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Posts by gentlemoose62

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Morgan Foster75 said:Does anyone happen to know if you can just show up at Aviano without an appointment? Will they see us if we just walk in? Thanks in advance!

I really doubt they'll see you if you just show up out of the blue! My best advice is to give them a call... ask for the specific oncology clinic you need, and once you get through, make an appointment. Some doctors only have outpatient hours once a week. If you have a specific doctor in mind, try asking to speak with them directly or just coordinate a time through their nurse...
Hey Nancy Hernandez43! Ugh, I am so incredibly sorry to hear about the recurrence. But listen, you know as well as I do that this doesn't mean remission is off the table. Honestly, if she’s already on her sixth round of chemo, it means her body is responding well and she's actually making progress toward getting back to remission! How did her markers look when the recurrence happened?
Remember me—I dealt with two recurrences in my lymph nodes. I'm thinking of you guys all the time, we're in this together... If there is absolutely anything I can do, or if she just needs someone to talk to... I'm right here, we'll just figure out a time, okay? If she wants, I can send my number over via DM.
In any case, I'm crossing my fingers😉 that she powers through this sixth round and finally puts this thing to rest for good!
Nancy Hernandez43 said:I haven't been around here long, but things aren't getting any easier back home either... honestly... the number of people sick in our family keeps growing...

But every fight, every new struggle, every ounce of effort and willpower just makes us stronger.

Right now, we really need a supplement to help boost the immune system. We used to use Ensure... can someone briefly explain how to get it, where it's cheapest, and any other important details doctors usually leave out?

Thanks in advance, and hang in there, fighters!

👋 Hey, you've been gone a while! I was actually thinking about you and your mom the other day. How is she doing? Is she still going to Aviano? And did that issue—the swollen lymph nodes, right?—did that end up being a recurrence or is everything still okay?
I'm so sorry to hear someone else in your family is dealing with this, but I really hope there's still ways to help!
A specialist should recommend Ensure (or Prosure if they have diabetes), and then your primary care doctor can write the prescription. Don't spend your own money on it unless you absolutely have to!
It’s basically a complete meal replacement and can be taken 2-3 times a day, but your specialist will give you the exact plan. Personally, I used to love those tasty fruit purees made for kids...😛
The main thing is that it tastes good and is easy on the stomach.
Hang in there, and please check in on Zanovidan once you're settled!😉
🙏🙏🙏: I don't pop in here nearly as much as I used to, and I write even less often, but when I see something like this, I just can't help myself... it's a brand new birthday and you've got to celebrate it right!🙂
Hey Ko-ka,

It's been a while since we talked! How did everything go at the Mayo Clinic for your mom’s checkup, her PET scan, and all that?
I'm really crossing my fingers that everything is still looking good...👍
Let me know!
Sam Murphy33 said:She just let go....thank you all so much...she didn't fight it, she just surrendered...

I am so incredibly sorry, honey. When the time comes, we all have to let go, and everyone chooses their own moment... please don't let this weigh on you... what matters most is that you fought for her for as long as she wanted you to...
Nancy Hernandez43,
👍I really hope this fifth round of treatment does its magic🙂 and finally clears everything up!

I’m rooting for that for everyone else out there fighting the good fight right now too...
Lisa Mendoza said:Hi everyone! My husband was diagnosed with ovarian cancer (small cell carcinoma) 15 months ago. He’s already gone through two surgeries and 13 rounds of chemo. Just three days ago, an ultrasound showed enlarged lymph nodes again. It hasn't even been three months since his last chemo session, and it's been nine months since his second surgery. Now they’re looking at more surgery and likely more chemo. Has anyone else navigated this? What kind of chemo protocol or specific drugs did you receive? Also, are there any supplements you found helpful? And did anyone combine radiation with their chemo? Thanks so much!

I dealt with ovarian cancer too, though a different type (epithelial, serous), so the treatment plans and chemo types vary quite a bit. I ended up needing two surgeries because of swollen lymph nodes, and my last round of chemo (which was about five years ago) was just Taxol once a week. For me, combining that with surgery was the winning formula!
Since small cell carcinoma is such a rare and aggressive type in younger women, the fact that they’re moving forward with surgery is actually a good sign—it suggests it hasn't spread too far. I truly believe that with surgery, chemo, and the right radiation, the outcome can be great. Don't lose hope! I actually found this case study about a woman who couldn't handle chemo at all due to health issues but ended up being cured just through radiation (ten years later!).http://www.ncbi.nlm.nih.gov/pubmed/19051830
Like many others, I made some dietary shifts... I cut out meat and dairy and really cut back on sweets. I take Broccoli extract regularly—6 capsules a day—and try to drink at least 1.5 liters of water or unsweetened tea (something I never used to do). I also took things like Noni, Aloa, and Immunomax every now and then...
Hang in there, stay strong!👍
wanderingharbor61 said:My mom lost her fight with melanoma yesterday... she just stopped breathing, went out like a candle flickered out...🙂

🙂Stay strong! Sadly, there was nothing you could have done to stop it... all you could do was love her even more, and I know you did. Trust me, as the years go by, that love... that part of her, will stay alive in your heart forever...
Amy Hayes28 said:My dad passed away...😢
thanks Jane and everyone who reached out to support us during this tough time.

