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Resources and support for families dealing with cancer and serious illness in Health · Mar 24, 2007

Has anyone here actually tried Immunomax before?

I reached out to their office over in Salem, and they told me that if someone is undergoing chemotherapy or radiation, they should be taking about one box a day. But get this—one single box runs you $57!
That works out to roughly $170 a day for a full month. 😲

If it actually does something, then maybe it’s worth the gamble, but if it’s just expensive placebo... 😕

So, if anyone has any firsthand experience with this stuff, please reach out. 🙏

Resources and support for families dealing with cancer and serious illness in Health · Mar 23, 2007

slymoose4 said:Hey everyone!
The absolute first thing you need to start doing is:

3. Get the hell away from stressful environments (stress is a known trigger for cancer)
DV

Honestly, trying to live a life completely free of stress nowadays? In my opinion, that's about as realistic as winning the Powerball jackpot.😁

Resources and support for families dealing with cancer and serious illness in Health · Mar 22, 2007

Michelle Hernandez43 said:I find myself staring up at the clouds, trying my best not to let the tears fall too heavily—I don't want to sink under the weight of it all. My mother needs me to be her rock, steady and calm.
The doctors told my dad it’s nothing short of a miracle that she’s even still with us... It feels like some kind of dark omen...
I try my hardest to push those words out of my mind, even though I know deep down that things have taken a sharp, painful turn for the worse over these last few days...

I just pray I can find the strength to hold it together, so that I can offer my mother nothing but love, fortitude, and peace..
My darling girl, my sweet, fragile little girl, I love you with everything I am.

Sending you all the strength in the world to get through this. You have to stay strong, and please know I'm sending a huge hug and my full support.

Resources and support for families dealing with cancer and serious illness in Health · Mar 20, 2007

Angela Wright said:Thank you for reaching out. My mom is doing terribly. She has an MRI scheduled for next month, but looking at how things are going right now, I’m terrified she won't even make it that long.
I have to tell you, the moment I saw your username, I was transported back to that period when my own mother first came home after receiving her diagnosis. We had this little ritual where we’d both just collapse onto the bed after lunch and talk for hours. I can still see her lying on her side while I sat there hugging her, staring out the window at the clouds drifting by. It remains one of the most agonizing, heavy moments of my life; in that stillness, I could almost feel the weight of all the grief and suffering that was waiting for us down the road.
My mother, much like yours, was so incredibly full of life—a true, spirited Dalmatian at heart, always high-strung yet somehow so fragile deep down. I miss her so much; it’s been a constant ache, and lately, the tears just come so easily.
She was so excited about the renovations happening along the local Boardwalk. Her biggest joy was always getting to go home for Easter at Home, then heading down to the Boardwalk after lunch to sit on the swings, sip a cappuccino, and grab some cheese biscuits. With her gone, an entire chapter of my life has vanished—all our little rituals, our private jokes, our shared laughter...
I know exactly what you're going through. Please, don't give up. Try to find some solace in the fact that she is still here with you. My mother is physically present, yet she is already gone.
And remember, God’s creations are complex; your fight isn't over yet. There might still be something left to be done.

I am so deeply sorry you're having to endure this. Sending you a massive hug.

Cancer treatments and recovery stories in Health · Mar 19, 2007

Kyle Nelson2;7786966 said:
slyseal28 said:I could look into some of those techniques around the Washington, D.C. area if you're interested...

