wiredhound522 said:Hey everyone,
I was wondering if anyone here has dealt with this specific type of Lymphoma—I’d love to hear some "real world" experiences if you don't mind sharing...
Everywhere I look, it says this kind of Lymphoma is incurable and that it just keeps coming back, so I'm really curious to hear from people who have actually been through it—things like how long remission lasted, if anyone actually reached full recovery, and all that sort of thing.
Thanks so much!!!
Dear everyone...
I’m really not sure if this information will still be useful to any of you after all these years...
👍
I personally went through a battle with large B-cell Non-Hodgkin lymphoma back in 2004—and even though the mortality rate sits at around 50%, I managed to pull through...
One morning, I woke up to find this egg-sized swelling right in my armpit—it was quite a shock. For nine days straight, absolutely nothing happened... it didn't grow, and it didn't even hurt...
After that, I headed over to my doctor at the local hospital—they ended up performing a biopsy on the growth to get it analyzed...
Within twenty-four hours of the puncture, this unbearable pain set in—honestly, I thought I was going to lose my mind...
And then, that damn thing just started growing—so fast, too... within fifteen days, the lump in my armpit had swelled up to the size of a handball, and the pain was just absolutely excruciating...
At the Holy Spirit hospital, they determined there isn't any inflammation present—so they told me to head over to Mercury instead...
At Mercury, they kept me under observation right away—they really put me through the ringer with tests—and then I was stuck waiting ten days for my results... all while dealing with those awful pains and my lymphoma growing...
They've decided to go ahead with surgery—and they're planning to remove that large growth while they're at it...
I've been having my wound dressed every two days, yet it still hasn't healed after a full month...
It’s been about a month since I started dressing the area, but lately, that lymphoma node has started growing again—bit by bit—until it's roughly the size of a ball...
It wasn't until then that they finally realized they'd completely missed my chemotherapy dose...
They've scheduled me for six rounds of chemotherapy—one treatment every fifteen days...
After just one week, that ball-sized lymphoma has completely vanished...
The chemotherapy was just unbearable—it felt like everything was under attack, from my toenails right up to the last hair on my head. Between the constant vomiting and my liver swelling by over 17 cm... I didn't get a single decent night's sleep for three months...
I’d honestly rather die than have to face a seventh round of chemo...
And after that, little by little, I started to find my way back...
At first, I made an effort to show up for all my follow-up appointments—but after a while, I just couldn't do it anymore... honestly, even the mere thought of sitting in that waiting room was enough to make me nauseous.
The fundamental challenge when it comes to treatment is that delicate moment where you have to touch, biopsy, puncture, or perform surgery on a lymphoma node...
If they had just started my chemotherapy right away, I think the recovery process would have been so much easier—faster, too, and honestly, a lot less painful...