So, I’ve been hearing about this holly-based remedy called ISCADORA, which is supposedly incredibly effective at treating tumorous diseases.
Has anyone here actually used it? Or, more broadly, does anyone have experience dealing with this kind of nasty tumor...
I was pulling up some data online for a colleague regarding this specific type of sarcoma, and everywhere I looked, it suggested that a full recovery (with an endoprosthesis) is possible in over 80% of cases. But, of course, real-world practice is often much harsher and more brutal than what you read on a screen....
Wishing you all the very best in your battles against these terrible illnesses...
Thanks in advance for any insight you can offer...
Sarcomas are primarily treated with cytostatics, and ISCADORA isn't a cytostatic. My guess is that ISCADORA might be used as a supportive therapy. Sarcomas—specifically osteosarcoma—are among the more common cancers seen in children. It’s the most well-known type of sarcoma.
Treatment is quite advanced these days. However, there are certain types that are far more aggressive and prone to recurrence, much like the situation with the little girl.
It is vital to realize that sarcomas most frequently metastasize to the lungs. If you are dealing with a particularly aggressive strain, you really have to follow every single measure the doctors recommend. No doctor would suggest an amputation without good reason. I hope you understand where I'm coming from.
Dr. Shante is an exceptional physician and a true expert; please try to talk with him and listen closely to his advice... no matter how difficult the decision may feel...
Donna Clark77 said:Haller is a gynecologist, and it’s absolutely true that he collaborated and trained at Avian. They were likely mentioning him because of your mother's gynecological tumor issue.
The Mayo Clinic is the premier U.S. referral center for pulmonology and thoracic surgery—virtually every thoracic surgeon gets their training there, and the staff possesses unparalleled experience in treating the most aggressive forms of lung cancer. So, if I were in Donna Hernandez21's shoes, I would definitely head to the Mayo Clinic, if only to get a solid second opinion.👍
I have to agree. My husband had his surgery at the Mayo Clinic, and when we were first coordinating the procedure, everyone insisted they were the gold standard for thoracic surgery. Now, look—the hospital itself, the rooms, the food, even the bathrooms... it's a total disaster. But the medical staff? They are truly top-tier, which, in my book, is really all that matters.
If you look at your browser's toolbar, there’s a "Help" menu—just click the very last sub-menu item, "About," and all the details should be right there. Go ahead and check, please... I really don't see why there would be any issues accessing the association's forum. You actually had me a little worried there for a second...
Kate Ramos40 said:Hey everyone, I haven't been able to get a single word posted on the association forum because my home computer decides to act up exactly when I actually need it to! Work is just as bad—whenever I try to load a page, the screen turns into a mess of blue lines. I suppose it’s just because the hardware is ancient? It's honestly exhausting. Nothing much else is new on my end; my father-in-law seems fine on the surface, though I can sense he's feeling pretty restless lately.
Kate Ramos40, what do you mean by blue lines? 😕
Which version of Explorer are you running? Explorer 6, 7 (surely it isn't older than 6)?
Thomas Wilson93 said:I’ve been reading through this forum, and I felt compelled to reach out. My sister’s daughter is eleven years old, and she’s dealing with neurofibromatosis. She currently has two fibromas—one near her heart valve and another near her spine—both roughly the size of walnuts. They’ve already caused some significant issues; her sternum is visibly deformed, and her spine is starting to curve, causing her to tilt her head to the right. The doctors are recommending surgery, assuming it’s even feasible given where those tumors are positioned. With puberty approaching, there’s a real fear that the condition might escalate rapidly. The problem is, this disease is quite rare here in the States, so finding specialists who actually understand the nuances of this field is proving to be difficult. Does anyone have a recommendation or know where the best place would be to go for thorough testing and potential surgery? Hoping you might be able to point me in the right direction. Best regards,
You might want to try contacting a rare disease advocacy group in Washington, D.C. I suspect they could provide much more specialized information...
Linda Peterson37 said:Since I have so much faith in everything this non-profit is doing—and honestly, I tip my hat to everyone involved in this initiative—there is one thing I find quite strange that we might need to address down the road. When I looked into taking caregiver leave to look after my father, the doctor informed me that, according to current laws, you can only take leave to care for a spouse or a child. I truly believe that caring for a parent should be included in that coverage too.
That is precisely the question we just brought up before US Congress. For context, here are the specific issues we’ve been pushing forward (I actually wrote a post about this on our forum earlier):
1. Why won't the Mayo Clinic provide patients with their original CT scans upon request? By withholding them, they are effectively stripping patients of their right to seek a second opinion, since no specialist will offer a diagnosis without seeing the original imaging. 2. When will palliative care finally be integrated into standard health insurance coverage? 3. If palliative care and hospice services aren't fully resolved yet, why can't we at least ensure seamless access to caregiver leave? We need to protect those providing essential care—be it a spouse, a parent of a minor, or an adult child looking after a parent battling cancer.