If it's not too much trouble, please do, 🙂

Cancer treatments and recovery stories in Health · Mar 19, 2007

Angela Wright said:Yeah, she told me the exact same thing.👎
Let me give you my two cents regarding bioenergy and cancer:
In theory, I think it’s possible to beat it using bioenergy, but applying that in the real world is a much harder nut to crack. We are talking about deep-seated energetic imbalances here. To actually address them, you would need an exhausting number of continuous treatment hours. Honestly, it’s physically impossible for either the practitioner or the patient to sustain that level of intensity without burning out—not to mention the sheer financial drain involved.👎
In my view, she’s most effective with milder conditions, particularly autoimmune issues, but when it comes to cancer...🙂
She once had a patient with microcellular lung cancer (it was a hundred-day diagnosis), where there isn't much you can do besides radiation and chemo, but even then, you can't be undergoing those treatments constantly for a hundred days straight. This woman refused conventional medicine and instead sought her out day and night; she even followed her all the way to India. Eventually, that microcellular version shifted into some other form of cancer—I can't recall exactly, though I remember her showing us the before and after scans. That first lung image looked like Swiss cheese, but afterward, there were only a few spots visible. At some point, the woman just grew exhausted from the constant pursuit and completely ran out of money. Her condition worsened, and even though she could have resolved things right then with a single surgery and some radiation, she wouldn't. She kept waiting for things to improve slightly so she could go back for more treatments. Sadly, she passed away three years after that initial diagnosis—suffocated, to be precise. What's strange is that during the autopsy, they couldn't find a single metastasis anywhere else in her body.

I’ve heard about that case too; I stumbled upon a post or an article about it online somewhere, though the details are a bit fuzzy in my mind. 👎

What’s your take on radiation?

Cancer treatments and recovery stories in Health · Mar 19, 2007

Kyle Nelson2;7786632 said:- psychokinetics - you really need an initiation for that. If I’m reading you right, there’s a girl at your school who practices it, though the actual initiation usually happens in Washington, D.C. (I can look into the specific location if you want).
QUOTE]

Well, I'm originally from Washington, D.C., and while that bioenergetics specialist is based out of Cincinnati, she travels quite a bit—doing work in Washington, D.C., San Francisco, and pretty much everywhere else...

Cancer treatments and recovery stories in Health · Mar 19, 2007

Kyle Nelson2 said:Essence psychocybernetics—it's a technique very few people actually use (mostly just the alternative crowd), and I suspect it operates on an astral level. A friend gave me a session, and I could feel the shift within minutes. She even worked on my girlfriend, who always struggled with cold hands, and for the next six months, she didn't have that issue once.

Reiki works similarly: the first degree targets the astral plane, while the second deals with the causal level. You can't really command it to perform specific tasks on demand; it simply does what is most necessary and beneficial, though it isn't designed to target symptoms directly...

That second one is primarily a spiritual practice (you’ve likely heard of it), and healing is more of a byproduct... For instance, one side effect I experienced was that my painkillers stopped working entirely, making it impossible for me to numb a nerve in my tooth with Toxavit.

There is plenty more to it if you want to go down that rabbit hole.

To be honest, I don't know much about it myself. Is it something you need to take a formal course to master? Or do you happen to know a practitioner who specializes in this (specifically for healing purposes)?
Do you have a link for it?
The furthest I've ever ventured into these newer methods was with the Silva Method. I didn't actually attend a seminar because, frankly, I don't have the cash for that right now; instead, a friend recommended it to me and managed to get her hands on a book.

Cancer treatments and recovery stories in Health · Mar 19, 2007

Kyle Nelson2 said:I could suggest a few different "techniques," though I'm honestly not sure if trying to combine them all at once would actually be a good idea.

By all means, I'm listening: 👍

Cancer treatments and recovery stories in Health · Mar 19, 2007

Angela Wright said:If we’re talking about the bioenergy healer my mother used to see—a very well-known lady with a classic beehive hairdo, originally from Cincinnati—then you really have no reason to be angry. See, when these practitioners work with their hands, wounds can reopen if they're working on someone who has undergone radiation. In our case, she told us that at least three months need to pass since the last radiation session before she could work on a person again, and even then, she shouldn't lay her hands directly on them; she can only work from a distance. Of course, those types of treatments aren't nearly as effective as they were before the radiation.
I have a friend who beat Hodgins ten years ago and finished her last round of radiation 97 days ago. She didn't mention the radiation to the healer (she figured it didn't matter regardless of how long ago it was) because she was there for an entirely different issue. But the moment the woman laid her hands on her, she pulled back immediately and said, "You've had radiation, why didn't you tell me?"