🙂Stay strong. Sending my deepest condolences to you and your whole family...
My dearest Dina

People as special as you were are truly rare, and you touched so many lives with your spirit... and now, 🙂with your passing, you leave such a void. You were our guardian angel then, and you always will be.

Sending my deepest condolences to her family and loved ones, because if it feels this heavy for us...🙂
slyjackal38 said:My dear Dundo passed away on January 9th. It was absolutely heartbreaking getting that phone call at 12:25 AM. If he were still here, he would have turned 53 today.
Thank you all so much for the advice and support.
I definitely plan to stay active here and try to help everyone else by sharing everything I've learned about this sneaky disease.

I am so incredibly sorry.🙂
By staying involved and helping others in this thread, it’s almost like... your dear Dundo will live on through you!
Honestly, I’ve just got one simple wish... for all of you, my dear friends, and for myself too... HEALTH! Everything else can wait or find another way, but many people don't get a second chance at time!
Love yourselves and your loved ones!
Zendaya, I'm so sorry...🙂
Grace Fowler said:Hey everyone!!!🙂

Here I am, bags all packed and ready to go...😁So, I’m heading into the hospital tomorrow, and if everything goes smoothly, surgery is set for Monday! Since I’ve been through my fair share of this stuff, I pretty much know what to expect... So please, everyone, cross your fingers tightly for me on Monday so everything goes perfectly... :-)

I'll check back in with you guys once I'm home... until then, stay STRONG and just keep fighting...
Vasa...🙂

Don't you worry about Monday... we're all right here rooting for you! Fingers crossed...👍
Just a bummer of a papaya...🍿Well, if you haven't already, you might as well make it look good... 🙂Spider in his bed... just thinking about how everything is going to work out for the best! I'm absolutely certain you'll handle the physical side of this like a total champ, just like you always do, and your spirit will carry you through the rest...!

We love you, Grace Fowler...!🙂
Grace Fowler said:Hey there, Springfield crew!!!
I'm back in the arena and ready to fight... here's the deal: this Monday, I've got an appointment with my abdominal surgeon. Even though the scans aren't great, he told me we still have plenty of ammo left to fight this. He’s going to try to shrink that pelvic tumor mass using electrocautery—which, if I understood correctly, is like using an electric current to burn it away?! Hopefully, that will ease up some of the pelvic symptoms. I also sat in on the oncology board meeting today, and once this procedure is done, we jump straight into chemo. The plan is either Velcade or Gemzar, provided my kidneys can handle it (fingers crossed, since my surgery last Friday to place a stent should help things along). It feels like new doors are opening again, and honestly, I see so many possibilities despite what certain people say about my prognosis. Over the last few months, they've tried to write me off more than a few times, but hey... I'm still standing! :-) Ovarian cancer is a beast, but I truly believe that when you align the healing of the body with the strength of the soul, magic happens.
So, I am sending BIG, STRONG positive vibes to EVERYONE out there. Don't you ever, EVER give up...
WARM REGARDS FROM DIANA : five:

What can I even say🙏! In this endless match of yours, you just... I don't know how you do it... you always manage to take down the opponent... and several of them at once too! And look at you, right back in the LEAD! Diana, Diana... can you feel all our strength behind you?
Crossing my fingers for you so hard👍
Grace Fowler said:Hey my dear friends—I’m calling you dear because you really are... I'm checking in with the toughest news I've ever had to share here.
The PET scan results were pretty rough; there are positive lymph nodes everywhere, literally from my neck down to my pelvis. Just gross. The biopsy on the neck node confirmed what the scan showed: we're looking at adenocarcinoma. The one silver lining is that the stent placement in my right kidney worked, so there's a real chance I can get systemic chemo to try and shut this thing down. If I sound a bit down, please don't take it personally, but my will to live is still HUGE and I am not giving up. I'm heading to an oncology consultation in a few days to see what our next moves are.
PLEASE, MY FRIENDS, when you read this, don't be sad—just cross your fingers and think, YOU CAN DO THIS, DIANA!!!
Your support and good vibes mean the world to me.
Sending hugs
Diana!!

Sweetheart 🙂...I can't lie and pretend I'm not heartbroken reading this, but I know that incredible WILL TO LIVE of yours. No matter how heavy things feel, I can already see hope and new plans peeking through your words... your strength honestly gives me chills! Oh honey... you absolutely CAN and WILL do this!
Systemic therapy can make such a huge difference, and👍 I really hope you get it started!

Ugh, just awful 😠 you have no idea how much you're going to crush this!
rapidseal49 said:At 6:30 this morning, we lost another young soul...😢

My cousin, Peter (24), passed away from complications from a serious illness....😢

Hang in there, everyone, stay strong......

I am so sorry 🙂 my heart goes out to you and your family.
Angela Wright said:Dina, I heard things got complicated and you ended up in the hospital😢. Please let us know how you're doing as soon as you see this, or have your husband reach out. We're all so worried about you! If you need anything at all, just say the word.
We love you!

Thanks Ivan for letting us know.
Dina... we're right here with you, keeping everything crossed that those complications clear up fast...
🙂
quietpilot87,
Honey, please accept my deepest condolences. You can tell... you're at peace, and that matters so much, because you did everything possible to make sure her soul could fly high just like she deserves.