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Posts by restlesscanyon16

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Elizabeth Gonzalez55 said:I’ve said this a million times and I’ll say it again: when doctors tell you there’s no hope (or whatever version of that), that’s exactly when you need to start fighting the hardest. Forget their stats and their "prognoses"—those are just broad guesses based on huge groups of people. Your family member *isn't* just a number—they’re a human being, a unique individual with their own path.

Second off, I don't know much about this specific diagnosis, but I know a similar story involving a brain tumor—doctors told him not to waste money or energy, basically telling him to go home and wait for the end. Instead, he hit up the nearest pharmacy, shelled out a ton for chemo, drove halfway across the US to get treatment, tried various alternative stuff, and never once gave up on himself. That was two years ago. Today? He’s doing great, healthy, and he’s a massive inspiration for us in our own fight.

Third, I'm not sure if this page "broke" in the search results— http://www.braintumor.org/SurvivorSt...p_StoryID=3937—but I think it’s proof that you can actually survive even with a diagnosis like this one.

So, hang in there everyone—especially you, mama. Don't let the disease or the doctors get you down. Just stay brave. Maybe I don't have a perfect answer to the specific question asked, but I hope I helped boost morale a little bit. :-)

Man, that doctor's attitude totally caught us off guard. I mean, isn't their job to actually try and treat people? Not just send you packing and tell you not to waste cash... honestly, it makes you wonder if they're just looking for a kickback to show even a shred of optimism, even if it's fake. 🤷
Obviously, their opinion isn't gonna stop us from fighting with everything we've got. And thanks for the link—haven't seen it yet, but it definitely gives us some hope. 👍
I’ve been scouring forums and websites for days now, just desperately looking for some kind of silver lining regarding astrocytomas. I'm specifically hunting for personal stories from people who actually beat it, or at least figured out how to live a decent life after a diagnosis. But honestly? I'm finding nothing. Here's the situation: a family member is battling a Grade 3 anaplastic astrocytoma—it's a recurrence of a Grade 2 that was partially resected and treated with Gamma Knife about three years ago. This recurrence is inoperable. The doctors suggested whole-brain radiation plus Temodal, but they aren't being optimistic at all. In fact, since Medicare doesn't cover Temodal for this specific grade, the doctor literally told us we're just throwing money down the drain because the treatment won't work anyway 😲😲 I mean, WTF? Are we just supposed to throw our hands up and wait for the worst to happen?! Obviously, we aren't just giving up—money isn't our biggest worry here—but we are desperate to hear from someone who has walked this path and is still with us. If anyone on this forum knows someone we could reach out to—someone willing to share a positive experience and give us even a shred of hope regarding this specific type of tumor—we would be incredibly grateful. Feel free to shoot me a DM; any info at all is a lifeline right now!

🙏🙏
Living with Spondyloarthropathy in Health ·
FFE said:speaking from experience with my own patients

FFE, I need a professional opinion regarding sulfasalazine. Based on your posts, I figured you might actually know something about this.

My husband started taking it a few months ago, and since we’re planning to start trying for a baby soon, I'm worried—how likely is it that he won't be able to conceive? (The side effects mention infertility in men). Also, even if he can, is it even smart to try for a baby while he's on these meds? Could there be any consequences for the baby... 😕
Scalp issues in Health ·
graniteorca15 said:that stinky crap from Vichy

Actually, that Vichy shampoo totally saved my husband from years of dandruff and an itchy scalp. We're super happy with it! He used it for three weeks straight, and now he just uses Vichy every third wash—otherwise, he just sticks to baby Johnson... and the flakes haven't come back.

Never even heard of those products you're talking about... 👋
Is Optimum Nutrition Creatine worth it? in Health ·
nikolix said:Honestly, I have no clue why that would even happen.

I don't get it either—but from what I've seen firsthand... 😳
Is Optimum Nutrition Creatine worth it? in Health ·
Aside from being hyperactive and feeling like you're constantly wired 24/7, there aren't really any other side effects... 🙂
Wedding cakes and desserts in Weddings ·
vividskipper40 said:Plus, they just grabbed some cake photo off the internet and handed us something that looked exactly like it.

Look, that's actually not a bad idea... 👍
But seriously, where did you guys find those cake pics online? Drop a link if you’ve got one.