Look, my logic is pretty straightforward: if we’re talking about women in menopause, those ovaries and the uterus—if they’re still functioning or even just sitting there with potential—it might actually be better to just have them removed. I remember this one aunt of mine back in the States, she passed away a while ago, but she had everything taken out. She told me her doctor basically claimed that once you hit menopause, the uterus becomes nothing more than a sponge soaking up toxins. I can't tell if that was just his specific take on her situation or if it’s a broader medical philosophy, but honestly, looking at so many women, it often feels like that's exactly what's happening.
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It’s entirely possible you just stepped into a pothole while you were walking, or honestly, it could just be a glitch in the device itself.
nimblepanther14 said:I’m trying not to jump to conclusions, but of course I’m weighing all the possibilities and mapping out different scenarios.
I had bloodwork done today... tomorrow I'll know where I stand with my white blood cell count, lymphocytes, CRP, and the rest of the markers.
Mapping out scenarios is actually worse than jumping to conclusions because you’re just burning through energy on things that could play out in a billion different ways—and the odds of you guessing correctly are basically zero. You’re just exhausting yourself, stressing out, and spiraling. Honestly, this sounds like someone who, by obsessing over "what ifs" during my situation, ended up on the verge of anorexia and a total mental breakdown within three months. In the end, absolutely nothing that happened over the next three years matched any of my carefully crafted scenarios.
Accept that you might be wrong and just move forward. It's all going to work out.
Grdana, I’m certain you’re going to pull through this just fine. It feels like we share the exact same temperament, and our perspectives on things are pretty much aligned too. Don't let it get to you—spiraling like this only serves to invite more negativity into your orbit. Everything is under control and being handled. Honestly, there is zero reason or logic in jumping to conclusions right now. Just stay strong; before you know it, this will be nothing more than just another life lesson in the rearview mirror.
Nancy Lee said:I am absolutely livid...🙂 So, they gave my dad an IV last night and then just sent him home because the hospital was supposedly "full." His white cell count is at 2.2 and his platelets are 87. Is that dangerously low? They told us those were the worst parts of his blood work, and everything else was relatively fine. I called Jordan, and they said he definitely should have stayed in the hospital, but the staff here is insisting there’s no room. Now they want him coming in every single day for blood draws and will give him another IV if needed. For his cough, they just gave him Panatus forte and claimed it's enough—that there's no point messing around with antitussives right now. How can they say that?! I honestly don't get them. Not only did they kick him out of the hospital, but the man is coughing his lungs out, and their solution is Panatus?! That stuff doesn't even touch a common cold for my little girl, let alone for him. I'm losing my mind. I don't live in the same city, but if I did, they would have heard me screaming from across town.
What should I do? I'm completely lost.
Look, if I were in your shoes, I would take my dad straight back to Jordan and make a scene. He is their patient, and it is their job to stabilize him. If they admit he should have been kept in the hospital, then demand specific, medical reasons why other options aren't suitable for that cough (use those specific medications I mentioned earlier). Make them provide a definitive reason for every single one they refuse.
I wish I could be more helpful, but I'm just not an expert when it comes to lung issues. Maybe try reaching out to Sandra to see if she has any advice.
a I 😢 really hope they actually step up and do something about this now. You should probably head over to Cepulic's office and get a second opinion. It might cost you a bit, but at least you'll finally have some clarity on whether that cough can actually be treated or if you're just wasting your time.
Nancy Lee said:I don't get why she refuses to admit there’s more out there than just Codeine. Maybe it's just that Codeine isn't cutting it for him, and he needs something else entirely. Instead, she just keeps harping on about how Codeine is the gold standard for coughs—as if nothing else in the world could possibly work if that fails.
Hold on, is this guy an oncologist or just a general practitioner?
Nancy Lee said:Dad is still coughing even after his seventh round of chemo, and now he’s lost his appetite entirely. This last round was oral medication—Hyamin—and if I'm judging by how much worse the cough has gotten since then, it feels like it didn't do a single thing to help.
