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Posts by Angela Wright

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Living with Rheumatoid Arthritis in Health ·
Jamie Johnson6 said:It’s not happening to me, but I actually had a woman complaining to me about how everything just hit her all at once—it happened within a single month. She became so incredibly weak that they eventually decided to run an HIV test just to be safe, especially since she hadn't been involved in anything risky beforehand.
My mom’s pain is creeping up on her steadily, and she can't get a wink of sleep because of it.👎

Hepatitis C could also be the culprit here.
Grace Fowler said:Hey there!! Sending love during this heatwave. I’m gearing up for my next chemo session this Monday :-( I have my first round of checkups tomorrow, and I’m praying the results look good—that the treatment actually worked. Until next time, fingers crossed...
Grace

It’s always good to see you on here.🙂
I really hope you can stay somewhere with decent AC.
I honestly can’t say enough good things about that device; I think my mom would have passed away if she didn't have it.

Otherwise, things have taken a massive turn for the worse. She’s dealing with constant headaches and can barely eat anything. The other day, it took me over an hour just to get her to swallow a few bites; she kept pushing the meat to the side, and because I didn't catch on immediately, she almost choked. I had to frantically dig the food out of her mouth with my fingers just to save her, and in the middle of all that chaos, she bit me so hard I actually saw stars. It’s bad. Really, really bad. She sleeps constantly and rarely even opens her eyes; I honestly feel like a coma is right around the corner.
Gregory Gray40 said:Can someone break this down for me? I know it’s linked to a UTI, but I want to understand exactly what we're looking at here and what it actually signifies.

Thanks 😘 ...

http://www.mayoclinic.org/?section=home...id=2394&show=1

Everything you need to know is laid out right there.🙂
Liver or what? (Random/Off-topic - LOCK) in Health ·
Rachel Brooks68 said:Hey everyone.
It's my first time posting here, so please bear with me if this topic has already been covered—I just couldn't find it.
I've noticed a slight swelling or thickening right under my right rib cage. It's only really noticeable when I'm sitting down without a bra. The swelling starts near the center of my chest and runs toward the end of the rib cage; from what I understand about anatomy, that's where the liver is located.
I honestly can't tell if it's actually my liver or just some extra fat, since I've put on about 20 pounds lately. I have a similar sensation under my left ribs too, though it isn't nearly as pronounced as the right side.
There’s no pain, though I do get some stomach aches and discomfort around my belly button if I overeat or eat too fast.
I'm heading to see my doctor tomorrow to get it checked out, but until then, does anyone have any idea what else this could be?
thanks

I once strained the muscle right above where the liver sits (I dropped the remote off the bed and was too lazy to actually get up, so I overextended myself reaching over the edge). Honestly, I didn't even realize I'd injured myself at first; I had to replay the whole moment in my head just to figure out how it happened. It hurt like hell, though—I couldn't sit up straight, I couldn't eat, I felt nauseous, and I had that exact same swelling under my ribs. I thought it was my liver too, but it turned out to be a strained muscle. I took some Advil and it cleared up in a day or two.
Ask for a referral for an internal medicine exam and an abdominal ultrasound.
Living with Rheumatoid Arthritis in Health ·
rustybadger89 said:A friend's mom is 54 and has always been in great shape. Then, about a month ago, she just hit a wall—sudden weakness, total exhaustion, and ended up hospitalized. She’s still stuck there and hasn't improved, even though doctors have run every test under the sun without finding a smoking gun.

She’s describing bone pain that migrates all over—legs, arms, spine—and recently, her right arm went completely numb.

Lately, she’s just sleeping constantly and barely has the strength to even roll out of bed.

They recently pointed toward rheumatoid arthritis as the likely culprit. Could that actually be it?

One more thing popped into my head.
Make sure they check her thyroid hormones. That level of exhaustion and those pains could easily be symptoms of a thyroid disorder.
It's a simple test... tell her to hold her arms straight out in front of her. If they start shaking, you're looking at a thyroid issue. Sudden weight swings or feeling high-strung and jittery are classic signs too. Thyroid problems are a real headache because those hormones act like a master switch for the body; once that function glitches, it triggers a massive domino effect that messes with almost every other organ and biological process in the system.
Living with Rheumatoid Arthritis in Health ·
It’s possible, though as a layman, I find it a bit strange that the arthritis jumped to that level all at once😕. Usually, it starts with minor issues—like some changes in the hands—and then slowly progresses over the years.

