone.

It’s totally manageable—you just keep up with your checkups and stay on top of it.

Though, I gotta say, those warts in the photos aren't exactly winning any beauty pageants.
Charles Thomas70 Charles Thomas70 Member
18 messages
joined Jul 2008
#14 ·
Well, that’s why you get them removed; nobody says you have to just live with them 🙄

If you aren't seeing doctors, living with HPV isn't exactly easy—warts, or condylomas, can make sex painful and eventually lead to more serious issues.

Similarly, any neoplastic changes have to be dealt with. This means undergoing whatever procedures are available depending on where the changes are located—for women, that could be the cervix, vagina, or vulva, and for men, it's the penis or urethra.

HPV doesn't stay in the body forever like the herpes virus does; the immune system eventually overcomes it. But if you want to help your body along, you have to have a doctor handle the changes the virus causes—namely condylomas and neoplasia.
Neoplasia refers to CIN, which can be detected via a Pap smear, so it's important for women to visit their gynecologist regularly. In men, these are found through peniscopies.

A Pap smear doesn't actually prove you have HPV; it just shows cellular changes. A Pap smear won't identify the cause. Cytology might suggest HPV is present and lead to a swab test, but essentially, HPV is only confirmed through a swab. Also, if you have external condylomas—on the vulva or perianal area for women, or on the penis for men—you don't need to "prove" you have HPV; it's pretty obvious.

Men can have condylomas inside the urethra without even knowing it, since nothing might be visible on the penis. Beyond that, they can have flat condylomas that aren't visible to the naked eye, requiring a peniscopy to detect them.

Amy Long9—I'm not sure if you know this, but there are over 150 types of HPV. There are the genital types we're discussing, but then there are types that attack other areas, like warts on your hands or legs.

Genital HPV is split into high-risk and low-risk groups. High-risk basically means it will almost certainly lead to carcinoma, whereas low-risk very rarely does.

High-risk types usually cause neoplasia but can also cause condylomas, while low-risk types do the opposite.

The vaccine protects against two high-risk types—16 and 18—and two of the most common low-risk ones, 6 and 11.

Types 16 and 18 are the most dangerous and have the highest malignant potential, meaning they can very quickly cause changes that progress into cancer over time.

Vaccination is intended for girls and women whose swabs have come back negative for those four specific types. Otherwise, it won't help because the infection has already occurred. And the vaccine doesn't last a lifetime; you need booster shots.

HPV doesn't enter the entire system. You can give blood normally, and it can't be detected through bloodwork. So, please don't ask questions about how to "live" with HPV—it isn't HIV.

HPV stays in the epithelium in the area that came into contact with the virus. It is transmitted through skin-to-skin contact or mucous membrane contact.

HPV is like a genital version of the flu. You catch it, and in 70% of cases, it clears up just as quickly as it arrived, but in 30% of cases, it creates abnormal cells. No one knows exactly why; it's usually attributed to a weakened immune system.

It's estimated that about 90% of women are infected. However, since most have normal Pap smears, they might not even know they have HPV unless they get a swab. For women over 30, an HPV swab is mandatory. Men tend to be more resilient and clear the virus faster, but they can still experience changes that require treatment (like cauterization) from a dermatologist.

Basically, you don't "live" with HPV; you urgently address the changes it causes. If there are no changes, there is no danger, and the body will eventually defeat it (once the changes are removed, too). It's estimated to take a maximum of two years, though it could be longer.

If your Pap smear is normal, you might not even know you have HPV, even if you do 😉. Women only really panic when something shows up on a Pap smear. So, if they lived normally until that point, what does that tell you?
Paul Bailey83 Paul Bailey83 Newcomer
1 message
joined Sep 2009
#15 ·
Charles Thomas70 said:Well, that’s why you get them removed; nobody says you have to just live with them 🙄

If you aren't seeing doctors, living with HPV isn't exactly easy—warts, or condylomas, can make sex painful and eventually lead to more serious issues.

Similarly, any neoplastic changes have to be dealt with. This means undergoing whatever procedures are available depending on where the changes are located—for women, that could be the cervix, vagina, or vulva, and for men, it's the penis or urethra.

HPV doesn't stay in the body forever like the herpes virus does; the immune system eventually overcomes it. But if you want to help your body along, you have to have a doctor handle the changes the virus causes—namely condylomas and neoplasia.
Neoplasia refers to CIN, which can be detected via a Pap smear, so it's important for women to visit their gynecologist regularly. In men, these are found through peniscopies.

A Pap smear doesn't actually prove you have HPV; it just shows cellular changes. A Pap smear won't identify the cause. Cytology might suggest HPV is present and lead to a swab test, but essentially, HPV is only confirmed through a swab. Also, if you have external condylomas—on the vulva or perianal area for women, or on the penis for men—you don't need to "prove" you have HPV; it's pretty obvious.

Men can have condylomas inside the urethra without even knowing it, since nothing might be visible on the penis. Beyond that, they can have flat condylomas that aren't visible to the naked eye, requiring a peniscopy to detect them.