That cough is brutal; it just drains him completely. Like I mentioned before, Codeine isn't doing squat. Neither is Api Syrup, Panatus, or even black radish with honey... nothing works.
Does anyone have any advice? The doctor claims there's nothing they can do because it's caused by the disease itself. I just refuse to believe that we can't at least take the edge off this cough!
Man, 😢
Go ask the doctor if maybe Norvasc could help calm things down, since it has a relaxing effect. Either way, I suspect he's going to need actual antitussics—medications specifically designed to block those cough receptors—likely at higher doses. Besides Codeine, you're looking at morphine, ethylmorphine, dihydrocodeine, hydrocodone, dextromethorphan, folkodine, noscapine, or glucine. Those are all opioid-based antitussics, though there are non-opioid options too, like butamirate, pentoxiverine, or pipazetate. You really need to sit down with the doctor and hash it out.
brisklynx62 said:I wanted to let everyone know that after an 18-month battle... which was 13 months longer than what several doctors predicted... my mother finally found her peace yesterday morning. She's in a place where there is no more pain or suffering. 😢 She fought so hard—truly, heroically, and with such incredible patience, despite unimaginable agony... she pushed through the pain even with massive doses of morphine.
But now, it's over. It's done. The pain is gone.
Goodbye, Mom... until we meet again on the other side. Thank you for everything. ♥
Please accept my deepest, most sincere condolences. Hang in there; may she rest in peace.
Henry Garcia5 said:Can anyone point me toward a skilled oncological surgeon capable of handling a Hemangiopericytoma? Standard therapies just aren't cutting it. I'm looking for a specialist who can actually perform the surgery, regardless of where they are located. We're talking about a woman born in 1980. She previously underwent a procedure at the Mayo Clinic, but the doctors there couldn't fully remove the tumor due to heavy bleeding during the operation. Now, the recommendation is to find a top-tier surgical oncologist who can tackle this specifically. She’s home right now and feeling fine—no major issues so far. Any leads would be greatly appreciated!
http://www.mayoclinic.org/departments-centers/oncology
http://www.mdanderson.org/research/index.html
I highly recommend Dr. Patel over in Oakland. It's been a while since I've seen him, but honestly, the man works miracles.
Jamie Chase said:It’s been about a week and a half since she started the diuretics, and that heavy burden of fluid in her lungs is finally lifting. We're trying to figure out which day to take her in for chest imaging.
You mentioned taking her to a major medical center in Chicago, but if she's in the terminal phase, why bother with the trip? Isn't that just causing her unnecessary suffering? After the surgery, the doctor gave us a window of 3 to 5 years, so I'm totally lost here... if we take her all the way to Chicago, I highly doubt they'll decide to operate on her again after only three weeks.
How does an entire situation escalate this much in just 3 or 4 months!?
I never said she was in the terminal phase; I said things are heading in that direction. You don't necessarily have to rush her up to a big city right away—you're just seeking a second opinion. If it turns out there's still something that can be treated to improve her quality of life, then go for it. Look, there are zero guarantees in life, but at the very least, in the worst-case scenario, you'll know you did everything humanly possible. Let's be real: some people get significantly more time through a combination of good supportive care (like Lasix, for example, though that won't stay effective forever) and palliative therapy than they would without it. But ultimately, this is a personal choice about whether you want to pursue those options or not.
Unfortunately, pleural effusion isn't a good sign, even if there aren't cancer cells floating in that fluid. It’s an indicator that the kidneys and liver are struggling, which puts extra strain on the heart—and frankly, any mechanical drainage just creates a cycle where more fluid builds up later.
Get her to a major medical center in Chicago, because based on what you've described, I’m genuinely worried she might be entering the terminal stage. As for the surgery and everything else mentioned, it's not necessarily the doctor's fault in Mostar. When metastases are spread that extensively, a more invasive surgery wouldn't have made much of a difference anyway. The goal from the jump was about extending quality of life, and that comes down to a physician's strategy and experience.