I suspect there might be something else going on with her.

It reminds me of a case from a forum here involving a woman where what seemed like harmless myelocephaly was actually pressing on a nerve in her back that controlled her arm motor skills, leaving her unable to move it. People were guessing at everything under the sun, but they finally sorted it out with an ultrasound and some massage therapy.

Maybe she should seek a second opinion?😕
Adam Fowler10 said:Best regards!
I'm stuck on how we should handle this. Should we start preparing ourselves and him for what’s coming? Or do we just keep living our lives like nothing is changing, pretending we don't know what's hitting us in a few months? How do I even bring it up, or should I even say anything at all? I feel like he needs to know and be prepared, though based on some things he's said lately, I suspect he already senses what's ahead.
I'm glad I found this group.

Treat him exactly how you always have. Your grandfather is who he is, whether he's sick or healthy. Just live your life as normally as you can, because honestly, nobody knows—not even the doctors—what’s going to happen an hour from now, let alone a month or a year down the line. Doctors rely on experience and statistics to give certain prognoses, but those aren't set in stone; they depend on a massive amount of unpredictable variables, sudden shifts, or even misdiagnoses... you have to account for all that uncertainty.
My mom is fighting one of the most aggressive and fast-moving cancers out there, a glioblastoma brain tumor. She was operated on by the top neurosurgeon in the country, and he gave her maybe a year tops. It’s been over two years since then, and she’s still here. Sure, she’s struggling, but she’s alive.
You’re 17, and you’ve already seen more of this disease than any teenager should ever have to; you clearly understand the reality of the situation. Do you really think a man with your grandfather's age and lifetime of experience actually needs an explanation?
Look, death is just a natural part of the cycle. As people get older and witness the same things happening to others that are now happening to their own loved ones, they learn to accept the fact that we are all mortal and temporary. That’s just the way it is, and fighting it is pointless because we can't change the outcome. Accepting the mortality of others—and eventually our own—is a fundamental part of growing up. Goodbyes are brutal, but they're inevitable, no matter when they happen. What we can hold onto, and what serves as comfort, is the fact that when an elderly person passes, we can look back with gratitude for everything they accomplished. Usually, the greatest success is simply raising children to be decent, hardworking people and getting to see your grandchildren grow up. A person like that can leave this world feeling successful, happy, and at peace.

Parting ways is incredibly hard, and it sucks that it always seems to happen so fast, but try to find some joy and gratitude in the fact that your grandfather has completed a full circle of life.
The best thing you and your family can do right now is spend every spare moment with him, ease his discomfort whenever possible, and try to maintain some semblance of a normal routine. If he senses your anxiety and restlessness, it's only going to make things harder for him.

Stay strong and keep your head up, kid.🙂
Amanda Williams64 said:Hey everyone!
We’ve been off the grid for a bit—nothing major happened, we just needed some space. Mom finally finished her radiation sessions and wrapped up her first round of Temodal. She actually headed out to the beach today. We honestly thought she wouldn't be cleared for something like that, given what the doctors initially told us, but during her last checkup, the oncologist gave her the green light. Given everything she's fighting, she needs to soak up the sun while she can. Things aren't exactly perfect, but for right now, we have it under control.
Take care, all of you!

Check this out—there's an interesting thread on a glioblastoma forum about a new vaccine being used over in Switzerland. I stumbled upon it two days ago; not sure if you guys caught it yet.
Michelle Morgan said:I noticed yesterday that I have this yellow discharge with a really unpleasant smell... does seriously nobody have any idea what that could be?