Amy Long9—I'm not sure if you know this, but there are over 150 types of HPV. There are the genital types we're discussing, but then there are types that attack other areas, like warts on your hands or legs.

Genital HPV is split into high-risk and low-risk groups. High-risk basically means it will almost certainly lead to carcinoma, whereas low-risk very rarely does.

High-risk types usually cause neoplasia but can also cause condylomas, while low-risk types do the opposite.

The vaccine protects against two high-risk types—16 and 18—and two of the most common low-risk ones, 6 and 11.

Types 16 and 18 are the most dangerous and have the highest malignant potential, meaning they can very quickly cause changes that progress into cancer over time.

Vaccination is intended for girls and women whose swabs have come back negative for those four specific types. Otherwise, it won't help because the infection has already occurred. And the vaccine doesn't last a lifetime; you need booster shots.

HPV doesn't enter the entire system. You can give blood normally, and it can't be detected through bloodwork. So, please don't ask questions about how to "live" with HPV—it isn't HIV.

HPV stays in the epithelium in the area that came into contact with the virus. It is transmitted through skin-to-skin contact or mucous membrane contact.

HPV is like a genital version of the flu. You catch it, and in 70% of cases, it clears up just as quickly as it arrived, but in 30% of cases, it creates abnormal cells. No one knows exactly why; it's usually attributed to a weakened immune system.

It's estimated that about 90% of women are infected. However, since most have normal Pap smears, they might not even know they have HPV unless they get a swab. For women over 30, an HPV swab is mandatory. Men tend to be more resilient and clear the virus faster, but they can still experience changes that require treatment (like cauterization) from a dermatologist.

Basically, you don't "live" with HPV; you urgently address the changes it causes. If there are no changes, there is no danger, and the body will eventually defeat it (once the changes are removed, too). It's estimated to take a maximum of two years, though it could be longer.

If your Pap smear is normal, you might not even know you have HPV, even if you do 😉. Women only really panic when something shows up on a Pap smear. So, if they lived normally until that point, what does that tell you?

PLEASE STOP TALKING NONSENSE!!!
You probably don't even have it, which is why you're acting so smart. Try living with it yourself. You can't have sex like a normal person, you can't enjoy oral sex, and having a baby is risky because the infant could end up with genital warts or HPV in their throat... Do you think it's easy to carry all that weight on your conscience??? You bring up HIV being spread through blood, but what do people interact with more often—blood or physical contact???
There's really nothing else to say besides that you clearly have no idea what you're talking about!
crimsonstag3 crimsonstag3 Newcomer
2 messages
joined Dec 2009
#16 ·
Paul Bailey83 said:PLEASE STOP TALKING NONSENSE!!!
You probably don't even have it, which is why you're acting so smart. Try living with it yourself. You can't have sex like a normal person, you can't enjoy oral sex, and having a baby is risky because the infant could end up with genital warts or HPV in their throat... Do you think it's easy to carry all that weight on your conscience??? You bring up HIV being spread through blood, but what do people interact with more often—blood or physical contact???
There's really nothing else to say besides that you clearly have no idea what you're talking about!

And I think you've completely overlooked the other side of this. 🙄 🙄 With an attitude like that, you might as well just go jump into the Mississippi. Or maybe dive off the Golden Gate Bridge, or head down to the coast near the Atlantic or somewhere out by Lake Michigan.
There are a thousand times worse illnesses out there. People are fighting actual cancer and testing positive... 🙄
Douglas Cook2 Douglas Cook2 Member
27 messages
joined Feb 2009
#17 ·
Amy Long9 said:Anyone know if there are any nasty side effects?
Is it actually worth anything?

Regarding that vaccine, there’s a massive debate going on over here in America.

Back in 2009, a study came out looking at 17,000 women aged 15 to 25. Half got the Cervarix (HPV) shot, and the other half got a Hepatitis vaccine. It was a double-blind setup—neither the women nor the doctors knew who got which one.

Over the years, the group that took the HPV vaccine showed fewer precancerous conditions than the control group.

In the HPV group, you had 9 out of every 1,000 women develop precancerous stages (like CIN 1 or 2). In the group that didn't get the HPV shot, that number was 11 out of 1,000.

The HPV group also saw fewer women needing surgery because of those precancerous issues. So, it's a slight drop, but we aren't talking about some massive, dramatic difference or a 100% reduction!

Naturally, because of this data, some pros recommend vaccinating young girls since it might help. On the flip side, others don't recommend it because they feel it hasn't been studied enough to be considered fully adequate. Plus, the study itself basically says only time will tell if cancer rates actually plummet because of this. We're talking decades of waiting for that answer.

Regardless, based on this research, national health agencies across the globe have decided to move forward with the recommendation.

So, I hope it's clear from this: the vaccine alone isn't some bulletproof shield against infection.

Also, keep in mind the shot only protects against the two most common high-risk strains, HPV 16 and 18. It doesn't cover all the different types of HPV that can cause cancer.

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