One more piece of advice: stop comparing her case to everyone else's. A massive amount of variables change the outcome—everything from the specific cancer type and grade to the stage, the location of the metastases, and the exact therapies she's received. You're just creating unnecessary stress and frustration without actually knowing all the critical details. Just focus on her and how to make her as comfortable as possible.
Get her to a major medical center in Chicago, because based on what you've described, I’m genuinely worried she might be entering the terminal stage. As for the surgery and everything else mentioned, it's not necessarily the doctor's fault in Mostar. When metastases are spread that extensively, a more invasive surgery wouldn't have made much of a difference anyway. The goal from the jump was about extending quality of life, and that comes down to a physician's strategy and experience.
One more piece of advice: stop comparing her case to everyone else's. A massive amount of variables change the outcome—everything from the specific cancer type and grade to the stage, the location of the metastases, and the exact therapies she's received. You're just creating unnecessary stress and frustration without actually knowing all the critical details. Just focus on her and how to make her as comfortable as possible.
Rebecca Phillips25 said:Thanks for getting back to me.
I’ll shoot you a DM about which hospital we're talking about; I don't want to go public just yet, at least not until I see how they handle this situation regarding the medical records they're withholding and their demand that I redo the MRI.
Just do exactly what I suggested. Get a lawyer involved, then send a formal cease and desist notice directly to the clinic director's office. Let them figure out their internal drama; honestly, it’s probably cheaper for them to just cough up the cash than to fight this, especially now that their budgets are being slashed.😳
I know plenty of people who have taken this exact route, and it gets settled immediately every single time.
A fellow forum member recently sent me a link to this Facebook group. It’s a sobering look at how even people who consider themselves intellectuals can fall hook, line, and sinker for the smooth-talking rhetoric of extremists—and worse, how they might lack the common sense or basic decency to protect their own children from being subjected to a level of agony that wouldn't even be considered humane for an animal.
https://www.facebook.com/pages/Boran...ref=ts&fref=ts
This is exactly why you need more than just knowledge; you need actual judgment and the guts to stand up for what's right.
https://www.facebook.com/pages/Boran...ref=ts&fref=ts
This is exactly why you need more than just knowledge; you need actual judgment and the guts to stand up for what's right.
Kevin Bishop10 said:I saw my oncologist today, and they pushed my chemo back to next week. My blood work and tumor markers (CA 15-3, CA 19-9, CEA, and PSA) came in. The blood counts look fine, and the markers are within range. For some reason I don't quite get, the doctor decided to switch up my treatment plan. Now he's prescribed cisplatin along with another chemo drug (I didn't catch the name), followed by radiation.
Is this kind of aggressive therapy overkill for metastases in the groin lymph nodes if there isn't a primary tumor present?
What kind of side effects am I looking at with this combo, and any tips on how to make it more bearable?
Thanks in advance for the help!
Since your markers are normal, it’s actually more likely they'll go with a milder chemo regimen. And seriously, how do you walk out of a doctor's office without asking these massive questions or writing down the name of the medication?! Look, man, forget about the side effects for a second—that’s the least of your worries right now, and you deal with that as it comes. You don't even fully grasp what you're dealing with or exactly how the treatment will play out yet. Focus on the big picture first!
ruggedmarlin2, don't go making assumptions based on other people's anecdotes. You don't have the full medical history, and besides, not every tumor is built the same way biologically. There are women out there who have CIN3 and think they have cancer, refuse the necessary surgery, and then it clears up spontaneously—only for them to swear up and down that some grandmother's herbal tea was the miracle cure.
