Posts by Richard Smith31

Anonymous said:I finally got an answer, and apparently, they can't include people who have already undergone surgery or other therapies because they supposedly take a sample during the operation??? That sounds ABSOLUTELY RIDICULOUS!!! And Elizabeth Gonzalez55 and Amy Hayes28, were you guys offered this even though you had surgery and treatments beforehand?

No, my dad didn't have surgery because his tumor is positioned in a way that makes surgery impossible, and he hadn't started radiation yet because we were stuck waiting for our turn!
I am truly sorry, but it is entirely possible they only accept patients who haven't been treated yet.😢

Elizabeth Gonzalez55 said:This is the new standard protocol for cancer treatment in general. We’re starting the DCVax treatment the day after tomorrow in Mannheim. We travel tomorrow and stay for a week. I'll update everyone on the results!

It isn't meant for every single type of cancer. Under its full name, DCVax(R)-Brain, it was strictly intended for treating malignant brain tumors, but it turns out it's yielding great results for prostate cancer and lung cancer too—we're talking about five different types of carcinoma total (I don't feel like digging up the other two right now).
The company behind it believes they can develop a therapy based on this foundation that could help with 75% of all cancers within the next few years! Regardless, this is the most optimistic outlook we've seen so far.
However, I was venting to a neurologist yesterday who unfortunately pointed out how it always goes with new drugs hitting the market: the industry makes a massive stink about them, only for time to prove otherwise, sadly! He also mentioned that for brain tumors, it really only shows significant results in stages I and II, and anything beyond that hasn't been thoroughly tested yet. Germany was actually the first to approve the therapy, and their results have been incredibly strong across the board. At the end of the day, the fact remains: it's the best option we've had so far.
If you don't mind me asking, why head over to Germany if it's possible to do this in the US? And what kind of price tag are we looking at in Germany?
Wishing you a safe trip and nothing but success!!

Anonymous said:Angela Wright any updates on when that new General Motors drug might actually hit the market here in the States? Wasn't it supposed to be available by the start of this year?

My dad was actually offered some kind of cutting-edge vaccine that just cleared its trials. Honestly, we didn't even bother asking for the name because we turned it down right away.🤷
It would have cost about $1,100 a week.
From what I’ve been digging up globally, immunotherapy like DCVax(R) is the real deal. It’s currently the most advanced option out there, and it can triple life expectancy while having way fewer side effects than your standard chemo. This is likely the only breakthrough worth talking about since it's the only actual innovation in brain tumor treatment right now!

Angela Wright said:Listen, that high blood sugar is being caused by the dexamethasone. It’s triggering it. A reading of 30 is extremely high and could lead to a coma. You absolutely need to demand they give him some glucose tablets—even though at 30, he might actually need insulin. Give Vuk Vrhovec a call and ask for advice, especially since you're dealing with patients whose blood sugar levels are this volatile.

And here I was thinking my mom's 17 was way too high.🙄 She was taking Glucophage.

He’s on insulin now, and it dropped to 14.
I'll see about the Dexidex; instead of those, they could potentially give him Mannitol, right?
I already asked them about switching his meds because his heart is weak and the Dexidex is putting even more strain on it, but honestly, it feels like fighting windmills. I don't even know if I should be suggesting anything at all.🙄
Angela, you seriously need to go to med school so America can finally get some decent doctors.😁

😢

brightgardener8 said:It sounds like we’re fighting the exact same battle!
My mom has had her chemotherapy postponed twice now because her blood counts were looking terrible. She’s been taking Propolis, Beta-glucan, drinking Taheebo tea... At one point, things seemed to improve slightly, and we actually thought it was thanks to the Beta-glucans, but then the second time, nothing happened at all.
Then we started giving her this homemade blend of shredded beets, apple, carrot, and horseradish. As for juices? Forget about it. She won't even hear of them; she claims they're "too sweet" and bad for her blood sugar. Can you believe that?! Yet, if you set a massive plate of cookies on the table right in front of her, she’d polish them off in seconds!! And don't even get me started on greasy pastries, bacon, or anything like that.
Anyway, her blood work looked great the other day, so we finally got the green light for the next chemo cycle. We start tomorrow.
And her blood sugar was at 30 on New Year's Day! Who knows what kind of junk she was sneaking in while she wasn't being watched...
Honestly, she doesn't realize a single thing, and in a way, I'm glad. She's already planning out what she wants to do ten years from now... meanwhile, those of us close to her are already losing our MINDS.

I find myself laughing when I read stories about someone else going through this, but when I think about it happening to us, I just want to burst into tears!
The absolute worst part is when we're on the phone and he just spins in circles for half an hour, repeating the same nonsense over and over, forgetting the most important details, while I sit there pretending I understand everything and acting like it's all fine.🙄
God, give us strength.🙏

Nancy Hernandez43 said:Hi everyone!