That’s exactly who she is. You know, it isn't even about true anger; it's more of a profound sadness. While he was seeing her previously, everything was wonderful. Now that he's facing radiation, she simply cannot take him as a client. Mind you, she’s suggesting we stay with her instead. She told us—and I am quoting her verbatim here—"Bioenergy consists of the rays of life, whereas radiation consists of the rays of death. If you choose radiation, I cannot guarantee anything for you." I actually asked her, "Well, can you guarantee anything if we stay with you and refuse the radiation?" And she couldn't even answer that.
I'm frustrated with her because she categorically rejects medicine, chemotherapy, and radiation as cancer treatments. Personally, I could never make the decision to reject medical science, let alone pressure my husband to do the same. Do you get what I mean? That's where my anger comes from. Furthermore, she claims he will be "radiated" for the rest of his life, insists she can never hold children in her hands again, and even suggests that if I sleep with him, I'll be exposed to radiation and eventually fall ill too. It's that kind of talk that makes me resent her. Everything else—the way she supported us through the whole chemo process—was actually great. But I just can't stand it when someone flatly denies reality. I mean, hasn't medicine progressed?😕
Maybe things were once like she describes, but surely, by now, hasn't it gotten a little better?

Cancer treatments and recovery stories in Health · Mar 19, 2007

Kyle Nelson2 said:I took a look at when this thread was originally started, so I was wondering if any of you have actually tried what was mentioned here, and if it made any real difference for him.

Regarding healers, we’ve been seeing this bioenergy practitioner who has been working with him from last November right up until last week. Our reasoning for choosing her was mainly to provide some sort of holistic support while he was undergoing chemotherapy. Throughout his entire chemo process—he’s finished six cycles now—his blood counts never once dipped into dangerous territory, and the nausea only lasted about four days following each session. He hasn't even lost his appetite during all of this.
Did the bioenergy work actually help? Honestly, who knows...

The situation has shifted now that he’s moving on to radiation. Since she won't be working with him during the radiation phase, we've ended up feeling quite resentful toward her. Whether we have any legitimate right to be angry is something I can't say for sure. It just feels easier to be mad.
So now I'm back on the hunt for someone—be it a bioenergy specialist, a healer, a homeopath, a folk healer, or even an American Indian shaman, 😬—who can offer that extra layer of support during radiation, especially since that also takes a toll on the bloodwork and everything else.
As for diet, given how intense the chemo has been (Doxorubicin/Holoxan), we didn't go full macrobiotic on him. We did cut out pork, red meat, and heavy fats, though. Instead, we've introduced a massive amount of fish (really, a lot) and plenty of vegetables, though we've always eaten a good amount of those anyway.
He's also drinking Noni juice, that milky stuff.

Cancer treatments and recovery stories in Health · Mar 19, 2007

Kyle Nelson2 said:Did any of that actually help him out?

I'm not quite sure I follow your train of thought. 😕

A little support from a friend is always appreciated, but as far as the recovery goes, we aren't out of the woods yet, unfortunately. We're barely halfway there.

Cancer treatments and recovery stories in Health · Mar 19, 2007

Sam Hall15 said:I honestly wonder where he vanished to. 😁

James Thompson22: Do you happen to have any updates on how his friend is doing—you know, regarding the PhD?

Her friend, unfortunately, happens to be my husband. 👎

Resources and support for families dealing with cancer and serious illness in Health · Mar 19, 2007

Web: I feel like we should probably map out a rough framework on paper first. We need to divvy up the workload so we aren't just spinning our wheels; for instance, one person could tackle disease types, another focuses on treatment methods—just speaking off the cuff here—and a third handles necessary diagnostic tests and such. Then, we can meet up or jump on a Skype call to show what everyone has gathered before finally pushing it all live to the site.

Regarding the Skype situation, I’m in total agreement. I'll get that sorted out later today.

As for the genetics side of things: my hope is that through this website project, we might actually uncover some insights into why all these horrors emerge in the first place—or, to use Angela Wright's phrasing, identify those "triggers" that kickstart malignant cells into action.

Cancer treatments and recovery stories in Health · Mar 18, 2007

Charles Edwards8 said:James Thompson22, try to provide a bit more detail here.

