Posts by Hannah Garcia122

Has anyone else dealt with something like this? I’m seriously looking for some advice here.

So, ever since I got back from my beach trip, I’ve noticed this weird, lighter patch on my skin. It looks almost like it's peeling... at first, I just figured it was the standard post-sun exfoliation, you know, like my skin was just shedding after too much time under the sun.

But the thing is, the spot keeps spreading. And it’s starting to itch, though just a tiny bit.
To give you guys a better idea of what I'm talking about: it honestly looks like I got a nasty sunburn in that specific spot, and every single time I take off my black leggings, there's like a million tiny flakes left behind on the fabric.

I actually went to see my doctor, and she prescribed this medicated shampoo, but honestly? It hasn't done a damn thing.

Please, if you have any ideas, let me know.

thanks everyone...

look, I’m not saying we should just scrap therapy altogether... I’m just trying to get a pulse on what you all think... because honestly, sometimes a collective brain is smarter than just one single head...

I've already picked up so much useful info and different perspectives from all of you, and that’s exactly what I was hunting for... this whole thing is still pretty new territory for me...

Obviously, I'm going to listen to the professionals—the doctors and everything—but I want to hear from YOU guys too!

At the end of the day, if nothing else works, I feel better... so hopefully that actually means something... tnx

thanks...
but I’m low-key spiraling here... not saying I’m losing my mind, but I just want what’s best, you know? I’ve heard way too many horror stories about people getting stuck on the wrong treatments, and I am definitely not willing to take that kind of gamble with my own life...

The latest plan they gave me is... Apilepsin drops, 300mg/1ml for 10 days... then a follow-up appointment... and we see where it goes from there...

She’s looking pretty in Scarlett... but the seizures are hitting her 5 or 6 times a day now... sometimes less... today I actually noticed another "blackout" right when she was walking out the door—I'm thinking maybe the sudden change in light triggered it? Or maybe I'm just overthinking things... do you guys think wearing sunglasses might actually help?

It's hard to pinpoint exactly what's causing them... I don't think it's exhaustion because her "to-do list" and how much sleep she's getting seem totally fine... honestly, I don't even know anymore... I'm just watching everything closely, but still...

thanks again!!!

Smith... hey, what ended up happening with your brother? Did he just bounce back on his own or did he need meds to get through it?? How long did the whole thing last, and at what age? Sorry if I'm being a bit of a nuisance, just really trying to figure this out....🙂 😢

Look, please just ignore posts like this one... honestly, she’s either clearly joking or she’s genuinely unwell, and I really hope she's already checking in with some doctors at a place like the Mayo Clinic...

If you have a spare second, go check out that other thread about childhood epilepsy instead. If you can, try to drop some actual, helpful advice there for the people who are truly going through it and actually need the support...

Thanks a million!

...honestly, I’m just sitting here wondering when they're actually going to get the therapy right for her...
it looks like they’re going to bring epilepsy into the mix, and then there’s that syrup they’ve been talking about...
I can't help but feel a little jealous—not really, but you know what I mean—that things never took a turn for the worse with you (thank God for small mercies)...

Thanks so much for the help... it actually caught me a bit off guard that you were the only one to jump in and reply... I really do value your time

Thanks!

thanks... honestly, it’s such a relief knowing I’m not just out here spinning my wheels alone...
I’ve got this gut feeling that the kid is just hyper-sensitive and extra perceptive, and maybe that’s the whole reason behind everything...
They’re actually getting plenty of sleep, but when it comes to eating, their appetite is pretty much non-existent...

Anyway, I’ll just hang tight and see if anyone else weighs in...

Man, what you said about potentially collapsing because of traffic or whatever really hit a nerve... it’s terrifying. It’s not like we’d ever let them wander off by themselves, but now? Now I can’t even wrap my head around the idea of them crossing the street solo without freaking out...

Have you had a chance to run all this by a doctor yet?
Thanks again, seriously....

G40.3 Generalized idiopathic epilepsy and epileptic syndromes Benign:
• myoclonic epilepsy in infancy
• neonatal convulsions (familial)
Childhood absence epilepsy [pyknolepsy]
Epilepsy with grand mal seizures on awakening
Juvenile:
• absence epilepsy
• myoclonic epilepsy [impulsive petit mal]
Nonspecific epileptic seizures:
• atonic
• clonic
• myoclonic
• tonic
• tonic-clonic

Hey everyone...
I’m honestly feeling pretty lost right now, so I’m coming back to you guys because I really need some help...
My 7-year-old daughter—for about six months now, she’s been having these moments where she just stares off into space. She’ll completely stop whatever she’s doing, totally blank out for anywhere from 5 to 30 seconds... it’s like she just shuts down. Sometimes she even rocks back and forth a little bit while it's happening...
She was actually my first child from a pregnancy that went perfectly smooth...
After we talked to her pediatrician, they suggested trying some Pentidan syrup at 250 mg. They told us it was supposed to be a mild option to try out first, but I haven't been able to find it anywhere... apparently, it's an import, so I'm still hunting for it. We were at the doctor's office this past Friday, so the search continues tomorrow...

Has anyone here actually dealt with something like this personally, or maybe had a kid go through it? What should I be expecting, and what steps should I be taking next...
Please, if you have any advice, let me know
Anything helps at all

Also, should I totally ban TV and computer time? (Though she doesn't really watch much screen time anyway, definitely under two hours a day)

The diagnosis listed on her paperwork says G 40.3 ?????? Does anyone actually know what that means...

THANK YOU SO MUCH IN ADVANCE