I tried sending you a private message, Angela Wright, but it looks like your inbox is completely maxed out. Anyway... I’m reaching out because of my own situation. I got my bloodwork results back today and there are some abbreviations I just don't get. If anyone knows what they mean, please let me know here!

For the most part, everything seems pretty much within the normal range. I deal with PCOS, so I’m fully aware that certain levels are expected to be higher than average... but still, I don't understand all of these!

SHBG = 27.38 nmol/L (F: 20 - 130) ..<so this is fine>
FAI (TT/SHBG*100%) = 18.26 (F: 0.29 - 6.78)

Testosterone is slightly elevated compared to the standard norm, but I was honestly expecting that.

DHEA-S = 15.79 umol/L (F 25-34yrs: 2.68-9.23).

THANKS to everyone for the help!
kisses

SHBG is a protein (*) produced by the liver, and an increase in its levels is linked to how estrogen affects the liver.
SHBG is a useful metric when there's suspicion that free Androgens (?)—like Testosterone, for example—might be relatively high.
I found this on a German website...
Which gives us:
TT = Total testosterone

SHBG = Sex hormone binding globulin(*)

FAI = Free Androgen Index = 100*TT/SHBG

Angela Wright said:I’m so sorry you’re dealing with this. Look, he’s clearly decided to just do things his own way, and honestly, it’s going to be an uphill battle trying to convince him otherwise.
When it comes to talking to the doctor, you actually need to show a little bit of backbone when they take that kind of tone with you. Go back in there, press him, and tell him he was mistaken about the diagnosis—tell him you did your homework and what he said just doesn't add up logically.
Stay strong, stay proud, and just be yourself, sweetie.

p.s. if you managed to find out the name of that medication, please let me know.

Man, the old guy has become impossible to deal with...*
Poor woman, stuck with him.😢
Now that his blood work is a total disaster, I try asking him straight up how much cyclamen juice he’s had, or how much Propolis, Noni, or Beta-glucan he's been taking.
Of course, he claims it's nothing. He lies and says he isn't taking any, but if his doctor were a complete idiot, he’d probably believe him!🙄
He’s starting to realize I was right all along, but what’s the point now?
And trying to corner the doctor is mission impossible—it's like trying to win the Powerball.😁

A little bit behind on things...

I want to wish everyone a very Happy New Year! Above all else, I hope you all enjoy nothing but great health!!

Angela Wright said:It’s been a while since we last caught up. Amy Hayes28Hey honey, I hope everything is going okay with you. Listen, please reach out and let me know what’s happening with that new brain tumor medication they were offering your dad.

What am I even supposed to say? Honestly, there’s nothing. Absolutely nothing. I’m sitting here staring at the screen, completely at a loss for words. I just don't know what to write.
We just couldn't agree to that medication. First off, Dad refused to shut up about it—he’s stubborn like that about everything unless it falls under "traditional medicine." On top of that, we simply wouldn't have been able to keep up with the costs. Honestly, nobody even dared to argue with him, because when it comes to health, people always say there's always a way to find the money. Maybe if things were different, they would have at least tried it for a couple of weeks while they had the funds, but the old man rejects absolutely anything that isn't standard, textbook medicine.
That’s exactly right. They just had to cut his radiation treatment short because his blood counts are a mess—by the way, his blood sugar hit 30. On top of all that, he’s dealing with a massive ear infection that nobody has even bothered to address yet.🙄
I am absolutely sick of everything right now. Honestly, the worst part is that my elderly father refuses to ask those "God-complex" doctors a single question because he’s terrified of offending them. He thinks he can't just demand answers like a normal person! It's infuriating. Just stop being such a pushover.👎
Right before Christmas, he was supposed to have a change in his radiation protocol. The doctor specifically noted that we should start focusing on radiation for the pelvic area, but since then, we haven't been able to find another doctor to sign off on the paperwork. So, the radiation plan remains exactly the same as it was. Honestly, at this point, it isn't even necessary anymore.
For those first ten days, they were getting irradiated for about 10 minutes at a time. It was all pretty much guesswork because there wasn't even a doctor on hand to determine the exact dosage or what exactly was being administered, so they just went by approximation. You probably won't believe me, but I'm telling you the truth—and honestly, that's just the tip of the iceberg compared to the even worse stuff I could tell you about. Total flop.
I asked the doctor for a definitive diagnosis, and he just gives me this arrogant attitude, snapping back with, "Why do you even need to know? You didn't go to medical school, so what does any of this mean to you?"
In the end, I started rambling about something that practically makes no sense. I was just scribbling it all down when I realized someone had gone and smeared my marker over the whole thing.🙄 Anyway, just something completely unrelated to what we were talking about.😢
We decided to take him to a private doctor this Monday without letting the hospital know. We just need someone to finally clear out that infection, and we want to get an MRI done so we can see if there’s actually any change at all.
So basically, they just sleep through everything, forgetting it all anyway...
One day, things are going to get better.😢

