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Microcellular carcinoma?

Started by feralheron44 · · 👁 5 views · 12 replies

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Participants feralheron44coppergardenerAngela Wrightmellowbadger5Sam Hall15
feralheron44 feralheron44 NewcomerOP
2 messages
joined Jun 2007
#1 ·
Greetings to everyone here.
I have a rather difficult question to pose—my colleague’s father (a 75-year-old gentleman from San Francisco) has been diagnosed with small cell lung carcinoma. To be blunt, the doctors aren't offering much hope regarding his prognosis, though they have prescribed chemotherapy. Interestingly, they mentioned there aren't any metastases present at this stage.
I was wondering if anyone here has dealt with a similar situation within their own family? Furthermore, does anyone have advice on how one might provide even a modicum of support during such a grim time?
Thank you!
coppergardener coppergardener Active Member
137 messages
joined Jun 2006
#2 ·
feralheron44 said:Greetings to everyone here.
I have a rather difficult question to pose—my colleague’s father (a 75-year-old gentleman from San Francisco) has been diagnosed with small cell lung carcinoma. To be blunt, the doctors aren't offering much hope regarding his prognosis, though they have prescribed chemotherapy. Interestingly, they mentioned there aren't any metastases present at this stage.
I was wondering if anyone here has dealt with a similar situation within their own family? Furthermore, does anyone have advice on how one might provide even a modicum of support during such a grim time?
Thank you!

There is actually a slightly lower-level thread titled "Support for families dealing with long and serious illnesses"—I've popped in there a few times myself; usually, people are a bit shy about it, which makes it a little draining to navigate, but you can find quite a lot of good advice. There is this one man—I believe he is a priest, goes by the nickname Lepina, and has his own blog—you can find him here on the forum too. He supposedly beat lung cancer using the Breuss diet. Perhaps you could ask him if you are interested in specific details or reading material? It involves a very strict regimen (42 days) which, of course, wouldn't be recommended to follow during active chemotherapy, consisting primarily of a blend of vegetable juices and teas. Another option is the Budwig diet, which I personally find a bit less taxing on the system; it uses a base of protein (like low-fat cottage cheese) and oil (flaxseed), while still incorporating plenty of vegetables and other things. Most commonly used are beets, radishes, carrots, potatoes, cabbage, celery, and bell peppers... You can find books on both the Breuss and Budwig methods.
As for what the colleague's father should avoid, the main thing would be animal fats, refined carbohydrates, fried or roasted foods, additives, and, well, obviously smoking.

My own dad was diagnosed with small cell anaplastic (lung) cancer just ten weeks ago. Honestly, I don't know what to tell you—the prognoses for that specific type of carcinoma are the worst, the statistics are quite terrifying, though apparently, it responds better to chemo than other types. I am currently a total wreck, so I can't offer any particularly profound advice, but—even though I don't know his exact stage and I really shouldn't be speaking on this—considering the age of your colleague's father, it might not be wise to overwhelm him with strict diets; who knows how he will feel? Let him enjoy his family and the things he loves as much as possible while he still can. Regarding the chemotherapy, to help boost his red blood cell count, we give him beet juice and plantain tea, and for his appetite, Vitamin B and red onions. Some people also suggest that baby syrup for appetite. And then, of course, the classics: shark cartilage, Noni, Aloe Vera, beta-glucan, propolis... you have a whole spectrum of products. One must be very careful with nutrition, and he will certainly need certain supplements since eating becomes so difficult during chemo, but please, don't overdo it with a mountain of supplements because that will be too much for the body to handle. Personally (if I am even allowed to use the word "personally" in this context), I don't really have faith in chemotherapy, especially if the lifestyle or general outlook on life doesn't change, but my dad has been going through it for two months now, and he also has no metastases. It just makes me so angry and leaves me feeling incredibly ambivalent because he rejects everything; I can barely force a bite of broccoli on him. He just won't eat vegetables, even when his appetite returns between chemo sessions. I have to repeat myself a hundred times a day just to get him to drink more fluids, etc. He is terribly stubborn and irritable—likely due to hormones, and he is also very scared. It requires a tremendous amount of patience.

