Posts by silvercanyon7

vividsailor7 said:Which NET are we talking about here? Pancreatic? Other parts of the GI tract?
There are plenty of them—gastrinomas, VIPomas, insulinomas, somatostatinomas, glucagonomas...

Hey vividsailor7,
I’ll send you a DM so I don't clutter up this thread. Thanks in advance.

I tried sending one, but it won't go through—the inbox is full.

Hello

Maybe someone has already posted about this, but I don't have the time to scroll through everything, so I’m just asking you all directly:
My dad has a neuroendocrine tumor. He’s finished chemotherapy and ten days of radiation. In two or three days, he starts rehab, where the main focus is physical therapy so he can stand on his own two feet again—he’s been using a walker for the last ten days or so.
While he was in the hospital, he lost weight. Now we are working on strengthening his body and getting more calories into him. Fortunately, he has a good appetite; he feels great now and the pain is gone. He says the radiation actually brought him back to life.

Do you have any dietary suggestions? I think I know a lot about nutrition, but when it comes to healthy people who move around, it's one thing. When it involves something like this, I feel like I know absolutely nothing.
I want him to gain weight as soon as possible. I know he needs that energy for his rehabilitation and training sessions.

Everything happened so fast here in the States (he got the diagnosis in June). I am riding waves of emotion myself, but I have to stay strong for him. I am just grateful we are together and fighting this fight side by side.

Once I am more mentally stable—I'm currently seven and a half months pregnant, so the hormones probably aren't helping how I feel—I will try to write something more detailed.

I wish all of you, and myself, all the luck in the world. What we are going through is incredibly unfair, but we cannot lose hope. We have to give everything we've got to get through these crises and hard times.

You can travel with almost any medication, BUT you absolutely cannot forget to sort out your medical documentation in English first. There are specific regulations and standardized protocols that must be followed. Every doctor should be familiar with these rules, but let’s be honest—in some parts of the country, doctors still drop the ball on this stuff. Whatever you do, do not accept a medical note written only in the local language. They get even stricter when you're flying to other continents. Don't even dream about bringing potent medications with you if you don't have the proper paperwork. Since there's already an official diagnosis, getting the right certificate should be the easiest part of the process.🙂

Dear friends, I read this thread regularly, but often I find myself at a loss for words. I worry about saying the wrong thing because I can only imagine the battles you are fighting every single day. Please know that you are constantly in my thoughts, and I am sending every ounce of strength and positivity your way. Stay strong.

Our family has walked the path of cancer and intensive treatment—chemotherapy and everything that follows. Life was hanging by a thread, but now—knock on wood—things are looking great, and I truly hope they stay that way.
It has been nearly three years since day one of our fight, marked by endless days of struggle, constant worry, and everything else that comes with it.

I don't know if anyone here has heard of it, but we actually sourced some Elixir from the dedicated nurses in Nov Topola. During that time, we were traveling through Canada, going wherever we heard there might be a glimmer of hope. We even received a recommendation from a doctor, and of course, we listened. When blood counts are too low, chemotherapy simply cannot proceed. That is exactly what happened: our doctor gave us this advice with only three days left before the next session, and the blood work looked absolutely TERRIBLE.
We picked up the Elixir that very same day (one bottle, roughly 1 liter, cost 31 miles dollars) and started using it immediately.
Just two days later, the blood counts normalized, and the chemotherapy could proceed right on schedule.

I have no intention of offering false hope. I only want to share our experience. If this helps even one of you, then sharing it was worth it.

@Karen Brown/">@@Karen Brown I believe this isn't easy for you. Even though your father is still with us, it certainly isn't simple. But we have to talk about these things. While you still have the chance, why not ask him? What does he think about all of this? After all, it's his life.

@Angela Wright/">@@Angela Wright, I understand why you're reacting this way. But honestly, I don't think any of us can feel even a fraction of the weight that Karen Brown and her family are carrying right now. In our society, these topics are unfortunately still hard to face. Perhaps because of the environment I grew up in, I find it perfectly fine to speak openly about these matters. Isn't it better to be honest than to go behind someone's back? Nothing is ever a certainty—we shouldn't doubt that—but if a man is truly looking out for his children (which is only natural), then I believe even his own father would accept something like this.

@Hannah James76/">@@Hannah James76 and everyone else: I am truly sorry for what you are going through. I wish you nothing but the best of luck. Please, stay strong in your fight against this cruel disease.

How’s it going now? Has the hiccups finally stopped?
Hiccups for twenty minutes straight can wear a person out, so I can only imagine how exhausting it is when it lasts for days.
I truly wish you a speedy recovery. You should definitely take a few days off to rest after all this.

Kenneth Garcia9 said:In my experience, I had to wait until autumn to get mine done. But that was over ten years ago, so medical practices have probably shifted since then...