wanderingranger3 said:Hi everyone!
Four weeks ago, my father-in-law was told he had a brain metastasis along with massive edema surrounding it. His entire left side was slightly paralyzed, given that the lesion was on the right side. We reached out to the top specialists, and they told us traditional surgery wasn't an option because the risk of leaving him permanently paralyzed on his left side was too high. So, they decided to essentially "kill" that brain metastasis using Gamma Knife.
Before the procedure, they warned us there would be a short-term decline, and honestly, he was doing terribly even before the actual treatment: he couldn't talk, eat, use the bathroom, or walk at all.
The most infuriating part of this whole ordeal was that they couldn't find the primary tumor. See, my father-in-law is a total hypochondriac with plenty of money, so he literally gets full checkups twice a year—including MRIs from time to time—and everything always comes back perfect. When the doctor saw his medical history, he was absolutely floored.

Since the procedure, he’s been on dexamethasone, and there hasn't been any decline at all. He actually has color in his face, isn't losing weight, and his appetite is great.

We couldn't just sit still, so we took him to Denver for a PET/CT scan, hoping that if there was anything else hiding somewhere, they might finally locate it.
The scan happened this morning, and the results were incredible. Nothing. Absolutely nothing found. I’m still in shock. My father-in-law is like a father to me; he’s become that person over the years.
I believe in miracles. I’ve been lighting candles to St. Anthony every single day, but I can't help but wonder—where did that brain edema come from then? Can benign tumors cause that kind of swelling?
What do you all think about this? Has anyone gone through something similar?

Keep lighting those candles and thank God!
I don't know if benign things cause edema, but probably yes—the biological principle is basically the same!
Am I understanding this correctly? Did the metastasis actually disappear??
My dad has malignant ones; the primary was in his kidney, which was removed, but unfortunately, it was too late!
Wishing you all the very best🙂 it’s wonderful to hear something positive in a sea of darkness..

We aren't backing down my deepest sympathies😢

Jane 🙂
What can I even say to you???
Please accept my deepest condolences.😢

Angela Wright said:Look🤷 , I see plenty of people praising this and using it themselves, so honestly, just give it a shot—you’ve got nothing to lose.

How are American doctors actually reacting to this? Or maybe I shouldn't even bother asking. 😁

I did some digging just now, and according to their official websites, regardless of which injectable preparation you're using, you have to start by injecting a tiny amount just under the skin. You have to keep doing that until you actually see redness appear on the skin! That redness is mandatory, but the area shouldn't be any larger than a 5 cm circle.
It also says that for the very first time, it's best to have a specialist doctor handle it so they can nail down the exact dosage required.
Hmm, looks like I need to find myself a volunteer doctor.😁

Angela Wright said:Hey sweetie, you doing okay? I just sent you a private message.

I just sent one right back to you...🙂
Do you think this one would be useful for my dad??

Karen Fox36 said:Hi everyone,
I haven't posted in a while because my schedule has been absolutely slammed. It’s finally been confirmed that my mom has Stage IV glioblastoma 😢, but honestly, I don't have the luxury of sitting around crying; I need to channel every ounce of my energy into fighting this disease. I could really use a little help here. We managed to get some imetel injections—specifically Iscador 0.1 and 2—but we haven't started administering them yet because the instructions are in German and my English isn't quite enough to navigate the specifics🙄 Can anyone please give me some advice on how to administer these to her?? I would be incredibly grateful. On a side note, my aunt is flying in from the UK soon and she’s bringing a massive haul of supplements she found at various pharmacies over there that people claim are helpful (pineapple root extracts, shark cartilage, Q10, certain oils, etc.)

Just type out what it says and I'll translate it for you.

Carl White11 said:Hi everyone. About nine months ago, my father was diagnosed with squamous cell esophageal cancer. He’s already gone through radiation and several rounds of chemo. Now, they’ve found metastases in his lungs, and the doctors are suggesting either Taxol or Xelod. Here’s the catch: those specific drugs aren't covered under his insurance for this type of cancer—they're only approved for colon or breast cancer. The plan is to try three cycles to see if there's any response, but the success rate is only about 10-15%. If it works, they keep going; if not, he's basically left to fend for himself. Since insurance won't cover it, I’d have to pay out of pocket. It would cost me roughly $5.00 just for those first three rounds, and frankly, I don't have that kind of money sitting around. Has anyone here dealt with something similar? Is there any way, any way at all, to get Taxol for free or maybe even set up a payment plan? Thanks in advance for any help.