And these are the exact problems our non-profit is determined to tackle... It’s going to be our singular focus. If you'll excuse the bluntness— we are going to relentlessly press the administration, the state, 🙂 and US Congress 🙂 until these questions are answered once and for all!
That is why we need your support, and why I’m asking you to show up for the initiatives we launch. Truly, if anyone feels they have the capacity or the desire to help in any way, please reach out.
"The American Cancer League has decided to launch a nationwide educational campaign titled 'Stop Chemotherapy Nausea and Vomiting.' The goal is to shine a light on the fact that effective treatments actually exist to manage nausea, vomiting, and the various other side effects patients endure while undergoing chemotherapy or other cancer treatments. This initiative is primarily aimed at patients fighting malignant diseases and their families, though it’s also intended for medical professionals and the general public alike. For more details on managing chemo-induced nausea and vomiting, you can find everything you need here."
If I may just add my two cents—it’s about damn time. 🙏
Carol Hernandez94 said:I have to mention Dr. Santek from the oncology department at Mayo Clinic, whom my little boy absolutely adored... It always catches me off guard when doctors drop these cold, detached remarks. They really ought to take a moment to reflect and actually learn how to communicate with us people, rather than just reciting facts....😢 😢
I find myself nodding along with your perspective and sharing that exact experience... we also shared such a wonderful connection with our professor, Santek... 👍
Everyone, our non-profit organization has officially launched a project titled "knowledge against cancer," which encompasses the following initiatives: -printing educational brochures entitled "support for those with malignant diseases," a 24-page color booklet featuring illustrations that covers the basics of navigating a diagnosis, chemotherapy, radiation, managing side effects, practical self-care tips, and ways to support loved ones; -distributing the "support for those with malignant diseases" brochure to oncology clinics throughout the USA; -organizing support groups for those facing malignant diseases, including their families and friends; -developing and maintaining our website , which serves as a central hub for communication for anyone seeking help, providing specific information regarding various cancers and treatment options available both here in the USA and abroad.
The brochure will include: -Brief, general overviews of malignant diseases; -Guidance on handling a diagnosis and the necessary steps to take before treatment begins; -Details on chemotherapy, its side effects, and practical advice on how to manage them; -Information on radiation therapy, its side effects, and specific instructions for patients undergoing radiation; -General advice and emotional support for those battling cancer; -A directory of non-profit organizations dedicated to supporting those with malignant diseases; -Contact information for relevant healthcare institutions;
Why am I bringing this up here?
I have always felt that in a vast ocean of technical data—mostly dense medical jargon—there ought to be a few beautiful, warm, and genuinely human thoughts. Just a sentence or two of honest, real substance to ground the reader.
And that is where you come in. We are asking you to join us in making this project a reality. Please share your feelings and reflections here on the forum—whatever you experienced (or are currently experiencing) during the journey: the moment of diagnosis, the days spent in chemo or radiation, hospital stays, or even conversations with your inner circle... anything at all. Of course, caregivers (spouses, partners, friends, children, parents—anyone standing by a patient's side) are more than welcome to contribute their own perspectives on the illness.
Please try to keep your quotes relatively brief so they fit naturally within the layout and flow of the brochure.
To give you an idea, here are a few examples: "When the oncologist told me it was cancer, everything went black and white; there was just this ringing in my ears. I couldn't see him, and I couldn't hear him." "I felt like I was losing grip on my own life." "Maintaining a positive outlook and a resilient spirit is part of the healing process."
We look forward to hearing from you... and thank you. If you don't mind, please post your quotes here
Emily Robinson93, I asked you a question, and since I haven't heard back from you yet, I’m going to go ahead and repeat it in the hopes that you'll finally give me an answer. Personally, I know plenty of people where modern medicine actually SUCCEEDED—it either cured them or at least managed the cancer enough to give them a decent quality of life. If you really want proof, I can provide a list of names and phone numbers upon request to back up my claim.
So, tell me, how many cases or individuals do you personally know who have been cured or even just stabilized using the methods you're describing? Just say the word, and I'll send over their names and contact numbers so I can reach out to them myself!
And then there's this talk about cost... look, this isn't about the price tag. This is about the truth...
Folks, I feel the need to share some reflections regarding the posts put forward by Emily Robinson93 and Sandra Martin60.