What the colleague's father will need most—that is, the thing without which all the therapies will fail to achieve the desired effect—is the support and warmth of friends and family (though, please, don't all crowd him with those looks as if he were already on his deathbed). Check out that thread I mentioned earlier; perhaps the moderators could move this post there?
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#3 ·
feralheron44 said:Greetings to everyone here.
I have a rather difficult question to pose—my colleague’s father (a 75-year-old gentleman from San Francisco) has been diagnosed with small cell lung carcinoma. To be blunt, the doctors aren't offering much hope regarding his prognosis, though they have prescribed chemotherapy. Interestingly, they mentioned there aren't any metastases present at this stage.
I was wondering if anyone here has dealt with a similar situation within their own family? Furthermore, does anyone have advice on how one might provide even a modicum of support during such a grim time?
Thank you!

On the "support for families of the critically ill..." forum, you'll constantly see people posting about having this specific disease in their families.
Here's a link so you don't have to wander around looking for it.

Unfortunately, this is an incredibly aggressive cancer that spreads lightning-fast; people actually call it "the 100-day cancer." It’s also the most common type of carcinoma seen in smokers.
I lost a dear friend to this exact disease, and it happened within that damn 100-day window.
There was another woman from Miami I met through a well-known holistic healer who opted exclusively for alternative treatments because her prognosis was so grim. She fought for three years before losing the battle, but according to her last scans, the small cell version had shifted into a different type that could actually be surgically removed, requiring only radiation afterward. Because she stubbornly refused conventional medicine from the very start, she made the same choice then—and unfortunately, she suffocated. She didn't have any metastases elsewhere in her body.

It's absolutely brutal, but you have to fight and try everything possible.
coppergardener coppergardener Active Member
137 messages
joined Jun 2006
#4 ·
Oh, right. So, the title of this thread is actually: "Support for families dealing with malignant and other severe illnesses"—not what I’ve been calling it, for goodness' sake. For the hundredth time now, I’ve been typing "...long and difficult illnesses," which—let's be honest—is more the kind of thing you see on an obituary notice. I didn't even realize I was mislabeling it every single time; apparently, I haven't even been conscious of just how much of a pessimist I can be.

Hello to everyone.
mellowbadger5 mellowbadger5 Newcomer
2 messages
joined Jul 2007
#5 ·
I recently heard someone mention IBM during a conversation—apparently, it’s some kind of additive used in chemo cocktails that’s supposed to be incredibly effective at fighting cancer. Does anyone know if this is actually being administered in hospitals? If anyone has any insight on this, I’d really appreciate an answer.
Sam Hall15 Sam Hall15 Active Member
225 messages
joined May 2006
#6 ·
As previously mentioned, small cell lung cancer carries the most unfavorable prognosis... it tends to metastasize to the brain
coppergardener coppergardener Active Member
137 messages
joined Jun 2006
#7 ·
mellowbadger5 said:I recently heard someone mention IBM during a conversation—apparently, it’s some kind of additive used in chemo cocktails that’s supposed to be incredibly effective at fighting cancer. Does anyone know if this is actually being administered in hospitals? If anyone has any insight on this, I’d really appreciate an answer.

IBM (http://www.gemzar.com/index.jsp; http://grande.nal.usda.gov/ibids/ind...therow=393964)... well, I'm not entirely certain about the specific protocols—you know, when it's used as a standalone treatment versus when it's paired with something else—but one of the substances it's frequently combined with is Taxol (http://en.wikipedia.org/wiki/Paclitaxel). And, oh my, if you read about how they harvest it from century-old trees, it turns out to be obscenely expensive! I don't have much information regarding its availability in our local hospitals or what the price tag looks like, though. From what I've gathered while reading up on IBM, it seems to be primarily utilized for non-small cell lung cancer—not the microcellular variety. It is reportedly much more effective than cisplatin, largely because the side effects aren't nearly as punishing, which, wouldn't you agree, significantly improves the patient's overall quality of life?
coppergardener coppergardener Active Member
137 messages
joined Jun 2006
#8 ·
Sam Hall15 said:As previously mentioned, small cell lung cancer carries the most unfavorable prognosis... it tends to metastasize to the brain

I find it quite peculiar—honestly, a bit unsettling—that they didn't bother scanning my father's head at all. They only did the abdomen scan. "No metastases," they tell us. Now, I am left wondering... should I actually press them for answers, or is it one of those situations where they "know exactly what they are doing" and I should just stay quiet?
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#9 ·
coppergardener said:I find it quite peculiar—honestly, a bit unsettling—that they didn't bother scanning my father's head at all. They only did the abdomen scan. "No metastases," they tell us. Now, I am left wondering... should I actually press them for answers, or is it one of those situations where they "know exactly what they are doing" and I should just stay quiet?