It sounds like you might have a severe infection. You need to get to an urgent care clinic or your OB-GYN immediately. When was the last time you had a Pap smear or a routine swab performed?
Don't sit on this—ignoring a nasty infection can lead to some seriously massive complications.
Elizabeth Collins60 said:Ever since things took a turn for the worse, I’ve been here every single day; somehow, this place gives me strength. Like Angela Wright says, you have to find ways to be happy and grateful for every extra day you get. Yesterday was brutal—I already had the end playing out in my head—but today is actually okay. We’re sitting here at the Mayo Clinic just talking and laughing about old times. Honestly, we’ve been doing this for the last year and a half, ever since we first heard the diagnosis. We spend so much time together, grabbing coffee, going on little trips... though lately, those trips are mostly just within the hospital walls. She’s in the hospital now, but heading home tomorrow... if there isn't anything else to toast to, at least we have this.
I'm noticing everyone here is hunting for some kind of alternative solution. Speaking as a doctor, I have to disagree. In my view, when conventional medicine doesn't have a cure, all these different methods and various herbal concoctions aren't going to do much to help. They might make sense for prevention while you're healthy, but in a situation like this...

I don't agree with you either. Don't forget that long before modern medicine existed, people treated themselves—more or less successfully—using what we call "alternative" methods today. It surprises me a bit that after experiencing the "other side" yourself, you haven't felt the urge to embrace anything that might actually do some good.
Actually, I resent modern medicine for treating a human being merely as a patient, or more specifically, as an organ or a disease that falls under a specialist's narrow purview. It’s a proven fact that stress or mental struggles can trigger physical headaches. Alternative philosophy suggests that a person exists on multiple levels: body, soul, spirit... a disturbance in one of these "bodies" can cause damage to any of the others. Conventional medicine tends to cut or remove the symptom, usually focusing strictly on the physical body, but it rarely addresses the root cause. It is precisely because of this limited perspective and the stubborn refusal to accept ancient, foundational wisdom upon which great civilizations were built that medicine stagnates. It still lacks answers to many questions, such as why cancer happens. Cancer is simply the body's response to one or more imbalances manifesting within the WHOLE being.
I wrote about my own experiences and insights regarding alternative approaches near the beginning of this thread, so if you're interested, feel free to scroll back. I really don't feel like repeating myself right now.😁

Hang in there and keep fighting the fight.
James Wood302 said:So, here’s the main thing I'm wondering about: 1) Are there any actual limits when it comes to applying the Breuss therapy? My main concern is his weight—he’s dropped a ton and looks incredibly weak after just this last month—as well as his overall physical condition.

You need to wait at least six months from the date of your last chemo session.
I went through treatment at the Mayo Clinic in the oncology department. I’ve noticed a lot of people around here throwing shade at them, and honestly, I’m trying to wrap my head around why. From where I was sitting, they seemed incredibly professional—they knew exactly what they were doing. Early on, we even sent all our test results over to Johns Hopkins just to get a second opinion, and both teams came to the exact same conclusions every single time. Now, I can't shake this nagging feeling that my family and I might have missed a step or failed to act on something crucial. I'm searching for any possible alternative or way out, and I hope you guys don't think I'm being irrational. I'm not a pessimist; I still believe we have to keep fighting this fight.

My experience with the Mayo Clinic was an absolute disaster, so I wouldn't dream of taking anyone in my family there if they needed an oncologist.
When I was just two months old, I ended up dehydrated. To make matters worse, the doctors at the hospital basically messed everything up; they were so obsessed with trying to prove I was actually sick that their own meddling just made my condition spiral. Honestly, if it hadn't been for my grandmother—who was one hell of a spunky, tough woman—I would've been stuck in that cycle forever. She took matters into her own hands, scooped me right out of that hospital bed, and brought me home, saving me from any more unnecessary suffering.

My grandmother dealt with arteriosclerosis. One day she bumped her finger, which turned bruised and purple, and of course, the doctors immediately jumped to conclusions, insisting it was gangrene. Then, while she was still at the hospital, the discoloration actually faded, so they pivoted and decided it wasn't gangrene after all—but instead insisted on performing a bypass on her leg because they claimed the limb was basically a lost cause anyway. They opened her up only to realize they couldn't complete the procedure because of her diabetes; apparently, they hadn't bothered to check her full medical history before starting the surgery. To make matters worse, they stitched her up poorly, leaving the wound much higher than necessary, and it ended up getting infected right there in the hospital. When she tried to protest the negligence, they had the nerve to tell her, "Why are you making such a fuss? They’re going to have to amputate that leg soon anyway, and it won't be long before they have to take the other one too." Naturally, she took matters into her own hands and walked out of that hospital. She treated herself using traditional home remedies and lived to walk firmly on both feet for another 15 years until the day she passed away.