In Germany, you can actually get Xelod on a private prescription from the US, but it’ll run you about $476.15 for 120 tablets of 500mg.
There are no payment plans or installments available.😢
As far as I know, the price for Taxol depends entirely on the dosage; I managed to find prices for the infusion solution ranging from ...to
Here is a link so you can check for yourself—these are the cheapest rates I could find!
bonimed

stormyowl2 said:Look, nobody is saying the guy is right. But as someone fighting cancer myself, I believe you should read every single study out there—with a grain of salt, obviously, depending on where you find it. The whole point of what I shared isn't to suggest doctors are wrong; it's that there seems to be some truth in the idea regarding why certain diseases trigger in the first place. Once the disease is actually there, my God, you either fight it or you give up. That’s a personal choice.

But here’s another reality: doctors are basically running in circles when it comes to malignant diseases. Chemotherapy isn't even a "cure," yet they push it anyway; it offers zero guarantees, especially if it's an advanced stage. That’s why it drives me absolutely insane when they coldly dismiss alternative healing methods just because they're being overly conservative.
Believe me, I know people who were written off by doctors, and look at them—they're still here. And I am telling you, I truly believe stress plays a massive role in what happens inside our bodies.

Everything is a mess, but I totally agree with your last post.🙂

However, that "doctor" (if you can even call him that) you mentioned earlier? He is anything but!
Do you realize he was never even sick himself? He staged everything just to make people believe he could help them.
He used to source cheap medications from Russia and sell them to people for a fortune; I'm pretty sure we're talking about a little vial worth maybe $2 or $3 that he sold for thousands!
And there's so much more nonsense...
It makes my blood boil just hearing his name. Honestly, I'd tear him apart with my own teeth for all the children he caused to die!
Alternative medicine is one thing, but what he was doing had nothing to do with science—it wasn't even just about greed; it was a genuinely sick mind at work.
The worst part is, he's still doubling down on it.🙄

stormyowl2 said:Whether they’re located in the brain or some other organ, Hamer views these edemas as positive—they're actually signs that healing is taking place.

It just goes to show that doctors are full of it. My dad isn't going to kick the bucket in a few days like they say...
According to Hamer, he's already healed.🙄

I've watched a few segments on this specific theory, and believe me, you only need to listen to him for a couple of minutes to realize the man is absolutely out of his mind.😢

Hey Ivanica, check your DMs—your inbox is blowing up!

Angela Wright said:Honey, you really are strong. Everything you’re feeling and going through right now is completely valid, healthy, and natural. This grief you're feeling is part of the process; you’re likely hitting the peak of it right now, but things will get better and better. Life just keeps moving, and once you find the strength to let go, you can finally let your father rest in peace within you. He’ll live on in your memories until you meet again.
Just let that sadness pour out of you. It will bring you immense peace and tranquility, and eventually, you’ll be able to remember your dad with a smile. Try focusing on the quality of the life he lived rather than how long it lasted. That perspective brings me so much peace and helps me cope with my own mother's illness. She had a beautiful life, filled with love from family and friends, so much joy—and through all the sorrow, she was never alone. Instead of asking "why her?", I started asking "why not her?"... she was a human being, and these things happen to people. If it hadn't been her, maybe it would have been some other woman with a small child and no family support or love. You know, I actually realized God's mercy through things like this. We all have to leave this world eventually.
My grandmother raised me until I was six. I only saw my parents every other weekend because they were working in New York City while I was living with my grandma and grandpa on Main St. My grandmother was like a second mother to me, and I’d travel to see her every single break from school. She passed away practically in my arms. It was incredibly hard to accept, but everything eventually unfolded just like I described. There are so many times when I’ll suddenly remember a funny story about someone who passed and I'll just start laughing.
Seriously, can dead people actually make you laugh?😉

😘 Take care,

That was beautifully written, as always. 🙂
But what’s eating at me is the suffering, the pain...
Why does it have to happen that way?
Death is a natural progression; we’re all headed there, and I’ve made my peace with that. Honestly, I don't even believe it's the end—I believe there's more to come...
But why the agony? Why the loss of consciousness??
Sometimes I feel like I'm just going to snap. 😠

Help me out here, please🙏

I know I read somewhere that some of you have sent your lab results off to get a second opinion, but I can't for the life of me find where or who did it!
Is there actually an institute anywhere in the US that you can turn to for something like this?
If anyone can point me in the right direction, I would be incredibly grateful🙂