I can’t say enough good things about Dr. Santek. Our family had a really wonderful experience working with him, too.
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Posts by coppermason13
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How does anyone even find out about these kinds of medications, and is there any chance a doctor would actually suggest them?
Angela Wright, thanks so much for the heads-up. It feels like the pathologists have been staining these samples over and over again without getting anywhere, and now they’re claiming they need to send it off for some kind of genetic "screening." Honestly, it feels like they could have just done this from the jump; if they realized after a week that identifying it was going to be such a headache, they could have just kept working on one sample while sending the other out for testing immediately.
Any bit of info helps us out!
Any bit of info helps us out!
Hi there,
I’m looking for a mountain of information because, honestly, I feel like Alice in Wonderland right now...
My husband was diagnosed with a sarcoma located in his chest—running from the spine forward toward the shoulder area—less than a month ago. The initial tests pointed to PNET, specifically an Ewing sarcoma. Dr. Janevski performed the surgery at Jordanovac, where they removed a mass roughly ten by ten centimeters, along with two ribs, part of the collarbone, two blood vessels, and the entire brachial plexus. Because of that, he has absolutely no sensation or function in his right arm, though that feels like a secondary issue compared to everything else right now. We’ve been home for a bit, and while he’s recovering fairly well after the surgery, it’s been over three weeks and we still haven't received the pathology results. Word from the lab is that they aren't entirely sure what they're looking at—that it might not actually be Ewing after all—but those are just unofficial whispers since nobody has given us any formal news yet. We are completely lost. We want to figure out exactly what we're dealing with as soon as possible so he can start treatment. I'm wondering if it's even possible to take a sample ourselves to send to a lab outside of the US, because the waiting is terrifying. What are the top medical centers in Europe for tumors, and is there anything at all we can do before the official report arrives? Of course, we need the results to meet with an oncologist. His surgeon recommended Dr. Herceg, so I was wondering if anyone has experience with him as an oncologist? Any piece of information is precious to us; it's starting to feel like we can't just lean on the doctors and have to take matters into our own hands...
I’m looking for a mountain of information because, honestly, I feel like Alice in Wonderland right now...
My husband was diagnosed with a sarcoma located in his chest—running from the spine forward toward the shoulder area—less than a month ago. The initial tests pointed to PNET, specifically an Ewing sarcoma. Dr. Janevski performed the surgery at Jordanovac, where they removed a mass roughly ten by ten centimeters, along with two ribs, part of the collarbone, two blood vessels, and the entire brachial plexus. Because of that, he has absolutely no sensation or function in his right arm, though that feels like a secondary issue compared to everything else right now. We’ve been home for a bit, and while he’s recovering fairly well after the surgery, it’s been over three weeks and we still haven't received the pathology results. Word from the lab is that they aren't entirely sure what they're looking at—that it might not actually be Ewing after all—but those are just unofficial whispers since nobody has given us any formal news yet. We are completely lost. We want to figure out exactly what we're dealing with as soon as possible so he can start treatment. I'm wondering if it's even possible to take a sample ourselves to send to a lab outside of the US, because the waiting is terrifying. What are the top medical centers in Europe for tumors, and is there anything at all we can do before the official report arrives? Of course, we need the results to meet with an oncologist. His surgeon recommended Dr. Herceg, so I was wondering if anyone has experience with him as an oncologist? Any piece of information is precious to us; it's starting to feel like we can't just lean on the doctors and have to take matters into our own hands...
Grab a test! (For anyone wondering if they're pregnant)
in Pregnancy ·
It could even be a baby, honestly🙂
Ever since I ovulated, I’ve been feeling these little twinges in my ovaries, nothing too intense, just there...
I have a gut feeling it's actually a baby🙄
When are you expecting your period to start?
I’m thinking about taking a test a couple of days early since people say you can get away with that!
Ever since I ovulated, I’ve been feeling these little twinges in my ovaries, nothing too intense, just there...
I have a gut feeling it's actually a baby🙄
When are you expecting your period to start?
I’m thinking about taking a test a couple of days early since people say you can get away with that!
Grab a test! (For anyone wondering if they're pregnant)
in Pregnancy ·
the group said:I think from the very first second, I just knew something was off—it was such a strange sensation, like my whole body was slightly out of sync. I had this sharp, cutting pain in my lower abdomen, and then my ovaries started feeling all twitchy and poked at. I took a test, and even though my period hasn't actually missed yet, the result came back positive. Let us know what happens
Hey, group,
I’m dealing with the exact same symptoms, but my period isn't due until August 29th.
I really hope it's not happening!!!!!!!!!!
And I'm hoping I'm not just imagining things because my head has been pounding too... plus, I've been feeling so incredibly irritable lately...
😛