The assertion that cancer is merely a disease caused by fungi is, quite frankly, unacceptable to me. Furthermore, the information I encountered on that website is equally impossible to stomach for several reasons: -First and foremost, the site lacks any semblance of transparency. -There is zero concrete contact information provided: no physical address, no phone number, no bank details—absolutely nothing. -There is a complete absence of detailed or clear information regarding the clinical studies required to validate a drug's efficacy before making such sweeping claims. -They fail to name any specific hospitals where this therapy is actually being administered, offering only vague assertions that it is "being used somewhere." You simply cannot accept that as a factual statement.
My personal view is that these posts from Emily Robinson93 and Sandra Martin60 lean much more toward being malicious than well-intentioned. It seems to me that these women are playing fast and loose with data that could dangerously influence people who are grappling with a cancer diagnosis for the very first time. I don't believe their advice comes from a place of goodwill, because they are preemptively painting chemotherapy as something that does more harm than good. I cannot accept that. I truly cannot. I have been in a position myself where I was desperate enough to consider almost any treatment, and I nearly lost my way entirely in that flood of junk data.
My husband completed ten cycles of chemotherapy along with approximately thirty radiation treatments. At the start of his treatment, the prognosis was devastating. He had a soft tissue sarcoma that, following surgery, had only been partially removed. A mass measuring roughly 9.5x9.5 cm remained on the pulmonary artery, situated between his heart and lungs. However, the combination of chemotherapy and radiation effectively dissolved it. According to his most recent scans, the sarcoma is gone. This happened thanks to conventional medicine—thanks to chemotherapy and radiation.
It happened thanks to doctors who followed a treatment protocol that is verified and recognized globally.
That said, there are certain types of cancer that are, unfortunately, resistant to standard treatments. There are cancers for which an effective therapy has yet to be discovered. It is precisely in these tragic cases that "miracle workers" find room to operate. I don't know... personally, this kind of discourse hits me hard. I believe, and I hold firmly to the conviction, that when discussing matters of life and death, one must provide truthful, verifiable evidence.
Emily Robinson93 said:Just ask yourselves: how many times have you actually seen modern medicine successfully cure cancer? My personal take is that we should be considering every single method out there, provided they aren't dangerous—which, let's face it, chemo certainly isn't.
I personally know quite a few cases where modern medicine actually SUCCEEDED in curing, or at least managing and controlling, cancer, which in turn allows for a much better quality of life. If anyone wants proof, I am more than happy to provide names and phone numbers to back up my claim.
Tell me, then—how many people do you actually know who have been cured, or even just stabilized, using the specific methods you're describing? If you're so confident, I'll gladly take a list of names and contact numbers so I can reach out to them myself!
Jerry Smith11 said:Our little Mo (13 years old) has been at the Mayo Clinic oncology ward for seven days now. It’s a soft tissue sarcoma near her left hip. We are just waiting on the biopsy results, which should come in over the next few days...
Please... we need help. Once those results arrive, what is our move? Do we simply put our faith in the doctors and pray to God, or...? I feel like we absolutely need a second opinion—but who do we even turn to? If anyone has any information or guidance, please.
Right now, the wonderful people at the Krijesnica Association are helping us get by. I came across slyseal28 and her story, which was eye-opening. The website Zanovidan.hr has also been a huge resource for info, though unfortunately, I can't access their forum at the moment...
This is all so new, so raw; it feels impossible to process. As parents, we are in complete shock. But we are trying to keep our heads up and realize that we have to start fighting. We just know we can't do this alone.
We are endlessly grateful for any word of advice or support you can offer. Thank you, kind souls. Little Mo's parents email: zaMaluMo@gmail.com
Dear parents of little Mo, I just sent you an email. Please reach out when you can.
I’m unfortunately new here. I'm joining because my father was just diagnosed with lung cancer. We're currently waiting on the bronchoscopy results to figure out the specific type. Could you please recommend a specialist in New York City for a second opinion? I'd also appreciate any insights on immune boosters or if anyone has experience with drugs currently in clinical trials. Thank you in advance.
On our forum, take a look at the posts from Suzi who is successfully fighting inoperable lung cancer. She uses one specific supplement that she wrote about in great detail. Just spend some time reading through. And keep your chin up. I know this is incredibly heavy, but please know you aren't alone in this. We're all here for you. Ask whatever you need.
dustyranger11 said:Hey there. I mentioned a couple of weeks ago that my dad was scheduled for surgery. Well, they ended up pulling the plug on the operation. They’re claiming his heart is too weak—he’s only 55, though he does have four stents. Honestly, the cardiologists say his heart is fine, but the anesthesiologist won't sign off on it. He actually went to see a private specialist today, and that doctor told him he could undergo both anesthesia and surgery without any issues at all. So, starting Monday, he’s moving on to radiation. Some people are telling me I shouldn't let him go through with the radiation, or that I should push to get him transferred to a different hospital because they refuse to operate on the rib, even though they technically could. It feels like cowardice. I'm wondering, if he goes through with the radiation (which lasts about two weeks), and the cancer hasn't receded, can he still go straight into surgery? Or will the radiation have caused too much damage?
