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Which specialist should I see?

Started by Olivia Anderson92 · · 👁 4 views · 2 replies

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Participants Olivia Anderson92Angela Baker72
Olivia Anderson92 Olivia Anderson92 NewcomerOP
2 messages
joined Mar 2009
#1 ·
Here’s the deal: I don't have the luxury of wandering from specialist to specialist like a tourist. My symptoms could be linked to basically anything—spine issues, thyroid, lungs, sinuses, asthma... You know, the whole nine yards. Obviously, if it comes down to it, I’ll eventually go see an endocrinologist, a pulmonologist, an orthopedist, and an ENT, but I figured I’d lay out my symptoms here first. Maybe someone has a solid clue on who I should hit up first to save some time.

So, looking at my chronic stuff, I've always dealt with PCOS (it’s been a lifelong thing, and it’s bad enough that I deal with amenorrhea—I only get between three and six periods a year. That said, I did manage to get pregnant twice without any drama; one kid is a year old and the other is four) along with constant sinus and upper respiratory issues. It's always the same story: a nose that won't stay clear, being chronically congested at night, and every single cold turns into mucus draining down my throat and a long, drawn-out coughing fit. On top of that, I've been struggling with pretty heavy anxiety for years, which I don't think we can just brush off because a lot of this could be psychosomatic.

Then, over the last year (ever since my second baby was born), a bunch of new stuff started cropping up. I’ve got pain in my lower spine, and my neck muscles often seize up so badly I can barely move my head. There’s this weird weakness in my upper arms—more like a heavy sensation, really—and tingling in my fingers, especially in the mornings. Then there's the constant fatigue, terrible lack of focus, forgetfulness, and this bizarre sense of derealization during daily activities. I feel unmotivated, listless, and my appetite has gone through the roof (after birth, I only gained two pounds, but since summer, I’ve put on almost 10!). To top it all off, in the last month, my breathing has been trashed. Just carrying the little one for a few steps leaves me gasping like I ran a marathon, and lately, even when I'm just sitting still, I’m "gasping" for air like a fish out of water. It feels like I just can't take a deep, satisfying breath to fill my lungs.

In layman's terms—since I actually know how to use Google 😁—I’d pin most of this on my thyroid, especially considering the PCOS. But honestly, the breathing thing could point toward asthma or some kind of obstruction (I even get wheezing after heavy exertion), or maybe the root cause is my spine, which is definitely a problem area for me. But hey, let's not ignore the nose 😁 that’s constantly acting up too... So, here’s my dilemma: given the cost of everything, what tests should I prioritize doing first? I can't afford to take a ton of time off work, so I need to be targeted with these appointments. Thanks! 🙂
Angela Baker72 Angela Baker72 Newcomer
2 messages
joined Mar 2009
#2 ·
Honestly, looking at those symptoms, I can’t help but feel like they’re mirroring what happened with my thyroid back when I still had it—it always seems to go totally haywire after I give birth. If you're looking for specialists, I’d suggest checking out Rožman KB Dubrava for nuclear medicine or maybe the Sisters of Mercy clinic with Prof. Kusić Vinogradski, though you really have to show up in person to get an appointment. You'll probably need a full workup: TSH, T3, and T4 hormone levels, plus a thyroid ultrasound and a scintigraphy scan. You can definitely get the bloodwork done privately if you want to save time, though it’ll cost you more, obviously. I usually go to the Branko Salzer lab over by Times Square, and for the ultrasound, I'd recommend Mayo Clinic. If you aren't in a huge rush, you can actually get everything handled through the hospital systems at Vinogradski or Dubrava too. Also, please, please make sure you see a physiatrist and get some physical therapy; I swear Dr. Sente at the Mayo Clinic is amazing. The wait times can be pretty brutal, but the therapy itself is worth it. Or, if you're lucky, you might find shorter waits over at Božidarevićev. Oh, and seriously, swimming is the absolute best thing for your neck—specifically backstroke. During the summer, it’s just perfect to hit up a pool near Chicago or maybe go for a swim at Jarun joga lake every weekend.
I really think yoga helps a ton with basically any ailment, and it gives you such a boost in energy and focus. Just spending time in nature and eating healthy makes a massive difference. Sending lots of love, Ana Antol👍
Olivia Anderson92 Olivia Anderson92 NewcomerOP
2 messages
joined Mar 2009
#3 ·
Thanks. I’m really praying it’s "just" my thyroid because I spent the entire night down a rabbit hole reading about COPD, and honestly? Even though I don’t smoke, I am freaking out. I feel like I have basically every single symptom listed, and knowing it’s progressive and incurable is just... ugh. I seriously need to stop Googling medical stuff before I lose my mind completely.🙂

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