I’ve already mentioned that you can test at any time of year (I did mine in mid-November 😁).
I don't know what the old protocols were, but labs don't care if you're testing in July or December.🙂

wanderingangler13 said:silvercanyon7, please tell me what exactly your homeopath prescribed... I'm genuinely curious. Can you walk me through how their whole process actually works?

Lately, this allergic cough has been absolutely killing me at night (I can't sleep at all)... Thank God I'm not working right now, otherwise I'd be trying to catch up on sleep during the day while doing meditation techniques just to get my energy back. Honestly, I don't know how I'd manage... I'm heading in for blood work this Wednesday, but I doubt it'll show anything since I don't have a fever and feel fine during the day... It's just this cough at night that drives me insane. I'm getting sick of my own constant overanalyzing... But I guess it's easier to vent here in the middle of the night (while everyone else is presumably asleep)...😢

I called them at the beginning of the year, but didn't get my period until late February.

I started taking Birch Extract 30 and Eyebright D-30. If you want the specifics, just shoot me a DM.

I used it for two weeks straight, then took a seven-day break for a check-up with my homeopath. Since then, I’ve been on Birch Extract 30 and Eyebright. I plan to stick with this for three more weeks before another consultation, and then we'll move on to something else. It’s all about the dosage—the doctor gradually increases the strength of the tablets so my body eventually accepts it as normal, without triggering any allergic reactions. Isn't that the goal?

Oh, right... I forgot to mention that I was also prescribed eye drops right from the start. So, on top of this medication, I’m using those too—just one drop in each eye every morning and again every night.

I’ve always been obsessed with eating healthy, but my blood work just came back showing my antioxidant levels are lower than they should be. What am I supposed to do about that? So, I’ve started taking some herbal supplements—I think they're called Antioxidant Max, but I don't have the bottle handy to double-check.
Alternative medicine isn't enough just so you can pat yourself on the back and say, "Yeah, it worked." You also have to actually do the work to strengthen your immune system—even the birds on the fence know that much.

I’m an optimist. I’ll soon see if any of this has actually helped so far. But I won't give up, no matter what. My goal—my only real wish—is to feel even just a little bit better this year. Next year? Well, then the expectations, the wishes, and the goals will be even bigger. 🙂 ).

Just a heads-up—you can probably find info on those alternative medicine options online. Even if you can't find much locally, try searching in English. Some of those products actually come from Germany or Scandinavia.🙂

Casey Stewart7 said:Yeah, but what I'm really wondering is—can you actually go get allergy testing done this time of year, or should I just hold off until at least the fall?

You can get tested any time of year.
In my case, my blood work showed everything I'm allergic to (not that it matters much to me 😁 ).

I see many of you dealing with similar issues to what I’ve been facing. For a few years now, whenever I travel down south to places like San Diego or even further into the Southern US, things go downhill fast. I deal with sore throats, shortness of breath—literally feeling like I'm choking—extreme exhaustion, and sometimes even a fever. Two years ago, while I was vacationing by the coast, these symptoms hit me out of nowhere. Within hours, I ended up in the ER. I was on antibiotics for an entire week because of a massive throat and tonsil infection. My inhaler was my only lifeline back then, and I had to use effervescent tablets just to help clear the mucus. Between the intense inflammation and the phlegm getting stuck in my throat, I actually lost my breath a few times. It was pure horror. I wouldn't wish that nightmare on anyone.

The moment I get back here to Scandinavia, I feel completely healthy again. I went to the doctor, ran all the tests—nothing. They couldn't find a single thing wrong. Even back then, I told them I suspected I was allergic to something present in the US that simply doesn't exist here.

Since last year, I’ve been allergic to Birch pollen (which is everywhere here), and that allergy has triggered reactions to green apples, raw carrots, walnuts, and hazelnuts too. Last summer was absolute misery. Even though I used medication, I started taking it too late since I hadn't been allergic to those foods before.
Thankfully, regarding the allergy I've been fighting since last year, breathing isn't the main issue. Instead, I get heavy cold-like symptoms and severe eye irritation, which is my biggest struggle 😢 .

Ultimately, I decided to try alternative medicine and visit a homeopath. I go for check-ups every two or three weeks, follow the protocols, and use plant-based remedies. I can already feel my body regaining its strength. On top of that, I am working hard to boost my immune system. My goal is to use alternative medicine to finally defeat this nasty allergy so I don't have to rely on antihistamines and other drugs for the rest of my life.

If anyone is interested in what my homeopath prescribed, I can write it down.

By the way... as I mentioned, my eyes have been my biggest problem since last year. Blurred vision and white discharge running from my eyes were part of my daily routine. Since starting with the homeopath, the blurred vision has vanished, and there is much less of that white discharge (it looks like white slime, incredibly irritating and disgusting).
My goal this year is to avoid any doctor-prescribed pills entirely and focus solely on alternative medicine and strengthening my immunity. Based on my homeopath's assessment, I expect at least a 50% improvement compared to last summer.