Maybe you should try getting a second opinion at a different facility, perhaps somewhere like Mount Sinai or a major metropolitan hospital? I'll send you the name of a specific doctor over in New York City via PM.
Sandra Martin60 said:No, I don't feel embarrassed at all. Over the years, I've encountered many people in my own community battling cancer, and I tried everything in my power to help them. But they were just so blindly devoted to their doctors that there was nothing more I could do... and those people are gone now. I’m asking this question because I want to understand the broader way people think about this.
In that case, walk us through your perspective—explain your method, or whatever you're calling it. Don't leave everyone reading this with such a bitter aftertaste. Look, no offense intended, but the way you're framing your attempt to "help" feels incredibly reckless. You claim you wanted to assist people, yet you imply they're gone because they placed blind faith in medical professionals. So, what are you suggesting here? That you're some kind of miracle worker? I don't follow. Please, explain what this is actually about. If you're too uncomfortable to say it here, just send me a PM.
Michelle Price66 said:Where in New York City can I get an abdominal CT done privately, and what kind of prices are we looking at? My internist mentioned the wait times at public hospitals are months long. If you've gone through a private clinic before, please let me know who you'd recommend. Thanks for the help!
You should check out Mayo Clinic or Quest Diagnostics. I believe they might even accept insurance referrals. It’s true that if you go the standard route, you’re looking at a wait of maybe two or three weeks, but honestly, if you have the patience, it’s worth it... If you decide to pay out of pocket, you can usually get seen within two or three days. I'd estimate the cost will be around $333. I don't think it goes much higher than that...
Sandra Martin60 said:Hey there, everyone. I don't find myself hanging out on Reddit very often, but I wanted to pose a single question to the group... If someone came up to you and claimed they had found a cure—that chemotherapy wasn't actually necessary and that people didn't have to suffer through it—how would you react?
Larry Miller17 As if I haven't heard this all before. It’s the same old song and dance, isn't it? Everyone thinks they have the magic formula, yet here we are, staring at the same predictable outcomes. Honestly, it feels like we're just circling the drain of mediocrity while pretending we're making progress. Someone should really tell them that wishful thinking isn't a strategy. I’m reaching out to those of you with some real-world experience—I could use a bit of seasoned perspective on this. 🧐 Given the state of our hospital system, let me ask you this: when the time finally comes to be discharged after surgery—that moment when the doctor hands you your discharge papers—wouldn't it be common sense to demand a full copy of the key diagnostic findings related to your condition? It seems like a glaring oversight.😕To be perfectly blunt about our specific situation: we are looking at surgery for rectal carcinoma, complicated by the fact that there are inoperable metastases in the liver.😠 What exactly did those recordings show regarding the day right before the operation?
And now, just some reflections from an ordinary person. 👋 Instead of a doctor: Now that we find ourselves forced to stand our ground against our greatest adversary... 🙂When dealing with liver metastases, I can't help but feel that knowing the initial size—at least what’s actually visible on those scans—is absolutely critical. It seems to me that without that baseline, you're essentially flying blind. You need that starting point to make meaningful comparisons as the treatment progresses. Otherwise, how are we supposed to gauge whether the therapy is actually working or if we're just spinning our wheels? You have to know if you're moving in the right direction.
Greetings, everyone...
My husband was under the care of a surgeon, and frankly, I don't even know what exactly he ended up being diagnosed with. To make matters worse, we were handed this incredibly vague discharge summary along with the pathology report—which, by the way, didn't even arrive until fifteen days after the surgery. We finally showed up at the hospital around 3:00 PM on a Friday (I remember the timing vividly). A nurse had actually called us ahead of time to mention that the surgeon was on call, which gave us this hopeful, perhaps naive, expectation that he might actually have a moment to sit down with us. Instead, the surgeon seemed visibly annoyed to see us. He just handed over the discharge papers, told us flat out that people don't just show up at the hospital at 3:00 in the afternoon, and insisted we contact the oncology department instead. And since it was a Friday afternoon, there was absolutely no one left to talk to. All we were left with in that moment was a grim diagnosis, an internet connection, and Google.
I can’t help but feel that surgeon could have handled himself with a bit more grace and tact. He had options, really. Instead of being so dismissive, he could have simply said, "Look, I don't personally specialize in this, but we have some truly top-tier oncologists right here in the city." It wouldn't have cost him anything to be human about it. But he didn't. And honestly, that's exactly why we went ahead and established the association—to make sure the right information gets out to everyone who needs it, ensuring no one feels like they're navigating this nightmare entirely on their own.