Peter Rogers
Active Member
60 messages
joined Dec 2011
I’m seriously, truly hoping that someone actually circles back to our doctors on this topic to share some real advice or even just their two cents.
I feel like I've been asking for test interpretations regarding my kid—who's now 5.5 years old—for the last year and a half, but honestly, does it ever end? Is there even an end in sight to all these questions?
So, I've been dealing with this for over a year now—swollen lymph nodes in my neck, my abdomen, and my groin, plus these tiny little lumps you can feel under my armpits. And honestly? I haven't even had an ultrasound done on my armpits yet. Can you believe that?
So, the biopsies came back inconclusive, which is just great, isn't it? Now we're left staring at results that basically say "we don't know," even though the biopsy itself is pointing toward mixed-type hyperplasia with a high proliferation index. Isn't that just the icing on the cake? You go through all that waiting, all that stress, only to have the doctors hand you a puzzle with half the pieces missing. How are you supposed to make sense of anything when the data is this messy?
So, I was looking over my latest blood work, and honestly, it’s a bit of a mixed bag, isn't it? My double T lymphocytes are slightly elevated, and the white cell count shows those reactive lymphocytes sitting somewhere between 4 and 8%, though thankfully the peripheral blood smear didn't mention any atypical lymphocytes. For what it's worth, my leukocytes and erythrocytes look totally normal. Then you've got the eosinophils, which are a little high—but hey, I’m an atopic person, so I guess that explains it, right? But here’s where things get weird. My IgA levels are actually below the lower limit of the test's sensitivity. On the bright side, my hemoglobin and iron levels are fine, but the smears tell a different story. They showed those massive rouleaux formations twice—which is strange because my sedimentation rate isn't even elevated—plus there's hypochromia and now these annulocytes showing up too. It's just one of those things that makes you wonder what's actually going on in there.
Growth and development are all looking normal, and honestly, the viral panel came back totally clean—no infections to speak of. Appetite is good and I’m feeling okay overall. The only weird thing is that I'm dealing with this periodic night sweating. Also, my liver is palpable and feels about 2 cm enlarged.
So, where are we at with all this? Is the kid doing okay?