They probably know what they're doing, either because it’s unnecessary or because the cancer is so widespread it could be in his pinky finger by now. Still, if I were in your shoes, I’d definitely ask the doctor exactly how they reached the conclusion that there's no spread.
If it had migrated to the brain, I suspect you'd notice pretty quickly; neurological symptoms usually pop up fast, and the first sign is often something like facial drooping, similar to a stroke.

Oh my God, I am truly sorry you're having to deal with all of this 😢
Stay strong😘
coppergardener coppergardener Active Member
137 messages
joined Jun 2006
#10 ·
Thanks, I wish the exact same for you, too!😘 — Honestly, I just have so much respect for your courage and all the effort you put in—both when it comes to looking after your loved ones and how you show up here on this forum. And the sheer strength you manage to find within yourself... (Sorry, Ante, but you really can't categorize this as just casual chat),
mellowbadger5 mellowbadger5 Newcomer
2 messages
joined Jul 2007
#11 ·
coppergardener said:IBM (http://www.gemzar.com/index.jsp; http://grande.nal.usda.gov/ibids/ind...therow=393964)... well, I'm not entirely certain about the specific protocols—you know, when it's used as a standalone treatment versus when it's paired with something else—but one of the substances it's frequently combined with is Taxol (http://en.wikipedia.org/wiki/Paclitaxel). And, oh my, if you read about how they harvest it from century-old trees, it turns out to be obscenely expensive! I don't have much information regarding its availability in our local hospitals or what the price tag looks like, though. From what I've gathered while reading up on IBM, it seems to be primarily utilized for non-small cell lung cancer—not the microcellular variety. It is reportedly much more effective than cisplatin, largely because the side effects aren't nearly as punishing, which, wouldn't you agree, significantly improves the patient's overall quality of life?

Thanks so much for the info. Our doctor at the Mayo Clinic told us it should be given specifically for small cell lung carcinoma, but honestly, with this massive flood of information, we're just lost on what's actually smart or effective anymore.
coppergardener coppergardener Active Member
137 messages
joined Jun 2006
#12 ·
Well, look, I’m certainly not a medical professional, so I can't claim to know much—specifically regarding what happens when you administer drugs designed for macrocellular targets toward microcellular ones. It’s a complex field, isn't it? Instead, you often find yourself wading through a sea of contradictory advice where, frankly, less than 5% of it is actually intelligent or even feasible. And for the pieces of advice that *are* sensible? Well, they usually come with a price tag that's simply out of reach, which only adds to the mounting frustration. Perhaps his suggestion is accurate, but I am merely relaying what I have gathered from my own research—and mind you, I looked at multiple sources, not just the first two that popped up on Google. One must always question everything and never stop learning! (I have always been absolutely fascinated by medicine, though I must admit I'm currently quite annoyed with myself because I harbored such a distaste for chemistry back in school... so now I'm feeling a bit lost... but oh well, at least I'm studying linguistics, so there's no language barrier there!) Cancer is no small matter, and blindly following someone else's word can be an incredibly costly mistake. On another note... how much does that famous, legendary Plecko cost? (Could you send me a DM?)
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#13 ·
coppergardener said:Well, look, I’m certainly not a medical professional, so I can't claim to know much—specifically regarding what happens when you administer drugs designed for macrocellular targets toward microcellular ones. It’s a complex field, isn't it? Instead, you often find yourself wading through a sea of contradictory advice where, frankly, less than 5% of it is actually intelligent or even feasible. And for the pieces of advice that *are* sensible? Well, they usually come with a price tag that's simply out of reach, which only adds to the mounting frustration. Perhaps his suggestion is accurate, but I am merely relaying what I have gathered from my own research—and mind you, I looked at multiple sources, not just the first two that popped up on Google. One must always question everything and never stop learning! (I have always been absolutely fascinated by medicine, though I must admit I'm currently quite annoyed with myself because I harbored such a distaste for chemistry back in school... so now I'm feeling a bit lost... but oh well, at least I'm studying linguistics, so there's no language barrier there!) Cancer is no small matter, and blindly following someone else's word can be an incredibly costly mistake. On another note... how much does that famous, legendary Plecko cost? (Could you send me a DM?)

The guy literally went on national TV during a midday talk show and mentioned that a consultation with him runs about $67, while his teas and supplements are around $150, if I remember correctly.

Personally, I don't buy it. He strikes me as incredibly strange—he pushes these theories that push the boundaries of reality and have zero scientific basis, all while loudly preaching about how much he respects science. It's a total contradiction.
I’d sooner trust some uneducated herbalist out in the hills of Canada than listen to him.

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