My grandfather was lying on the floor of the hospital on his way to the restroom, and for an entire hour, nobody even bothered to check on him. When a nurse finally did stumble upon him, she didn't offer any sympathy—she just absolutely tore into him. She started yelling about why on earth he thought he could wander off alone and why he wasn't smart enough to wait for help. The poor man had been pressing that call button repeatedly for sixty minutes, but the staff just kept staring at the TV or gossiping over coffee. He was struggling with prostate issues, but he was too proud and dignified to admit he needed help with his business. By the time we found him, he’d broken his nose and split his lip from the fall, and nobody had even bothered to clean the wounds; my mom had to do it herself when she arrived. Honestly, whenever I went to visit, the nurses would just sit in their lounge, acting like they were on a break, sipping coffee and watching soap operas. If I actually approached them to ask for help because he was soaked and needed changing, they’d just roll their eyes and give me this attitude, basically telling me, "Ugh, do it yourself, I'm not touching that."
It’s just a shame that those were his final days. He really didn't deserve an end like that.😢

Two years ago, my uncle was in a horrific motorcycle accident. He was thrown from the bike and suffered massive head trauma and severe brain bruising. When he first regained consciousness, it was blindingly obvious he had sustained a major neurological injury, yet they didn't bother with an emergency CT scan. By the very next day, he started showing his first clear neurological deficits—symptoms so blatant that even I, a total layman, could see exactly what was happening. Still, no CT scan. By the second day, they finally rushed him into imaging, and what did they find? A massive edema. Then it was Mannitol, then more treatments, and eventually, he was shoved into a shock room. You could hear the doctors being dismissive, saying things like, "Doctor, how does he look? What do you think?" and getting replies like, "Oh, don't worry, he’ll be fine, things will turn around." An hour later? Flatline. Just a steady, continuous beep.

Thanks, but I wouldn't take any more risks there myself; you have to give credit where it's due to the professionals...👎

Look, those are just my experiences with the Mayo Clinic.

What kind of lung cancer is your dad fighting?

I’m truly sorry things have reached this point, but please don't lose hope—hope is the last thing to die. I know coming to terms with the end is incredibly hard, but you have to look at the reality of what it means to be diagnosed with lung cancer specifically. Try to focus all your energy on maximizing his quality of life—keeping him comfortable, minimizing his pain, and making sure he’s surrounded by family in the comfort of his own home. Don't let him see you breaking down. There will be plenty of time for tears later; for now, just try to be grateful for every single day you still have together. Talk about the good times and the memories you've built. Use this window of time to tell him things you've never said, to offer forgiveness, or to ask for it. You have to remember that this man lived a full life; he worked, he provided, he raised you... those are massive achievements, and without that foundation, life feels wasted. In the end, everything boils down to that.
Partings always feel too early and far too heavy, but they are a natural part of the cycle, and every day we live is just one day closer to our own end.
Being able to face these kinds of illnesses and accept mortality is the mark of a mature adult, and whether we were born with that capacity or are learning it through this hardship, we all eventually get there. My mom once told me after my grandmother passed away that she only felt truly grown up once she had lost both her mother and father. That's just life, and it's the hardest school there is.

Keep fighting!
electricgardener14 said:Dear fellow forum members,
I want to extend my sincere thanks to everyone who advised me to move my husband from our home in San Francisco to the hospital in a Small town, USA. We were received with such incredible kindness—if only politeness were a form of medicine, my husband would be perfectly healthy by now. He is under the care of Dr. Charles; does anyone here happen to know him? I’m curious if he is considered a top-tier specialist. On another note, I would be so grateful if any lung cancer patients—or perhaps their family members—could reach out so we might exchange experiences. I am particularly interested in knowing what the quality of life is actually like during the treatment process (chemo, radiation, etc.). Is the patient constantly bedridden, or is there at least some semblance of a normal life maintained? Also, a quick practical question: does anyone have leads on affordable lodging in Washington, D.C.? I start my vacation next week and I fully intend to stay close to my husband—even though he insists he’s finally enjoying some peace and quiet away from my constant "nagging."
A huge thank you to Unknown for the offer of a place to stay, but I really need something a bit more long-term, though I will certainly reach out once I arrive in Washington, D.C.
Warm regards to you all, and may we all find our way back to health.

