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Posts by Drew Martin3

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Living with hemochromatosis in Health ·
This thread seems to have gone quiet; I hope someone eventually responds. Following high iron levels and elevated ferritin (337), my hematologist referred me for testing. Genetic screening confirmed hemochromatosis (H63D: H/D heterozygote), so a phlebotomy session has been scheduled.
I want to know exactly what to expect from this process—give me all the details.
Thanks in advance.
Two years ago, I underwent RF ablation with Dr. Anić in San Diego. It successfully resolved my VES-ica issues, which had reached 15,000 daily before the procedure. Since then, I have experienced occasional SVES-ica—a few hundred a day—nothing major, though I did return to beta blockers following an earthquake. Two days ago, however, I experienced my first episode of tachycardia. It was terrifying; I genuinely thought I was dying. I have dealt with heart issues for years, and even ablation isn't exactly a trip to the dentist, but I have never felt fear like this. Emergency services arrived after I took a beta blocker, and things stabilized within an hour. The ER staff diagnosed it as paroxysmal tachycardia and told me to call them if it happens again. Now, I am paralyzed by fear and cannot leave my house for fear of an episode occurring in public. Does anyone have advice or words of comfort?