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Thyroid surgery experiences/advice

Started by Brian Morales2 · · 👁 5 views · 7 replies

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Participants Brian Morales2Jose Adams5Sarah Johnson11jadelynx16
Brian Morales2 Brian Morales2 NewcomerOP
3 messages
joined Nov 2009
#1 ·
I realize this subject probably falls into one of those categories we’ve already exhausted, but I just can’t seem to navigate my way through hundreds of pages of previous discussions🙂 So, here is my situation: I have a toxic thyroid adenoma, and after seven years of weighing my options, I’ve finally decided to go through with surgery. I don't really experience any major symptoms from the condition itself, though I have been on medication for the last seven years. Now that the surgery date is actually getting closer, I suppose I’m starting to get a bit neurotic about it. I know deep down it isn't some massive, terrifying procedure, but since I am generally healthy and haven't had much experience dealing with hospitals, I find myself spiraling a little. Is general anesthesia actually dangerous? What is the scarring typically like? And is there any truth to the rumors about weight gain afterward? Also... has anyone actually died from this? :P
Jose Adams5 Jose Adams5 Newcomer
5 messages
joined Nov 2009
#2 ·
Brian Morales2 said:I realize this subject probably falls into one of those categories we’ve already exhausted, but I just can’t seem to navigate my way through hundreds of pages of previous discussions🙂 So, here is my situation: I have a toxic thyroid adenoma, and after seven years of weighing my options, I’ve finally decided to go through with surgery. I don't really experience any major symptoms from the condition itself, though I have been on medication for the last seven years. Now that the surgery date is actually getting closer, I suppose I’m starting to get a bit neurotic about it. I know deep down it isn't some massive, terrifying procedure, but since I am generally healthy and haven't had much experience dealing with hospitals, I find myself spiraling a little. Is general anesthesia actually dangerous? What is the scarring typically like? And is there any truth to the rumors about weight gain afterward? Also... has anyone actually died from this? :P

From a strictly medical standpoint, there isn't much to worry about—even high-profile athletes like Janica Kostelić and Blanka Vlašić have dealt with similar issues. Just keep in mind that once it's done, you aren't dealing with hyperthyroidism anymore; you'll be managing hypothyroidism and will likely be on medication for the rest of your life.
The scar isn't usually a huge deal, and—let's be real—people don't typically die from this procedure.

Speaking from personal experience, though, I'd suggest looking into alternative options if you can, because once you cross that line with surgery, there's no going back.
Brian Morales2 Brian Morales2 NewcomerOP
3 messages
joined Nov 2009
#3 ·
Since I work as a pharmacist, I find the whole world of alternative medicine pretty fascinating, though I suppose I should ask: what specific types of alternative treatments are we even talking about here?
Sarah Johnson11 Sarah Johnson11 Member
27 messages
joined Nov 2009
#4 ·
Brian Morales2 said:Since I work as a pharmacist, I find the whole world of alternative medicine pretty fascinating, though I suppose I should ask: what specific types of alternative treatments are we even talking about here?

Trust me, there’s no such thing as a "gentle" alternative treatment.
I had surgery to remove my thyroid because of follicular carcinoma.
Honestly, compared to recovering from a major hysterectomy and removing my ovaries, this surgical procedure felt like a walk in the park.
The anesthesia part was seamless; I woke up without any issues at all. My anesthesiologist even told me while she was putting me under that we’d need to check in once I came around, and she was right—we were communicating perfectly normally almost immediately.
There wasn't any pain during the process, nor afterward.
When I finally took the stitches out, I was a little bummed about how the scar looked, but after a few months of using some healing cream, you can barely even see it now. It's practically invisible.
If I remember anything vividly, it's just how incredibly hungry I was. I was dying for breakfast—just some toast and spread—and I ended up eating double portions, which is hilarious because I am absolutely not a morning person.
The only hiccup was that they had to deal with my parathyroid glands along with the thyroid, which caused my calcium levels to drop. It made my body feel a bit sluggish and "stuck," but the doctors handled it instantly; it just meant staying in the hospital for an extra day or two. There is really no reason to panic or be terrified. I would go through it all again today in a heartbeat, no fear involved. In fact, undergoing a bone biopsy for leukemia screening was way more brutal than this surgery ever was.
I realize everyone has a different pain threshold, and let's face it, the unknown is terrifying, but seriously—don't let the fear get to you.
If you have more questions, just ask. I don't mind if you send a private message, too, since my memory isn't perfect and I might have missed something.
Wishing you all the best. If you're still curious, just ask.👍
Sarah Johnson11 Sarah Johnson11 Member
27 messages
joined Nov 2009
#5 ·
I might as well mention that, thanks to my euthyrox, I’m functioning just like any other person dealing with thyroid issues—honestly, I don't have any problems at all.👍
Sarah Johnson11 Sarah Johnson11 Member
27 messages
joined Nov 2009
#6 ·
Yeah, regarding that last question of yours 😂😂as far as I know—and believe me, I know plenty of people who’ve had their thyroid removed—nobody has died from it.

As for the weight gain issue, there really isn't a reason to worry about packing on the pounds because you'll be on hormone replacement therapy. It’s not the medication itself that makes you gain weight; rather, it's the underlying hypothyroidism that does it due to a slowed metabolism. But you won't be stuck in that loop because once the surgery is done, you're under medical supervision and get started on your replacement therapy almost immediately—I think it's within about two weeks or so.
I think I've covered everything now, but if I missed anything at all, please, feel free to ask. I don't mind answering.👍
Brian Morales2 Brian Morales2 NewcomerOP
3 messages
joined Nov 2009
#7 ·
Honestly, thank you so much; you’ve really helped settle my nerves. It feels like doctors here in the States rarely give you a straight answer about what actually needs to happen. Luckily, it looks like they only need to remove my right lobe, so there’s a decent chance I might be able to manage just fine on hormone replacement therapy alone. Thanks again, truly.
jadelynx16 jadelynx16 Newcomer
1 message
joined Dec 2011
#8 ·
Hi there

Does anyone here know when it actually makes more sense to have a total thyroidectomy instead of just a partial removal?

I’ve been dealing with hyperthyroidism for years now—it keeps coming back, and my antibody levels are through the roof. I've finally reached the point where surgery seems like the only real solution.

But the more specialists I consult, the more confused I get. One doctor says take the whole thing out, while another insists on just leaving a quarter behind. Honestly, I have no idea who to trust at this point.

I'm 24, and one doctor mentioned that since I'm still in my prime reproductive years, removing the entire gland might not be the best move for me.

He also warned that if you leave a piece behind, that remnant could flare up later on, which would just land me right back in the operating room again.

The opinions are so split that I feel like I'm losing my mind. To make matters worse, both surgeons are highly respected chief surgeons at major hospitals. It's exhausting.

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