Oh, that's fantastic news! I'm so glad things worked out for you.
Regarding housing, you might be able to find something at the university dorms after July 15th once final exams wrap up—that’s usually the cheapest bet. There's also The Beverly Hills Hotel, which offers some affordable options too.
Maybe try posting on the Washington, D.C. forum to ask about cheap rentals; someone might have a private room available while the students are away.
Do you happen to know the exact diagnosis?
Elizabeth Collins60 said:You people are wonderful, thank you Angela Wright!!!!! I can't thank you all enough—everyone here dealing with these same struggles. It honestly makes things feel a little lighter just knowing you aren't alone in this fight. It’s hitting me hard because, unfortunately, I work in medicine myself. I've stared death in the face countless times while working to save others, but now I'm forced to watch this same familiar suffering and pain unfold within my own family. As a doctor, I know exactly what comes next and exactly how this plays out, yet you are left feeling completely powerless. It makes me lose faith in my own profession.

Don't let your profession disappoint you. Medicine is a human discipline, sure, but the most critical decisions and the ultimate outcomes? Those are in the hands of the One above.

I want to say one more thing, or maybe just repeat it for everyone on this forum:
There are plenty of times when medicine throws up its hands in defeat, but God only needs to point a finger to perform a miracle.
Lisa Lopez83 said:Thanks, Angela Wright. Look, we aren't ashamed of anything, but we're feeling the squeeze now that there's a baby in the picture...
and you have to set money aside for a child, too.

Let me be completely blunt here.
I am the patient, even if it was a little hard for me to admit that in my first post on this thread.
The seizures are milder now—less intense—and they’ve become infrequent, which was also true back when I was sticking strictly to conventional medicine. But the catch is that I'm now shelling out more than $2,100 a year just for medication. How much longer can this go on? What's the breaking point?
I'm afraid I won't be able to sustain this for much longer.

Yeah, you're in a really tough spot. You know as well as I do that epilepsy is a lifelong battle, and despite having a kid with their own needs, there is an equally massive need for a child to have their father present for as long as possible.
You're going to have to sit down, weigh the pros and cons, and make a call or find some kind of middle ground.
One thing I’d suggest is not getting hung up on this one alternative treatment like it's the only hope out there. And that goes for conventional medicine, too—new drugs hit the market every single day. Keep digging; treat this like a mission if you have to. There is almost certainly something else out there that might be even cheaper and more effective than what you're using now. In our generation, finding answers is so much easier than it was for our parents because of the internet, so use that tool to its full potential.
Back when I used to go with my mom to see a holistic healer, I met plenty of people with epilepsy who found a sense of "peace" through her sessions. They'd go in for a course of treatment every few months and then go seizure-free. They all said that even while staying on their standard prescriptions, their condition improved significantly after the treatments. That's just one example. I truly believe most illnesses stem from a complex web of imbalances, so it makes sense that treating them requires a complex combination of methods.
Just give it some thought.
steelfalcon21 said:Hey!

I’ve been dealing with high prolactin levels for two years now (ranging from 690 to 1500), and I also went through a bout of transient hypothyroidism—basically just slightly elevated TSH. On top of all that, anemia has always been a recurring nightmare for me; it flares up every couple of years, if not more often. My nails have become super thin and brittle lately, so my doctor sent me to get some blood work done to check my mineral levels. Here’s what came back: calcium is at 2.52 (ref range 2.14-2.53) and zinc is at 18.3 (ref range 9.9-17.9). Since my appointment with the endocrinologist isn't until late August and I'm dying to know, can anyone help me make sense of this borderline high zinc level? The only thing I managed to dig up on Google was that zinc might negatively impact iron absorption. For context, my diet is pretty solid—I eat plenty of fruits, veggies, meat, and fish.😎 thanx!

My old man has thyroid issues and his zinc and calcium were both running high too. His doctor just told him to stay extremely hydrated. Once he started his treatment, everything eventually leveled out.
Feeling Suffocated in Health ·
nimblepanther23 said:Yeah, my hands are shaking, I can't sleep, and for the last few days I've been getting cramps in my right leg—something I've never dealt with before.
On top of all that, I have hyperhidrosis, which I also read could be linked to the thyroid.
Thanks so much; I never would have connected this to my thyroid, but after a quick Google search, I can see you're right.
Thanks again.

