Posts by Linda Wright5

Thanks, Melissa Kim45, for this post. You actually had me laughing and crying at the same time 🙂

Wishing nothing but the best to you, your mom, and all the other fighters out there! 🙂

Brenda Walker58 said:I’m honestly not sure what to tell you. My approach is just to act as normal as possible given the circumstances—sometimes I stay quiet, and sometimes I just blow up! You just have to lead with love, because your sister is terrified, and that fear is driving everything she does. It’s tough. It is totally okay to tell someone when they’re bothering you or if they’ve hurt your feelings; I think being honest is vital. No matter how much your sister gets upset when you say it (if you choose to tell her), just remember it isn't about you—it's purely about her fear. I don't know if this helps, but good luck!

Thanks so much, that really helped! Yeah, fear is definitely at the root of everything she does. She tries to control everything because she can't control the illness itself, so she compensates by trying to micromanage the rest of her life. I'm going to suggest she see a psychiatrist today, because there's just no way I have enough expertise to help her through this...

Hey everyone,
I check this sub regularly, though I usually stick to posting on the association's main forum.
Quick question for the group... how do you all deal with the psychological toll on patients?
My sister was diagnosed with ovarian cancer, and she’s also dealing with deep vein thrombosis and ascites, so she hasn't been able to move much for about ten months now. Sometimes she acts like a total spoiled brat—she's 39, for crying out loud—and gets furious if things aren't done her way. She loves being in control and manipulating people... and honestly, I just don't know how to handle her. I don't want to constantly cave to her demands, but sometimes she drives me absolutely insane. Should I be straight with someone like that, or do I need to walk on eggshells and just take their outbursts?
She saw a psychiatrist a few times and was actually happy with the care, but she hasn't been back in quite a while...

slyseal28 said:We just did a follow-up CT scan on the chest, abdomen, and pelvis yesterday. The results are an absolute disaster. That damn cancer came back in full force: in three different spots.

Man, this news really hit me hard 😢...But I believe in you brave souls and I know you'll beat it again!

🙂

Angela Wright said:I absolutely loathe statistics😠. They are completely useless to people who are actually sick
.

I am right there with you, Ivanna! Honestly, stats should be for doctors only—I’d ban them from even mentioning numbers to patients altogether.
In my book, having faith in getting better and staying in a positive environment is what actually matters for recovery.
When my sister was diagnosed with cancer, I went down a total rabbit hole reading every medical paper I could find. It just dragged me straight into a deep depression because there wasn't a single shred of good news in any of it. My heart literally sank when I read her life expectancy was only 1-4 months. (Not that I ever said that to her, obviously).
I finally decided to shut all that out and focus my energy on giving my sister nothing but love, warmth, and support. We talk about health instead of the illness, and we stick to funny, happy stuff... It makes such a massive difference for both of us.🙂

gentlemoose62 said:I haven't been super active on here lately because I've been busy dealing with my own checkups and biopsies, but I'll get into all that later!

Now, I just have to share some incredible news with you all. I went in for my ovarian cancer follow-up, and everything is PERFECT! My doctor actually told me we can move to once-a-year checkups! Can you believe it? Once a year! If anyone had told me that seven years ago, or even after my last relapse four and a half years ago, I would’ve thought they were just being nice to my face.
But it’s real, I’m not dreaming—CURE is possible, even after a relapse.
My doctor literally said, "you can consider yourself cured," and that’s the first time anyone has ever dared to say that to me.
I really want to use my story to encourage everyone else fighting this. No matter what happens next, you can NEVER give up!
And finally, I want to send my best vibes to our biggest fighter, DINA, who is currently recovering from surgery😁. Dina, all our thoughts and prayers are with you—please let us know as soon as you have some good news!

This is absolutely wonderful news🙂! Enjoy this moment and take care of your health!
You honestly made my day! I'm hoping I'll be able to post some good news about my sister very soon too (I've mentioned her on the forum before under the ovarian cancer thread).

Amy Hayes28 said:Hey everyone!!🙂

casualpanther1, just like Angela Wright said, things got confusing because the doctors weren't giving enough info—it was actually about Sutent, I think!
Huge congrats on those great results for your wife; honestly, hearing news like that always pulls me out of my funk.🙂 Hang in there!

Alright, I need some intel!
Does anyone here have actual experience using Sutent??

Question for Elizabeth Gonzalez55, roughly how much does DCvax cost over in Germany?

For the ladies dealing with ovarian cancer—aside from high markers, did you have any other symptoms? How did you find out you were sick?
I’m heading in next month to get my own levels checked.😁

I can share what my sister went through... About six months before her surgery, she started having these cramping pains that would make her whole pelvis ache. It would last a day or two, then she’d feel fine again. Then, during an exam, they found a cyst that turned out to be malignant...
Good luck with the surgery, I'm rooting for a fast recovery and a total clean bill of health 🙂!