James Thompson22 is my friend, for lack of a better word. Back when I was spiraling and hitting rock bottom, she was out there playing hero—trying to fix everything and find help for both me and my partner from every possible angle.🙂>

Resources and support for families dealing with cancer and serious illness in Health · Mar 16, 2007

Whenever I find myself diving into articles about cancer—everything from general overviews to the specifics of chemotherapy—my mind always drifts back to the very beginning of the problem. What actually triggers it? The literature lists all the usual suspects: external factors like smoking or environmental pollution, weighed against the hereditary stuff, like those tumor suppressor genes and anti-oncogenes... (😕 look, I’m no doctor, so most of this feels like pure abstraction to me).
Does chemotherapy actually fix those faulty genes, or do they just stay there forever? If they stick around, is that why we see relapses? Does anyone here actually have some insight into this?😕

I mean, how do you even go about curing a gene?

Resources and support for families dealing with cancer and serious illness in Health · Mar 15, 2007

analogcobra94 said:This is my first time on this forum, so I’m hoping anyone who knows their way around here can help clear a few things up for me.
My brother was just diagnosed with synovial sarcoma.
He had surgery to remove a tumor located right behind his knee. He’s currently hospitalized and they’ve just started him on chemotherapy.
If anyone has any insight into what we should be expecting or what the prognosis looks like, please, let me know.
I’m flying out to see him this Friday, but ever since I got the news, I’ve felt completely hopeless. My whole world has just collapsed, and I honestly don't even know how to process this.

Was the tumor removed in its entirety?

Looking for a specialist... in Health · Mar 14, 2007

wiredrider2 said:Look, I have Google too, and I can find plenty of articles about ozone dental therapy if I really wanted to.

WHAT I'M LOOKING FOR IS PERSONAL EXPERIENCE. Has anyone actually tried this? What’s the word on the street?

I’ll throw in a recommendation for Dr. Miller and her ozone treatments. (www.dentalcareexample.com)
My husband and daughter both had an absolutely wonderful experience using ozone. To give you some context, we originally saw a dentist through our insurance provider who refused to treat a cavity on my husband's molar. Because he was undergoing chemotherapy, she insisted that it was better to do nothing at all—or rather, just pull the tooth entirely.😲
Naturally, we weren't having it, so we went to see the amazing Dr. Miller instead.👍 .
Dr. Miller took detailed X-rays, handled his treatment meticulously, and even cleared up two minor cavities using the ozone method. With ozone, there's none of that aggressive drilling.🙏
She did the same for my daughter's two molars. Now, she doesn't have a single traditional filling in her mouth, and everything is perfect.
There truly is no pain involved. Granted, it requires paying out of pocket, but the process is efficient, thorough, and honestly, worth every penny.

Resources and support for families dealing with cancer and serious illness in Health · Mar 13, 2007

Charles Edwards8 said:Here is what I could offer to get things moving.
My husband owns the domain carcinoms.com and we have plenty of server space available. If there’s actually an interest here, we could launch a website where current, former, and future patients—along with their families—could share their personal experiences. The goal would be to create a centralized "guide" for families navigating cancer diagnoses. The conceptual framework for how this site should function is already there; we just need a dedicated team to build and manage the content.
It’s a relatively small hurdle, and if people actually want this, I truly believe we can make it happen.

I only just caught your post.
Well, why didn't you say so? 👍 My firm handles web development and maintenance professionally.
Just let me know exactly what you need.

In my view, everyone facing a cancer diagnosis deals with a similar set of hurdles: a crippling lack of reliable information regarding the disease itself, treatment options, financial aid, legal guidance, and the complexities of the patient-doctor relationship. Honestly, my mind is racing with possibilities because I genuinely believe that taking a step like this could actually start shifting the needle on how these issues are handled.👍

PET/CT scans in Denver? in Health · Mar 12, 2007

This past weekend, while my husband was recovering in the hospital, I watched this guy try to get Medicare to cover a PET/CT scan over in Denver. His oncologist had even written up the formal recommendation, but they still denied the claim, leaving him stuck footing the entire bill himself. 👎
Apparently, the bureaucrats are claiming there’s already a PET scanner available at the Mayo Clinic. But here’s the thing that makes absolutely no sense to me: according to his oncologist, the unit they have at the Mayo Clinic is just a standard PET, and it isn't nearly reliable enough for what he needs. What is a person even supposed to do in a situation like this??? 😈