Furthermore, since cancer is categorized into numerous types based specifically on cellular structure, it is biologically impossible for a universal cure to exist now or ever. We have targeted therapies—essentially precision medicines—that act on specific cells. These are administered in strictly controlled doses, where the physician faces criminal liability if they mess up. So, we can't just sit here speculating that cyanide might not be "that bad." It is a proven poison, and people are ingesting it without any oversight. Cancer is a serious systemic disorder at the cellular level, primarily triggered by a compromised immune system and a loss of internal biological equilibrium. The goal is to strengthen that immunity; if toxins are required, they should be administered exclusively by a doctor under rigorous supervision and at exact dosages. Anything else is just playing in the dark, and it usually ends badly. Focus on your mom, her specific diagnosis, and her actual condition. Don't believe everything you hear or everything people claim worked for them. You need hard, written evidence: lab results from before and after, along with written guarantees and signed accountability ensuring that no one is being harmed.
If you head over to page 439, there's a discussion where I explained exactly how these mechanisms work. Read it, just so you don't fall for useless delusions.
Furthermore, since cancer is categorized into numerous types based specifically on cellular structure, it is biologically impossible for a universal cure to exist now or ever. We have targeted therapies—essentially precision medicines—that act on specific cells. These are administered in strictly controlled doses, where the physician faces criminal liability if they mess up. So, we can't just sit here speculating that cyanide might not be "that bad." It is a proven poison, and people are ingesting it without any oversight. Cancer is a serious systemic disorder at the cellular level, primarily triggered by a compromised immune system and a loss of internal biological equilibrium. The goal is to strengthen that immunity; if toxins are required, they should be administered exclusively by a doctor under rigorous supervision and at exact dosages. Anything else is just playing in the dark, and it usually ends badly. Focus on your mom, her specific diagnosis, and her actual condition. Don't believe everything you hear or everything people claim worked for them. You need hard, written evidence: lab results from before and after, along with written guarantees and signed accountability ensuring that no one is being harmed.
If you head over to page 439, there's a discussion where I explained exactly how these mechanisms work. Read it, just so you don't fall for useless delusions.
Beta-glucan is an ingredient you can extract from mushrooms at a much more reasonable price point without sacrificing any of the concentration you'd find in high-end brands like Mykosan. It’s backed by solid clinical studies, too. Just make sure you're buying it exclusively from a pharmacy.
ruggedmarlin2 said:I didn't quite catch what you meant by that.
You really ought to steer clear of this kind of stuff from the day you're born until the day you die—basically, there's never a "right" time to indulge in it.
Benjamin Diaz50 said:Just wanted to give an update for anyone wondering—my mom is going in for surgery tomorrow. She had a nasty fall in the bathroom this past Sunday, hit her head on the tub, and broke her arm. Thank God she’s okay regarding the head injury, but the break in her arm is pretty bad. To make matters worse, it happened on her left arm, which has been dealing with a swollen lymph node for about eight years now.
I’m asking anyone reading this to please keep her in your prayers... I just want her to pull through this safely...
I am honestly terrified that we might lose her...
Her name is Anne
Please, I'm begging you, pray for her 😢😢😢😢😢🙂🙂
The most important thing right now is for you to stay calm. Mom is in great hands with the doctors and Alice is going to be just fine, you'll see. Stay strong, honey—be the daughter she's proud of.
Boeing, send them a cease and desist letter. Honestly, it’s better if you have an attorney handle it—have them include a brief note about the legal penalties they face if they refuse to hand over your documentation. You’ll get those papers the very same day; I know people who have dealt with this exact situation.
Regardless, go there and demand those glass vials, no matter what happens. Make a scene. Threaten them with a lawsuit, call the local news, contact the police. You have rights, so make them look up the regulations in the legal codes—they are legally obligated to comply. Don't you dare leave that building until you get exactly what you came for; nobody can stop you.
Which hospital were you at, please?
Those samples are your top priority because your entire treatment plan depends on them.
Regardless, go there and demand those glass vials, no matter what happens. Make a scene. Threaten them with a lawsuit, call the local news, contact the police. You have rights, so make them look up the regulations in the legal codes—they are legally obligated to comply. Don't you dare leave that building until you get exactly what you came for; nobody can stop you.
Which hospital were you at, please?
Those samples are your top priority because your entire treatment plan depends on them.