No problem.👍 Just get to a doctor as soon as possible before things spiral any further.
Feeling Suffocated in Health ·
nimblepanther23 said:Are you noticing any specific symptoms yet?

That feeling of suffocation is a big one. Try stretching your arms out—if they start shaking, that’s another red flag. It’s like a domino effect: insomnia, leg cramps, sudden weight swings, heart palpitations, getting winded easily, or just feeling completely drained all the time... it's a whole spectrum. Your thyroid can basically decide to go haywire right when life hits you with stress, whether that's pulling too many all-nighters or dealing with relationship drama. You really need to sit down and have a real talk with your doctor about this.
Feeling Suffocated in Health ·
nimblepanther23 said:Apologies if this has been covered before, but I’m struggling with something here:

I deal with quite a few allergies—sun exposure, dust, that sort of thing—and they usually just show up as little spots or patches on my skin.
I've never had an allergy trigger any breathing issues before, but lately, things have taken a turn for the worse.
Recently, I’ve been feeling like I can't catch my breath when the weather shifts (like right before a storm hits), when I'm in dusty rooms, near certain flowering trees, or even just when I'm stressed out—usually during finals week at school.
My blood work came back totally normal. My doctor thinks it’s just some minor allergy that will pass on its own, but honestly, it feels like it's getting worse every single day.
I also noticed a pattern: these episodes seem to hit harder when I haven't eaten. It got me thinking—could this be related to a blood sugar drop or something similar? I'm no medical expert, obviously, but yesterday, between the pollen, the dust, and being hungry, I felt like I was suffocating, and once I finally ate something, the tightness in my chest vanished.
Does anyone have any insight or ideas on what this could be? I’m planning on switching doctors because this doesn't feel like a "harmless" allergy to me.

Thyroid issues?
Michelle Hernandez43 said:Thanks for the advice, Angela Wright. I’d love to "borrow" a priest from your parish, but they're a long way from me 😳
I agree that a gentle priest is the best route, but Mom is insisting on a psychiatrist. I can't tell if she's just hung up on a bad experience from last Christmas...
She's staying in touch with some people she met at the hospital, and honestly, it’s great that she’s the one encouraging them when they're actually the ones struggling more than she is...

Whatever, I'll figure something out. I'm sure I can find a mild-mannered priest somewhere in Miami... and who knows, maybe she won't be so set on a psychiatrist later on...

Anyway, how are you doing? How's your mom?

I know there are some really wonderful priests over at the Health of Mary shrine, and honestly, the easiest way to judge a priest's temperament is just to sit through a Mass and listen to the sermon. Also, the Franciscans are probably your best bet since they're such an outreach-focused order—you could head over to St. Francis and get a feel for them.

Mom hasn't changed; she's still doing just as poorly.😢
Lisa Lopez83 said:Let's hear the questions!
Someone in the family deals with epilepsy. Lecen is currently over in China trying some traditional methods. I'm not sure if they teach things using two different tracks over there—like combining traditional ways with modern medicine.

Look, the meds being imported from China were supposed to wipe the disease out entirely, but all they really did was take the edge off the seizures. They happen less often and aren't as intense. BUT! THE COST!

It's true we aren't relying on barbiturates or those old-school drugs anymore, but still... what do you suggest? Do we revert to the old ways—even though we haven't needed those meds for a long time—and start popping things like phenobarbital and barbiturates again, or do we just keep moving forward?

Seizures are going to happen regardless, one way or another.

You’re saying the seizures are less frequent and milder... so what's the better option then?😳
I don't know everything there is to know about epilepsy as a condition, but from what I understand, every single seizure leaves some kind of damage on the brain. So, in my opinion, the fact that they've become less frequent is actually a huge deal. At this point, it really just comes down to the financial side of things, and that's something only you can decide based on whether you can afford it or not. I can tell you from experience that everything I have goes toward my mom; we've been deep in the red for a long time, and we even cut back on food just to make things easier for her, but that's just how we roll. What I will say is that in this valley of tears, there is always someone willing to step up when things get rough. In the beginning, I found it really hard to accept that kind of help, but I eventually realized that support works both ways—there is just as much nobility in knowing how to accept help as there is in giving it.
Don't be ashamed!
Do whatever you feel is best.